RESUMO
INTRODUCTION: Individuals living in rural communities are at heightened risk for Alzheimer's disease and related dementias (ADRD), which parallels other persistent place-based health disparities. Identifying multiple potentially modifiable risk factors specific to rural areas that contribute to ADRD is an essential first step in understanding the complex interplay between various barriers and facilitators. METHODS: An interdisciplinary, international group of ADRD researchers convened to address the overarching question of: "What can be done to begin minimizing the rural health disparities that contribute uniquely to ADRD?" In this state of the science appraisal, we explore what is known about the biological, behavioral, sociocultural, and environmental influences on ADRD disparities in rural settings. RESULTS: A range of individual, interpersonal, and community factors were identified, including strengths of rural residents in facilitating healthy aging lifestyle interventions. DISCUSSION: A location dynamics model and ADRD-focused future directions are offered for guiding rural practitioners, researchers, and policymakers in mitigating rural disparities. HIGHLIGHTS: Rural residents face heightened Alzheimer's disease and related dementia (ADRD) risks and burdens due to health disparities. Defining the unique rural barriers and facilitators to cognitive health yields insight. The strengths and resilience of rural residents can mitigate ADRD-related challenges. A novel "location dynamics" model guides assessment of rural-specific ADRD issues.
Assuntos
Doença de Alzheimer , Humanos , Doença de Alzheimer/epidemiologia , População Rural , Saúde da População Rural , Fatores de RiscoRESUMO
In 2021, 11.3 million unpaid caregivers of persons with Alzheimer's disease/Alzheimer's disease and related dementias (AD/ADRD) provided 16 billion hours of unpaid caregiving worth $271.6 billion. This study aimed to fully capture the contextual complexities of the caregiving role acquisition articulated by female family caregivers of those with AD/ADRD, emphasizing assigned meaning to one's lived experience with a critical focus on how family power structures influence caregiving practices. Recorded open structured interview transcripts (N = 30) from two qualitative studies with the same two opening questions resulted in a corpus of 481 pages of pooled textual data. The data were analyzed using Utrecht's descriptive and interpretive thematic analysis approach. The interpretive thematic analysis uncovered the theme of intervening to protect and its subthemes of financial exploitation, mistreatment, and endangerment. Based on the evolving analysis, we reanalyzed the data using critical discourse analysis (CDA), drawing from Foucault and feminist CDA to explore the complex but subtle nuances of gender, power, and ideologies. CDA uncovered the theme of compulsory altruism. Ambiguity about violating personhood delayed responses to potentially dangerous behavior and actual harm. Using interpretive thematic and critical discourse analysis, we discovered a deeper understanding of female caregivers' contextual complexities, their journey to becoming a caregiver of a family member with AD/ADRD, and the power structures that relegated caregiving to female family members. This research identified a substantial policy gap in supporting female family caregivers who provide the majority of care to persons with AD/ADRD risking their health and financial security.
RESUMO
ABSTRACT: This one-group nonexperimental pretest/posttest repeated-measures design plus interpretative phenomenological analysis explored nurse practitioner students' perceptions of dementia using virtual simulation. Perceptions of dementia and its associated challenges differed after the simulation. A critical theme that emerged was "developing empathic understanding"; the two subthemes were "mirroring dementia behaviors" and "provoking emotions." Virtual dementia simulation is an inexpensive, low-fidelity strategy to challenge assumptions and preconceived belief systems about dementia. Person-in-context experiential learning is valuable in nurse practitioner education for facilitating empathic understanding. Further research is needed to explore the correlation between empathic understanding and altruistic helping behaviors in professional practice.
Assuntos
Demência , Profissionais de Enfermagem , Estudantes de Enfermagem , Empatia , Humanos , PercepçãoRESUMO
Evidence suggests the most crucial elements to successful heart failure (HF) management in long-term care (LTC) include improving staffs' HF knowledge to recognize and intervene in early symptom exacerbations, embedding an effective and integrated interprofessional communication system into daily care processes, risk stratification, and anticipatory advanced care planning. Despite a large body of evidence describing best practices, quality HF management remains elusive in LTC facilities. Studies have shown that care quality and outcomes improve when the entire team, including direct caregivers, have an active role in residents' care planning and implementation. The current article summarizes a revised evidence-based practice guideline on assessing HF, addressing a systematic approach to care delivery, and implementing evidence-based best practices for HF quality improvement initiatives in LTC, post-acute care, and short-term rehabilitation settings. [Journal of Gerontological Nursing, 45(7), 18-24.].
Assuntos
Enfermagem Baseada em Evidências , Insuficiência Cardíaca/fisiopatologia , Casas de Saúde , Guias de Prática Clínica como Assunto , Planejamento Antecipado de Cuidados , Insuficiência Cardíaca/enfermagem , Humanos , Relações Interprofissionais , Assistência de Longa DuraçãoRESUMO
This article summarizes the current state of nurses' implicit bias and discusses the phenomenon from Levinas' face of the Other and ethics of belonging, Watson's human caring and unitary caring science, and Chinn's peace and power theory. Nurses' implicit bias is a global issue; the primary sources of nurses' implicit bias include race/ethnicity, sexuality, health conditions, age, mental health status, and substance use disorders. The current research stays at the descriptive level and addresses implicit bias at the individual level. This article invites nurses to go beyond "the face of the Other" and revisit the ethics of belonging and power.
Assuntos
Enfermeiras e Enfermeiros , Teoria de Enfermagem , Humanos , Viés Implícito , Empatia , Relações Enfermeiro-PacienteAssuntos
Prática Clínica Baseada em Evidências , Insuficiência Cardíaca/fisiopatologia , Casas de Saúde/organização & administração , Guias de Prática Clínica como Assunto , Atividades Cotidianas , Dispneia/diagnóstico , Enfermagem Geriátrica , Insuficiência Cardíaca/enfermagem , Insuficiência Cardíaca/terapia , Humanos , Estilo de Vida , Assistência de Longa Duração , Educação de Pacientes como Assunto , Medição de Risco , Sono , Recursos HumanosRESUMO
Purpose: This study examined nurse practitioners' (NPs) practice patterns for heart failure (HF) management, specifically regarding the use of angiotensin-converting enzyme inhibitors (ACEIs), beta antagonists, diuretic monotherapy, and echocardiograms for older adults residing in long-term care facilities. Methodology: A Web-based survey was developed to identify NP practice patterns for HF management in long-term care settings. The Checklist for Reporting Results of Internet E-Surveys and expert opinion guided the survey design. The survey was distributed via e-mail to Gerontological Advanced Practice Nurses Association members. Results: Most NPs used ACEIs for ongoing therapy, initiated appropriate therapy for symptomatic patients, continued beta-antagonist therapy in patients with HF, used echocardiograms in the diagnosis and evaluation of HF, and prescribed monotherapy diuretics in accordance with HF care standards. Implications for Practice: Based on these findings, NP practice patterns for management of HF in the long-term care setting are in alignment with national standard of care regardless of certification or level of physician oversight. NPs need to be cognizant of the cardiovascular risk factors for HF and adjust treatment to add an ACEI or beta antagonist to diuretic monotherapy when the clinical diagnosis of HF is suspected or established.