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Because of challenges involved in recruitment, little research has focused on care needs of minority ethnic groups. This article reports on a study that recruited 186 British south Asian carers of people with dementia. Four obstacles were faced: language barriers, confusion over research, feelings of shame/stigma, and mistrust. Researchers drew on various methods: enlisting multilingual researchers; activating contacts in minority ethnic communities; engaging with community groups; emphasising potential for enhancing support services; and tailoring research instruments to minority ethnic issues. Tips are offered to other researchers recruiting minority ethnic participants into studies.
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Cuidadores , Demencia , Pueblo Asiatico , Etnicidad , Humanos , Grupos MinoritariosRESUMEN
Snakes are descended from highly visual lizards [1] but have limited (probably dichromatic) color vision attributed to a dim-light lifestyle of early snakes [2-4]. The living species of front-fanged elapids, however, are ecologically very diverse, with â¼300 terrestrial species (cobras, taipans, etc.) and â¼60 fully marine sea snakes, plus eight independently marine, amphibious sea kraits [1]. Here, we investigate the evolution of spectral sensitivity in elapids by analyzing their opsin genes (which are responsible for sensitivity to UV and visible light), retinal photoreceptors, and ocular lenses. We found that sea snakes underwent rapid adaptive diversification of their visual pigments when compared with their terrestrial and amphibious relatives. The three opsins present in snakes (SWS1, LWS, and RH1) have evolved under positive selection in elapids, and in sea snakes they have undergone multiple shifts in spectral sensitivity toward the longer wavelengths that dominate below the sea surface. Several relatively distantly related Hydrophis sea snakes are polymorphic for shortwave sensitive visual pigment encoded by alleles of SWS1. This spectral site polymorphism is expected to confer expanded "UV-blue" spectral sensitivity and is estimated to have persisted twice as long as the predicted survival time for selectively neutral nuclear alleles. We suggest that this polymorphism is adaptively maintained across Hydrophis species via balancing selection, similarly to the LWS polymorphism that confers allelic trichromacy in some primates. Diving sea snakes thus appear to share parallel mechanisms of color vision diversification with fruit-eating primates.
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Evolución Biológica , Elapidae/fisiología , Hydrophiidae/fisiología , Polimorfismo Genético , Percepción Visual , Alelos , Animales , Elapidae/genética , Evolución Molecular , Hydrophiidae/genéticaRESUMEN
Patient and public involvement is imperative to ensure relevance of research. There is a growing literature on the theoretical underpinning on patient and public involvement including level and processes of involvement. The aim of this paper is to describe a person-centred and culturally sensitive approach to working with minority ethnic communities, involving carers, people living with dementia, members of the public and carer support workers, as used in the Caregiving HOPE study; and the influence of the approach on the study's research processes and outcomes. Patient and public involvement members were considered experts by experience and involved with study conception, design, conduct and dissemination. The perspective of the experts by experience is also presented in this article. The level and nature of involvement was influenced by each individual's needs and desires which changed over the course of the study. The approach had a significant impact on study outcomes as evidenced by successful recruitment and engagement at a national level, but was not without challenges with greater flexibility required and fuller consideration of financial and time costs required. Benefits of the approach included strong engagement, improved outcomes (successful recruitment of seldom heard groups) and meaningful relationships between researchers and experts by experience. A person-centred and culturally sensitive approach is required with patient and public involvement to ensure involvement is not detrimental to those involved, is meaningful and enjoyable and has a positive impact on the research.
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Participación de la Comunidad , Demencia/etnología , Etnicidad/psicología , Grupos Minoritarios/psicología , Investigación , Asia , Cuidadores/psicología , HumanosRESUMEN
BACKGROUND: More people than ever receive care and support from health and social care services. Initiatives to integrate the work of health and social care staff have increased rapidly across the UK but relatively little has been done to chart and improve their impact on service users. Our aim was to develop a framework for gathering and using service user feedback to improve integrated health and social care in one locality in the North of England. METHODS: We used published literature and interviews with health and social care managers to determine the expected service user experiences of local community-based integrated teams and the ways in which team members were expected to work together. We used the results to devise qualitative data collection and analysis tools for gathering and analyzing service user feedback. We used developmental evaluation and service improvement methodologies to devise a procedure for developing service improvement plans. FINDINGS: We identified six expected service user experiences of integrated care and 15 activities that health and social care teams were expected to undertake. We used these to develop logic models and tools for collecting and analysing service user experiences. These include a narrative interview schedule, a plan for analyzing data, and a method for synthesizing the results into a composite 'story'. We devised a structured service improvement procedure which involves teams of health and social care staff listening to a composite service user story, identifying how their actions as a team may have contributed to the story and developing a service improvement plan. CONCLUSIONS: This framework aims to put service user experiences at the heart of efforts to improve integration. It has been developed in collaboration with National Health Service (NHS) and Social Care managers. We expect it to be useful for evaluating and improving integrated care initiatives elsewhere.
