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1.
Age Ageing ; 51(7)2022 07 01.
Artigo em Inglês | MEDLINE | ID: mdl-35796135

RESUMO

BACKGROUND: cognitively impaired hospital patients often experience agitation and aggression due to pain. Agitation complicates care, increasing the risk of adverse outcomes and patient-to-nurse violence. Managing agitation is challenging for nurses. Literature suggests they may rely on antipsychotics while missing other more appropriately targeted treatments. However, nurses' management of agitation remains unclear and under-researched. OBJECTIVE: the aim of this study was to investigate hospital nurses' management of agitation in older cognitively impaired patients with pain. DESIGN: this was a descriptive correlational study using virtual simulation. SETTING AND PARTICIPANTS: a total of 274 registered medical and surgical nurses from 10 public hospitals in Queensland, Australia participated in the study. METHODS: nurses undertook a virtual simulation requiring them to manage agitation in a patient with dementia and an injury. Nurses also completed a post-simulation questionnaire. Their simulation performances were correlated with demographics such as seniority, workplace, training, experience and gerontology-specific knowledge. Constructed from an original, validated vignette, the simulation included branching pathways, video scenarios and an avatar that could converse with participants. RESULTS: thirteen nurses (4.7%) recognised and treated the virtual patient's agitation as pain-related. Most nurses (89%) gave antipsychotics of which 207 (78%) gave these first-line and 102 (38%) used them twice. Independent of other variables, nurses most likely to diagnose pain were dementia-unit nurses (OR = 8.7), surgical-unit nurses (OR = 7.3) and senior nurses (OR = 5). CONCLUSIONS: hospital nurses predominately managed agitation with antipsychotics, a decision that most made after undertaking inadequate patient assessments. This confirmed a common gap in practice that may lead to the missing of pain in the clinical care of agitated patients with dementia and/or delirium.


Assuntos
Antipsicóticos , Demência , Enfermeiras e Enfermeiros , Idoso , Antipsicóticos/uso terapêutico , Demência/complicações , Demência/diagnóstico , Hospitais , Humanos , Dor/diagnóstico , Dor/tratamento farmacológico , Dor/etiologia
2.
Clin Gerontol ; 45(5): 1130-1143, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-34962455

RESUMO

OBJECTIVES: Spouses are at risk of poor psychosocial outcomes following placement of their partner with dementia into long-term care. The Residential Care Transition Module (RCTM) is a psychosocial intervention developed in the United States to support carers post-placement. This study aimed to test the RCTM delivered by telephone to Australian spousal carers. METHODS: A small-scale RCT [N = 21] was conducted to test feasibility of recruitment, retention, acceptability, and preliminary effects on measures of stress, grief, depression, guilt, quality-of-life, and satisfaction with care, compared to a group receiving printed information. RESULTS: The Transition Counselor and study participants considered the intervention delivery, dose, and content as acceptable. Retention was high (91%). At follow-up, significant time effects were found for stress, depression and "nursing home hassles." A significant interaction effect was found for quality-of-life in favor of the comparison group. No effects were found for guilt or overall grief, however a promising result regarding the sub-scale of "acceptance of loss" was found in favor of the RCTM. CONCLUSIONS: The delivery of the RCTM to Australian spousal carers was feasible and acceptable. CLINICAL IMPLICATIONS: The RCTM shows potential for improving support to spouses of people with dementia following long-term care placement.


Assuntos
Demência , Austrália/epidemiologia , Demência/terapia , Humanos , Transferência de Pacientes , Projetos Piloto , Cônjuges
3.
Int Psychogeriatr ; 30(7): 1019-1026, 2018 07.
Artigo em Inglês | MEDLINE | ID: mdl-29198287

