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Experiences and concerns of patients with recurrent attacks of acute hepatic porphyria: A qualitative study.
Naik, Hetanshi; Stoecker, Mikayla; Sanderson, Saskia C; Balwani, Manisha; Desnick, Robert J.
Afiliação
  • Naik H; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY 10029, Unites States. Electronic address: hetanshi.naik@mssm.edu.
  • Stoecker M; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY 10029, Unites States. Electronic address: mikayla.stoecher@Swedish.org.
  • Sanderson SC; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY 10029, Unites States. Electronic address: saskia.sanderson@ucl.ac.uk.
  • Balwani M; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY 10029, Unites States. Electronic address: manisha.balwani@mssm.edu.
  • Desnick RJ; Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY 10029, Unites States. Electronic address: robert.desnick@mssm.edu.
Mol Genet Metab ; 119(3): 278-283, 2016 11.
Article em En | MEDLINE | ID: mdl-27595545
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pacientes / Porfirias Hepáticas / Sintase do Porfobilinogênio Tipo de estudo: Qualitative_research Limite: Adult / Aged / Female / Humans / Male / Middle aged Idioma: En Revista: Mol Genet Metab Assunto da revista: BIOLOGIA MOLECULAR / BIOQUIMICA / METABOLISMO Ano de publicação: 2016 Tipo de documento: Article
Texto completo
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Pacientes / Porfirias Hepáticas / Sintase do Porfobilinogênio Tipo de estudo: Qualitative_research Limite: Adult / Aged / Female / Humans / Male / Middle aged Idioma: En Revista: Mol Genet Metab Assunto da revista: BIOLOGIA MOLECULAR / BIOQUIMICA / METABOLISMO Ano de publicação: 2016 Tipo de documento: Article