Do I Have Symptoms of Dementia: A Discursive Study of Awareness and Shame Among People With Advanced Dementia.

BACKGROUND AND OBJECTIVES: This study explores the narrated experiences of individuals with advanced stages of late-onset dementia, focusing on their diagnosis awareness. Such framing is motivated by 2 reasons. Firstly, there is a lack of consensus regarding the prevalence of anosognosia among people with dementia. Secondly, research on anosognosia often neglects to address the important issues of shame and stigma associated with receiving a dementia diagnosis. RESEARCH DESIGN AND METHODS: For this qualitative study, a total of 27 participants ranging in age from 66 to 94 were involved. The data collected were analyzed using textual-oriented discourse analysis. RESULTS: Our findings indicated that individuals with dementia struggled to comprehend the medical terminology used to describe their experiences within biomedical standards. The interviewees utilized 5 negative discourses on dementia, which shaped their attitudes toward the condition and people diagnosed with it. These discourses depicted dementia as an illness, negative aging, a devaluation, a burden, and a life tragedy. Moreover, study participants did not outright reject the diagnosis but rather negotiated its acceptance within the context of shame associated with dementia. DISCUSSION AND IMPLICATIONS: The concept of anosognosia can serve as a mechanism of social control and stigmatization of people with dementia within the dominant biomedical discourse.

Caring From a Distance: Experiences of Polish Immigrants in the United States Providing Care to Parents With Dementia Overseas.

OBJECTIVES: Aging populations and an increasing number of immigrants in recent years have led to numerous changes in intergenerational relationships. Although many studies have investigated the impact of providing care to a parent with dementia, little is known about the impact of caregiving activities provided from a distance, such as in the case of immigration, and over a long period of time to a person with dementia. Our understanding of how transnational caregiving for a person with dementia affects relationships is also limited. Using the Intergenerational Solidarity Theory as a theoretical framework, this paper examines the experiences of adult children and immigrant caregivers of a parent with dementia living in Poland. METHODS: A qualitative, semistructured interview was conducted with 37 caregivers living in the United States while providing transnational care to a parent with Alzheimer's disease or other forms of dementia. The data analysis was based on the thematic analysis strategy. RESULTS: Four themes were identified: (1) filial obligations and solidarity, (2) caregivers' contradictory emotions regarding transnational care, (3) financial and emotional exhaustion, and (4) challenges of nursing home dilemmas. DISCUSSION: Transnational caregivers represent a unique group who face distinctive challenges related to competing demands and limited resources. This study contributes to a better understanding of their experiences whereas the findings highlight the importance of addressing the mental and physical well-being of immigrant caregivers of individuals with dementia and have important implications for health care professionals and immigration policies. Implications for future research were also identified.

Family relationships as a source of narrative identity of people with advanced dementia.

BACKGROUND: The growing body of research on narrative identity, while helpful, rarely focuses on people with dementia. In this paper, we explore how individuals living with advanced dementia construct their narrative identities in relation to their family experiences, which play a crucial role in shaping identity as shown by recent studies. METHODS: We conducted a qualitative study using data from 15 semi-structured interviews with people aged 66 to 94 who have advanced dementia. The data were analyzed using a textual-oriented discourse analysis. RESULTS: We identified two discourses-autobiographical and economic-that organize their narrative identities. Through the autobiographical discourse, participants emphasized their sense of belonging within a social group and their role as custodians of family identity. Within the economic discourse, they negotiated their social utility and value, particularly in response to demeaning discourses targeting individuals who do not accumulate wealth. In the structural analysis, we identified two narrative types-looped or unfolding-that depend on their affective experiences related to their family. We especially explored how the repetition of narrative threads by individuals with dementia might indicate a traumatic background rather than just memory disruptions. CONCLUSIONS: This study provides insights into the narrative identities of individuals with advanced dementia, shedding light on the intersection of family experiences and identity formation in this population.

Reliability and Validity of the Polish Version of the Alzheimer's Disease Knowledge Scale.

INTRODUCTION: In the context of increasing numbers of older adults and an increased prevalence of neurodegenerative diseases, the early diagnosis of dementia has become an important issue. Poland's population is aging, and the growing number of individuals with Alzheimer's disease (AD) may pose challenges for families and the health-care system. While creating effective psychoeducational interventions aiming at increasing caregivers' knowledge may be beneficial, Poland lacks a standardized measurement for assessing knowledge about AD or a related form of dementia. METHODS: The aim of our study was to translate and evaluate the Alzheimer's Disease Knowledge Scale (ADKS) among Polish individuals. RESULTS: The Polish ADKS was developed through a translation-back translation method. Psychometric evaluation was done with a sample of 942 individuals (caregivers, health-care professionals, and general population) who completed the questionnaire. DISCUSSION: The results indicate that the scale produces acceptable psychometric properties and can be used to evaluate the effectiveness of educational interventions among caregivers, health-care professionals, and the general population.

Attitudes, beliefs, and changing trends of cannabidiol (CBD) oil use among caregivers of individuals with Alzheimer's disease.