RESUMO

ABSTRACTBackground:Behavioral and psychological symptoms of dementia (BPSD) are a common problem in long-term care facilities (LTC). Clinical guidelines dictate that first-line treatments for BPSD are psychosocial and behavioral interventions; if these are unsuccessful, psychotropic medications may be trialed at low doses and their effects can be monitored. METHODS: There have previously been no studies with nationally representative samples to investigate psychotropic administration in LTCs in Australia. This study determines the prevalence of psychotropic administration in a representative stratified random sample of 446 residents living with dementia from 53 Australian LTCs. Questionnaire and medical chart data in this study is drawn from a larger cross-sectional, mixed methods study on quality of life in Australian LTCs. RESULTS: It was found that 257 (58%) residents were prescribed psychotropic medications including: antipsychotics (n = 160, 36%), benzodiazepines (n = 136, 31%), antidepressants (n = 117, 26%), and anti-dementia medications (n = 9, 2%). BPSD were found to be very common in the sample, with 82% (n = 364) of participants experiencing at least one BPSD. The most prevalent BPSD were depression (n = 286, 70%) and agitation (n = 299, 67%). CONCLUSIONS: Although detailed background information was not collected on individual cases, the prevalence found is indicative of systematic industry-wide, over-prescription of psychotropic medications as a first-line treatment for BPSD. This study highlights a clear need for further research and interventions in this area.


Assuntos
Sintomas Comportamentais , Demência , Depressão , Psicotrópicos , Qualidade de Vida , Idoso , Idoso de 80 Anos ou mais , Austrália/epidemiologia , Terapia Comportamental/métodos , Sintomas Comportamentais/diagnóstico , Sintomas Comportamentais/tratamento farmacológico , Estudos Transversais , Demência/epidemiologia , Demência/psicologia , Demência/terapia , Depressão/diagnóstico , Depressão/tratamento farmacológico , Feminino , Instituição de Longa Permanência para Idosos/estatística & dados numéricos , Humanos , Masculino , Casas de Saúde/estatística & dados numéricos , Prevalência , Psicotrópicos/administração & dosagem , Psicotrópicos/classificação , Inquéritos e Questionários
4.
Aging Ment Health ; 21(11): 1197-1205, 2017 11.
Artigo em Inglês | MEDLINE | ID: mdl-27454453

RESUMO

OBJECTIVES: Wandering-related boundary transgression (BT) in long term care (LTC) frequently manifests as intrusion into another resident's bedroom and is associated with adverse outcomes (loss of privacy, resident-to-resident altercations, and becoming lost). This observational study is the first to empirically describe the characteristics of wandering-related BT in LTC residents with severe dementia. METHOD: Using real-time observation, seven independently ambulant residents with severe dementia and a positive history of wandering and BT were observed for a minimum of twelve 30 minute periods randomized over two non-consecutive days (n=92 observation periods). Frequency and duration of locomoting/non-locomoting phases and BT (entry into out of bounds/private space), patterns of ambulation (direct, random, pacing, and lapping), and activities observed during BT were measured during observation periods. RESULTS: Across 431 locomoting phases, 58 (13%) resulted in a BT and the bedroom of another resident was most frequently (86%) involved. BT was statistically associated with random ambulation and peak activity periods, and was observed more often in those with more frequent ambulation. Most BT events were unwitnessed by others and occurred when the participant was alone. CONCLUSIONS: Describing BT has increased understanding of when, where, and how BT occurs and provides background for future intervention research.


Assuntos
Demência/fisiopatologia , Instituição de Longa Permanência para Idosos , Relações Interpessoais , Assistência de Longa Duração , Caminhada/fisiologia , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Índice de Gravidade de Doença
5.
Int Psychogeriatr ; 27(10): 1739-47, 2015 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-25899853

RESUMO

BACKGROUND: Dementia is a chronic illness without cure or effective treatment, which results in declining mental and physical function and assistance from others to manage activities of daily living. Many people with dementia live in long term care facilities, yet research into their quality of life (QoL) was rare until the last decade. Previous studies failed to incorporate important variables related to the facility and care provision or to look closely at the daily lives of residents. This paper presents a protocol for a comprehensive, multi-perspective assessment of QoL of residents with dementia living in long term care in Australia. A secondary aim is investigating the effectiveness of self-report instruments for measuring QoL. METHODS: The study utilizes a descriptive, mixed methods design to examine how facility, care staff, and resident factors impact QoL. Over 500 residents with dementia from a stratified, random sample of 53 facilities are being recruited. A sub-sample of 12 residents is also taking part in qualitative interviews and observations. CONCLUSIONS: This national study will provide a broad understanding of factors underlying QoL for residents with dementia in long term care. The present study uses a similar methodology to the US-based Collaborative Studies of Long Term Care (CS-LTC) Dementia Care Study, applying it to the Australian setting.


