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1.
BMJ Open ; 14(2): e078871, 2024 Feb 12.
Artículo en Inglés | MEDLINE | ID: mdl-38346882

RESUMEN

OBJECTIVES: This study aimed to investigate the relationship between the use of inpatient respite care and the overall survival of homebound patients without cancer admitted to a hospital ward in order to assess the potential impact of inpatient respite care on the duration of home care. DESIGN: This was a single-centre, hospital ward-based retrospective observational study. SETTING AND PARTICIPANTS: From March 2011 to September 2018, 393 cancer-free older patients (median age, 84.0 years; 53.9% women) receiving continuous medical care at home through clinics were enrolled upon admission to a hospital ward. PRIMARY OUTCOME MEASURES: Continuous cumulative survival curves were generated using the Kaplan-Meier method for two groups: inpatient respite care users and non-users. Additionally, prognostic factors associated with all-cause mortality were assessed using the Cox proportional hazards model. RESULTS: The Kaplan-Meier curves for inpatient respite care users without cancer admitted to the hospital ward demonstrated a longer median survival time than non-users. Subgroup analyses for patients with or without neurological disorders yielded similar results. The HR for inpatient respite care use, after adjusting for age, sex and other confounding variables, was 0.480 (95% CI: 0.328 to 0.703, p<0.001). CONCLUSIONS: Homebound patients without cancer receiving inpatient respite care during the study period in Japan demonstrated higher overall survival than those who did not receive respite care. Subgroup analysis of patients with neurological disorders yielded similar results. Further studies are needed to investigate the benefits of inpatient respite care, including the exploration of appropriate methods for its use.


Asunto(s)
Neoplasias , Enfermedades del Sistema Nervioso , Anciano de 80 o más Años , Femenino , Humanos , Masculino , Hospitales , Pacientes Internos , Japón/epidemiología , Neoplasias/terapia , Cuidados Intermitentes/métodos , Estudios Retrospectivos
2.
Cuestiones infanc ; 24(1): 14-31, May 24, 2023.
Artículo en Español | LILACS, UNISALUD, BINACIS | ID: biblio-1442547

RESUMEN

¿Cómo nos puede ayudar el método de la interpretación de los sueños a entender los elementos arcaicos presentes en el juego del niño de 0 a 4 años, en un dispositivo clínico inspirado en la Maison Verte creada por Françoise Dolto? En este artículo describiremos las similitudes entre el sueño y el juego del niño, particularmente con respecto al trabajo del sueño. Propondremos que los mismos mecanismos del sueño están presentes en el juego del niño como parte de un contenido manifiesto. Enseguida propondremos que es posible interpretar el contenido latente del juego trasponiendo el método de la interpretación de los sueños gracias a la información aportada por los padres que acompañen al niño. Para explicar esta técnica, examinaremos el ejemplo de juego de unos niños, tomado de un Lugar de Acogida de Niños y Padres que se adhiere a los principios de la Maison Verte AU


Comment la méthode d'interprétation des rêves peut-elle nous aider à comprendre les éléments archaïques présents dans le jeu des enfants de 0 à 4 ans, dans un dispositif clinique inspiré de la Maison Verte créée par Françoise Dolto? Dans cet article, nousdécrirons les similitudes entre le rêve et le jeu de l'enfant, notamment en ce qui concerne le travail du rêve. Nous proposerons que les mêmes mécanismes oniriques sont présents dans le jeu de l'enfant dans le cadre d'un contenu manifeste. Ensuite, nous proposerons qu'il est possible d'interpréter le contenu latent de ce jeu en transposant la méthode d'interprétation des rêves grâce aux informations fournies par les parents accompagnan l'enfant. Pour expliquercette technique, nous examinerons un exemple de jeu d'enfants, tiré d'un Lieu d'Accueil pour Enfants et Parents qui adhère aux principes de la Maison Verte AU


