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Isr Med Assoc J ; 23(9): 569-575, 2021 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-34472232

RESUMEN

BACKGROUND: Aerodigestive clinics are run by interdisciplinary medical and surgical teams, and provide complex care coordination and combined endoscopies. OBJECTIVES: To describe the design and patient population of the first pediatric aerodigestive center in Israel. METHODS: A retrospective single-center cohort study was conducted describing patients followed in the aerodigestive clinic of Schneider Children's Medical Center of Israel, a tertiary pediatric hospital, between its inception in January 2017 and June 2020. RESULTS: During the study period, 100 patients were seen at the combined respiratory and digestive (NoAM) clinic, with a total of 271 visits. Median age at first assessment was 29.5 months (range 3-216). Fifty-six patients (56%) had esophageal atresia and tracheoesophageal fistula. Thirty-nine patients had an identified genetic disorder, 28 had a primary airway abnormality, 28 were oxygen dependent, and 21 were born premature. Fifty-two patients underwent triple endoscopy, consisting of flexible bronchoscopy, rigid bronchoscopy, and gastroscopy. In 33 patients, esophageal dilatation was necessary. Six patients underwent posterior tracheopexy at a median of 6 months of age (range 5 days to 8 years) all with ensuing symptom improvement. The total mean parental satisfaction score on a Likert-type scale of 1-5 (5 = highest satisfaction) was 4.5. CONCLUSIONS: A coordinated approach is required to provide effective care to the growing population of children with aerodigestive disorders. The cross fertilization between multiple disciplines offers a unique opportunity to develop high quality and innovative care. Outcome measures must be defined to objectively measure clinical benefit.


Asunto(s)
Enfermedades del Sistema Digestivo/terapia , Endoscopía/métodos , Grupo de Atención al Paciente/organización & administración , Atención al Paciente/métodos , Enfermedades Respiratorias/terapia , Adolescente , Niño , Preescolar , Estudios de Cohortes , Enfermedades del Sistema Digestivo/fisiopatología , Hospitales Pediátricos/organización & administración , Humanos , Lactante , Israel , Padres/psicología , Atención al Paciente/normas , Grupo de Atención al Paciente/normas , Satisfacción del Paciente , Calidad de la Atención de Salud , Enfermedades Respiratorias/fisiopatología , Estudios Retrospectivos , Centros de Atención Terciaria/organización & administración
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