Assuntos
Demência/enfermagem , Assistência de Longa Duração/organização & administração , Qualidade de Vida , Atividades Cotidianas , Idoso , Idoso de 80 Anos ou mais , Austrália , Estudos Transversais , Feminino , Humanos , Masculino , Escalas de Graduação Psiquiátrica , Autorrelato
6.
J Contin Educ Nurs ; 45(12): 552-8, 2014 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-25347088

RESUMO

As the population ages, the number of patients with dementia in acute care environments is projected to increase rapidly. However, many acute care nurses have undertaken little or no dementia training, potentially leading to reduced quality of care for these patients. This article details the development and delivery of a tailored education program to improve thhequality of care of patients with dementia in a large, urban hospital in Australia. Designed specifically for the existing context, environment, and knowledge levels,--the program was developed from multiple inputs including expert opinion, literature on workplace and demenitia care training, and feedback from participants. The program was delivered to acute care nurses and allied health staff within an outcome-based, microteaching model. The development and delivery tecbuniques used in this program also are discussed.


Assuntos
Demência/enfermagem , Educação Continuada em Enfermagem/métodos , Enfermagem Geriátrica/educação , Recursos Humanos de Enfermagem/educação , Desenvolvimento de Programas/métodos , Desenvolvimento de Pessoal/métodos , Idoso , Austrália , Educação Continuada em Enfermagem/organização & administração , Humanos , Avaliação de Programas e Projetos de Saúde , Desenvolvimento de Pessoal/organização & administração
7.
BMC Geriatr ; 13: 101, 2013 Sep 30.
Artigo em Inglês | MEDLINE | ID: mdl-24073708

RESUMO

BACKGROUND: Positive attitudes of healthcare staff towards people with dementia promote higher quality care, although little is known about important factors that underlie positive attitudes. Key aims of this project were to explore the relationships between staff attitudes towards dementia, self-confidence in caring for people with dementia, experience and dementia education and training. METHODS: A brief online survey was developed and widely distributed to registered nurses and allied health professionals working in Queensland in 2012. Regression analyses were performed to identify important predictors of self-confidence in caring for people with dementia and positive attitudes towards people with dementia. RESULTS: Five hundred and twenty-four surveys were completed by respondents working in a range of care settings across Queensland. Respondents were predominantly female (94.1%), and most were registered nurses (60%), aged between 41 and 60 years (65.6%). Around 40% regularly worked with people with dementia and high levels of self-confidence in caring for this population and positive attitudes towards people with dementia were reported. The majority of respondents (67%) had participated in a dementia education/training activity in the past 12 months. More experience working with people with dementia predicted greater self-confidence while recent participation in a dementia education/training and higher self-confidence in caring for a person with dementia significantly predicted more positive attitudes towards people with dementia. CONCLUSIONS: These results confirm the importance of self-confidence and dementia education in fostering positive attitudes and care practices towards people with dementia. Our results also indicate that the demand for ongoing dementia education is high amongst health care workers and it is recommended that regular dementia education/ training be provided and promoted for all healthcare personnel who work with people with dementia.


Assuntos
Atitude do Pessoal de Saúde , Coleta de Dados/métodos , Demência/terapia , Ocupações em Saúde/educação , Mão de Obra em Saúde , Adulto , Demência/diagnóstico , Demência/epidemiologia , Feminino , Ocupações em Saúde/estatística & dados numéricos , Mão de Obra em Saúde/estatística & dados numéricos , Humanos , Masculino , Pessoa de Meia-Idade , Queensland/epidemiologia , Adulto Jovem
8.
BMC Geriatr ; 13: 2, 2013 Jan 02.
Artigo em Inglês | MEDLINE | ID: mdl-23282030

RESUMO

BACKGROUND: Continued aging of the population is expected to be accompanied by substantial increases in the number of people with dementia and in the number of health care staff required to care for them. Adequate knowledge about dementia among health care staff is important to the quality of care delivered to this vulnerable population. The purpose of this study was to assess knowledge about dementia across a range of health care staff in a regional health service district. METHODS: Knowledge levels were investigated via the validated 30-item Alzheimer's Disease Knowledge Scale (ADKS). All health service district staff with e-mail access were invited to participate in an online survey. Knowledge levels were compared across demographic categories, professional groups, and by whether the respondent had any professional or personal experience caring for someone with dementia. The effect of dementia-specific training or education on knowledge level was also evaluated. RESULTS: A diverse staff group (N = 360), in terms of age, professional group (nursing, medicine, allied health, support staff) and work setting from a regional health service in Queensland, Australia responded. Overall knowledge about Alzheimer's disease was of a generally moderate level with significant differences being observed by professional group and whether the respondent had any professional or personal experience caring for someone with dementia. Knowledge was lower for some of the specific content domains of the ADKS, especially those that were more medically-oriented, such as 'risk factors' and 'course of the disease.' Knowledge was higher for those who had experienced dementia-specific training, such as attendance at a series of relevant workshops. CONCLUSIONS: Specific deficits in dementia knowledge were identified among Australian health care staff, and the results suggest dementia-specific training might improve knowledge. As one piece of an overall plan to improve health care delivery to people with dementia, this research supports the role of introducing systematic dementia-specific education or training.


