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1.
Support Care Cancer ; 28(3): 1523-1533, 2020 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-31280363

RESUMO

PURPOSE: The study adopted a randomized controlled trial to compare the effect of culturally compatible psychosocial interventions on multiple aspects of quality of life (QoL) for family caregivers of lung cancer patients. METHODS: 157 Chinese informal caregivers of lung cancer patients were recruited together with the family members for whom they were providing care, and randomly assigned to either integrative body-mind-spirit intervention (I-BMS) or cognitive behavioral therapy (CBT). Patient-caregiver dyads attended the same arm of intervention in separate groups for 8 weeks. Assessments of generic QoL, anxiety, depression, perceived stress, insomnia, and caregiving burden were measured before intervention (T0), within 1-week (T1), 8-week (T2), and 16-week (T3) post-intervention. RESULTS: Adopting the intention-to-treat analysis, family caregivers in receipt of both I-BMS and CBT exhibited a statistically significant improvement in generic QoL immediately following intervention and at follow-up assessments, with moderate effect size. Improvement of insomnia was found at T1 for both modes, which deteriorated at follow-up; both modes reduced anxiety and perceived stress at follow-up. No intervention effect was observed in depression and domains of caregiving burden. There was no significant interaction effect between intervention type and time. No main or interaction effect between sample background variables and intervention type was found to predict symptomatic changes at T1 and T3. CONCLUSIONS: Culturally attuned I-BMS and CBT exhibited equivalent effectiveness in improving psychological distress and generic QoL for family caregivers of lung cancer patients. To improve the evaluation of outcomes, future study could benefit from incorporating a usual care control.


Assuntos
Cuidadores/psicologia , Terapia Cognitivo-Comportamental/métodos , Família/psicologia , Qualidade de Vida/psicologia , Terapias Espirituais/métodos , Adulto , Ansiedade/psicologia , China , Depressão/psicologia , Feminino , Humanos , Neoplasias Pulmonares/terapia , Masculino , Pessoa de Meia-Idade , Distúrbios do Início e da Manutenção do Sono
2.
J Psychosoc Oncol ; 38(4): 389-405, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32146876

RESUMO

Purposes/objectives: This paper reports the comparative efficacies of integrative body-mind-spirit intervention (I-BMS) and cognitive behavioral therapy (CBT) in patient-caregiver parallel groups for Chinese patients with lung cancer.Design: Randomized controlled trial (RCT).Methods: One hundred and fifty-seven patient-caregiver dyads with no marked functional impairment were randomized into one of the two interventions with eight weekly patient-caregiver parallel groups. Assessments were conducted at baseline, within one, eight- and sixteen-weeks post-intervention. Effects of treatment group across time were analyzed by multilevel modeling.Findings: CBT led to greater reduction in emotional vulnerability than I-BMS. I-BMS resulted in greater increase in overall QoL and spiritual self-care, and more reduction in depression than CBT. Patients in both interventions experienced improvement in physical, emotional and spiritual, except social, domains of QoL.Conclusion: I-BMS was more efficacious for diverse domains of QoL, and CBT was more effective for emotional well-being, despite the relatively small between-group effect sizes.Implications for psychosocial providers/policy: (1) With the expanding repertoire of psychosocial interventions for families facing lung cancer, it has become imperative to investigate the comparative efficacies of empirically supported and culturally adapted interventions. (2) Our findings show that I-BMS was more effective for diverse domains of QoL, while CBT was more efficacious with emotional well-being, although both interventions led to significant improvements in physical, emotional and spiritual domains of patient QoL. (3) Patient-caregiver parallel groups have been shown to be effective for enhancing QoL of Chinese lung cancer patients. (4) Care professionals are encouraged to dispense interventions based on the idiosyncratic needs and preferences of the patients to maximize the treatment effects.


