Detalhe da pesquisa
1.
Clinical Characteristics of an Internet-Based Cohort of Patient-Reported Diagnosis of Granulomatosis With Polyangiitis and Microscopic Polyangiitis: Observational Study.
J Med Internet Res;
22(7): e17231, 2020 07 20.
Artigo
em Inglês
| MEDLINE
| ID: mdl-32459634
2.
Racial and Ethnic Distribution of Rheumatic Diseases in Health Systems of the National Patient-Centered Clinical Research Network.
J Rheumatol;
50(11): 1503-1508, 2023 11.
Artigo
em Inglês
| MEDLINE
| ID: mdl-37657793
3.
Engaging Multistakeholder Perspectives to Identify Patient-Centered Research Priorities Regarding Vaccine Uptake Among Adults With Autoimmune Conditions.
ACR Open Rheumatol;
5(6): 290-297, 2023 Jun.
Artigo
em Inglês
| MEDLINE
| ID: mdl-37127530
4.
Assessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks.
Patient Relat Outcome Meas;
14: 171-180, 2023.
Artigo
em Inglês
| MEDLINE
| ID: mdl-37333063
5.
Patient Perceptions and Preferences Regarding Telemedicine for Autoimmune Rheumatic Diseases Care During the COVID-19 Pandemic.
Arthritis Care Res (Hoboken);
74(7): 1049-1057, 2022 07.
Artigo
em Inglês
| MEDLINE
| ID: mdl-35040274
6.
Medication Interruptions and Subsequent Disease Flares During the COVID-19 Pandemic: A Longitudinal Online Study of Patients With Rheumatic Disease.
Arthritis Care Res (Hoboken);
74(5): 733-740, 2022 05.
Artigo
em Inglês
| MEDLINE
| ID: mdl-34890121
7.
Self-Reported Data and Physician-Reported Data in Patients With Eosinophilic Granulomatosis With Polyangiitis: Comparative Analysis.
Interact J Med Res;
11(1): e27273, 2022 May 25.
Artigo
em Inglês
| MEDLINE
| ID: mdl-35612893
8.
Diagnostic delays in vasculitis and factors associated with time to diagnosis.
Orphanet J Rare Dis;
16(1): 184, 2021 04 21.
Artigo
em Inglês
| MEDLINE
| ID: mdl-33882989
9.
Patient-Powered Research Networks of the Autoimmune Research Collaborative: Rationale, Capacity, and Future Directions.
Patient;
14(6): 699-710, 2021 11.
Artigo
em Inglês
| MEDLINE
| ID: mdl-33904145
10.
Effects of the COVID-19 Pandemic on Patients Living With Vasculitis.
ACR Open Rheumatol;
3(1): 17-24, 2021 Jan.
Artigo
em Inglês
| MEDLINE
| ID: mdl-33784021
11.
Patient involvement in medical research: what patients and physicians learn from each other.
Orphanet J Rare Dis;
14(1): 21, 2019 01 24.
Artigo
em Inglês
| MEDLINE
| ID: mdl-30678705