Assuntos
Doença de Alzheimer/diagnóstico , Doença de Alzheimer/terapia , Competência Clínica/normas , Pesquisas sobre Atenção à Saúde/métodos , Pessoal de Saúde/normas , Adulto , Doença de Alzheimer/psicologia , Atitude do Pessoal de Saúde , Estudos Transversais/métodos , Feminino , Pessoal de Saúde/psicologia , Humanos , Masculino , Pessoa de Meia-Idade , Adulto Jovem
9.
Dementia (London) ; 22(2): 305-327, 2023 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-36473712

RESUMO

Most residential aged care facilities support residents to participate in activities and the importance of activities that are suited to individual preferences and abilities is widely acknowledged. Participating in activities, including those considered to be 'meaningful' has the potential to improve residents' quality of life. However, what makes activities meaningful for people living with dementia in residential aged care facilities is unclear. The aim of this study was to understand the key characteristics of 'meaningful activity' in residential aged care facilities and the perceived value of residents participating in these activities. Using a qualitative study design, this study explored 'meaningful activities' from the perspectives of people living with dementia in residential aged care facilities, their family members and staff. Across four residential aged care facilities, residents (n = 19) and family members (n = 17) participated in individual interviews while staff (n = 15) participated in focus group interviews. Interviews were recorded, transcribed and analysed using a qualitative content analysis approach. Participant responses suggest that the meaning of an activity is subjective, varying over time and between individuals. Key characteristics of an activity that makes it meaningful include being enjoyable, social and engaging, aligning with the persons' interests, preferences, and abilities. To be considered meaningful, activities need to do more than occupy the person. The activity needs to be linked to a personally relevant goal and an aspect of the individuals' identity. Participating in 'meaningful activities' was perceived as valuable to encourage participation and socialising, provide a sense of normality for residents and improve their wellbeing. The findings of this study further our understanding of the concept of 'meaningful activity' for people living with dementia in residential aged care facilities. Understanding the key attributes of 'meaningful activity' can also provide practical guidance for those supporting people with dementia to participate in these types of activities.


Assuntos
Demência , Idoso , Humanos , Qualidade de Vida , Instituição de Longa Permanência para Idosos , Grupos Focais , Pesquisa Qualitativa , Instituições Residenciais
10.
Int J Nurs Stud ; 127: 104160, 2022 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-35144037

RESUMO

BACKGROUND: Pain-related agitation in hospital patients with dementia presents a diagnostic challenge as patients often cannot explain their agitation. Generally, a deductive process is required of staff, culminating in an analgesic trial. However, evidence suggests the deductions of hospital nurses may be flawed because they may not associate agitation in dementia with painful conditions, thereby missing key clinical cues. While analytical rule-based deduction applies explicit formal knowledge, cognitive scientists argue that tacit experiential knowledge, i.e., the unconscious classification of available cues, is equally important and is always involved. AIM: To identify the cognitive characteristics unique to nurses who accurately recognise pain-related agitation in a patient with dementia compared with nurses who do not. METHODS: In this descriptive multivariate study, registered acute-care nurses undertook an original computerised virtual simulation requiring them to identify and manage pain-related agitation in a standardised patient with dementia. Process tracing methods captured nurses' simulation performances alongside their retrospective accounts of thinking. These were correlated with demographic characteristics related to seniority, workplace, training, experience and knowledge captured on a questionnaire. Dual processing theory enabled interpretation of intuitive and analytical cognitive processes. FINDINGS: Registered medical and surgical nurses (N = 274) participated from 10 hospitals. Although formal knowledge about pain in dementia was high (88%), only 13(4.7%) nurses identified pain-related agitation from an injury. These individuals took the longest and used the most cues, undertaking a detailed deductive search. Their recognition of pain-related cues demonstrated accurate experiential knowledge while another 16 nurses identified a fracture without linking the injury to agitation. Over three quarters (78%) of nurses decided on initial antipsychotic treatment. They were quick to decide, using the fewest cues, suggesting agitation was recognised as typical and familiar, with the solution well-known (albeit ineffective). Independent of other variables, nurses working in dementia-specific units, surgical units or with more seniority had increased odds of recognising pain, revealing the influence of workplace experience. However, most surgical and dementia-unit nurses did not recognise pain. CONCLUSIONS: Hospital nurses have difficulty recognising when agitation in a patient with dementia is caused by pain. High formal knowledge about pain in dementia may not be sufficient to enable clinical recognition of pain in patients. Instead, nurses with experience in specific workplaces or senior roles may be better equipped to recognise pain-related agitation and deploy evidence-based approaches for agitation in a patient with dementia. Overall, these results lend support to the influence of experiential knowledge on performance. TWEETABLE ABSTRACT: In a virtual simulation, registered nurses with high formal knowledge about pain in dementia lacked the experience required to recognise pain-related agitation in a patient with dementia.


