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1.
Health (London) ; : 13634593221127821, 2022 Oct 17.
Artículo en Inglés | MEDLINE | ID: mdl-36245256

RESUMEN

The central theme of this article is the way in which psychiatry physicians-in-training deal with uncertainty in the discussion of clinical cases in Mexico. Methodologically, it is approached from the field of clinical ethnography and the narrative interpretation of plots in performative actions where there are sequences of communicative exchanges. In this way, it focuses on a detailed description of situations where clinical cases are reviewed to decipher, explain, and understand intersubjective meanings in the face of the emergence of uncertainty, its management, and the implications on decisions and actions. The study finds that limitations within the field of psychiatry lie in the nosographic construction of disease and its translation into the diagnostic hypotheses made by clinicians, where there are wide margins of ambiguity. The strategies implemented in the face of uncertainty are use of drugs, the collegiate review of the case, and utilization of intuition as a spontaneous, preconscious daily practice. The specific case described here provides a microscopic observation of the complex scenarios in which uncertainty occurs in educational and teaching processes, clearly revealing how patient care is articulated. The narratives and their interpretation are materials for training/curriculum and psychiatric clinical practice.

2.
J Interpers Violence ; 37(3-4): 1732-1748, 2022 02.
Artículo en Inglés | MEDLINE | ID: mdl-32779513

RESUMEN

Recent studies have reported that older adults with cognitive or physical disabilities are at risk to suffer intimate partner violence. This article investigates the intimate partner violence among caregivers and persons with Parkinson's disease (PD). We used qualitative methods to investigate whether the presence of violence was related to the type of couple relationship before the disease onset. We used a survey, in-depth interviews, and focus groups in 20 dyads of caregivers and patients. Twelve (60%) persons with PD and nine (45%) caregivers reported receiving violence. Considering their relationships previous to disease onset, we describe three typologies of violence in PD: (a) disease and history of violence, (b) disease as a buffer of violence, and (c) the burden of disease as an inductor of violence. Previous relationships and the couple's biographical trajectories influence the types of violence and its nature. This study is relevant as it considers time as a crucial factor in both the violence and suffering of PD and its caregiving.


Asunto(s)
Personas con Discapacidad , Violencia de Pareja , Enfermedad de Parkinson , Anciano , Cuidadores , Humanos , Enfermedad de Parkinson/epidemiología , Violencia
4.
Acta bioeth ; 21(2): 191-198, nov. 2015. tab
Artículo en Español | LILACS | ID: lil-771573

RESUMEN

Objetivo. Describir el significado que atribuyen cuidadores a los cuidados paliativos (CPS), así como su preferencia respecto a informar al paciente y su satisfacción con el papel de cuidador. Metodología. Estudio descriptivo transversal, muestra intencional de 40 cuidadores de enfermos neurológicos con necesidad de CPS. Se aplicó un cuestionario de conocimientos sobre el tema y sobrecarga. Se realizó análisis descriptivo-comparativo con un intervalo de confianza de 95 por ciento (p mayor 0.05). Resultados. Pacientes: 52,6 por ciento hombres, edad promedio de 57,9 por ciento años, tiempo de enfermedad: 5 años, 2 hijos en promedio. Cuidadores: 77,5 mujeres, 25,0 por ciento cónyuges. Edad promedio: 49.3 años, proporcionan 18,5 horas de cuidado diario, 62,5 por ciento tenía estudios de secundaria o superiores, 40 por ciento son cuidadores únicos, 16,7 por ciento no cuenta con redes de apoyo y 42,5 por ciento presenta sobrecarga alta. Un 70 por ciento no tenía información previa sobre CPS. Significado: 50 por ciento mencionó "dar ayuda" (física o emocional), 20 por ciento"mejorar la calidad de vida". El 87,5 por ciento desearía ser informado con detalle si ellos fueran los pacientes, 86,1 por ciento quisiera ser informado por el médico y 62,5 por ciento se mostró a favor de que se le informara con detalle a su familiar. Conclusiones. Es importante difundir los CPS en cuidadores y estimular el derecho de los pacientes a recibir información sobre el pronóstico de su enfermedad.