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Recolección de Datos/métodos , Prestación Integrada de Atención de Salud , Servicio Social , Retroalimentación , Humanos , Modelos EstadísticosRESUMEN
This longitudinal study investigated differences in beliefs and perceived behavioural control between smokers and non-smokers in a large sample of adolescents. Positive and negative instrumental beliefs, normative beliefs, perceived behavioural control (PBC) and smoking status were assessed in the same participants at 11, 13 and 15 years of age. Prospective analyses among non-smokers revealed that for boys, negative instrumental beliefs in non-smokers at age 11 predicted smoking at age 15 years. For girls, normative beliefs and PBC in non-smokers at age 11 predicted smoking status at age 13; normative beliefs at age 11 predicted smoking at age 15; and positive instrumental beliefs and normative beliefs at age 13 predicted smoking status at age 15. Cross-sectional data revealed that smokers were significantly more likely than non-smokers to endorse positive instrumental beliefs, less likely to agree with negative instrumental belief items, more likely than non-smokers to perceive social pressure to smoke, and less likely to report control over smoking, and that female smokers reported less control over smoking and fewer negative instrumental beliefs than all other groups including male smokers at age 13. The need for belief-based preventative interventions that are age- and gender-relevant is discussed.
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Conocimientos, Actitudes y Práctica en Salud , Fumar , Adolescente , Niño , Estudios Transversales , Inglaterra , Femenino , Humanos , Estudios Longitudinales , Masculino , Estudios Prospectivos , Factores Sexuales , Encuestas y CuestionariosRESUMEN
Role of 'Big Five' personality traits as predictors of smoking and moderators of the intention-smoking relationship was tested. Five hundred and fifty-three adolescents (aged 11-12) completed measures of self-reported past smoking, gender, intentions to smoke, perceived behavioural control, family smoking, friends smoking at times 1 and 2 (6 months apart). At time 3, 2 years later, the same adolescents completed measures of the Big Five and self-reported smoking (a subset of 300 also provided an objective smoking measure). At time 4, two years after time 3, a sub-sample of 122 adolescents provided a self-report measure of recent smoking. Simple correlations indicated significant direct effects of conscientiousness (self-reported smoking, times 3 and 4), extraversion (time 4 smoking) and neuroticism (all smoking measures) on smoking. Logistic regression showed intention, and the interaction between conscientiousness and intention to significantly predict both self-reported and objectively assessed smoking (both at time 3) after controlling for other variables. Multiple regression showed intentions, family smoking and the interaction between conscientiousness and intention to significantly predict self-reported smoking at time 4 after controlling for other variables. The findings indicate that the impact of personality variables on smoking is through mediated (through cognitions) and moderated (conscientiousness by intention interaction) pathways.
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Personalidad , Fumar , Adolescente , Niño , Inglaterra , Extraversión Psicológica , Femenino , Humanos , Intención , Masculino , Trastornos Neuróticos , Encuestas y CuestionariosRESUMEN
The focus of this article is on constructions of health and illness in relation to smoking. Specifically, we were interested in how culturally embedded health promotion messages were discussed and understood by our young smokers-and how continued smoking was rationalised in the context of a thoroughgoing anti-smoking climate. To investigate accounts of smoking maintenance, we conducted focus group discussions (N = 22 groups) with young adults from both high school and university settings. Techniques from discourse analysis were used to identify significant patterns of talk around health and smoking, and three main repertoires were elicited. First, the health risks of smoking were downplayed in several ways (e.g. by citing other risky activities). Second, the putative health benefits of smoking were emphasised (e.g. stress relief). Third, smoking was construed as a temporary, youthful phenomenon, which would cease upon entering responsible adulthood. The implications of these three interlocking repertoires are discussed in relation to smoking maintenance, and suggestions for targeted health promotion are made.