Assuntos
Demência , Enfermeiras e Enfermeiros , Demência/complicações , Hospitais , Humanos , Dor/etiologia , Estudos Retrospectivos
11.
Dementia (London) ; 21(3): 794-809, 2022 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-34870490

RESUMO

BACKGROUND AND OBJECTIVES: Many spousal caregivers experience stress, depression, loneliness, guilt and grief when placing a partner with dementia into long-term care. However, there is little research about their transitional support experiences, needs and preferences. This study aimed to gain a deeper understanding of these issues from spousal caregiver and long-term care facility staff perspectives, to inform subsequent support and intervention development. RESEARCH DESIGN AND METHODS: Semi-structured interviews and small group discussions were held separately with spousal caregivers (n = 9) and care facility staff (n = 11). Criterion and variation sampling aimed to ensure a range of experiences and perspectives. The 'Framework' approach was utilised for data analysis. Interpretation was with respect to underpinning models of stress-grief process in dementia caregiving. FINDINGS: A range of informational, psychoeducational and psychosocial supports were identified to help spousal caregivers cope better with the stressors and losses experienced throughout the transition from home to long-term care. Improved education about disease progression, information relating to long-term care provision, peer support and dementia-specific grief counselling were deemed important. Opportunities for better support within care facilities were also identified. Support should be tailored to individual needs and preferences. DISCUSSION AND IMPLICATIONS: The findings suggest a supportive care framework be developed, encompassing the trajectory from assessment for and admission into long-term care to end-of-life and post-bereavement support. Spousal caregivers should have their support needs assessed by trained health or social care professionals and be offered a range of support options as appropriate.


Assuntos
Cuidadores , Demência , Cuidadores/psicologia , Demência/psicologia , Pesar , Humanos , Assistência de Longa Duração , Cônjuges/psicologia
12.
Australas J Ageing ; 41(2): 309-313, 2022 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-34821448

RESUMO

OBJECTIVE: Research involving people with dementia is vital to appropriately inform policy and practice decisions affecting this population. As dementia-care researchers, we frequently advocate to Human Research Ethics Committees for the right of people with dementia to choose whether to participate in research. This brief report provides some considerations for researchers and ethics committees. METHOD: Descriptive summary of principles that argue for inclusion of people with dementia in research studies. RESULTS: Specifically excluding people living with dementia from research because of perceived cognitive impairment is inappropriate in light of human rights principles and the right to contribute to evidence-based care. CONCLUSIONS: There is a difference between capacity to provide informed consent and ability to provide perspectives that are valid for each individual. Providing the opportunity for a person with dementia to participate in research and offering support to do this is a matter of human rights.