Aim. To describe the meaning attributed to palliative care (PC) by caregivers, as well as their preference with respect to informing the patient and their satisfaction in their caring role. Methodology: Study descriptive transversal, sample intended of 40 caregivers of neurologic patients needing PC. A questionnaire about knowledge of the topic and their burnout status was applied. A descriptive-comparative analysis was carried out with 95 percent (p higher 0.05) confidence interval. Results: Patients: 52.6 percent men, average age 57.9 years, duration of disease: 5 years, average of 2 children. Caregivers: 77.5 percent women, 25.0 percent married, average age: 49.3 years, daily caring 18.5 hours, 62.5 percent with high School or university studies, 40 percent alone as caregivers, 16.7 percent do not count with support nets and 42.5 percent present high burn out status. Of them 70 percent did not have previous information about PC. Meaning: 50 percent mentioned "to give help" (physical or emotional), 20 percent "to enhance quality of life". 87.5 percent would like to be informed with detail if they were the patients, 86.1 percent would like to be informed by the physician and 62.5 percent were in favor to inform with detail to their family member. Conclusions: It is important to disseminate PC to caregivers and to stimulate the right of patients to receive information about the prognosis of their disease.


Objetivo. Descrever o significado que atribuem cuidadores aos cuidados paliativos (CPS), assim como sua preferência com respeito a informar ao paciente e sua satisfação com o papel de cuidador. Metodologia. Estudo descritivo transversal, amostra intencional de 40 cuidadores de enfermos neurológicos com necessidade de CPS. Aplicou-se um questionário de conhecimentos sobre o tema e sobrecarga. Realizou-se análise descritivo-comparativa com um intervalo de confiança de 95 por cento (p superior 0.05). Resultados. Pacientes: 52,6 por cento homens, idade média de 57,9 anos, tempo de enfermidade: 5 anos, 2 filhos em média. Cuidadores: 77,5 por cento mulheres, 25,0 por cento cônjuges. Idade média: 49.3 anos, proporcionam 18,5 horas de cuidado diário, 62,5 por cento tinham estudos secundários ou superiores, 40 por cento são cuidadores únicos, 16,7 por cento não contam com redes de apoio e 42,5 por cento apresentam sobrecarga alta. 70 por cento não tinham informação prévia sobre CPS. Significado: 50 por cento mencionaram "dar ajuda" (física ou emocional), 20 por cento "melhorar a qualidade de vida". 87,5 por cento desejariam ser informados com detalhe se eles fossem pacientes, 86,1 por cento quiseram ser informados pelo médico e 62,5 por cento se mostraram a favor de que fossem informados com detalhes um seu familiar. Conclusões. É importante difundir os CPS em cuidadores e estimular o direito dos pacientes em receber informação sobre o prognóstico de sua enfermidade.


Asunto(s)
Humanos , Masculino , Adolescente , Adulto , Femenino , Adulto Joven , Persona de Mediana Edad , Anciano de 80 o más Años , Cuidadores/psicología , Cuidados Paliativos , Estudios Transversales , Satisfacción Personal , Proyectos Piloto , Relaciones Profesional-Paciente , Encuestas y Cuestionarios , Revelación de la Verdad , Carga de Trabajo
5.
Gac Med Mex ; 151(4): 450-5, 2015.
Artículo en Español | MEDLINE | ID: mdl-26290020

RESUMEN

INTRODUCTION: Patients with neurological diseases are susceptible to abuse and neglect. Studies on violence in this context have mainly focused on abuse perpetrated by a caregiver to the patient directionally. In this study we describe violence in dyads of caregivers and patients with neurological disorders according to frequency, directionality, and type of relation. METHODS: One-hundred-and-eighty-five caregiver-patient dyads were assessed by means of the National Survey of Violence Against Women (NSVAW) guidelines and the Zarit and Pfeiffer questionnaires. Bivariate analysis and Spearman correlation tests were performed. RESULTS: Violence was reported by 32.5% of caregivers and 33.5% of patients. In both groups, psychological abuse was the most common. Mutual violence (54.5%) is the most common type of abuse and the caregiver reported as having more violent behavior is the intimate partner. Epilepsy was the neurological disorder where violence was more prevalent (47.6%). CONCLUSIONS: The prevalence of violence in our sample is higher than the one for the general population of 21%, as reported by the NSVAW. Clinical neurologists and healthcare services are key elements for the detection of abuse in this context.