OBJECTIVES: With the increasing popularity of CBD-based products, especially CBD oil, it is increasingly important to understand what motivates caregivers of individuals with Alzheimer's disease (AD) to use CBD oil as part of treatment. The purpose of this study was to identify the attitudes and beliefs of caregivers of individuals with AD toward CBD oil in Poland, to identify factors that might be associated with the decision to use CBD oil among caregivers, and to explore whether such a decision was discussed with a healthcare professional. METHOD: A cross-sectional online survey was conducted in Poland. Participation in the study was entirely voluntary and completely anonymous. Caregivers (n = 73) were asked about their practices and attitudes regarding CBD oil. RESULTS: The most common source of knowledge about CBD oil was an online support group for caregivers. The vast majority of caregivers found CBD to be effective in managing behavioral symptoms of AD and believed that healthcare professionals should offer CBD oil as a part of treatment. However, only 63 % (n = 46) reported consulting with their physician about using CBD oil. The study also demonstrated that some caregivers thought that CBD oil use was illegal in Poland and that their care-recipient may develop a dependence and withdrawal symptoms if they stopped using it. CONCLUSIONS: The results of the study highlight the positive and negative perceptions among caregivers of people with AD. The study also emphasizes the importance of enhancing communication between caregivers and healthcare professionals to discuss the use of CBD oil in the treatment of individuals with AD.

Psychometric Properties of the Polish Version of the Frontotemporal Dementia Knowledge Scale.

INTRODUCTION: Taking into account a progressive increase in the number of individuals affected by dementia and the importance of being knowledgeable about its symptoms, it has become crucial to develop well-validated instruments for measuring knowledge about dementia. The aim of this study was to translate and validate the Frontotemporal Dementia Knowledge Scale (FTDKS) in a Polish population. METHODS: The FTDKS was translated into the Polish language based on the most highly recommended methodological approaches for translating and validating instruments for cross-cultural healthcare research. Psychometric properties were evaluated in a sample of 869 individuals (general population, healthcare professionals, and caregivers) who completed the questionnaire. The reliability of the FTDKS was tested as an internal consistency using both Cronbach's alpha and McDonald's omega factor analysis. The convergent and discriminant validity was assessed using the Heterotrait-monotrait Ratio of Correlation between scores of FTDKS, vocabulary intelligence, and Alzheimer's Disease Knowledge Scale (AKDS). RESULTS: The results indicate that the scale produces satisfactory psychometric properties (Cronbach's alpha and McDonald's omega over 0.80). The internal consistency was slightly higher in the population of healthcare professionals and caregivers than among the general population. DISCUSSION: The internal consistency of the Polish version of FTDKS demonstrates a similar validity to the original version. The FTDKS can be used to evaluate the effectiveness of educational interventions among caregivers, healthcare professionals, and the general population.

Is there a relationship between personality traits and fruit and vegetable intake among pregnant women?

Previous studies have shown that certain personality traits such as neuroticism and conscientiousness influence dietary choices. Pregnancy is a unique period in a woman's life during which most women are highly intrinsically and extrinsically motivated to start a diet rich in fruit and vegetables. Yet, an adequate consumption of fruits and vegetables remains a challenge for many women. The present study investigates the relationships between personality traits and fish, dairy, fruit, and vegetable intake. Data was collected from 602 pregnant women and analyzed using descriptive statistics and hierarchical regression analyses in order to examine predictive relationships between the variables of interest. The results demonstrated that high scores in openness to experience, older maternal age, higher income, and educational attainment were positively associated with increased fish, vegetable, and fruit intake. These findings have important implications for interventions that seek to improve eating behaviors of pregnant women, thereby increasing the health of their pregnancies.

Are personality traits associated with smoking and alcohol use prior to and during pregnancy?

Cigarette smoking and alcohol consumption during pregnancy can have detrimental effects on the developing fetus, including fetal alcohol syndrome and low birth weight. Surprisingly little is known about the association of personality traits with smoking and alcohol consumption in the specific subpopulation of pregnant women. This study analyzed data from a geographically diverse sample of 603 pregnant women, aged 18 years and older, who provided information regarding their smoking and drinking habits before and during pregnancy. We compared women who consumed alcohol or smoked cigarettes before pregnancy with women who quit or continued smoking or drinking during pregnancy. Associations between personality and maladaptive behaviors prior to and during pregnancy were modeled using logistic regression. The study revealed that women who scored high on openness to experience were significantly more likely to continue alcohol consumption during pregnancy (OR = 1.07, 95% CI 1.01, 1.14, p = .02). This association was maintained after adjusting for potential confounds. This study demonstrated a significant relationship between personality traits and women's likelihood of continued alcohol consumption prior to and during pregnancy. Understanding personality-based determinants of health-detrimental behavior is important in order to design interventions that aim at decreasing rates of maladaptive health behaviors among pregnant women.

The role of online communication among spousal caregivers of individuals with Alzheimer's disease.

