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1.
J Nurs Scholarsh ; 56(3): 371-381, 2024 05.
Artículo en Inglés | MEDLINE | ID: mdl-38282022

RESUMEN

INTRODUCTION: Coping responses influence anxiety symptoms experienced by informal carers. However, only a few studies have investigated the longitudinal association between coping responses and anxiety symptoms in family carers. We also currently have limited knowledge on the mediating or moderating influence of subjective caregiver burden on this relationship over time. The aim of the present study was to investigate the longitudinal relationship between coping and anxiety symptoms in family carers of dependent older people, and examine the mediating or moderating role of subjective caregiver burden over time. DESIGN: Prospective longitudinal study. METHODS: We recruited and enrolled participants from a probability sample of 132 family carers of older dependent relatives. We measured coping strategies, anxiety symptoms, subjective caregiver burden, and several covariates (sex and intensity of care) at baseline and at 1-year follow-up. We used generalized estimating equations with multiple imputations to examine associations over time. RESULTS: Considering both direct and indirect effects through subjective burden, anxiety symptoms were positively associated with proactive coping (B = 0.13), planning (B = 0.15), self-distraction (B = 0.24), denial (B = 1.15), venting (B = 0.94) and self-blame (B = 0.90), and negatively associated with positive reframing (B = -0.83) and acceptance (B = -0.75). Subjective caregiver burden moderated the relationship between anxiety symptoms and planning, and the use of denial as a form of coping. CONCLUSIONS: Our results show that subjective caregiver burden is an important moderator and mediator of the longitudinal association between coping responses and anxiety symptoms in carers. CLINICAL RELEVANCE: Proactive coping and planning when subjective burden is low, self-distraction, denial, venting, and self-blame significantly increase levels of anxiety and caregiver burden in carers over time. Acceptance and positive reframing however as coping responses are associated with lower levels of anxiety and caregiver burden long-term. Our findings highlight the need for a multi-dimensional approach in future caregiving interventions.


Asunto(s)
Adaptación Psicológica , Ansiedad , Cuidadores , Humanos , Masculino , Femenino , Cuidadores/psicología , Anciano , Estudios Prospectivos , Estudios Longitudinales , Persona de Mediana Edad , Ansiedad/psicología , Anciano de 80 o más Años , Carga del Cuidador/psicología , Adulto , Encuestas y Cuestionarios , Costo de Enfermedad
2.
Artículo en Inglés | MEDLINE | ID: mdl-36429709

RESUMEN

The shortage of midwives is a problem in rural and remote areas. This is mainly the consequence of job insecurity and difficult living conditions. The present study aimed to identify and analyse the perceptions and motivations of midwives in rural and remote areas of northern Morocco on the quality of their working life and the motivational factors and empowerment strategies they use to maintain and develop their work. It is a qualitative study that follows Van Manen's hermeneutic phenomenology approach. Three focus groups and in-depth interviews were conducted with 15 midwives from rural and remote areas. The results indicate that midwives in rural and remote areas have a negative perception of the quality of the work and their personal life because of the scarcity of basic resources, unfavourable working conditions, and the personal sacrifices they have to make to support themselves. However, some factors favour their efforts. Therefore, there is a need to promote intersectoral policies that focus on improving material and human resources, as well as the working and personal conditions of midwives and the factors that support and empower them.


Asunto(s)
Partería , Servicios de Salud Rural , Embarazo , Humanos , Femenino , Motivación , Marruecos , Población Rural
3.
BMC Public Health ; 22(1): 477, 2022 03 10.
Artículo en Inglés | MEDLINE | ID: mdl-35272648

