RESUMEN
Participatory budgeting (PB) works best if this activity is viewed to be part of a trend that is referred to as community-based work. But this connection is not often made. As a result, many PB projects tend to drift away from their home communities. Although working in communities is thought to be a very practical endeavor, philosophy should not be ignored, particularly if the aim is to be community-based. Some examples are supplied in this paper that illustrate how this community-based philosophy alters, and improves, some traditional phases of PB projects. The overall result is to keep these budgeting projects informed by local knowledge and under community control.
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The thrust of narrative medicine is that patients and communities construct stories that guide their lives and give meaning to both health and illness. The responsibility of health care practitioners, therefore, is to learn how to read these local narratives to provide care that is relevant to an individual or community. Given the recognition that interaction must be tailored to the subjective experiences of patients and their communities, can there be universal ethical standards in the treatment of illness? We argue that the constructed nature of patient experiences does not pose a threat to making ethical clinical judgments. The solution to this dilemma requires that the traditional distinction between objectivity and subjectivity be eschewed by clinicians in favor of establishing dialogue with patients. Narratives are never created alone and are therefore not esoteric. Listening carefully to patients' stories is an ethical practice that can be fostered in health care settings. Subjectivity can be embraced by clinicians without jeopardizing ethical or evidence-based patient care.
Asunto(s)
Medicina Narrativa/ética , Objetivos , Humanos , Filosofía MédicaAsunto(s)
Servicios de Salud Comunitaria , Participación de la Comunidad , Salud Holística , Pautas de la Práctica en Medicina/ética , Medio Social , Servicios de Salud Comunitaria/ética , Servicios de Salud Comunitaria/tendencias , Vías Clínicas/ética , Humanos , Filosofía Médica , Garantía de la Calidad de Atención de Salud/métodos , Garantía de la Calidad de Atención de Salud/tendenciasRESUMEN
Reflection has become an important tool for physicians and other medical practitioners. However, many forms of reflection exist in the health care literature, with each having particular implications for successful clinical practice. Very little attention has been given to whether reflection is a vital part of narrative medicine and which forms of reflection might be compatible with this approach to patient care. In this article, the most common types of reflection are compared and discussed, specifically regarding their potential role in narrative medicine. Reflection that encourages practitioners to focus on the various perspectives shared within a medical encounter is both in line with the tenets of narrative medicine and has important consequences for patient empowerment.
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BACKGROUND: Despite an expansive literature on communication in medicine, the role of language is dealt with mostly indirectly. Recently, narrative medicine has emerged as a strategy to improve doctor-patient communication and integrate patient perspectives. However, even in this field which is predicated on language use, scholars have not specifically reflected on how language functions in medicine. METHODS: In this theoretical paper, the authors consider how different models of language use, which have been proposed in the philosophical literature, might be applied to communication in medicine. In particular, the authors contrast the traditional, indexical thesis of language with new models that focus on interpretation instead of standardization. RESULTS: The authors demonstrate how paying close attention to the role of language in medicine provides a philosophical foundation for supporting recent changes in doctor-patient communication. In particular, interpretive models are at the foundation of new approaches such as narrative medicine, that emphasize listening to patient stories, rather than merely collecting information. CONCLUSION: Ultimately, debates regarding the role of language which have largely resided in non-medical literatures, have important implications for describing communication in medicine. In particular, interpretive models of language use provide an important rationale for facilitating a more robust dialogue between doctors and patients.
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Comunicación , Lenguaje , Relaciones Médico-Paciente , Humanos , Modelos Teóricos , Medicina NarrativaRESUMEN
Increasing attention has been devoted to the important role that primary care will play in improving population health. One innovation, the patient-centered medical home (PCMH), aims to unite a variety of professionals with patients in the prevention and treatment of illness. Although patient perspectives are critical to this model, this article questions whether the PCMH in practice is truly community-based. That is, do physicians, planners, and other health care professionals take seriously the value of integrating local knowledge into medical care? The argument presented is that community-based philosophy contains a foundational principle that the perspectives of health care practitioners and community members must be integrated. Although many proponents of the PCMH aim to offer patient-centered and sustainable health care, focusing on this philosophical shift will ensure that services are organized by communities in collaboration with health care professionals.
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Servicios de Salud Comunitaria/organización & administración , Atención Dirigida al Paciente/organización & administración , Atención Primaria de Salud/organización & administración , Planificación en Salud/organización & administración , Humanos , Filosofía MédicaRESUMEN
The move to patient-centered medical practice is important for providing relevant and sustainable health care. Narrative medicine, for example, suggests that patients should be involved significantly in diagnosis and treatment. In order to understand the meaning of symptoms and interventions, therefore, physicians must enter the life worlds of patients. But physicians face high patient loads and limited time for extended consultations. In current medical practice, then, is narrative medicine possible? We argue that engaging patient perspectives in the medical visit does not necessarily require a lengthy interview. Instead, a new orientation to this process that emphasizes dialogue between practitioners and patients should be considered. In this new model, the purpose of the visit is to communicate successfully and develop a mutual understanding of illness and care.