Assuntos
Disfunção Cognitiva , Demência , Demência/diagnóstico , Demência/psicologia , Demência/terapia , Comitês de Ética em Pesquisa , Humanos , Consentimento Livre e Esclarecido/psicologia , Pesquisadores
13.
Health Soc Care Community ; 29(5): 1566-1583, 2021 09.
Artigo em Inglês | MEDLINE | ID: mdl-33170999

RESUMO

'Rethink Respite' was a prospective, naturalistic cohort study conducted in the Illawarra-Shoalhaven (NSW, Australia) to improve knowledge, attitudes and uptake of respite strategies in carers of people with dementia. A convenience sample of n = 70 carers were recruited in 2014-15 to establish a baseline for knowledge, attitudes and use of respite for a cohort of carers in the region. Carer perceived need for respite, burden and self-efficacy were also assessed. A co-designed multi-component community-based intervention was subsequently rolled at in the region from 2015 to 2016. The intervention supported: awareness raising media; carer education sessions; access to web and print respite information resources; and an option to participate in a tailored one-on-one in-home coaching program. At program completion, a follow-up survey was administered to the cohort, with n = 44/70 responding. All n = 44 respondents reported participation in and exposure to 'Rethink Respite' media, information and education during the intervention period. Eighteen of the 44 also self-selected to receive the active tailored coaching support. At follow-up, few positive results were reported on the assessed carer variables for the cohort over time. However, post hoc sub-group analyses found those who also self-selected to receive active support (provided through coaching) (n = 18), showed improvements to their respite knowledge, attitudes and self-efficacy (p < .05). Intention to use respite, and levels of personal gain from caring in this sub-group also increased (p < .05). In contrast, carers who only participated in the informational/educational aspects of the program (and did not self-select to the respite coaching), experienced negative changes over time to their respite beliefs and 'role captivity'. Overall, this pilot study suggests that passive respite information and educational strategies are insufficient, without more active supports (tailored respite coaching) to address observed carer decline over time. Future research should seek to replicate these results using a larger sample and an experimental design.


Assuntos
Cuidadores , Demência , Austrália , Estudos de Coortes , Demência/terapia , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Projetos Piloto , Estudos Prospectivos , Cuidados Intermitentes
14.
Australas J Ageing ; 38(3): 182-189, 2019 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-30791179

RESUMO

OBJECTIVE: The aim was to explore the natural disaster preparedness strategies of Australian residential aged care facilities (RACFs), focussing on aspects relevant to people with dementia. METHODS: An online survey was sent to 2617 RACF managers, with 416 responding. Questions included the following: (a) demographics; (b) presence and detail level of disaster/evacuation plans; and (c) references to people with dementia. RESULTS: One in four facilities had experienced a natural disaster in the previous five years. The majority had plans for natural disaster and evacuation. Two-thirds recognised the unique needs of people with dementia. Managers anticipated that residents with dementia would require more staff time and resources and might become disoriented. CONCLUSIONS: Gaps identified in existing RACF evacuation plans highlighted challenges in ensuring the ongoing safety and care of residents, especially those with dementia. Facilities need to have adequate plans and processes that minimise the potential risks of natural disasters.


Assuntos
Atitude do Pessoal de Saúde , Defesa Civil/organização & administração , Demência/terapia , Conhecimentos, Atitudes e Prática em Saúde , Pessoal de Saúde/organização & administração , Pessoal de Saúde/psicologia , Instituição de Longa Permanência para Idosos/organização & administração , Desastres Naturais , Casas de Saúde/organização & administração , Austrália , Estudos Transversais , Atenção à Saúde/organização & administração , Demência/diagnóstico , Demência/psicologia , Pesquisas sobre Atenção à Saúde , Humanos
15.
Int J Older People Nurs ; 14(3): e12244, 2019 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-31125189

RESUMO

AIMS AND OBJECTIVES: Five of the eight focus areas of Bowen's Feasibility Framework were utilised to assess the feasibility of implementing the Safe Walking Program (SWP) with people with severe dementia who wander in long-term care (LTC). BACKGROUND: Dementia-related wandering in LTC is associated with adverse outcomes related to intensity (malnutrition, exhaustion and pain, injury) and type of walking (sleep deprivation, resident violence and elopement, death). There is little evidence guiding best practice for managing wandering in LTC. DESIGN: The SWP involved a three-week trial of taking residents (n = 7) for a 30-min supervised walk, 30 min before individual peak walking activity periods (PWAP), outside the care facility. Quantitative (real-time observation and 24/7 Actigraph™ data: not reported here) and qualitative data were collected pre-, during and postintervention. METHODS: Feasibility to implement the SWP protocol was evaluated using a protocol fidelity checklist completed at the end of each scheduled intervention. Acceptability and sustainability of the programme were evaluated through staff interviews. RESULTS: Eighty per cent of scheduled walks commenced and were completed, with 91% of walks lasting the full 30 min. Care staff reported benefits for participants and care staff. The perceived sustainability of the SWP in the LTC setting was impacted by the strict timing of the walk to coincide with participant's individual PWAP. The use of care staff to lead some scheduled walks was seen as interfering with care routines. CONCLUSIONS: To enhance the acceptability/sustainability of the SWP in LTC, further testing of the importance of dose and timing is required. Consideration needs to be given to suggested modifications to the protocol. IMPLICATIONS FOR PRACTICE: The SWP is an acceptable and enjoyable activity for people with severe dementia who wander. Utilising walking tracks around the neighbourhood was perceived as being an important element of the programme.