Asunto(s)
Cuidadores , Violencia Doméstica/estadística & datos numéricos , Relaciones Interpersonales , Enfermedades del Sistema Nervioso , Adulto , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad
6.
Acta bioeth ; 20(1): 41-50, jun. 2014.
Artículo en Español | LILACS | ID: lil-713510

RESUMEN

Objetivos. Descripción de un caso clínico abordado a través de un enfoque bioético. Materiales y métodos. Por medio de la deliberación moral, se aclararon los hechos relevantes y se identificaron los problemas morales; se seleccionó el problema ético central y se plantearon cursos de acción. Resultados y conclusiones. En este caso clínico la solución más prudente incluyó el paternalismo justificado. La práctica de la deliberación moral es indispensable, porque las decisiones frecuentemente rebasan la técnica médica y exigen la ponderación de valores morales.


Aims: Description of a clinical case addressed by using a bioethical focus. Materials and methods: Relevant facts were clarified and moral problems were identified by moral deliberation; main ethical problem was selected and courses of action were suggested. Results and conclusions: In this clinical case the most prudent solution was justified paternalism. The practice of moral deliberation is essential since decisions frequently surpass medical techniques and demand the deliberation of moral values.


Objetivos. Descrição de um caso clínico abordado através de um enfoque bioético. Materiais e métodos. Por meio da deliberação moral foram esclarecidos os fatos relevantes e se identificaram os problemas morais; se selecionou o problema ético central e se apresentou cursos de ação. Resultados e conclusões. Neste caso clínico a solução mais prudente incluiu o paternalismo justificado. A prática da deliberação moral é indispensável porque as decisões frequentemente ultrapassam a técnica médica e exigem a ponderação de valores morais.


Asunto(s)
Humanos , Adulto , Femenino , Toma de Decisiones , Violencia Doméstica , Moral , Paternalismo , Autonomía Personal , Suicidio , Bioética , Depresión , Relaciones Familiares , Entrevistas como Asunto , Relaciones Médico-Paciente
7.
Epilepsy Behav ; 32: 162-9, 2014 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-24439700

RESUMEN

Epilepsy is a neurological disorder with neurobiological, cognitive, psychological, and social consequences. Epilepsy stigma is a social determinant of ill health that affects the quality of life of people who suffer from epilepsy and that renders a poor social prognosis even worse than the clinical one. From a phenomenological approach, between January and July 2011, we explored the experience of epilepsy stigma through 25 in-depth qualitative interviews with 10 persons with temporal lobe epilepsy (PWE) (we avoided terms such as "epileptics" or "epileptic patients" because they can be labeling and stigmatizing), 10 carers (CEs) of PWE who attended the epilepsy clinic of the Institute of Neurology and Neurosurgery of Mexico, and 5 physicians specialized in epilepsy. The objective of the study was to identify the following: perceptions that could indicate any form of discrimination due to having epilepsy, reactions of people in front of a person having seizures, and social functioning of PWE since epilepsy onset, particularly their interpersonal relationships and participation in educational or working activities. Through the health providers' narratives, we explored the mainstream care practices, their perspectives on epilepsy, and their views about how the disease should be addressed. Thematic guidelines were elaborated for each type of participant. All information was processed with the use of the computer-assisted data analysis, Atlas.ti5. We made a codification of broad themes that corresponded to the main topics of the interview guidelines and then proceeded to finer categorization to elaborate the analytical categories. Epilepsy was attached to a powerful stereotype that includes notions of contamination, danger, sin, divine punishment, supernatural forces, and madness. Internalized, interpersonal, and institutional stigma prevents PWE from participating in school and employment and reduces their opportunities to establish peer and couple relationships. Mexican's overt impunity of structural discrimination towards PWE shows a lack of available legal resources that protect their human rights. The narrow biomedical concept that physicians have of epilepsy is consistent with the limited medical practices that are offered to treat epilepsy at the health services in Mexico. Comprehensive treatment and integrated services for epilepsy must incorporate psychosocial programs that include epilepsy stigma as a major component of the disease.


