Caregivers' concerns through health professionals' eyes.

OBJECTIVES: Advancements in medicine and science have enabled more and more people to live longer with a chronic medical condition, namely cancer. Nevertheless, the palliative care (PC) approach continues to be introduced and incorporated later in the lives of patients and families dealing with such conditions. Thus, the need for individuals to care for this population in our society is increasing, giving rise to the so-called "informal caregivers." The present study intends to examine the main obstacles faced by informal caregivers taking care of a cancer patient receiving PC based on what health professionals working in these settings perceive and write down. To achieve this goal, the written files of 2 Portuguese palliative care institutions were analyzed. METHODS: An inductive thematic analysis was conducted, focusing on the contact between health professionals and family caregivers and based on the notes taken by health professionals. RESULTS: Three main overarching themes were identified: (1) burden, (2) intra-family impact of the illness, and (3) network vulnerabilities. Included in this are the emphasis on the role of the family and social support, the high levels of psychological morbidity and caregiver burden present over this period, and a great need for information about the illness. SIGNIFICANCE OF RESULTS: This study provided a broader awareness regarding the daily struggle experienced by family caregivers, particularly those who juggle between "roles." It is vital to understand the scope of the obstacles experienced by caregivers during the terminal phase of their loved one's illness, given how important it is to address the family's needs. Future studies and practitioners should consider these observations and topics when considering new approaches for this population, as they ought to be quite focused and short in time in order to meet people's needs.

Caring for people who take care: What is already done?

OBJECTIVE: The growing prevalence and impact of cancer on the family system calls for a palliative care approach with the family as the unit of care. This study aimed at providing an overview of the intervention programs that have been developed to offer support to the family caregivers of oncologic patients receiving palliative care. METHOD: Sixteen articles were included in the final review, encompassing (i) studies focused on intervention programs with family caregivers of cancer patients in palliative care, (ii) studies including a pre- and post-test evaluation of the intervention program, (iii) and studies whose cancer patients were at least 18 years old. RESULTS: A great heterogeneity was verified with respect to care settings, number of sessions, outcome measures, or timing of assessment within the reviewed programs. These findings mirrored the complexity of the palliative care approach, which is difficult to standardize. Nonetheless, some interventions with different features accomplished good and sometimes similar results. The studies' main outcomes were clustered in five categories: psychological symptomatology, general quality of life, caregiving role, family relational variables, and bereavement/grief. Moreover, 44% of the main outcomes were psychological symptomatology of family caregivers, with an emphasis toward anxiety and depression. Also shown was a growing emergence of technology use among these interventions. SIGNIFICANCE OF RESULTS: Results revealed a scarcity of family-oriented programs and lack of certified mental health professionals as interventionists. Future studies and interventions should focus on the positive outcomes of the caregiving experience and must acknowledge the cultural differences when trying to replicate programs. Considering that there is no precise formula for dealing with terminal illness and grief, we submit that family-centered and systemic lenses are excellent approaches for support during this adjustment process. In conclusion, the present study advocates for increased investment in the field, underscoring the importance of family caregivers' mental health.

Building Alliances with (In)Voluntary Clients: A Study Focused on Therapists' Observable Behaviors.

This study aimed to compare therapists' observable behaviors to promote alliances with involuntary and voluntary clients during brief family therapy. The therapists' contributions to fostering alliances were rated in sessions 1 and 4 using videotapes of 29 families who were observed in brief therapy. Using the System for Observing Family Therapy Alliances, trained raters searched for specific therapist behaviors that contributed to or detracted from the four alliance dimensions: engagement in the therapeutic process, an emotional connection with the therapist, safety within the therapeutic system, and a shared sense of purpose within the family. The results showed that when working with involuntary clients, therapists presented more behaviors to foster the clients' engagement and to promote a shared sense of purpose within the family. However, in the fourth session, the therapists in both groups contributed to the alliance in similar ways. The results are discussed in terms of (a) the therapists' alliance-building behaviors, (b) the specificities of each client group, and (c) the implications for clinical practice, training, and research.

One year of COVID-19: A longitudinal study of individual and relational factors of psychological adjustment of individuals living in a romantic relationship in Portugal during the COVID-19 pandemic.