Assuntos
Demência/psicologia , Assistência de Longa Duração , Caminhada , Comportamento Errante/psicologia , Idoso , Austrália , Estudos de Viabilidade , Feminino , Humanos , Masculino , Casas de Saúde
16.
Res Gerontol Nurs ; 11(3): 119-128, 2018 05 01.
Artigo em Inglês | MEDLINE | ID: mdl-29634849

RESUMO

Many health and social care research studies report difficulties recruiting sufficient numbers of participants, adding to time and money expenditures and potentially jeopardizing the generalizability of findings. The current article reports the effectiveness and resource requirements of recruitment strategies used in nine dementia-related studies conducted in Australia. Articles, notices, or advertisements in targeted specialist newsletters were the most cost-effective method of recruitment. The use of service providers to aid recruitment yielded mixed results, but was lengthy in terms of research time. Online and social media were low cost but not reliably effective in terms of recruitment potential. Despite using multiple strategies to maximize recruitment, significant challenges were encountered achieving the required sample sizes; in most cases these challenges resulted in delays in the recruitment phase. Implications for researchers in the fields of dementia and general social/health research are discussed. [Res Gerontol Nurs. 2018; 11(3):119-128.].


Assuntos
Publicidade , Cuidadores/psicologia , Seleção de Pacientes , Sujeitos da Pesquisa/psicologia , Relações Pesquisador-Sujeito/psicologia , Atitude Frente a Saúde , Austrália , Feminino , Humanos , Masculino , Aceitação pelo Paciente de Cuidados de Saúde , Defesa do Paciente
17.
JBI Database System Rev Implement Rep ; 16(5): 1240-1268, 2018 05.
Artigo em Inglês | MEDLINE | ID: mdl-29762315

RESUMO

OBJECTIVE: To identify, appraise and synthesize existing evidence regarding the effectiveness of psychosocial interventions on the psychological health and emotional well-being of family carers of people with dementia who have moved into residential care. INTRODUCTION: Many carers experience stress, guilt, grief and depression following placement of a relative with dementia into residential care. Psychosocial interventions to support family carers may help to improve psychological health and emotional well-being; however, evidence for such interventions delivered to family carers following placement has yet to be appraised and synthesized. INCLUSION CRITERIA: Participant criteria included any family carers of people with dementia who have moved into residential or nursing or long term care. Interventions were included if they were designed to improve the psychological health and emotional well-being of family carers post-placement. Comparators included no intervention, other non-pharmacological intervention or standard/usual care. Outcomes included carer burden, anxiety, stress, depression, guilt, grief and loss, quality of life, or satisfaction with care of the person with dementia. METHODS: Key databases (PubMed, CINAHL, PsycINFO) and trials registries (Cochrane, WHO Clinical Trials, UK Clinical Trials) were searched to identify both published and unpublished studies in English from 1990 to 2017. The recommended Joanna Briggs Institute approach to critical appraisal, study selection, data extraction and data synthesis was followed. Data from studies was pooled in statistical meta-analysis where possible, and presented in narrative and tabular form otherwise. RESULTS: Four studies were eligible for inclusion. Two studies were randomized controlled trials (RCTs) of individualized multicomponent interventions, and two were cluster RCTs of group multicomponent interventions. Interventions were mostly underpinned by stress appraisal and coping theories. Outcomes measured, measurement tools and length of follow-up varied between the studies. There was high risk of selection, attrition and detection bias.A total of 302 family carers were included. For the individualized interventions, significant improvements were reported for carer guilt (F = 5.00; p = 0.03), role overload (F = 5.00; p = 0.04) and distress (F = 6.13; p = 0.02), but no significant effect was found for satisfaction with the residential care facility. Meta-analyses indicated there was no overall effect at three to four months post-intervention on carer burden (weighted mean difference 2.38; 95% CI -7.72 to 12.48), and depression (weighted mean difference 2.17; 95% CI -5.07 to 9.40). For the group interventions, no significant effects on carer distress were found; however, significant improvements in carer "heartfelt sadness" at three months post-baseline (F = 5.04; p = 0.027) and guilt at six months (F = 4.93; p = 0.029) were reported in one study. CONCLUSIONS: Individualized multicomponent psychosocial interventions following residential care placement may be beneficial in improving family carers' role overload, psychological distress and guilt. Group interventions may also improve feelings of guilt and sadness. There is insufficient evidence that individualized or group interventions improve carer depression, burden or satisfaction. However, due to substantial heterogeneity between studies and methodological flaws, the grade of this evidence is very low.Further high quality RCTs that include different groups of carers are recommended. Comparative effects of individualized versus group interventions should be examined as these are likely to have cost implications.


