Detalhe da pesquisa
1.
Exploring Reproductive Experiences With Women Enrolled in the International Vasculitis Pregnancy Registry.
J Rheumatol;
2024 Jun 01.
Artigo
em Inglês
| MEDLINE
| ID: mdl-38825350
2.
Reproductive Outcomes for Women with Vasculitis.
J Rheumatol;
2024 Jun 01.
Artigo
em Inglês
| MEDLINE
| ID: mdl-38825354
3.
Direct-to-Consumer Recruitment Methods via Traditional and Social Media to Aid in Research Accrual for Clinical Trials for Rare Diseases: Comparative Analysis Study.
J Med Internet Res;
25: e39262, 2023 03 14.
Artigo
em Inglês
| MEDLINE
| ID: mdl-36917158
4.
A novel approach to conducting clinical trials in the community setting: utilizing patient-driven platforms and social media to drive web-based patient recruitment.
BMC Med Res Methodol;
20(1): 58, 2020 03 13.
Artigo
em Inglês
| MEDLINE
| ID: mdl-32169041
5.
Harnessing health plan enrollee data to boost membership in patient-powered research networks.
BMC Health Serv Res;
20(1): 462, 2020 May 25.
Artigo
em Inglês
| MEDLINE
| ID: mdl-32450857
6.
Clinical Characteristics of an Internet-Based Cohort of Patient-Reported Diagnosis of Granulomatosis With Polyangiitis and Microscopic Polyangiitis: Observational Study.
J Med Internet Res;
22(7): e17231, 2020 07 20.
Artigo
em Inglês
| MEDLINE
| ID: mdl-32459634
7.
Impact of vasculitis on employment and income.
Clin Exp Rheumatol;
36 Suppl 111(2): 58-64, 2018.
Artigo
em Inglês
| MEDLINE
| ID: mdl-29352849
8.
Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study.
J Med Internet Res;
19(2): e50, 2017 02 28.
Artigo
em Inglês
| MEDLINE
| ID: mdl-28246067
9.
Self-Reported Data and Physician-Reported Data in Patients With Eosinophilic Granulomatosis With Polyangiitis: Comparative Analysis.
Interact J Med Res;
11(1): e27273, 2022 May 25.
Artigo
em Inglês
| MEDLINE
| ID: mdl-35612893
10.
Diagnostic delays in vasculitis and factors associated with time to diagnosis.
Orphanet J Rare Dis;
16(1): 184, 2021 04 21.
Artigo
em Inglês
| MEDLINE
| ID: mdl-33882989
11.
Effects of the COVID-19 Pandemic on Patients Living With Vasculitis.
ACR Open Rheumatol;
3(1): 17-24, 2021 Jan.
Artigo
em Inglês
| MEDLINE
| ID: mdl-33784021
12.
Patient involvement in medical research: what patients and physicians learn from each other.
Orphanet J Rare Dis;
14(1): 21, 2019 01 24.
Artigo
em Inglês
| MEDLINE
| ID: mdl-30678705
13.
Data linkages between patient-powered research networks and health plans: a foundation for collaborative research.
J Am Med Inform Assoc;
26(7): 594-602, 2019 07 01.
Artigo
em Inglês
| MEDLINE
| ID: mdl-30938759