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1.
J Trauma Stress ; 35(1): 278-287, 2022 02.
Artigo em Inglês | MEDLINE | ID: mdl-34672028

RESUMO

Health care professionals are more frequently exposed to potentially traumatic events than individuals in other professions. Repeated trauma exposure can significantly impact both physical and mental health. In clinical settings, the term "debriefing" refers to a group meeting during which clinical events and decision-making are reviewed and discussed to improve clinical practice. The present review investigated the use of debriefing for clinical staff in clinical settings following exposure to direct and vicarious trauma. We examined whether the use of posttrauma debriefing impacts symptoms of distress and explored how clinical staff experience debriefing; we also investigated the factors that influence this experience. A systematic search of five electronic databases was conducted between August 31 and September 2, 2019. Included articles (N = 13) described the use of debriefing in clinical settings with clinical staff following a traumatic event. We assessed methodological quality and performed a narrative synthesis. Four studies found some evidence of the benefits of debriefing for reducing psychological sequelae to traumatic events. Seven studies commented on factors that clinical staff perceived to be important for the debriefing to feel helpful, including the being given the opportunity for reflection, gaining a shared experience, and having the right peer facilitator. Some evidence suggests that debriefing with staff working in clinical settings can reduce posttraumatic distress symptoms, and subjective evidence suggests that clinical staff members perceive debriefing to be useful. Due to the limited literature, no firm conclusions could be drawn, and further methodologically sound research is required.


Assuntos
Transtornos de Estresse Pós-Traumáticos , Pessoal de Saúde , Humanos , Saúde Mental , Transtornos de Estresse Pós-Traumáticos/psicologia , Transtornos de Estresse Pós-Traumáticos/terapia
2.
Death Stud ; 46(6): 1501-1507, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-33085586

RESUMO

There is a growing movement in children's hospice care to offer families time with their baby after death through use of a "cold cot"; however, there is very limited research in this area. We interviewed seven parents (four mothers and three fathers). Our thematic analysis identified six themes: being able to care for my baby in a way that I never had, space and time to adjust to the loss, time as a family, having my baby close, creating memories, and awareness of societal perceptions. The authors conclude that these facilities provided memories, strengthened legacy, and were a valuable experience.


Assuntos
Cuidados Paliativos na Terminalidade da Vida , Hospitais para Doentes Terminais , Criança , Feminino , Humanos , Lactente , Mães , Pais , Pesquisa Qualitativa
3.
Infant Ment Health J ; 42(2): 299-309, 2021 03.
Artigo em Inglês | MEDLINE | ID: mdl-33449411

RESUMO

INTRODUCTION: High rates of secondary traumatic stress and burnout have been found across nursing populations. However, few studies have focused on neonatal staff. OBJECTIVE: The objectives of this article are to explore the prevalence and severity of secondary traumatic stress (STS) and burnout in neonatal staff, and identify risk factors and protective factors for STS and burnout within this population with the aim of informing future staff support. METHODS: A quantitative, cross-sectional study using a survey design was conducted; 246 neonatal staff reported measures of STS, burnout, self-compassion and satisfaction with ward climate. RESULTS: Neonatal staff reported high rates of moderate-severe STS and burnout. STS and burnout were negatively associated with self-compassion and satisfaction with ward climate, suggesting them to be protective factors against STS and burnout. STS was found to be a risk factor for burnout and vice versa. CONCLUSION: Interventions that increase understanding of STS and burnout, nurture self-compassion, provide support and enhance stress management could help mitigate the impact of STS and burnout amongst neonatal staff.


Assuntos
Esgotamento Profissional , Fadiga de Compaixão , Esgotamento Profissional/epidemiologia , Fadiga de Compaixão/epidemiologia , Estudos Transversais , Empatia , Humanos , Recém-Nascido , Inquéritos e Questionários
4.
Cleft Palate Craniofac J ; 57(8): 990-1007, 2020 08.
Artigo em Inglês | MEDLINE | ID: mdl-32174163

RESUMO

OBJECTIVE: To identify and review the literature on the psychosocial patient-reported outcomes (PROs) of surgery at the end of the cleft treatment pathway. DESIGN: A systematic literature search was performed using electronic databases (Medline, PubMed, EMBASE, PsycInfo, Web of Science, and Science Direct) from database inception to September 2017, to identify studies measuring and reporting the psychosocial PROs of end of pathway cleft surgery. RESULTS: Of 263 identified papers, 22 studies were eligible for inclusion. Apart from one randomized controlled study, studies were largely observational and adopted a cross-sectional or retrospective design. The majority (n = 16) were small-scale studies. The methodological quality was variable in terms of what, how, and when psychosocial outcomes were measured and reported. None of the studies utilized a psychosocial PRO measure validated in the cleft population, and few studies measured outcomes prospectively. A high proportion of studies utilized bespoke measures of patient satisfaction. Taken together, findings from the included studies are tentative but seem to suggest patients derive some benefit from undergoing end of pathway cleft surgery, in terms of increased satisfaction, quality of life, social interactions, and decreased appearance-related distress. CONCLUSIONS: Due to methodological challenges and the heterogeneity of what, how, and when outcomes are measured and currently reported, it is difficult to determine the psychosocial PROs of end of pathway cleft surgeries. Consequently, this review advocates the conduct of well-designed, longitudinal studies using cleft-sensitive tool/s to capture the psychosocial PROs of end of pathway cleft surgery at various time points.