Assuntos
Cuidadores/psicologia , Terapia Cognitivo-Comportamental/métodos , Relações Interpessoais , Neoplasias Pulmonares/psicologia , Neoplasias Pulmonares/terapia , Terapias Mente-Corpo/métodos , Pacientes/psicologia , Idoso , China , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pacientes/estatística & dados numéricos , Qualidade de Vida , Resultado do Tratamento
3.
J Evid Inf Soc Work ; 15(3): 258-276, 2018.
Artigo em Inglês | MEDLINE | ID: mdl-29400621

RESUMO

Compared to cancers at other sites, lung cancer often results in greater psychosocial distress to both the patients and their caregivers, due to the poor prognosis and survival rate, as well as the heavy symptom burden. In recent years, making protocols of proposed or on-going studies publicly available via clinical trial registries and/or peer-reviewed journals has benefited health sciences with timely communication of the latest research trends and improved transparency in reporting. However, such practice is yet to be a common sight in evidence-informed social work. Hence, this paper discusses the value of publishing protocols in social work research and presents the protocol of a randomized controlled trial that compares the effectiveness of integrative body-mind-spirit intervention with cognitive behavioral therapy for enhancing quality of life of patients with lung cancer and their family caregivers. The data collection process was still on-going at the time of manuscript submission.


Assuntos
Cuidadores/psicologia , Terapia Cognitivo-Comportamental/métodos , Neoplasias Pulmonares/psicologia , Terapias Mente-Corpo/métodos , Pacientes/psicologia , Consumo de Bebidas Alcoólicas/epidemiologia , Feminino , Nível de Saúde , Humanos , Neoplasias Pulmonares/epidemiologia , Masculino , Saúde Mental , Terapias Mente-Corpo/psicologia , Estadiamento de Neoplasias , Qualidade de Vida , Projetos de Pesquisa , Fumar/epidemiologia , Fatores Socioeconômicos
4.
Patient Educ Couns ; 60(2): 201-5, 2006 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-16442461

RESUMO

The self-help movement in Hong Kong has been gradually gaining its momentum in recent years. The primary purpose of the research was to give voice to the experiences and views of patients towards cancer care and to influence healthcare providers and policy makers to act on patients' agendas. Self-help groups and their members are mobilized through the research activities of focus groups, interviews and a patient forum to specify and act on their needs. This article describes the project and the participatory action research (PAR) strategies in the mobilization of, and collaboration with, patient groups in research design, data analysis, and dissemination of findings. The implications on healthcare practice, particularly within an era of reform and restructuring of the healthcare system, are discussed.


Assuntos
Serviços de Saúde Comunitária , Continuidade da Assistência ao Paciente , Neoplasias/reabilitação , Satisfação do Paciente , Grupos de Autoajuda , Serviços de Saúde Comunitária/organização & administração , Pesquisa sobre Serviços de Saúde/métodos , Hong Kong , Humanos , Sobreviventes
5.
Patient Educ Couns ; 47(1): 13-21, 2002 May.
Artigo em Inglês | MEDLINE | ID: mdl-12023096

RESUMO

This paper reports the results of a qualitative study that examined the experiences of cancer patients with the intention of incorporating consumer perspectives into the development of quality cancer care in Hong Kong. Altogether, eight focus group interviews were conducted with a total of 41 cancer patients. The results indicate that patients lack clear guidance and support regarding the management of sequelae and surveillance against recurrence. Patients also raised concerns about the lack of access to information, and the lack of health care provider accountability. Any understanding of the scope and goals of follow-up cancer care is obscured when the healthcare environment is not conducive to good doctor-patient communication. Patients are calling for more explicit goals and clinical practice guidelines to serve as frames of reference for both patients and doctors.


Assuntos
Assistência ao Convalescente/normas , Neoplasias/terapia , Satisfação do Paciente , Assistência ao Convalescente/psicologia , Comunicação , Feminino , Grupos Focais , Hong Kong , Humanos , Masculino , Pessoa de Meia-Idade , Neoplasias/psicologia , Educação de Pacientes como Assunto , Relações Médico-Paciente , Recidiva , Inquéritos e Questionários , Resultado do Tratamento
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