Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study.

Lacerda, Eliana M; McDermott, Clare; Kingdon, Caroline C; Butterworth, Jack; Cliff, Jacqueline M; Nacul, Luis

Lacerda, Eliana M; McDermott, Clare; Kingdon, Caroline C; Butterworth, Jack; Cliff, Jacqueline M; Nacul, Luis.

Afiliação

Lacerda EM; Clinical Research Department, Faculty of Infectious and Tropical Diseases, London School of Hygiene and Tropical Medicine, London, UK.
McDermott C; Primary Medical Care, Faculty of Medicine, University of Southampton, Southampton, UK.
Kingdon CC; Clinical Research Department, Faculty of Infectious and Tropical Diseases, London School of Hygiene and Tropical Medicine, London, UK.
Butterworth J; Clinical Research Department, Faculty of Infectious and Tropical Diseases, London School of Hygiene and Tropical Medicine, London, UK.
Cliff JM; Department of Immunology and Infection, Faculty of Infectious and Tropical Diseases, London School of Hygiene and Tropical Medicine, London, UK.
Nacul L; Clinical Research Department, Faculty of Infectious and Tropical Diseases, London School of Hygiene and Tropical Medicine, London, UK.

Health Expect ; 22(3): 373-384, 2019 06.

Article em En | MEDLINE | ID: mdl-30632248

Assuntos

Atitude Frente a Saúde; Encefalomielite/psicologia; Síndrome de Fadiga Crônica/psicologia; Esclerose Múltipla/psicologia; Sujeitos da Pesquisa/psicologia; Adaptação Psicológica; Adulto; Inglaterra; Feminino; Grupos Focais; Esperança; Humanos; Masculino; Pessoa de Meia-Idade; Pesquisa Qualitativa; Projetos de Pesquisa; Estigma Social

Palavras-chave

chronic fatigue syndrome; focus groups; multiple sclerosis; myalgic encephalomyelitis; patient and public involvement; qualitative research

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Atitude Frente a Saúde / Síndrome de Fadiga Crônica / Sujeitos da Pesquisa / Encefalomielite / Esclerose Múltipla Tipo de estudo: Qualitative_research Limite: Adult / Female / Humans / Male / Middle aged País/Região como assunto: Europa Idioma: En Revista: Health Expect Assunto da revista: PESQUISA EM SERVICOS DE SAUDE / SAUDE PUBLICA Ano de publicação: 2019 Tipo de documento: Article País de afiliação: Reino Unido

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