RESUMEN

BACKGROUND: The sense of coherence is developed through the learning process and contributes to the positioning of individuals in the health-disease continuum, facilitating successful and adaptive personal outcomes. Health-related behaviours represent a health determinant of utmost importance for public health and the development of adolescent and youth health promotion policies, as they are related to the main risk factors and problems of morbidity and mortality in our society. Previous studies have analysed the relationship between sense of coherence and only some individual health outcomes such as oral health, the relationship of sense of coherence with smoking and alcohol consumption, concluding that salutogenic factors are related to quality of life and preventive behaviours. The aim of this systematic review was to describe the relationship of sense of coherence with different health-related behaviours investigated so far in the adolescent and youth population. METHODS: A systematic review was carried out in databases (PubMed, CINAHL, Scopus and PsycInfo) and in the bibliographies of the retrieved articles, without limitation of time or language. Associations between sense of coherence and health-related behaviours have been assessed. RESULTS: A total of 1214 investigations were reviewed and 21 of them were included in this systematic review. The relationship between sense of coherence and eight health-related behaviours were identified (alcohol use, physical activity, tobacco use, eating habits, rest periods, use of illegal substances, behaviours related to oral health and time spent in games on the computer). CONCLUSIONS: Our results increase the available evidence and support the solid relationship of the sense of coherence with health behaviours both as a protective factor against risk behaviours and for its positive association with preventive and health promoting behaviours of adolescents, young adults and university students.


Asunto(s)
Sentido de Coherencia , Adolescente , Ejercicio Físico , Conductas Relacionadas con la Salud , Promoción de la Salud/métodos , Humanos , Calidad de Vida , Adulto Joven
4.
Artículo en Inglés | MEDLINE | ID: mdl-33808482

RESUMEN

BACKGROUND: The objective of this study is to determine the validity and reliability of the Caregiver Strain Index (CSI) for women during the postpartum period. Methods: This is a validation study of a measurement instrument. This study includes 212 women over the age of 19 who gave birth from March to September 2019 in Maternal and Child Hospital of Jaén (Spain). The items of the CSI were adapted for newborn care. Content validity was measured by five experts, calculating the index of agreement (Aiken's V). Criterion validity was assessed by correlations with scores of other tools that measure constructs related to burden (Edinburgh Postpartum Depression Scale, State-Trait Anxiety Questionnaire, SOC-13 and Duke-UNC-11). Construct validity was determined by the known-groups method. Internal consistency was measured using Cronbach's Alpha, and stability was analysed using the intraclass correlation coefficient (ICC). RESULTS: Regarding content validity, an Aiken's V of 1.00 (p = 0.032) was obtained. Regarding criterion validity, the correlation analyses showed statistically significant coefficients between the scores of the questionnaire and those of the sense of coherence (r = -0.447, p < 0.001), depressive symptoms (r = 0.429, p < 0.001), social support (rho = -0.379, p < 0.001) and anxiety symptoms (r = 0.532, p < 0.001). The known-groups method showed statistically significant differences in the mean of subjective burden between the groups (depressive symptoms, anxiety symptoms, sense of coherence and social support). The total scale obtained a Cronbach's alpha value of 0.710. The ICC was 0.979. CONCLUSIONS: The adapted CSI is a valid and reliable screening tool for the subjective burden in women during the puerperium. The adapted CSI can play an important role as a guide to detect the subjective burden in women during the puerperium.


Asunto(s)
Cuidadores , Periodo Posparto , Niño , Femenino , Humanos , Recién Nacido , Psicometría , Reproducibilidad de los Resultados , España , Encuestas y Cuestionarios
5.
Int J Geriatr Psychiatry ; 36(5): 722-730, 2021 05.
Artículo en Inglés | MEDLINE | ID: mdl-33184903

RESUMEN

BACKGROUND: Sense of coherence (SOC) is an important protective factor for carer well-being but research to date remains cross-sectional, focusing primarily on the direct effects of SOC on carers' mental health. The study's aim was to investigate the mediating role of SOC in the longitudinal relationship between caregiver strain and carers' psychological health, and its stability over time. METHODS: Prospective longitudinal study conducted in Jaén (Spain) with a probabilistic sample of 132 carers of older people, with data collected at baseline and at 1-year follow-up. We measured SOC, caregiver strain, anxiety and depressive symptoms, and several care-recipient characteristics and intensity of care provided. We used multiple linear regression modelling and the Sobel test to analyse mediation effects. RESULTS: SOC was significantly negatively longitudinally associated with both anxiety (ß = -0.38, p = 0.001) and depressive symptoms (ß = -0.28, p = 0.023), after controlling for several confounders. SOC mediated both the relationship between caregiver strain and anxiety, and caregiver strain and depressive symptoms (Sobel test: p < 0.001 for anxiety and p < 0.001 for depressive symptoms). Differences between baseline and 1-year follow-up SOC scores were not statistically significant (p = 0.617). CONCLUSIONS: SOC appears to buffer the impact of caregiver strain on symptoms of depression and anxiety in informal carers of older people. Our data showed that SOC is an important psychological resource for carers that remained relatively stable under non-experimental conditions over a period of 1 year in this sample. The findings suggest that interventions aimed at strengthening SOC may protect carer psychological well-being.