Assuntos
Medidas de Resultados Relatados pelo Paciente , Qualidade de Vida , Estudos Transversais , Humanos , Satisfação Pessoal , Ensaios Clínicos Controlados Aleatórios como Assunto , Estudos Retrospectivos
5.
J Psychosoc Oncol ; 36(6): 768-783, 2018.
Artigo em Inglês | MEDLINE | ID: mdl-30358521

RESUMO

PURPOSE: This study investigated levels of posttraumatic stress symptoms (PTSS) in children with cancer and their siblings from a British sample. It also examined aspects of the Ehlers and Clark 1 model of posttraumatic stress disorder in the current population. METHODS: Sixty participants (34 children with cancer and 26 siblings) aged between 8 and 18 years completed measures of PTSS, maladaptive appraisals, trauma-centered identity, perceived social support and family functioning. RESULTS: Over a quarter of the sample scored above the clinical cutoff on the Impact of Events Scale-Revised. No differences were observed between patients and siblings with respect to levels of PTSS. Maladaptive appraisals and age were found to account for unique variance in levels of PTSS for the overall sample. CONCLUSIONS: Rates of PTSS in the sample were relatively high. Support was found for aspects of the Ehlers and Clark 1 model in explaining PTSS for the current population.


Assuntos
Neoplasias/psicologia , Irmãos/psicologia , Transtornos de Estresse Pós-Traumáticos/epidemiologia , Adolescente , Criança , Feminino , Humanos , Masculino , Modelos Psicológicos , Reino Unido/epidemiologia
6.
Arch Sex Behav ; 43(2): 369-75, 2014 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-24085468

RESUMO

The aims of the current study were twofold: (1) to assess the prevalence/severity of posttraumatic stress symptoms (PTSS) as well as cognitive and emotional responses in parents whose children were diagnosed with a disorder of sex development (DSD); and (2) to assess factors which contributed to PTSS. We hypothesized that parents would show elevated levels of PTSS and that negative cognitive and/or emotional responses would be predictive. Participants were parents of children diagnosed with a DSD. Thirty-six mothers and 11 fathers completed a measure of posttraumatic stress and reported difficulties in the domains of cognition (e.g., confusion) and emotion (e.g., grief). Using multiple regression, we determined factors contributing to parental PTSS. Reported PTSS was high: 31 % of mothers and 18 % of fathers met the threshold for caseness for Posttraumatic Stress Disorder. Regression included: child sex, parent sex, child age at diagnosis, years since diagnosis, genital ambiguity, father occupation, cognitive confusion, and emotional distress. Only cognitive confusion contributed significantly to variance in PTSS. Parents of children with DSD may experience the diagnosis as traumatic, evidenced by high rates of PTSS in the current report. Assessment of reactions to their children's diagnoses revealed that cognitive confusion, and not emotional distress, predicted PTSS. In this case, direct cognitive interventions may be applicable. Though psychological support is widely recommended, no detailed intervention has been offered. Our findings suggest that we may directly apply models successful in other areas of pediatrics, such as pediatric oncology. Future studies may assess the usefulness of such an intervention.


Assuntos
Transtornos do Desenvolvimento Sexual/diagnóstico , Genitália/anormalidades , Pais/psicologia , Transtornos de Estresse Pós-Traumáticos/diagnóstico , Transtornos de Estresse Pós-Traumáticos/epidemiologia , Criança , Pré-Escolar , Cognição , Transtornos do Desenvolvimento Sexual/genética , Transtornos do Desenvolvimento Sexual/psicologia , Emoções , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Prevalência , Escalas de Graduação Psiquiátrica , Análise de Regressão , Índice de Gravidade de Doença , Perfil de Impacto da Doença , Transtornos de Estresse Pós-Traumáticos/psicologia , Reino Unido/epidemiologia
7.
Lancet ; 380(9851): 1419-28, 2012 Oct 20.
Artigo em Inglês | MEDLINE | ID: mdl-22698698

RESUMO

Androgen insensitivity syndrome in its complete form is a disorder of hormone resistance characterised by a female phenotype in an individual with an XY karyotype and testes producing age-appropriate normal concentrations of androgens. Pathogenesis is the result of mutations in the X-linked androgen receptor gene, which encodes for the ligand-activated androgen receptor--a transcription factor and member of the nuclear receptor superfamily. This Seminar describes the clinical manifestations of androgen insensitivity syndrome from infancy to adulthood, reviews the mechanism of androgen action, and shows examples of how mutations of the androgen receptor gene cause the syndrome. Management of androgen insensitivity syndrome should be undertaken by a multidisciplinary team and include gonadectomy to avoid gonad tumours in later life, appropriate sex-hormone replacement at puberty and beyond, and an emphasis on openness in disclosure.