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Narración , Humanos , Atención Dirigida al Paciente/métodos , Relaciones Médico-Paciente , Factores de TiempoRESUMEN
Community-based projects have become popular as a method to address various community problems. Specifically important is that community members take an active role in these interventions resulting in sustainable social change. Although considerable literature exists on the dynamics of small group interaction, this article addresses how group processes differ in community-based projects. Instead of constructing a static model for group interaction, this discussion focuses on experiences from a recent community-based health project on the island of Grenada. Because community-based projects are directed by a diverse group of community members, maturity is described as a process of negotiation rather than consensus.
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Redes Comunitarias/organización & administración , Promoción de la Salud , Comités Consultivos , Agentes Comunitarios de Salud , Grenada , Planificación en Salud , HumanosRESUMEN
This article is designed to unite theory and practice. The focus of attention is the impact of narrative medicine on clinical records. Specifically important is that records are created through dialogue, whereby patients are able to grow the record through their ability to offer critiques and alternative explanations. Merely allowing patients to peruse their records, through advances in technology, is not sufficient to facilitate this aim. Various theoretical and practical considerations are discussed that may facilitate patient involvement and the creation of more accurate and relevant patient records.
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Comunicación , Registros Médicos , Narración , HumanosRESUMEN
American health care has undergone significant organizational change in recent decades. But what is the state of core medical relationships in the wake of these changes? Throughout ACA-era health care reform, the doctor-patient relationship was targeted as a particularly important focus for improving communication and health outcomes. Recent developments however have shifted the focus from individual-level outcomes to the wellbeing of populations. This, we argue, requires a fundamental rethinking of health care reform as an opportunity to renegotiate relationships. For example, the move to population medicine requires that the very concept of a patient be resituated and the scope of relevant relationships expanded. Medical relationships in this era of health care are likely to include partnerships between various types of clinicians and the communities in which patients reside, as well as a host of new actors, from social workers and navigators to scribes and community health workers. To address the upstream determinants of population health, providers must be increasingly willing and trained to collaborate with community stakeholders to address both medical and non-medical issues. These community-based partnerships are critical to providing health care that is both relevant and appropriate for addressing problems, and sustainable. Approaching health care reform, and the focus on population health, as a fundamental reworking of relationships provides scholars with a sharper theoretical lens for understanding 21st century American health care.
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Primary health care has received a lot of attention since the Alma Ata Conference, convened by the World Health Organization in 1978. Key to the strategy to improve health care outlined at the Alma Ata conference is citizen participation in every phase of service delivery. Although the goals of primary health care have not been achieved, the addition of narrative medicine may facilitate these ends. But a new epistemology is necessary, one that is compatible with narrative medicine, so that local knowledge is elevated in importance and incorporated into the planning, implementation, and evaluation of health programs. In this way, relevant, sustainable, and affordable care can be provided. The aim of this article is to discuss how primary health care might be improved through the introduction of narrative medicine into planning primary health care delivery.
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Narración , Atención Primaria de Salud/organización & administración , Comunicación , Humanos , Relaciones Profesional-PacienteRESUMEN
Electronic medical records are regarded as an important tool in primary health-care settings. Because these records are thought to standardize medical information, facilitate provider communication, and improve office efficiency, many practices are transitioning to these systems. However, much of the concern with improving the practice of record keeping has related to technological innovations and human-computer interaction. Drawing on the philosophical reflection raised in Jacques Ellul's work, this article questions the technological imperative that may be supporting medical record keeping. Furthermore, given the growing emphasis on community-based care, this article discusses important non-technological aspects of electronic medical records that might bring the use of these records in line with participatory primary-care medicine.
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Comunicación , Servicios de Salud Comunitaria/organización & administración , Registros Electrónicos de Salud/organización & administración , Atención Primaria de Salud/organización & administración , Servicios de Salud Comunitaria/ética , Documentación , Registros Electrónicos de Salud/ética , Humanos , Filosofía Médica , Relaciones Médico-Paciente , Atención Primaria de Salud/ética , Factores de TiempoRESUMEN
An overemphasis on clinical trials and behavior change models has narrowed the knowledge base that can be used to design interventions. The overarching point is that the process of overanalyzing variables is impeding the process of gaining insight into the everyday experiences that shape how people define health and seek treatment. This claim is especially important to health decision-making and behavior change because subtle interpretations often influence the decisions that people make. This manuscript provides a critique of traditional approaches to developing health interventions, and theoretically justifies what and why changes are warranted. The limited scope of these models is also discussed, and an argument is made to adopt a strategy that includes the perceptions of people as necessary for understanding health and health-related decision-making. Three practical strategies are suggested to be used with the more standard approaches to assessing the effectiveness and relevance of health interventions.