Asunto(s)
Cuidadores , Sentido de Coherencia , Anciano , Anciano de 80 o más Años , Estudios Transversales , Depresión , Humanos , Estudios Longitudinales , Evaluación de Resultado en la Atención de Salud , Estudios Prospectivos , España
6.
Artículo en Inglés | MEDLINE | ID: mdl-32698403

RESUMEN

Introduction: This study investigated the relationship between personal and family resources (i.e., social support, family functioning, self-efficacy in care, sense of coherence and perceived burden of care) and depressive and anxiety symptoms in women during the puerperium, adjusting for stressors. Methods: This is a quantitative research design, carried out through a descriptive, cross-sectional correlation study. This study includes 212 women over the age of 19 who gave birth from March to September 2019 in Maternal and Child Hospital of Jaén (Spain). Women were selected during the immediate postpartum period. The variables analysed were postpartum depressive symptoms (Edinburgh scale), anxiety symptoms (STAI state anxiety questionnaire), perceived social support (Duke-UNC-11), family functioning (family APGAR), self-efficacy in care (Lawton), sense of coherence (SOC-13), perceived burden (Caregiver Strain Index) and stressful life events (Holmes and Rahe). The main analysis consisted of a multiple linear regression. Results: The regression model of depressive symptoms found a positive association with perceived burden (ß = 0.230, p = 0.015) and negative associations with self-efficacy in care (ß = -0.348, p < 0.001), social support (ß = -0.161, p < 0.001) and sense of coherence (ß = -0.081, p = 0.001). The regression model of anxiety symptoms obtained a positive association with perceived burden (ß = 1.052, p < 0.001) and negative associations with self-efficacy in care (ß = -0.329, p = 0.041), social support (ß = -0.234, p = 0.001) and sense of coherence (ß = -0.262, p < 0.001). Discussion: Firstly, depressive and anxiety symptoms in the puerperium period may be more prevalent than in other periods of a woman's life. Secondly, perceived social support, self-efficacy in caring for the newborn and sense of coherence may be protective factors for depressive and anxiety symptoms in the puerperium period. Finally, perceived burden in caring for the newborn may be a risk factor for these symptoms.


Asunto(s)
Ansiedad/diagnóstico , Ansiedad/psicología , Depresión Posparto/psicología , Depresión/diagnóstico , Depresión/psicología , Madres/psicología , Periodo Posparto/psicología , Apoyo Social , Ansiedad/epidemiología , Niño , Estudios Transversales , Depresión/epidemiología , Femenino , Humanos , Recién Nacido , Masculino , Responsabilidad Parental/psicología , Embarazo , Autoeficacia , Sentido de Coherencia , España/epidemiología , Estrés Psicológico/psicología , Encuestas y Cuestionarios
7.
Artículo en Inglés | MEDLINE | ID: mdl-31936751

RESUMEN

Communicating bad news (CBN) is a fundamental skill in nursing; nevertheless, few instruments exist for its evaluation. This study presents a questionnaire designed to measure nurses' knowledge and ability of CBN, as well as the analysis of its psychometric properties. Based on a literature search, the initial dimensions of CBN were identified to construct the questionnaires' items, which were evaluated by experts for the validity of the items' contents. Construct validity and reliability of the resulting questionnaire was carried out in a sample of 71 nurses of an Andalusian university hospital. A questionnaire with 25 items was constructed with a high internal consistency (Cronbach's alpha 0.816). The content validity was evaluated via a literature review and additionally by the assessment of seven experts. The Kaiser-Meyer-Olkin test (KMO) obtained a score of 0.683, and the Bartlett test of sphericity a value of p < 0.001. The principal component analysis supported a construct of four dimensions. This questionnaire was found to be a valid and reliable instrument with a high internal consistency for the evaluation of CBN knowledge and skills of nursing professionals.


