Towards a comprehensive and interoperable representation of consent-based data usage permissions in the German medical informatics initiative.

Bild, Raffael; Bialke, Martin; Buckow, Karoline; Ganslandt, Thomas; Ihrig, Kristina; Jahns, Roland; Merzweiler, Angela; Roschka, Sybille; Schreiweis, Björn; Stäubert, Sebastian; Zenker, Sven; Prasser, Fabian

Bild, Raffael; Bialke, Martin; Buckow, Karoline; Ganslandt, Thomas; Ihrig, Kristina; Jahns, Roland; Merzweiler, Angela; Roschka, Sybille; Schreiweis, Björn; Stäubert, Sebastian; Zenker, Sven; Prasser, Fabian.

Afiliação

Bild R; Technical University of Munich, School of Medicine, Institute of Medical Informatics, Statistics and Epidemiology, Ismaninger Str. 22, 81675, Munich, Germany. raffael.bild@tum.de.
Bialke M; Institute for Community Medicine, Department Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstr 1-2, 17487, Greifswald, Germany.
Buckow K; TMF - Technology, Methods, and Infrastructure for Networked Medical Research, Charlottenstraße 42, 10117, Berlin, Germany.
Ganslandt T; Heinrich-Lanz-Center for Digital Health, University Medicine Mannheim, Heidelberg University, Theodor-Kutzer-Ufer 1-3, 68167, Mannheim, Germany.
Ihrig K; Department of Medicine, Hematology/Oncology, Goethe University, Theodor-Stern-Kai 7, 60590, Frankfurt am Main, Germany.
Jahns R; Interdisciplinary Bank of Biomaterials and Data Würzburg, University and University Hospital Würzburg, Straubmühlweg 2a, 97078, Würzburg, Germany.
Merzweiler A; Department of Medical Information Systems, Heidelberg University Hospital, Im Neuenheimer Feld 130.3, 69120, Heidelberg, Germany.
Roschka S; Institute for Community Medicine, Department Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstr 1-2, 17487, Greifswald, Germany.
Schreiweis B; Institute for Medical Informatics and Statistics, University Hospital Schleswig-Holstein and Kiel University, Arnold-Heller-Str. 3, 24105, Kiel, Germany.
Stäubert S; Institute for Medical Informatics, Statistics and Epidemiology, Universität Leipzig, Härtelstraße 16-18, 04107, Leipzig, Germany.
Zenker S; Staff Unit for Medical & Scientific Technology Development & Coordination, Commercial Directorate, University Hospital Bonn, Bonn, Germany.
Prasser F; Department Of Anesthesiology & Intensive Care Medicine, University Hospital Bonn, Bonn, Germany.

BMC Med Inform Decis Mak ; 20(1): 103, 2020 06 05.

Article em En | MEDLINE | ID: mdl-32503529

Assuntos

Segurança Computacional; Consentimento Livre e Esclarecido; Informática Médica; Alemanha; Humanos; Software

Palavras-chave

Consent template; Data integration centers; Health information interoperability; Informed consent; Medical informatics initiative

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Informática Médica / Segurança Computacional / Consentimento Livre e Esclarecido Limite: Humans País/Região como assunto: Europa Idioma: En Revista: BMC Med Inform Decis Mak Assunto da revista: INFORMATICA MEDICA Ano de publicação: 2020 Tipo de documento: Article País de afiliação: Alemanha

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