Detalhe da pesquisa
1.
Conceptualization of utility in translational clinical genomics research.
Am J Hum Genet;
108(11): 2027-2036, 2021 11 04.
Artigo
em Inglês
| MEDLINE
| ID: mdl-34687653
2.
The Parent PrU: A measure to assess personal utility of pediatric genomic results.
Genet Med;
26(1): 100994, 2024 Jan.
Artigo
em Inglês
| MEDLINE
| ID: mdl-37838931
3.
Satisfaction with Mode of Delivery of Genomic Sequencing Results in a Diverse National Sample of Research Participants through the Clinical Sequencing Evidence-Generating Research Consortium.
Genet Med;
: 101176, 2024 Jun 01.
Artigo
em Inglês
| MEDLINE
| ID: mdl-38832564
4.
Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing.
Genet Med;
: 101146, 2024 Apr 24.
Artigo
em Inglês
| MEDLINE
| ID: mdl-38676451
5.
Measuring health-related quality of life in children with suspected genetic conditions: validation of the PedsQL proxy-report versions.
Qual Life Res;
33(6): 1541-1553, 2024 Jun.
Artigo
em Inglês
| MEDLINE
| ID: mdl-38472717
6.
Effect of an mHealth intervention on physical activity outcomes among young adult cancer survivors: The IMPACT randomized controlled trial.
Cancer;
129(3): 461-472, 2023 02 01.
Artigo
em Inglês
| MEDLINE
| ID: mdl-36444676
7.
Genomic Sequencing for Newborn Screening: Results of the NC NEXUS Project.
Am J Hum Genet;
107(4): 596-611, 2020 10 01.
Artigo
em Inglês
| MEDLINE
| ID: mdl-32853555
8.
Diagnostic yield and psychological outcomes among women pursuing trio-exome sequencing: Do women with recurrent anomalous fetal phenotypes experience more negative psychological outcomes?
Prenat Diagn;
43(5): 569-578, 2023 05.
Artigo
em Inglês
| MEDLINE
| ID: mdl-36690925
9.
Stem Cell Transplant Experiences Among Hispanic/Latinx Patients: A Qualitative Analysis.
Int J Behav Med;
30(5): 628-638, 2023 Oct.
Artigo
em Inglês
| MEDLINE
| ID: mdl-36266388
10.
Greater Social Isolation and Social Constraints Prior to Hematopoietic Stem Cell Transplant Are Associated with Greater Anxiety and Depressive Symptoms.
Int J Behav Med;
2023 Nov 28.
Artigo
em Inglês
| MEDLINE
| ID: mdl-38017317
11.
Intervening in the Cancer Care System: An Analysis of Equity-Focused Nurse Navigation and Patient-Reported Outcomes.
Health Promot Pract;
: 15248399231213042, 2023 Dec 05.
Artigo
em Inglês
| MEDLINE
| ID: mdl-38050901
12.
The Burden of COVID-19 on Caregivers of Children with Suspected Genetic Conditions: A Therapeutic Odyssey.
Phys Occup Ther Pediatr;
43(3): 257-271, 2023.
Artigo
em Inglês
| MEDLINE
| ID: mdl-36310386
13.
Optimizing use of written peer support as a supportive resource in cancer: Focus group insights.
Psychooncology;
31(9): 1589-1596, 2022 09.
Artigo
em Inglês
| MEDLINE
| ID: mdl-35765696
14.
Partner and Relationship Predictors of Longitudinal Physical Activity Trajectories Among Individuals with Osteoarthritis Using Latent Class Growth Analysis.
Ann Behav Med;
56(7): 685-697, 2022 07 12.
Artigo
em Inglês
| MEDLINE
| ID: mdl-34223870
15.
Parental motivations for and adaptation to trio-exome sequencing in a prospective prenatal testing cohort: Beyond the diagnosis.
Prenat Diagn;
42(6): 775-782, 2022 05.
Artigo
em Inglês
| MEDLINE
| ID: mdl-35132674
16.
The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations.
Am J Hum Genet;
103(3): 319-327, 2018 09 06.
Artigo
em Inglês
| MEDLINE
| ID: mdl-30193136
17.
Impact of prenatal exome sequencing for fetal genetic diagnosis on maternal psychological outcomes and decisional conflict in a prospective cohort.
Genet Med;
23(4): 713-719, 2021 04.
Artigo
em Inglês
| MEDLINE
| ID: mdl-33214710
18.
Changes in Identification of Possible Pain Coping Strategies by People with Osteoarthritis who Complete Web-based Pain Coping Skills Training.
Int J Behav Med;
28(4): 488-498, 2021 Aug.
Artigo
em Inglês
| MEDLINE
| ID: mdl-33174614
19.
A Longitudinal Observational Study of Multimorbidity and Partner Support for Physical Activity Among People with Osteoarthritis.
Int J Behav Med;
28(6): 746-758, 2021 Dec.
Artigo
em Inglês
| MEDLINE
| ID: mdl-33797056
20.
Genomic knowledge in the context of diagnostic exome sequencing: changes over time, persistent subgroup differences, and associations with psychological sequencing outcomes.
Genet Med;
22(1): 60-68, 2020 01.
Artigo
em Inglês
| MEDLINE
| ID: mdl-31312045