How can the dream interpretation method help us to understand the archaic elements present in the play of children from 0 to 4 years old, in a clinical device inspired by the Maison Verte project created by Françoise Dolto? In this article we will describethe similarities between the child's dream and play, particularly regarding to dream-work. We will propose that the same dream mechanisms are present in the child's play as part of a manifest content. Then we will propose that it is possible to interpret the latent content of this play by transposing the dream interpretation method thanks to the information provided by the parents. To explain this technique, we will examine an example of children's play, taken from a Dolto's Maison Verte Project AU


Como o método da interpretação dos sonhos pode nos ajudar a compreender os elementos arcaicos presentes nas brincadeiras das crianças de 0 a 4 anos, em um dispositivo clínico inspirado na Maison Verte criada por Françoise Dolto? Neste artigo, descreveremos as semelhanças entre o sonho e a brincadeira da criança, principalmente no que diz respeito ao trabalho onírico. Proporemos que os mesmos mecanismos oníricos estão presentes na brincadeira da criança como parte de um conteúdo manifesto. Imediatamente propomos que é possível interpretar o conteúdo latente desta brincadeira transpondo o método de interpretação dos sonhos graças às informações fornecidas pelos pais. Para explicar est técnica examinaremos um exemplo de brincadeira infantil, retirado de um Local de Acolhimento para Crianças e Pais que segue os princípios da Maison Verte AU


Asunto(s)
Humanos , Masculino , Femenino , Recién Nacido , Lactante , Preescolar , Juego e Implementos de Juego/psicología , Terapia Psicoanalítica , Sueños/psicología , Relaciones Padres-Hijo , Ludoterapia , Cuidados Intermitentes/métodos
3.
J Appl Gerontol ; 41(5): 1283-1292, 2022 05.
Artículo en Inglés | MEDLINE | ID: mdl-35236155

RESUMEN

The utilization rate of respite care in Taiwan is low, and past studies that evaluated the effects of in-home respite care on caregiver burden are few. This two-wave panel study used Taiwan's long-term care plan 1.0 database and included 2342 care recipient-caregiver dyads who used home services to examine the impact of in-home respite care on caregiver burden. Propensity score matching was used to select 323 in-home respite service users matched with 646 nonusers as control groups (1:2 matching). The mixed effect model was applied to estimate the effects of receiving in-home respite care on caregiver burden. Results showed that compared with those of nonusers, caregiver burden scores of service users decreased significantly after receiving in-home respite care for more than 14 days (adjusted B = -0.14, SE = 0.05). The government should prioritize increasing the number of days of in-home respite care for those in need to reduce the caregiver burden.


Asunto(s)
Cuidadores , Cuidados Intermitentes , Carga del Cuidador , Humanos , Cuidados a Largo Plazo , Cuidados Intermitentes/métodos , Taiwán
4.
Curr Oncol Rep ; 23(2): 25, 2021 02 09.
Artículo en Inglés | MEDLINE | ID: mdl-33559761

RESUMEN

PURPOSE OF THE REVIEW: The definition of respite care remains unclear and its purpose and effectiveness are unproven till date. This paper reviews the current evidence regarding definition and efficacy of respite care, as well as the different programs, models, and interventions employed to deliver the same. RECENT FINDINGS: A scoping search identified the relevant literature to be included in the review. The current evidence reiterates the lack of clarity in defining and delineating the purpose of respite care. Recent empirical evidence supports the effectiveness of respite care with clear benefits for the carers, patients, their families, and the healthcare system. Along with inpatient, home, and hospice care, respite care is considered as an essential component of palliative care. Evidence, although weak, supports the efficacy of respite care. High-quality studies with clear outlining of the scope of the services and resolution of ambiguities pertaining to its definition are warranted to fill the gaps in knowledge.