Assuntos
Cuidadores/psicologia , Demência/enfermagem , Assistência de Longa Duração , Saúde Mental , Qualidade de Vida/psicologia , Emoções , Humanos , Estresse Psicológico/psicologia
18.
JBI Database System Rev Implement Rep ; 15(3): 586-593, 2017 03.
Artigo em Inglês | MEDLINE | ID: mdl-28267019

RESUMO

REVIEW QUESTION/OBJECTIVE: The objective of this systematic review is to identify, critically appraise and synthesize the best available literature regarding experiences and perceptions of family-staff relationships in the care of people with dementia living in residential aged care facilities.More specifically, the objectives are to identify family caregiver and healthcare staff experiences and perceptions of their own and each other's roles and responsibilities and the characteristics that facilitate or hinder a constructive family-staff relationship.


Assuntos
Atitude do Pessoal de Saúde , Cuidadores/psicologia , Demência/psicologia , Família/psicologia , Relações Profissional-Família , Idoso , Humanos , Pesquisa Qualitativa , Instituições Residenciais , Revisões Sistemáticas como Assunto
19.
JBI Database System Rev Implement Rep ; 15(5): 1228-1235, 2017 05.
Artigo em Inglês | MEDLINE | ID: mdl-28498162

RESUMO

REVIEW QUESTION/OBJECTIVE: The objective of this review is to identify, appraise and synthesize existing evidence regarding the effectiveness of psychosocial interventions on the psychological health and emotional wellbeing of family carers of people with dementia who have moved into residential care.More specifically, the objectives are to determine the effectiveness of psychosocial interventions on any of these family carer outcomes after placement in residential care: burden, anxiety, stress, depression, guilt, grief and loss, quality of life and satisfaction with the care of the person with dementia.


Assuntos
Adaptação Psicológica/fisiologia , Cuidadores/psicologia , Demência/psicologia , Idoso , Idoso de 80 Anos ou mais , Demência/enfermagem , Pesar , Cuidados Paliativos na Terminalidade da Vida/psicologia , Humanos , Saúde Mental/normas , Avaliação de Resultados em Cuidados de Saúde , Sistemas de Apoio Psicossocial , Qualidade de Vida , Medição de Risco , Revisões Sistemáticas como Assunto
20.
Res Gerontol Nurs ; 9(2): 58-65, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-26501347

RESUMO

Sampling design is critical to the quality of quantitative research, yet it does not always receive appropriate attention in nursing research. The current article details how balancing probability techniques with practical considerations produced a representative sample of Australian nursing homes (NHs). Budgetary, logistical, and statistical constraints were managed by excluding some NHs (e.g., those too difficult to access) from the sampling frame; a stratified, random sampling methodology yielded a final sample of 53 NHs from a population of 2,774. In testing the adequacy of representation of the study population, chi-square tests for goodness of fit generated nonsignificant results for distribution by distance from major city and type of organization. A significant result for state/territory was expected and easily corrected for by the application of weights. The current article provides recommendations for conducting high-quality, probability-based samples and stresses the importance of testing the representativeness of achieved samples.


Assuntos
Demência/enfermagem , Casas de Saúde , Pesquisa em Enfermagem , Projetos de Pesquisa , Idoso , Idoso de 80 Anos ou mais , Austrália , Feminino , Humanos , Masculino , Probabilidade , Qualidade de Vida
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