This study investigates (1) the importance of online communication for female caregivers (2) the impact of this form of maintaining social contact on well-being among 48 Polish spousal female caregivers of individuals with Alzheimer's disease. Data were collected using semi-structured interviews and self-completion questionnaires. Caregivers' online communication usage intensity was significantly associated with lower levels of depression and loneliness. Older women used online support groups to share their emotions related to the burden of providing care, to maintain a sense of social connection with other caregivers, and to access information about the disease. The results indicated Internet use has both positive and negative influences on the well-being of older women caregivers.

The Effectiveness of Psychoeducational and Financial Intervention to Support Caregivers of Individuals With Alzheimer's Disease in Poland.

BACKGROUND AND OBJECTIVES: The goal of this study is to create data-driven guidelines and tools for caregivers and health care professionals that will enable caregivers to be prepared for future caregiving-related challenges and decrease their levels of stress. RESEARCH DESIGN AND METHODS: A total of 60 spousal caregivers of individuals with Alzheimer's disease (AD) living in Poland were recruited for this study. The participants were assigned to two different groups. The intervention group was provided with a five-session training focused on teaching coping strategies for managing difficult behaviors and provided with a stipend for a period of 6 months (a financial aid program recently launched by the local agency). A control group was not provided with any of the interventions but asked to complete the questionnaires. The effectiveness of each intervention was assessed at a baseline and 6 months after baseline evaluation. RESULTS: Caregivers who received financial and educational training reported significantly decreased levels of depression and caregiver burden in comparison to the control group. The majority of caregivers emphasized that caregiving created financial problems and that their work has been underestimated by the government. DISCUSSION AND IMPLICATIONS: This project addresses several issues of central importance to the success of building research foundation for the interventions. The results have the potential of generating more efficient and personalized interventions that address the needs of the caregiver as they occur, leading to increased knowledge of AD and decreased levels of depression and caregiver burden.

Correlates of Health Literacy Among Polish Immigrants With Chronic Health Conditions: Preliminary Results.

The rapid increase in immigration to the United States in the past decades has resulted in an influx of individuals who have to familiarize themselves with a completely new health care system and practices, often in a new language. The purpose of this study was to assess health literacy and investigate its correlates among older U.S. Polish immigrants living in the Greater Chicago area. We conducted a cross-sectional study on 60 older adults (24 men, 36 women; mean age = 71.1 years) who completed the Short Test of Functional Health Literacy (S-TOFHLA) and a demographic survey. Scores on S-TOFHLA were lower among older and less-educated immigrants. Undocumented immigrants reported using health care services less frequently than those with legal status. These results confirm the findings of previous studies that older age and fewer years of education are associated with inadequate health literacy. Being familiar with at least the basic information about one's condition will help patients to better understand a diagnosis, manage their symptoms, and improve any preventive treatment. The findings emphasize the importance of health education among older Polish immigrants. More research employing diverse groups of immigrants is needed to better understand the factors associated with health literacy.

The Relationship Between Personality Traits and Coping Styles Among First-Time and Recurrent Prisoners in Poland.

Individuals with certain personality traits employ adaptive coping strategies. Little research, however, has examined coping strategies among incarcerated individuals. A cross-sectional study was conducted among 465 males who served time in five different prisons in Poland. We examined the relationship between the Big Five personality dimensions and coping styles, and the results demonstrated that neuroticism predicts emotion-oriented coping whereas conscientiousness predicts task-oriented coping strategies. A better understanding of the role of personality traits and its relation to coping strategies may allow for more targeted and effective psychological interventions that will, in turn, improve inmates' abilities to cope with stress.

Future Directions in the Study of Personality in Adulthood and Older Age.

Over the past 20 years, empirical evidence has brought about a change in the view on how, or even whether, personality traits change or develop in adulthood and later life. Now we know personality can and does change for many people, if not most. Changes in personality may occur due to biological or environmental factors. This paper presents key empirical findings on personality change in adulthood and provides evidence that personality change affects mental and physical health. Our goal is to provide a broad overview on personality change research that would be an invaluable resource for students and researchers. We organize this paper into 3 sections. The first is focused on techniques in analyzing personality change in adulthood and later life. The second is focused on personality change as an outcome; we explore what factors predict personality change. The third discusses a relatively novel idea: personality change as a predictor of mental and physical health. We conclude that more research on factors predicting personality change is needed and we provide suggestions on how research on personality change can progress.

Aging in Poland.

With 38 million residents, Poland has the eighth-largest population in Europe. A successful transition from communism to democracy, which began in 1989, has brought several significant changes to the country's economic development, demographic structure, quality of life, and public policies. As in the other European countries, Poland has been facing a rapid increase in the number of older adults. Currently, the population 65 and above is growing more rapidly than the total population and this discrepancy will have important consequences for the country's economy. As the population ages, there will be increased demands to improve Poland's health care and retirement systems. This article aims to provide a brief overview of the demographic trends in Poland as well a look at the country's major institutions of gerontology research. The article also describes key public policies concerning aging and how these may affect the well-being of Poland's older adults.