Asunto(s)
Enfermería/métodos , Psicometría , Encuestas y Cuestionarios/normas , Adulto , Femenino , Hospitales Universitarios , Humanos , Masculino , Enfermería/normas , Proyectos Piloto , Reproducibilidad de los Resultados
8.
Artículo en Inglés | MEDLINE | ID: mdl-30893902

RESUMEN

The purpose of this study was to identify, classify and analyze the perceived needs of caregivers of elderly people with dementia during the care process. A descriptive phenomenological qualitative study using seven focus groups was conducted in different primary health care centers in the province of Jaén (Spain) between July 2012 and February 2013. Eighty-two family caregivers who were caring for people with dementia in different stages of the disease were selected by purposeful maximum variation sampling. Data were analyzed and organized thematically, considering the semantic and pragmatic content and field notes. Two main categories of the perceived needs of caregivers were identified. The first was related to the management of caring for a relative with dementia, and the second was related to the management of the caregivers' own care. Our findings support the provision of comprehensive interventions for the improvement of caregivers' emotional health that encompass more than one care need. This is where psycho-educational interventions aimed at managing the various aspects of dementia and self-care in caregivers can be accommodated. In addition, proactive interventions to develop important skills to care for a relative with dementia, which are not perceived as needs by the caregivers, are needed. These include skills in family negotiation, planning and searching for resources outside the family.


Asunto(s)
Cuidadores/psicología , Demencia/enfermería , Familia/psicología , Necesidades y Demandas de Servicios de Salud , Anciano , Femenino , Grupos Focales , Humanos , Región Mediterránea , Investigación Cualitativa , España
9.
Gac Sanit ; 33(2): 185-190, 2019.
Artículo en Español | MEDLINE | ID: mdl-29174275

RESUMEN

OBJECTIVE: To analyze the relationship between the sense of coherence and subjective overload, anxiety and depression in caregivers of dependent elderly relatives. METHOD: Cross-sectional study in an area of the province of Jaén (Andalusia, Spain) with a probabilistic sample of 132 caregivers of dependent elderly. MAIN MEASURES: sense of coherence (Life Orientation Questionnaire), subjective burden (Caregiver Strain Index), anxiety and depression (Goldberg Scale), objective burden (Dedication to Care Scale), sex and kinship. Main analyses: bivariate analysis using the Pearson correlation coefficient and multivariate analysis using multiple linear regression. RESULTS: Most of the caregivers studied were women (86.4%), daughter or son of the care recipient (74.2%) and shared home with the latter (69.7%). When controlling for objective burden, sex and kinship, we found that the sense of coherence was inversely related to subjective burden (ß = -0.46; p <0.001), anxiety (ß = -0.57; p = 0.001) and depression (ß = -0.66; p <0.001). CONCLUSIONS: The sense of coherence might be an important protective factor of subjective burden, anxiety and depression in caregivers of dependent elderly relatives.


Asunto(s)
Ansiedad/etiología , Cuidadores/psicología , Costo de Enfermedad , Depresión/etiología , Sentido de Coherencia , Anciano , Anciano de 80 o más Años , Estudios Transversales , Autoevaluación Diagnóstica , Femenino , Humanos , Masculino
10.
Aten Primaria ; 51(10): 637-644, 2019 12.
Artículo en Español | MEDLINE | ID: mdl-30424899

RESUMEN

OBJECTIVE: To identify and analyze the motives that lead people to take care of a dependent relative and their perceptions of the care situation. DESIGN: Phenomenological qualitative study. LOCATION: The study was conducted in the Jaén-Norte Sanitary District, during 2013 and 2014. PARTICIPANTS: A total of 13 primary caregivers of dependent elderly relatives with a minimum experience of one year in care participated, selected by intentional sampling. METHOD: Discourse analysis of 13 in-depth interviews considering the semantic and pragmatic content and field notes. Triangulation was performed in the analysis to favor the credibility of the study. RESULTS: The motives for caring for a dependent relative are:'Familism','Material gains' and'Social pressure'. In turn, the'Familism' include 7 dimensions/motives:'Family obligation','Affection to the person taken care of','Return the received','Well-being of the person taken care of','Respect to the decision of the person taken care of','Agreement','Habit'. When the main motive to take care of is the'Family obligation', the'Material gains' or the'Social pressure' caregivers do not manifest positive perceptions for caring, and vice versa. CONCLUSION: This study has identified that'Familism','Material gains' and'Social pressure' are reasons why people care for a dependent relative in our sociocultural environment, as well as the relationship with the perception of the care situation. This will facilitate the identification of caregivers with greater predisposition to suffer negative consequences for caring and the development of interventions aimed at the prevention of such consequences.