This longitudinal study explored the impact of COVID-19 on individuals in romantic relationships. The sample spans three waves: first confinement (n = 52), deconfinement (n = 49), and second confinement (n = 26). The study tested sociodemographic factors, psychological adjustment (anxiety, depression, stress, well-being), COVID-19 threat perception, dyadic coping, and relationship quality. Results from repeated measures ANOVA and fuzzy set qualitative comparative analysis (fsQCA) models revealed a decline in anxiety, depression, and stress symptoms, coupled with improved relationship quality over time. Well-being and dyadic coping remained stable, while COVID-19 threat perception increased. QCA models emphasized the predictive power of initial mental states (anxiety, depression, stress, and well-being at W1) on subsequent adjustment. Notably, shorter relationship duration, healthcare worker status, and not having children, when combined with prior mental states, explained increased symptoms and diminished well-being. The study underscores the significance of addressing these factors in individuals navigating romantic relationships during the pandemic.

YES, WE COPE: Dyadic Coping as a Mediator Between Perceived Relationship Quality and Emotional Representation of COVID-19.

Background: The COVID-19 pandemic has brought about social changes that have impacted the functioning and dynamics of couples in a romantic relationship, arising from the overwhelming amount of added stress they have endured. Specifically, the divorce rate in Portugal has increased after lockdown, which underscores the adverse consequences of COVID-19 on couples. A lower quality of the couple's relationship may worsen the emotional representation of COVID-19; however, the literature suggests that perceived partner dyadic coping responses have a great influence on adverse events. The aim of the present study was to assess the mediating role of partner coping in the association between relationship quality and emotional representation of COVID-19. We also sought to observe whether the length of the relationship moderates this association. Methods: Participants (N = 528) were adults living in Portugal (84.7% female) currently in a romantic relationship with their current partner for at least 1 year. Online data collection. Results: We found that relationship quality predicted COVID-19 emotional representation, but this association was fully mediated by total dyadic coping. This association was especially significant in couples with a shorter length of time in the relationship. Conclusions: We point out the importance of dyadic coping as a protective factor against emotional distress to cope with the ongoing stressors associated with the COVID-19 pandemic. These data suggest the need for relationship education programs that promote positive coping between partners. Supplementary Information: The online version contains supplementary material available at 10.1007/s10608-023-10379-4.

A intervenção com clientes involuntários: complexidade e dilemas / Involuntary clients intervention: complexity and dilemmas

O presente artigo de revisão da literatura centra-se na temática dos clientes involuntários. Analisaram-se criticamente os trabalhos de autores que: (1) propõem a sua caracterização, designadamente no que respeita ao posicionamento do cliente na situação de ajuda, concluindo-se pela complexidade da sua identificação; (2) conceptualizam o papel dos profissionais de saúde mental, bem como as singularidades da relação terapêutica, destacando a importância da aliança, dos dilemas éticos e da motivação para a intervenção; (3) apresentam os modelos terapêuticos mais utilizados nestas situações, enfatizando-se as terapias colaborativas, e particularmente as centradas nas soluções, como as que melhor promovem o envolvimento destes clientes. Ao longo da pesquisa manteve-se a preocupação de rever obras abrangentes na área do acompanhamento psicológico que simultaneamente evidenciassem ou favorecessem uma perspectiva crítica e complexa sobre o tema. Na organização do artigo procurou-se seguir uma perspectiva diacrónica que mostrasse a evolução da conceptualização e praxis sobre a problemática.

The involuntary clients issue is the core of this literature review article. Critical analysis was carried out over the work of authors who: (1) propose their characterization, namely in what concerns the client's positioning in a help situation, leading to a notion of complexity in its identification; (2) conceptualize the role of mental health technicians, as well as the singularities of the therapeutic relationship, highlighting the importance of the alliance, ethical dilemmas and the motivation towards an intervention; (3) point out the therapeutic models mainly used in these situations, emphasizing collaborative therapies, particularly solution focused therapies, as those who better promote the involvement of clients. Reviewing extensive literature on psychological intervention that simultaneously underlined a critical and complex perspective on the matter was a constant concern throughout the research process. The article's structure is outlined diachronically so that the evolution of both conceptualization and praxis on the subject becomes clear.