Asunto(s)
Cuidadores/psicología , Cuidados Paliativos/métodos , Cuidados Intermitentes/métodos , Servicios de Atención de Salud a Domicilio/organización & administración , Humanos
5.
J Am Geriatr Soc ; 69(2): 432-440, 2021 02.
Artículo en Inglés | MEDLINE | ID: mdl-33217776

RESUMEN

OBJECTIVES: To characterize current practices, barriers, and facilitators to assessing and addressing family caregivers' needs and risks in primary care. DESIGN: Cross-sectional, national mail-based survey. SETTING: American Medical Association Masterfile database. PARTICIPANTS: U.S. primary care physicians (N = 106), including general internists (n = 44) and geriatricians (n = 62). MEASUREMENTS: Approaches to assessing and addressing family caregivers' needs and risks; barriers and facilitators to conducting caregiver assessments. RESULTS: Few respondents reported conducting a formal caregiver assessment using a standardized instrument in the past year (10.5%). Informal, unstructured discussions about caregivers' needs and risks were common and encompassed a range of issues, most frequently caregivers' management of patients' safety (41.0%), ability to provide assistance (40.0%), and need for support (40.0%). To address caregiver needs, most respondents endorsed referring patients to services (e.g., adult day care, home care) (69.8%), assessing the appropriateness of the patient's living situation (67.9%), and referring caregivers to community agencies (63.2%). Lack of time was the most frequently cited barrier to assessing caregivers' needs (81.1%). The most commonly endorsed facilitators were access to better referral options (67.0%) and easier referral mechanisms (65.1%). Practice patterns, barriers, and facilitators to caregiver assessment did not differ by physician type. CONCLUSIONS: Primary care physicians use informal, unstructured discussions rather than standardized instruments to assess caregivers' needs and risks. There is heterogeneity in the topics discussed and types of referrals made. Findings indicate the lack of translation of caregiver assessment tools from research to practice.


Asunto(s)
Salud Mental , Evaluación de Necesidades/estadística & datos numéricos , Atención Primaria de Salud/métodos , Medición de Riesgo/métodos , Condiciones Sociales/estadística & datos numéricos , Apoyo Social , Anciano , Cuidadores , Estudios Transversales , Femenino , Humanos , Masculino , Salud Mental/normas , Salud Mental/estadística & datos numéricos , Persona de Mediana Edad , Atención al Paciente/métodos , Atención al Paciente/psicología , Derivación y Consulta/estadística & datos numéricos , Cuidados Intermitentes/métodos , Trastornos del Sueño-Vigilia/epidemiología , Trastornos del Sueño-Vigilia/etiología , Estrés Psicológico/epidemiología , Estrés Psicológico/etiología , Estados Unidos
6.
Work ; 65(2): 311-320, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-32007975

RESUMEN

BACKGROUND: Medical respite programs provide a safe place for people experiencing homelessness to recover from an acute illness or injury. Many patients in respite programs have experienced a traumatic brain injury (TBI) that impedes their ability to complete the self-management tasks necessary to recover from an acute medical condition. Patients with brain injuries may also have behavioral problems that are difficult to manage in a medical respite setting. OBJECTIVE: This paper describes the experiences of one medical respite program in screening, assessing, and treating patients experiencing homelessness who have traumatic brain injuries. METHODS: Services by clinical providers were tailored to better address needs of those with a history of TBI, as well as implementation of environmental modifications. Two retrospective case studies were completed to illustrate the importance of addressing TBIs in respite programs. RESULTS: Modifications to programming can improve patient outcomes and assist in transitioning patients to appropriate community resources. CONCLUSIONS: Identifying and treating patients with TBIs in respite programs can result in long-term positive benefits for patients.


Asunto(s)
Lesiones Traumáticas del Encéfalo/terapia , Personas con Mala Vivienda , Cuidados Intermitentes/organización & administración , Baltimore , Lesiones Traumáticas del Encéfalo/diagnóstico , Disfunción Cognitiva , Humanos , Terapia Ocupacional , Rehabilitación , Cuidados Intermitentes/métodos , Estudios Retrospectivos , Automanejo
7.
Health Soc Care Community ; 28(3): 850-861, 2020 05.
Artículo en Inglés | MEDLINE | ID: mdl-31863540

