The effect of 3D modeling on family quality of life, surgical success, and patient outcomes in congenital heart diseases: objectives and design of a randomized controlled trial.

BACKGROUND: Understanding the severity of the disease from the parents' perspective can lead to better patient outcomes, improving both the child's health-related quality of life and the family's quality of life. The implementation of 3-dimensional (3D) modeling technology in care is critical from a translational science perspective. AIM: The purpose of this study is to determine the effect of 3D modeling on family quality of life, surgical success, and patient outcomes in congenital heart diseases. Additionally, we aim to identify challenges and potential solutions related to this innovative technology. METHODS: The study is a two-group pretest-posttest randomized controlled trial protocol. The sample size is 15 in the experimental group and 15 in the control group. The experimental group's heart models will be made from their own computed tomography (CT) images and printed using a 3D printer. The experimental group will receive surgical simulation and preoperative parent education with their 3D heart model. The control group will receive the same parent education using the standard anatomical model. Both groups will complete the Sociodemographic Information Form, the Surgical Simulation Evaluation Form - Part I-II, and the Pediatric Quality of Life Inventory (PedsQL) Family Impacts Module. The primary outcome of the research is the average PedsQL Family Impacts Module score. Secondary outcome measurement includes surgical success and patient outcomes. Separate analyses will be conducted for each outcome and compared between the intervention and control groups. CONCLUSIONS: Anomalies that can be clearly understood by parents according to the actual size and dimensions of the child's heart will affect the preoperative preparation of the surgical procedure and the recovery rate in the postoperative period.

Tendency to Stigmatize Epidemic Diseases Scale: Scale Development and Validity Study.

PURPOSES: The purpose of this study was to develop a scale to measure stigma during epidemics among adults in nursing care and validate its psychometric properties. METHODS: The preliminary items of the Tendency to Stigmatize Epidemic Diseases Scale scale were developed through a literature review, the Delphi technique, and content validity analysis. A total of 723 adults living in Turkey responded to the questionnaire from June to December 2021. The collected data were analyzed by exploratory factor analysis and confirmative factor analysis using SPSS and AMOS programs. RESULTS: The experts agreed on 51 scale items, and 24 items were removed following exploratory factor analysis. On the 27-item scale, a five-factor structure was found with an eigenvalue >1, explaining 59.2% of the total variance. The overall Cronbach's α value was 0.88. CONCLUSIONS: This scale is a reliable and valid measurement tool for adults to determine their level of stigma during epidemics in nursing care. This scale helps develop interventions to improve the psychological health of adults in nursing care.