Asunto(s)
Cuidadores/psicología , Familia/psicología , Motivación , Adulto , Anciano , Femenino , Humanos , Relaciones Intergeneracionales , Masculino , Persona de Mediana Edad , Satisfacción Personal , Investigación Cualitativa , Factores Sexuales , Responsabilidad Social , Factores Socioeconómicos
11.
Gac Sanit ; 33(4): 310-316, 2019.
Artículo en Español | MEDLINE | ID: mdl-30078500

RESUMEN

OBJECTIVE: To analyze the factor structure of the OLQ-13 scale and to study the direct relationship between sense of coherence and lifestyles in university students of nursing. METHOD: Cross-sectional study. LOCATION: University of Jaén. Andalusia, Spain. PARTICIPANTS: 384 students from the first three years of the nursing degree in the University of Jaén. MAIN MEASUREMENT: Internal consistency was studied by Cronbach's alpha, reliability test-retest was measured by intraclass coefficient correlation (ICC) and construct validity was analysed by exploratory factor analysis, confirmatory factor analysis and known-groups technique. RESULTS: The internal consistency of the scale was adequate (Cronbach α = 0.809). The ICC for the reliability test-retest was 0.91. The exploratory factor analysis showed 3 factors explaining 50.13% of the variance. The confirmatory factor analysis showed f goodness-of-fit indexes for the proposed model CFI=0.965; RMSA=0.041; GFI=0.963; SRMR=0.041. Statistically significant differences in sense of coherence were found among the subgroups of students with healthy and unhealthy lifestyles (p <0.001). CONCLUSIONS: The study confirms the multidimensionality of the OLQ-13 scale, in which 3 factors were identified: external meaningful, comprehensibility and manageability, and internal comprehensibility and manageability. The OLQ-13 may be a valid and reliable scale for use in the Spanish university population.


Asunto(s)
Estilo de Vida , Sentido de Coherencia , Estudiantes de Enfermería/psicología , Encuestas y Cuestionarios , Adolescente , Adulto , Estudios Transversales , Análisis Factorial , Femenino , Humanos , Masculino , Reproducibilidad de los Resultados , Facultades de Enfermería , España , Universidades , Adulto Joven
12.
BMC Geriatr ; 18(1): 228, 2018 09 25.
Artículo en Inglés | MEDLINE | ID: mdl-30253750

RESUMEN

BACKGROUND: The family often takes care of an elderly person who suddenly becomes dependent. This greatly affects different aspects of the caregivers' lives. The aim of this study is to explore the initial experiences, during the first year of care, of persons who suddenly become caregivers for elderly dependent relatives. METHODS: A search in CINAHL, PsycINFO, WOS, Medline, and Scopus and a metasynthesis of qualitative research were conducted including 19 articles. RESULTS: Three categories were developed to explain the process of becoming a caregiver 'taking on the role' (life changes, uncertainty and confusion, and acceptance or resistance); 'beginning to realise' (new needs, impact, and appraisal); and 'implementing strategies' (seeking help and self-learning, reordering family and social relationships, solving problems, and devising strategies to decrease negative emotions and stress). CONCLUSIONS: The synthesis provides a comprehensive understanding of the experience of becoming a caregiver in order to help health-care professionals to adapt care plans to this situation.


