Name Info Provider Link
subscription/membership/fee required IOS Press https://ebooks.iospress.nl/Extern/EnterMedLine.aspx?ISSN=0926-9630&Volume=192&SPage=529
Rare Diseases free resource MedlinePlus Health Information https://medlineplus.gov/rarediseases.html
free resource PubMed Central https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/23920611/
free resource Europe PubMed Central https://europepmc.org/abstract/MED/23920611