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Actitud Frente a la Salud , Fumar/psicología , Adolescente , Inglaterra , Femenino , Grupos Focales , Humanos , Masculino , Adulto JovenRESUMEN
The concept of naturalness is one of the more studied concepts in landscape preference research and describes how close a landscape is to a perceived natural state. In this study we explored the relationship between landscape preference and three landscape indicators of naturalness (level of succession, number of woodland patches and shape index of edges). We used computer-generated visualisations of a hypothetical landscape containing pasture and broadleaved woodland. In the landscape simulations we altered the values of the naturalness indicators between the levels of low, medium and high, creating 27 different visualisations. The survey was distributed as an on-line survey in seven different languages and obtained 703 respondents. The study showed a strong relationship with preference for both the level of succession and number of woodland patches, and a weaker relationship with shape index of edges. The two demographic factors which were shown to contribute most to the formation of preference were gender and having a landscape related profession. The results suggest that the selected indicators are more important drivers of preference than demographic factors.
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Conducción de Automóvil , Estética , Percepción Visual , Adolescente , Adulto , Ecosistema , Europa (Continente) , Femenino , Humanos , Lenguaje , Masculino , Persona de Mediana Edad , Percepción , Poaceae , Reconocimiento en Psicología , Árboles , Adulto JovenRESUMEN
The growing demand for integrative (interdisciplinary or transdisciplinary) approaches in the field of environmental and landscape change has increased the number of PhD students working in this area. Yet, the motivations to join integrative projects and the challenges for PhD students have so far not been investigated. The aims of this paper were to identify the understanding of PhD students with regard to integrative research, their motivations to join integrative projects, their expectations in terms of integration and results, and to reveal the challenges they face in integrative projects. We collected data by a questionnaire survey of 104 PhD students attending five PhD Master Classes held from 2003 to 2006. We used manual content analysis to analyse the free-text answers. The results revealed that students lack a differentiated understanding of integrative approaches. The main motivations to join integrative projects were the dissertation subject, the practical relevance of the project, the intellectual stimulation of working with different disciplines, and the belief that integrative research is more innovative. Expectations in terms of integration were high. Core challenges for integration included intellectual and external challenges such as lack of knowledge of other disciplines, knowledge transfer, reaching depth, supervision, lack of exchange with other students and time demands. To improve the situation for PhD students, we suggest improving knowledge on integrative approaches, balancing practical applicability with theoretical advancement, providing formal introductions to other fields of research, and enhancing institutional support for integrative PhD projects.
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Comprensión , Ecología/educación , Motivación , Proyectos de Investigación , Estudiantes/psicología , Ecología/métodos , Educación de Postgrado , Humanos , Percepción , Encuestas y CuestionariosRESUMEN
OBJECTIVE: This study was designed to investigate how young men and women smokers and non-smokers talk about the impact of smoking on appearance, with the aim of using these accounts to inform anti-smoking campaigns targeted at young people. DESIGN: Volunteer smokers and non-smokers took part in 24 focus groups. METHOD: Eighty-seven men and women aged 17-24 were asked to talk about impacts of smoking on appearance. RESULTS: A thematic analysis of transcripts suggested that weight gain after quitting was only a significant concern for the younger (17-year-old) women. Non-smokers of both genders expressed concern about yellowing of skin and teeth if they started smoking, and women non-smokers were concerned about skin ageing. Smokers believed that smoking made them look 'cool', mature, and sophisticated and would quit only if skin ageing and other negative effects on appearance became visible. CONCLUSIONS: Appearance concerns are relevant to the decision whether to start and quit smoking, and are linked to gender and age. Results are discussed in relation to implications for the development of age- and gender-relevant anti-smoking interventions.
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Obesidad/prevención & control , Autoimagen , Fumar , Deseabilidad Social , Adolescente , Índice de Masa Corporal , Femenino , Humanos , Masculino , Adulto JovenRESUMEN
This qualitative study explored how young people (16- to 24-year olds), both smokers and non-smokers, talk about the social role of smoking in their everyday lives. In 22 focus group interviews, 47 high school children and 40 university undergraduates participated. On the basis of analyses, it is proposed that the perceived need to smoke cannot be reduced to addiction; cigarettes appear to play a complex social role in young people's lives. In order to resist smoking, participants highlighted the need to provide an excuse to peers, and some reasons (e.g. an interest in sport for boys) were considered more legitimate than others. Cigarettes (certain brands) were also claimed to be used as a way of controlling other people's perception of smokers, and also to serve as a social tool (for instance, to fill in awkward gaps in conversation). Additionally, smoking was argued to be subject to context (e.g. some schools possess a pro-smoking ethic, while others and universities are anti-smoking). Finally, it was claimed that stopping smoking is difficult since all of the foregoing social factors cannot easily be avoided. The findings of this study compliment and enrich existing social psychological approaches to smoking in young people, and lay the basis for anti-smoking campaigns which take into account the complex social role cigarettes play in the lives of young people.