Asunto(s)
Cuidadores/psicología , Familia/psicología , Anciano Frágil/psicología , Investigación Cualitativa , Anciano , Anciano de 80 o más Años , Cuidadores/normas , Femenino , Humanos , Masculino
13.
PLoS One ; 13(1): e0189874, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-29293522

RESUMEN

BACKGROUND: Despite the generally accepted belief that social support improves caregiver adjustment in general and subjective burden in particular, the literature shows mixed findings, and a recent review concluded that the predictive strength of caregiver social support in determining caregiver burden is less evident, due to the conceptual diversity of this determinant. OBJECTIVE: The purpose of this review is to analyse the relationship of perceived and received social support with subjective burden among informal caregivers of an adult or older adult. METHODS: A systematic search was carried out up to September 2017 in the following databases: MEDLINE (PubMed), CINAHL, EMBASE, PsycINFO), Scopus and ISI Proceedings, and a meta-analysis was performed with the results of the selected and included studies. RESULTS: Fifty-six studies were included in the meta-analysis, which provided 46 independent comparisons for perceived support and 16 for received support. Most of these studies were cross-sectional. There was a moderate, negative association of perceived social support on subjective burden (r = -0.36; CI 95% = -0.40, -0.32) and a very small, negative association of received support on subjective burden (r = -0.05; CI 95% = -0.095, -0.001). CONCLUSIONS: 1) perceived and received support are not redundant constructs, 2) the relationships between social support and subjective burden depend on whether the social support is measured as perceived or received, 3) the relationship of perceived social support with subjective burden has a bigger effect size than that of received social support, the relation between received support and subjective burden being clinically irrelevant, 4) perceived social support may be a good predictor of subjective burden. IMPLICATIONS OF KEY FINDINGS: Our findings broadly support interventions promoting social support in caregivers to prevent or alleviate subjective burden, and specifically, to intervene on the promotion of perceived social support more than on the promotion of received social support when preventing or alleviating burden.


Asunto(s)
Cuidadores/psicología , Apoyo Social , Anciano , Humanos , Persona de Mediana Edad
14.
Aten Primaria ; 50(5): 282-290, 2018 05.
Artículo en Español | MEDLINE | ID: mdl-28735721

RESUMEN

AIM: Describe the initial process through which people who imminently become caregivers of a dependent elderly relative. DESIGN: Qualitative study, for which its analysis has been directed by Grounded Theory principles. LOCATION: This study was conducted in the Health Districts of Jaén, during 2015 and 2016 at the community level. PARTICIPANTS AND/OR CONTEXTS: The recruitment was carried out by managers of the Health Centres of each Health District, who located the participants who met the inclusion criteria and invited them to participate in the study. METHOD: Eleven in-depth interviews were carried out, until saturation of information, on individuals who had been caring for an older relative with dependency for less than one year. RESULTS: Three phases have been described during this process. An initial phase of changes, in which the caregiver assumes new activities; a second phase full of emotions, in which the needs and consequences emerge in caregivers; and a third phase that emphasises acceptance as a coping strategy and uncertainty as an expectation of the future. DISCUSSION: The description of this process provides a comprehensive understanding of the experience of becoming a family caregiver, in order to help health professionals to adapt to the plans of care for this initial situation.


Asunto(s)
Cuidadores/psicología , Adaptación Psicológica , Adulto , Anciano , Anciano de 80 o más Años , Toma de Decisiones , Emociones , Femenino , Humanos , Masculino , Persona de Mediana Edad , Investigación Cualitativa , Adulto Joven
15.
BMC Geriatr ; 17(1): 274, 2017 11 23.
Artículo en Inglés | MEDLINE | ID: mdl-29169326

RESUMEN

BACKGROUND: Despite the large literature analysing factors related to depression, several factors such as caregiving obligation and the interrelationships among the different variables relating to depression have been little studied. The current study aimed to analyse the effect of caregiving obligation (beliefs regarding obligation and social pressure) on depression, and the mediating effects of perceived burden on the relationship between stressors and depression, in primary caregivers of older relatives. METHODS: Cross-sectional study design. A probabilistic sample of caregivers from Spain (N = 200) was used. The data collection was conducted in 2013 through structured interviews in the caregivers' homes. The measures included sense of obligation for caregiving, perceived burden, stressors and depression. RESULTS: Depression had a direct and positive association with perceived burden, behavioural problems, and social pressure, and it was indirectly related through perceived burden to behavioural problems, independence for the activities of daily living and beliefs of obligation. CONCLUSIONS: Our results support the multidimensional concept of obligation, suggesting the existence of both an external obligation (social pressure) and an internal obligation (beliefs of obligation); (b) our findings support the hypothesis that external obligation is related to negative caregiving consequences, while internal obligation protects from these consequences; and (c) our findings support the partial mediation of stressors on depression by perceived burden. The relevance of the research to clinical practice includes the importance of understanding the perceived obligation of caregiving related to both internal and external sources of obligation.