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Conductas Relacionadas con la Salud , Investigación sobre Servicios de Salud/métodos , Salud Pública , Ensayos Clínicos como Asunto , Toma de Decisiones , HumanosRESUMEN
Although studies on the initiation of substance abuse abound, the body of literature on prescription opioid abuse (POA) etiology is small. Little is known about why and how the onset of POA occurs, especially among high-risk populations. In this study we aimed to fill this important knowledge gap by exploring the POA initiation experiences of 90 prescription opioid abusers currently in treatment and their narrative accounts of the circumstances surrounding their POA onset. This research was conducted within a storyline framework, which operates on the premise that the path to drug abuse represents a biography or a process rather than a static condition. Audiotapes of in-depth interviews were transcribed, coded, and thematically analyzed. Analyses revealed the presence of four trajectories leading to POA. This study adds to the limited research on POA etiology by not only illuminating the psychosocial factors that contribute to POA onset, but also by situating initiation experiences within broader life processes. The study findings provide crucial insights to policymakers and interventionists in identifying who is at risk for POA, and more important, when and how to intervene most efficaciously.
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Analgésicos Opioides/administración & dosificación , Trastornos Relacionados con Opioides/etiología , Trastornos Relacionados con Opioides/psicología , Adolescente , Adulto , Cultura , Emociones , Femenino , Encuestas Epidemiológicas , Humanos , Masculino , Persona de Mediana Edad , Trastornos Relacionados con Opioides/etnología , Factores Socioeconómicos , Adulto JovenRESUMEN
Using the Las Mercedes Project as an example, the aim of this article is to discuss the philosophy and practice of community-based projects. At the core of such projects is a shift in understanding the nature of community. A community, in this case, represents a reality that persons construct that determines the character of rules, norms, and the focus and style of interventions. Additionally, community-based organizations, such as the Las Mercedes Project, are fully participatory, decentered, and carry the imprint of a community's members. Community-based projects, in this regard, improve the likelihood of creating successful interventions.
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Servicios de Salud Comunitaria/organización & administración , Eficiencia Organizacional , Evaluación de Programas y Proyectos de Salud , Características de la Residencia , Servicios de Salud Comunitaria/estadística & datos numéricos , Encuestas de Atención de la Salud , Promoción de la Salud/métodos , Humanos , Perú , Desarrollo de Programa , Mercadeo SocialRESUMEN
Service delivery has traditionally been based on market forces. When this is the case, the community becomes a silent partner in this process. Services, accordingly, are directed mostly to correcting personal ills and have little to do with community uplift. Another model, based on the work of Amartya Sen, is available that conceptualizes interventions in a very different way. If understood in the context of community development, the focus of services is social change, rather than merely personal rehabilitation. This reorientation is discussed in this article.
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Personas con Discapacidad , Servicio Social/organización & administración , Humanos , Opinión PúblicaRESUMEN
The current perception held by many persons about health care has been affected by a neo-liberal economic philosophy. This outlook, however, is built on a premise that is treated as passé by much of contemporary philosophy. A new economic viewpoint--based on community solidarity--that changes how health care is conceptualized and evaluated is gaining some credibility. In this article, this shift is examined, and more detailed plans are called for to rethink health care along the lines suggested by this new, more community-oriented model.
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Participación de la Comunidad , Cultura , Atención a la Salud/organización & administración , Reforma de la Atención de Salud/organización & administración , Cambio Social , Sociología MédicaRESUMEN
In a qualitative study of urban Trinidadians who work in the medical industry, the concept of medical globalization was provisionally analysed. Two research questions were addressed: what is globalization, in the context of mainstream medicine, and how is this process manifested in everyday practices? Four fundamental principles of medical globalization emerged from in-depth interviews and analysis of observational materials: (1) the notion of history as an autonomous force with globalization as the latest stage, (2) the expansion of 'Total Market' philosophy as a driving social force, (3) the fragmentation of society into atomistic, self-interested, and competitive individuals, and (4) the adoption of a 'centralised' set of ideals as the normative core necessary for social order. In this paper, findings from this investigation and their implications are discussed. In particular, medical globalization is linked with major themes in medical sociological theory including dualism and medicalization.
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Actitud Frente a la Salud/etnología , Comercio , Salud Global , Política de Salud , Cambio Social , Sociología Médica , Humanos , Entrevistas como Asunto , Aceptación de la Atención de Salud/etnología , Filosofía , Trinidad y TobagoRESUMEN
BACKGROUND: Topical 2-octylcyanoacrylate tissue adhesive is an alternative to traditional devices for closing short surgical incisions. METHODS: An open-label, randomized study compared a new high-viscosity formulation of 2-octylcyanoacrylate with commercially available devices, including low-viscosity 2-octylcyanoacrylate, for epidermal closure of incisions > or = 4 cm requiring subcutaneous and/or deep-dermal suturing. RESULTS: Of patients with 1 to 3 wounds, 106 were treated with high-viscosity 2-octylcyanoacrylate and 103 with commercially available devices. The day-10 rates of healing by wound were 96% and 97% for study versus control treatment and 97% and 95% for new and old 2-octylcyanoacrylate formulations versus other controls, respectively. Day-10 infection rates by wound were 4 of 145 versus 7 of 131 for study versus control treatment and 6 of 207 and 5 of 69 for new and old 2-octylcyanoacrylate versus other controls, respectively. CONCLUSIONS: The new tissue adhesive formulation provides epidermal wound closure equivalent to commercially available devices with a trend to decreased incidence of wound infection.