RESUMEN

The majority of people living with dementia reside in the community and are often reliant on the support of informal carers to do so. Family carers face many challenges in supporting the person with dementia to remain at home, and short-term respite care is a valued service that offers a temporary break from the role. Respite cottages provide short-term care in a residential home-like setting with a limited number of clients and is a more flexible approach to accessing the service. Disproportionate use of cottage respite in Australia suggests this model is preferred over traditional respite within residential aged care facility (RACF) settings, yet limited research exists to compare these models. This study sought to understand the perceptions of carers who had used cottage respite in comparison to other models, and explore the contribution of cottage respite for supporting carers to continue in their role and maintain their care recipient (CR) living at home. Semi-structured interviews were conducted with 126 family carers who had used one of two New South Wales-based respite cottages within a 2-year period; 67 of whom had also used RACF respite. Thematic analysis revealed four main themes around the benefits of cottage respite: (a) an effective essential service, (b) flexibility, (c) familiarity and (d) appropriateness, especially for early stage or younger onset dementia. Carers indicated that the more homely, familiar and intimate cottage model of respite care was preferential to that of the larger, institutional-style RACF respite setting. Carers credited the cottage model of respite service with delaying their need for permanent residential placement by over 12 months. The cottage respite model provides an important avenue to supporting the individual needs of dementia dyads, with potential to delay permanent placement, and should be offered more broadly to provide people with more choice about their care.


Asunto(s)
Cuidadores/psicología , Demencia/epidemiología , Cuidados Intermitentes/métodos , Anciano , Anciano de 80 o más Años , Australia/epidemiología , Femenino , Humanos , Relaciones Interpersonales , Entrevistas como Asunto , Masculino , Nueva Gales del Sur
8.
Psychiatr Serv ; 71(2): 199-201, 2020 02 01.
Artículo en Inglés | MEDLINE | ID: mdl-31690222

RESUMEN

This ethnographically informed implementation analysis of Parachute NYC between 2012 and 2015 documents the obstacles that can impede disruptive innovations in public mental health. Parachute combined family-based dialogic practice with peer-staffed crisis respite centers and mixed teams of clinicians and peers in an ambitious effort to revamp responses to psychiatric crises. This Open Forum reviews the demands posed by formidable contextual constraints, extended trainings in novel therapeutic techniques, and the effort to ensure sustainability in a managed care environment. It cautions that requiring innovations to produce evidence under the structural constraints that Parachute endured hobbles the effort and thwarts its success. The dialogic embrace of ordinary people and the use of peer labor as active treatment agents promote a slower and more participatory approach to psychiatric crises that offers extraordinary promise. However, a better prepared and more receptive context is needed for a fair trial of the comparative effectiveness of this approach.


Asunto(s)
Intervención en la Crisis (Psiquiatría)/métodos , Trastornos Mentales/terapia , Servicios de Salud Mental , Grupo Paritario , Cuidados Intermitentes/métodos , Humanos , Ciudad de Nueva York , Desarrollo de Programa/métodos , Evaluación de Programas y Proyectos de Salud/métodos , Investigación
9.
Clin Pediatr (Phila) ; 58(11-12): 1175-1186, 2019 10.
Artículo en Inglés | MEDLINE | ID: mdl-31502488

RESUMEN

Children with medical technology dependency (MTD) require a medical device to compensate for a vital body function and substantial nursing care. As such, they require constant high-level supervision. Respite care provides caregivers with a temporary break, and is associated with reduced stress; however, there are often barriers. The study utilizes mixed methodology with the National Survey of Children with Special Health Care Needs (NS-CSHCN) and semistructured interviews with state-wide care coordinators to understand the gap for respite care services. Fifty-nine percent of parents who needed respite care received none. Parents of older children with MTD were more likely to report respite needs. Care coordinators described that home health shortages created barriers to respite care utilization, and the lack of respite care can lead to hospital readmission. Although respite care is a vital resource to support families of children with MTD, it is infrequently available, which can have severe consequences.