Asunto(s)
Cuidadores/psicología , Depresión , Personas con Discapacidad , Estrés Psicológico , Actividades Cotidianas , Anciano , Estudios Transversales , Depresión/diagnóstico , Depresión/etiología , Depresión/psicología , Personas con Discapacidad/psicología , Personas con Discapacidad/rehabilitación , Femenino , Humanos , Relaciones Interpersonales , Masculino , Persona de Mediana Edad , Responsabilidad Social , España , Estrés Psicológico/diagnóstico , Estrés Psicológico/etiología , Estrés Psicológico/psicología
16.
Arch Gerontol Geriatr ; 69: 128-133, 2017.
Artículo en Inglés | MEDLINE | ID: mdl-27914296

RESUMEN

A cross-sectional study was developed in Spain to analyse gender differences in intensity of care, care recipient needs and subjective burden, as well as the moderating effects of kinship on the relationship between gender and subjective burden. A probabilistic sample of 200 primary caregivers (100 male and 100 female) of older relatives was interviewed by expert nurses. Socio-demographic data and several scales regarding objective and subjective burden were used to collect data. Descriptive statistics, Student's t-test, ANOVA and multiple linear regression were used to analyse the data. There were gender differences in subjective burden, with female caregivers having more subjective burden than male caregivers, but not in objective burden (intensity of care and care recipients' needs). Kinship moderated the relationship between gender and subjective burden, as gender differences were found in spouses (wives had more subjective burden than husbands) but not in offspring.


Asunto(s)
Cuidadores/estadística & datos numéricos , Costo de Enfermedad , Ambiente , Estrés Psicológico/epidemiología , Anciano , Cuidadores/psicología , Estudios Transversales , Femenino , Humanos , Incidencia , Masculino , Persona de Mediana Edad , Factores de Riesgo , España/epidemiología , Estrés Psicológico/economía
17.
Aten Primaria ; 48(10): 649-656, 2016 Dec.
Artículo en Español | MEDLINE | ID: mdl-27083077

RESUMEN

OBJECTIVE: To know the primary care nurses' difficulties to promote advance care planning process with patients in the end of life. DESIGN: Phenomenological qualitative methodology. LOCATION: Health Management Area North of Jaén. PARTICIPANTS: Primary care nurses. METHOD: Purposive sampling. Fourteen in-depth interviews were conducted until the speeches saturation. Content analysis in four steps: transcription, coding, obtaining results and conclusions verification. Supported whit the software Nvivo 8. Triangulation of results between researchers. RESULTS: Professionals' difficulties: Lack of knowledge about the topic, lack of communication skills, lack of experience and presence of negative emotions. In the health institution lack of time and interference with other professionals is a barrier. Also the patient's attitude and the family are identified as an obstacle because few people speak about the end of life. Finally, our society prevents open discussion about issues related to death. CONCLUSIONS: Professional learning about advanced care planning, training in communication skills and emotional education are necessary. Health managers should consider the fact that early interventions for planning health decisions require training, time and continued attention. If a cultural change does not happen, an evasive way to face the end of life will persist.