Assuntos
Síndrome de Resistência a Andrógenos , Síndrome de Resistência a Andrógenos/classificação , Síndrome de Resistência a Andrógenos/diagnóstico , Síndrome de Resistência a Andrógenos/genética , Síndrome de Resistência a Andrógenos/terapia , Androgênios/fisiologia , Diagnóstico Diferencial , Feminino , Humanos , Masculino , Mutação , Dedos de Zinco/genética
8.
Child Adolesc Ment Health ; 15(3): 150-156, 2010 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-32847228

RESUMO

BACKGROUND: Teachers have a significant role to play in identifying children with mental health problems. However, teachers' perceptions of children's mental health problems are relatively unexplored. METHOD: Primary school teachers (N = 113) completed a questionnaire, composed of vignettes describing children with symptoms of a common emotional disorder and a common behavioural disorder, following which they were asked a number of questions regarding problem recognition and help-seeking. RESULTS: Teachers were able to recognise the existence of a problem and rate its severity. They were significantly more concerned about a vignette of a child with symptoms of a behavioural disorder than an emotional disorder. The gender of the child was found to independently predict teachers' accurately recognising when a child had a problem. CONCLUSION: Teachers are good at recognising whether a child presents with a problem. However, their problem recognition is affected by both the gender of the child and the type of symptomatology being displayed (emotional versus behavioural).

9.
J Pain Symptom Manage ; 33(3): 276-89, 2007 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-17349497

RESUMO

The Paediatric Pain Profile (PPP) is a 20-item behavior-rating scale designed to assess pain in children with severe to profound neurological impairment. Three raters independently used the PPP to rate behavior of 29 children (mean age 9.6, SD 5.8) filmed during everyday morning activities. The validation process included assessment of interrater reliability and exploration of the relationship of PPP scores with saliva cortisol concentration. There was substantial agreement between raters. The PPP showed strong association with global pain assessments and differentiated between preselected high- and low-pain groups. PPP score showed moderate correlation with saliva cortisol concentration, but a single child explained the strength of the relationship and overall, saliva cortisol concentrations appeared low. The data provide additional evidence that the PPP is a reliable and valid instrument for pain assessment in neurologically impaired children. Cortisol levels are not a useful criterion for pain in this population and further study of cortisol response to stress/pain in children with severe neurological impairments is needed.


Assuntos
Comportamento Infantil , Hidrocortisona/metabolismo , Doenças do Sistema Nervoso/metabolismo , Doenças do Sistema Nervoso/psicologia , Medição da Dor/métodos , Saliva/metabolismo , Adolescente , Criança , Pré-Escolar , Feminino , Humanos , Masculino , Doenças do Sistema Nervoso/complicações , Dor/etiologia , Dor/metabolismo , Dor/psicologia , Reprodutibilidade dos Testes , Gravação de Videoteipe
10.
Clin Child Psychol Psychiatry ; 22(2): 301-317, 2017 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-27493233

RESUMO

As survival rates continue to improve for children diagnosed with cancer, strides in achieving better psychosocial outcomes for both children with cancer and their families have been accentuated. The current study aimed to explore the experiences of siblings of children diagnosed with cancer and attempted to overcome some of the limitations described in previous research. Primarily, the study considered the theoretical framework of posttraumatic growth (PTG) in the project design and analysis. Semi-structured interviews were completed with six siblings. Thematic analysis was employed to identify themes within the data set as a whole. The data revealed that siblings experienced a range of difficult emotions throughout the cancer trajectory as well as experiencing remarkable changes in their lives. This included both positive and negative changes. These changes included increased empathy and resilience, improved family relationships, disrupted routine, increased responsibility and perceived changes in the ill child. Siblings described factors which they found helpful and unhelpful in adjusting to these changes. The report ends with a discussion of the themes and their clinical and theoretical implications. The report also highlights the research limitations and areas for future investigation.