Asunto(s)
Actitud del Personal de Salud , Epilepsia/psicología , Calidad de Vida , Estigma Social , Estereotipo , Adulto , Empleo , Femenino , Humanos , Relaciones Interpersonales , Masculino , México , Persona de Mediana Edad , Percepción , Ajuste Social
10.
Gac Med Mex ; 145(1): 71-6, 2009.
Artículo en Español | MEDLINE | ID: mdl-19256415

RESUMEN

The participation of women in higher education in Mexico took place in the late 19th and early 20th century. The rise of women's enrollment in universities known as the "feminization of enrollment" occurred in the last thirty years. In this review we analyze how the new conditions that facilitated better access to higher education are reflected in the inclusion of women in science. We include an overview of the issues associated with a change in the demographics of enrollment, segregation of academic areas between men and women and participation in post graduate degrees. We also review the proportion of women in science. While in higher education the ratio between male and women is almost 50-50 and in some areas the presence of women is even higher, in the field of scientific research women account for barely 30% of professionals. This is largely due to structural conditions that limit the access of women to higher positions of power that have been predominantly taken by men.


Asunto(s)
Ciencia/educación , Ciencia/historia , Mujeres/educación , Mujeres/historia , Historia del Siglo XIX , Historia del Siglo XX , México
11.
Gac. méd. Méx ; 145(1): 71-76, ene.-feb. 2009. tab
Artículo en Español | LILACS | ID: lil-567729

RESUMEN

La inserción femenina a la educación superior en México y en gran parte del mundo, sucede a finales del siglo XIX y principios del XX. Los últimos treinta años han sido testigos de un aumento de la presencia femenina en las universidades, fenómeno estudiado como la “feminización de la matrícula”. Presentamos una breve reflexión del tema, con el fin de analizar de qué forma estas nuevas condiciones en el acceso a la educación se reflejan en la inserción de las mujeres en el ámbito científico. Repasamos el tema de la recomposición matricular, la segregación por áreas de estudio, tanto de varones como de mujeres, la participación a nivel posgrado (especialidad, maestría y doctorado) e indagamos la proporción de mujeres en la ciencia. Mientras en la educación superior se habla de una proporción entre varones y mujeres de casi 50 a 50 y en algunas áreas se ha llegado a reportar mayor presencia femenina, en el ámbito de investigación científica las mujeres apenas representan 30%. Esto responde en gran medida a condiciones estructurales en las que aún prevalece la dificultad de las mujeres para acceder a territorios de mayor jerarquía que han sido preponderantemente masculinos.


The participation of women in higher education in Mexico took place in the late 19th and early 20th century. The rise of women's enrollment in universities known as the [quot ]feminization of enrollment[quot ] occurred in the last thirty years. In this review we analyze how the new conditions that facilitated better access to higher education are reflected in the inclusion of women in science. We include an overview of the issues associated with a change in the demographics of enrollment, segregation of academic areas between men and women and participation in post graduate degrees. We also review the proportion of women in science. While in higher education the ratio between male and women is almost 50-50 and in some areas the presence of women is even higher, in the field of scientific research women account for barely 30% of professionals. This is largely due to structural conditions that limit the access of women to higher positions of power that have been predominantly taken by men.


Asunto(s)
Historia del Siglo XIX , Historia del Siglo XX , Ciencia/educación , Ciencia/historia , Mujeres/educación , Mujeres/historia , México
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