Detalhe da pesquisa
1.
Benefit-Sharing by Design: A Call to Action for Human Genomics Research.
Annu Rev Genomics Hum Genet;
2024 Apr 12.
Artigo
em Inglês
| MEDLINE
| ID: mdl-38608642
2.
Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries.
J Med Internet Res;
25: e47066, 2023 11 23.
Artigo
em Inglês
| MEDLINE
| ID: mdl-37995125
3.
Open science, data sharing and solidarity: who benefits?
Hist Philos Life Sci;
43(4): 115, 2021 Nov 11.
Artigo
em Inglês
| MEDLINE
| ID: mdl-34762203
4.
Public involvement in the governance of population-level biomedical research: unresolved questions and future directions.
J Med Ethics;
2020 Oct 06.
Artigo
em Inglês
| MEDLINE
| ID: mdl-33023977
5.
The psychology of "cure" - unique challenges to consent processes in HIV cure research in South Africa.
BMC Med Ethics;
20(1): 9, 2019 01 24.
Artigo
em Inglês
| MEDLINE
| ID: mdl-30678664
6.
Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model.
BMC Med Ethics;
20(1): 69, 2019 10 18.
Artigo
em Inglês
| MEDLINE
| ID: mdl-31623617
7.
Rules of engagement: perspectives on stakeholder engagement for genomic biobanking research in South Africa.
BMC Med Ethics;
19(1): 13, 2018 02 27.
Artigo
em Inglês
| MEDLINE
| ID: mdl-29482536
8.
Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries.
BMC Med Ethics;
18(1): 8, 2017 Feb 02.
Artigo
em Inglês
| MEDLINE
| ID: mdl-28153006
9.
HIV cure research in South Africa: a preliminary exploration of stakeholder perspectives.
AIDS Care;
28(4): 524-7, 2016.
Artigo
em Inglês
| MEDLINE
| ID: mdl-26565595
10.
Healing Without Waging War: Beyond Military Metaphors in Medicine and HIV Cure Research.
Am J Bioeth;
16(10): 3-11, 2016 10.
Artigo
em Inglês
| MEDLINE
| ID: mdl-27653388
11.
Synergies, tensions and challenges in HIV prevention, treatment and cure research: exploratory conversations with HIV experts in South Africa.
BMC Med Ethics;
17(1): 26, 2016 04 30.
Artigo
em Inglês
| MEDLINE
| ID: mdl-27137204
12.
Informed consent for HIV cure research in South Africa: issues to consider.
BMC Med Ethics;
16: 3, 2015 Jan 15.
Artigo
em Inglês
| MEDLINE
| ID: mdl-25591806
13.
The implications of methylphenidate use by healthy medical students and doctors in South Africa.
BMC Med Ethics;
15: 20, 2014 Mar 04.
Artigo
em Inglês
| MEDLINE
| ID: mdl-24592964
14.
Cross-border data sharing for research in Africa: An analysis of the data protection and research ethics requirements in 12 jurisdictions.
Res Sq;
2024 Apr 15.
Artigo
em Inglês
| MEDLINE
| ID: mdl-38699320
15.
Ethical and social reflections on the proposed European Health Data Space.
Eur J Hum Genet;
32(5): 498-505, 2024 May.
Artigo
em Inglês
| MEDLINE
| ID: mdl-38355959
16.
Challenges in biobank governance in Sub-Saharan Africa.
BMC Med Ethics;
14: 35, 2013 Sep 11.
Artigo
em Inglês
| MEDLINE
| ID: mdl-24025667
17.
Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research.
Front Genet;
13: 719317, 2022.
Artigo
em Inglês
| MEDLINE
| ID: mdl-35251121
18.
Data protection, data management, and data sharing: Stakeholder perspectives on the protection of personal health information in South Africa.
PLoS One;
16(12): e0260341, 2021.
Artigo
em Inglês
| MEDLINE
| ID: mdl-34928950
19.
Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants.
J Community Genet;
12(4): 577-592, 2021 Oct.
Artigo
em Inglês
| MEDLINE
| ID: mdl-34241790
20.
Balancing scientific interests and the rights of participants in designing a recall by genotype study.
Eur J Hum Genet;
29(7): 1146-1157, 2021 07.
Artigo
em Inglês
| MEDLINE
| ID: mdl-33981014