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Fumar , Socialización , Adolescente , Femenino , Grupos Focales , Humanos , Entrevistas como Asunto , Masculino , Reino Unido , Adulto JovenRESUMEN
Integrative (interdisciplinary and transdisciplinary) landscape research projects are becoming increasingly common. As a result, researchers are spending a larger proportion of their professional careers doing integrative work, participating in shifting interdisciplinary teams, and cooperating directly with non-academic participants. Despite the growing importance of integrative research, few studies have investigated researchers' experiences in these projects. How do researchers perceive the outcomes of integrative projects, or career effects? Do they view the projects generally as successes or failures? This study analyses researchers' experiences in integrative landscape studies and investigates what factors shape these experiences. The data stems from 19 semi-structured qualitative interviews and a Web-based survey among 207 participants in integrative landscape research projects. It finds that researchers experience participation in integrative projects as positive, in particular discussions among participants, networking, teamwork, and gaining new insights and skills. Furthermore, most researchers perceive the projects as successful and as having a positive effect on their careers. Less positive aspects of integration relate to publications and merit points. Factors found to contribute to positive experiences include reaching a high degree of integration amongst the involved disciplines, common definitions of integrative research concepts, and projects that include a large share of fundamental research as well as projects with many project outcomes. Based on these findings, we advise future projects to plan for integration, facilitate discussions, and reach agreement on integrative concepts. We suggest that aspects of fundamental research be included in integrative projects. We also suggest that planning be done at an early stage for peer-reviewed publications, to ensure that participants gain merit points from their participation in integrative research efforts.
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Conservación de los Recursos Naturales , Comunicación Interdisciplinaria , Investigación , Recolección de Datos , Humanos , Internet , Entrevistas como Asunto , InvestigadoresRESUMEN
The routine occurrence of both short-term (daily) and long-term torpor (hibernation) in short-beaked echidnas, but not platypus, raises questions about the third monotreme genus, New Guinea's Zaglossus. We measured body temperatures (T(b)) with implanted data loggers over three and a half years in two captive Zaglossus bartoni at Taronga Zoo, Sydney. The modal T(b) of both long-beaks was 31 degrees C, similar to non-hibernating short-beaked echidnas, Tachyglossus aculeatus, in the wild (30-32 degrees C) and to platypus (32 degrees C), suggesting that this is characteristic of normothermic monotremes. T(b) cycled daily, usually over 2-4 degrees C. There were some departures from this pattern to suggest periods of inactivity but nothing to indicate the occurrence of long-term torpor. In contrast, two short-beaked echidnas monitored concurrently in the same pen showed extended periods of low T(b) in the cooler months (hibernation) and short periods of torpor at any time of the year, as they do in the wild. Whether torpor or hibernation occurs in Zaglossus in the wild or in juveniles remains unknown. However, given that the environment in this study was conducive to hibernation in short-beaks, which do not easily enter torpor in captivity, and their large size, we think that torpor in wild adult Zaglossus is unlikely.
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Temperatura Corporal , Tachyglossidae/fisiología , Animales , Regulación de la Temperatura Corporal , Femenino , Monotremata/anatomía & histología , Monotremata/fisiología , Estaciones del Año , Tachyglossidae/anatomía & histología , Factores de TiempoRESUMEN
Numerous previous investigators have explained species differences in spatial memory performance in terms of differences in foraging ecology. In three experiments we attempted to extend these findings by examining the extent to which the spatial memory performance of echidnas (or "spiny anteaters") can be understood in terms of the spatio-temporal distribution of their prey (ants and termites). This is a species and a foraging situation that have not been examined in this way before. Echidnas were better able to learn to avoid a previously rewarding location (to "win-shift") than to learn to return to a previously rewarding location (to "win-stay"), at short retention intervals, but were unable to learn either of these strategies at retention intervals of 90 min. The short retention interval results support the ecological hypothesis, but the long retention interval results do not.