Asunto(s)
Planificación Anticipada de Atención , Enfermería de Atención Primaria , Adulto , Femenino , Humanos , Masculino , Persona de Mediana Edad , Investigación Cualitativa
18.
Gac Sanit ; 30(3): 201-7, 2016.
Artículo en Español | MEDLINE | ID: mdl-26987279

RESUMEN

OBJECTIVE: To identify and analyse problems in adapting to change among the family caregivers of relatives with dementia. METHOD: Qualitative study based on the methodology of Charmaz's Constructivist Grounded Theory. Seven focus groups were conducted in different primary health care centres in the province of Jaen (Spain). Eighty-two primary family caregivers of relatives with dementia participated by purposeful maximum variation sampling and theoretical sampling. Triangulation analysis was carried out to increase internal validity. RESULTS: We obtained three main categories: 'Changing Care', 'Problems in the process of adapting to change' and 'Facilitators of the process of adapting to change'. Family caregivers perform their role in a context characterized by personal change, both in the person receiving the care and in the social and cultural context. The challenge of adaptation lies in the balance between the problems that hamper adaptation of the caregiver to new situations of care and the factors that facilitate the caregiver role. CONCLUSIONS: The adaptation of family caregivers to caring for a person with dementia is hindered by the lack of formal support and under-diagnosis of dementia. The adaptation process could be improved by strengthening formal support in the early stages of care to reduce the stress of family caregivers who must teach themselves about their task and by interventions adapted to each phase in the development of the caregiver role.


Asunto(s)
Adaptación Psicológica , Cuidadores , Demencia/enfermería , Familia , Anciano , Demencia/psicología , Grupos Focales , Humanos , Investigación Cualitativa , España
19.
Res Nurs Health ; 38(5): 384-91, 2015 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-26132463

RESUMEN

Some researchers have viewed caregiver burden and satisfaction as two ends of the same continuum rather than as independent aspects of the caregiving experience. We conducted a cross-sectional study of primary caregivers of dependent elderly relatives in Spain (N = 200; probabilistic sample), to determine whether satisfaction and perceived burden coexisted in caregivers, and whether these variables, considered separately and in combination, were associated with anxiety and depression, while controlling for objective aspects of care recipients' needs. Data on satisfaction with care, perceived burden, objective burden, anxiety, and depression were gathered in 2013 by interviews in caregivers' homes. Descriptive, bivariate, and multivariate analyses were performed. Of the 200 primary caregivers, 12.5% reported both high satisfaction with care and high perceived burden. Anxiety and depression levels were lower in caregivers with high satisfaction and low perceived burden than in those with low satisfaction and high burden or with high satisfaction and high burden. Our findings support the following conclusions: (1) Satisfaction may be experienced despite the presence of stressful factors; (2) the combination of high satisfaction and low burden might have protective effects on anxiety and depression in caregivers.


Asunto(s)
Ansiedad/epidemiología , Cuidadores/psicología , Cuidadores/estadística & datos numéricos , Depresión/epidemiología , Satisfacción Personal , Estrés Psicológico/epidemiología , Adulto , Anciano , Anciano de 80 o más Años , Costo de Enfermedad , Estudios Transversales , Femenino , Anciano Frágil , Humanos , Masculino , Persona de Mediana Edad , España
20.
Aten Primaria ; 47(9): 589-95, 2015 Nov.
Artículo en Español | MEDLINE | ID: mdl-25962569

RESUMEN

OBJECTIVE: To develop and validate a scale to measure caregiving dedication regarding activities of daily living in caregivers of dependent older people. DESIGN: Cross-sectional study. LOCATION: Primary Health Care (Andalusia, Spain). PARTICIPANTS: a probabilistic sample of 200 caregivers of older relatives from Córdoba, Spain. MAIN MEASUREMENTS: Content validation by experts, construct validity (by exploratory factor analysis), divergent validity and reliability (internal consistency, test-retest reliability and inter-observers reliability). RESULTS: Cronbach's alpha was 0.86. Intraclass Correlation Coefficient was 0.96 for test-retest reliability and 0.88 for inter-observers reliability. When the sample was divided in two groups according to perceived burden level (presence and absence), the perceived burden was significantly different in each group (P=.001). The factor analysis revealed one only factor that explained 64% of the variance. CONCLUSIONS: The scale allows a suitable measure of caregiving dedication regarding activities of daily living in caregivers of older people, because this scale allows a quickly, easy administration, is well accepted by caregivers, has acceptable psychometric results and includes the frequency of caregiving, the kind of attended need and the dependence level in each need.


Asunto(s)
Actividades Cotidianas , Cuidadores , Anciano , Estudios Transversales , Humanos , Psicometría , Reproducibilidad de los Resultados , España , Encuestas y Cuestionarios
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