Assuntos
Adaptação Psicológica , Empatia , Neoplasias/psicologia , Trauma Psicológico/psicologia , Resiliência Psicológica , Irmãos/psicologia , Ajustamento Social , Adolescente , Criança , Feminino , Humanos , Masculino , Pesquisa Qualitativa
11.
J Child Fam Stud ; 26(8): 2324-2334, 2017.
Artigo em Inglês | MEDLINE | ID: mdl-28775661

RESUMO

Verbal information transfer, one of Rachman's three pathways to fear, may be one way in which vulnerability for anxiety may be transmitted from parents to children. A community sample of mothers and their preschool-aged children (N = 65) completed observational tasks relating to the child starting school. Mothers were asked to tell their child about social aspects of school; then children completed a brief play assessment involving ambiguous, school-based social scenarios. Mothers completed self-report questionnaires on social anxiety symptoms, general anxiety and depressive symptoms as well as a questionnaire on child anxiety symptoms and indicated whether they were personally worried about their child starting school. There was a significant difference in the information given to children about school between mothers who stated they were worried and those who stated they were not, with mothers who were worried more likely to mention unresolved threat, use at least one anxiety-related word, and show clear/consistent negativity (all ps < .01). Significant associations were also found between the emotional tone of mothers' descriptions of school and children's own representations of school. These findings support the theory that the information mothers give to their child may be influenced by their own concerns regarding their child, and that this verbal information affects child representations.

12.
Pain ; 99(1-2): 157-65, 2002 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-12237193

RESUMO

A systematic review and subset meta-analysis of published randomised controlled trials of psychological therapies for children and adolescents with chronic pain is reported. A search of four computerised abstracting services recovered 123 papers from which 28 potential trials were identified. Eighteen met the criteria for inclusion in the review. The majority of these papers reported brief behavioural and cognitive behavioural interventions for children with headache and many were conducted in community (i.e. school) settings. Meta-analysis was applicable for 12 headache trials and one trial of recurrent abdominal pain using the Pain Index. The odds-ratio for a 50% reduction in pain was 9.62 and the number needed to treat was 2.32, indicating that the psychological treatments examined are effective in reducing the pain of headache. The quality of the 18 trials retrieved is narratively reviewed and suggestions for the development of trials in this field are made.


Assuntos
Cefaleia/psicologia , Cefaleia/terapia , Psicoterapia , Dor Abdominal/psicologia , Dor Abdominal/terapia , Adolescente , Criança , Doença Crônica , Humanos , Ensaios Clínicos Controlados Aleatórios como Assunto
13.
Int J Nurs Stud ; 40(2): 171-83, 2003 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-12559141

RESUMO

This study uses a grounded theory approach to explore the diagnostic and clinical decision-making processes used by parents and healthcare professionals in relation to pain in children with severe to profound neurological impairment. Three forms of knowledge are required for optimal pain assessment and management (1) knowing the child, (2) familiarity with children with the same or similar conditions and (3) knowing the science. Pain relief can be compromised by systems of care that fragment rather than integrate care. A model which integrates knowledge of child, population and science is proposed together with an intersubjective attitude to assessing pain.


Assuntos
Pessoal Técnico de Saúde , Doenças do Sistema Nervoso/fisiopatologia , Medição da Dor/métodos , Pais , Adolescente , Criança , Pré-Escolar , Tomada de Decisões , Humanos , Manejo da Dor
14.
Dev Med Child Neurol ; 46(1): 9-18, 2004 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-14974642

RESUMO

The Paediatric Pain Profile (PPP) is a 20-item behaviour rating scale designed to assess pain in children with severe neurological disability. We assessed the validity and reliability of the scale in 140 children (76 females, mean age 9 years 11 months, SD 4 years 7 months; range 1 to 18 years), unable to communicate through speech or augmentative communication. Parents used the PPP to rate retrospectively their child's behaviour when 'at their best' and when in pain. To assess interrater reliability, two raters concurrently observed and individually rated each child's behaviour. To assess construct validity and responsiveness of the scale, behaviour of 41 children was rated before and for four hours after administration of an 'as required' analgesic. Behaviour of 30 children was rated before surgery and for five days after. Children had significantly higher scores when reported to have pain than 'at their best' and scores increased in line with global evaluations of pain. Internal consistency ranged from 0.75 to 0.89 (Cronbach's alpha) and interrater reliability from 0.74 to 0.89 (intraclass correlation). Sensitivity (1.00) and specificity (0.91) were optimized at a cut-off of 14/60. PPP score was significantly greater before administration of the analgesic than after (paired-sample t-tests, p<0.001). Though there was no significant difference in mean pre- and postoperative scores, highest PPP score occurred in the first 24 hours after surgery in 14 (47%) children. Results suggest that the PPP is reliable and valid and has potential for use both clinically and in intervention research.


Assuntos
Transtornos da Comunicação , Crianças com Deficiência , Doenças do Sistema Nervoso/complicações , Medição da Dor/métodos , Adolescente , Analgesia , Criança , Pré-Escolar , Feminino , Humanos , Lactente , Masculino , Reprodutibilidade dos Testes , Sensibilidade e Especificidade , Procedimentos Cirúrgicos Operatórios
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