Asunto(s)
Niños con Discapacidad/estadística & datos numéricos , Equipos y Suministros , Accesibilidad a los Servicios de Salud/estadística & datos numéricos , Necesidades y Demandas de Servicios de Salud/estadística & datos numéricos , Cuidados Intermitentes/métodos , Adolescente , Niño , Preescolar , Femenino , Humanos , Lactante , Entrevistas como Asunto , Masculino , Cuidados Intermitentes/estadística & datos numéricos
10.
BMC Geriatr ; 19(1): 213, 2019 08 06.
Artículo en Inglés | MEDLINE | ID: mdl-31387533

RESUMEN

BACKGROUND: Aged care support services in Australia are delivered through home care packages, permanent residential care, respite care and transition care. This study aimed to determine age and gender specific incidence rates of aged care service utilisation in Australia between 2008-09 and 2015-16. METHODS: This is a population-based epidmiological study of people accessing aged care services in Australia. The trends and characteristics of people (over the age of 65 years old) accessing aged care services in Australia were evaluated, using data (2008-09 and 2015-16) from the Australian Institute of Health and Welfare and Australian Bureau of Statistics. The yearly utilisation incidence rates (per 1000 people) per service type were calculated and changes in incidence rate ratios (IRR) of service utilisation for the study period were estimated using Poisson regression models. RESULTS: The proportion of older Australians aged ≥65 years who used aged care services remained similar between 2008-09 (5.4%, N = 208,247) and 2015-16 (5.6%, N = 248,669). However, the incidence use of specific services changed during the study period. Specifically, admissions into permanent residential care decreased (from 23.8/1000 people in 2008-09 to 19.6/1000 in 2015-16, at a IRR of 0.84/year, p < 0.001) but increased for transition care (from 4.3/1000 in 2008-09 to 6.6/1000 in 2015-16, at a IRR of 1.57/year, p < 0.001) and home care packages (from 8.04/1000 in 2008-09 to 12.0/1000 per 1000 in 2015-16, at a IRR of 1.52/year, p < 0.001). Between 2008-09 and 2015-16, the greatest changes in IRR were observed in males aged 80-89 years accessing transition care (IRR = 1.68/year, p < 0.001). A higher proportion of people aged between 80-89 years (≥45%), females (≥60%), Australia born (≥ 60%) and English speakers (≥80%) used all the service types. CONCLUSIONS: Patterns of service utilisation for aged care services changed over the study period with a decrease in incidence of individuals accessing permanent residential care but increased for other service types. This finding reflects changes in attitudes regarding ageing in place and policies. These findings are helpful to inform key stakeholders on service planning to further improve quality of the aged-care services in Australia.


Asunto(s)
Servicios de Atención de Salud a Domicilio/tendencias , Hogares para Ancianos/tendencias , Casas de Salud/tendencias , Aceptación de la Atención de Salud , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Australia/epidemiología , Atención a la Salud/métodos , Atención a la Salud/tendencias , Femenino , Humanos , Masculino , Persona de Mediana Edad , Cuidados Intermitentes/métodos , Cuidados Intermitentes/tendencias
11.
BMJ Open ; 9(6): e025932, 2019 06 14.
Artículo en Inglés | MEDLINE | ID: mdl-31203237

RESUMEN

INTRODUCTION: Specific mobility programmes can delay functional decline in people with dementia (PwD). Family caregivers (FCs) can be relieved from care-related burden by counselling services. Respite care is a short-term inpatient care service (1-8 weeks of stay). Respite care centres (RCCs) can function as support structures for dementia care arrangements through caring-based mobility training of PwD and counselling sessions for their FCs. However, no systematic mobility or counselling programmes exist in this setting in Germany or the rest of the world. The aim of the development and testing of a dementia-specific respite care concept (DESKK) study is the development and testing of an evidence-based mobility and counselling programme for PwD and their FCs that is suitable for the respite care setting. METHODS AND ANALYSIS: A pilot-based, quasi-experimental evaluation study will be conducted in a specialised RCC for PwD. To evaluate the acceptance and usability of the development and testing of a DESKK concept, qualitative data will be collected from the RCC staff and FCs via semistandardised interviews. Quantitative data will be collected using instruments to assess effect tendencies of the concept related to mobility (PwD) and burden (FCs). Furthermore, a mixed-methods triangulation approach will be conducted. ETHICS AND DISSEMINATION: The protocol, informed consent and accompanying material given to patients were submitted by the investigator to the Ethical Review Committee of the German Society of Nursing Science. The project was examined and finally approved on 31 January 2017 (Number: 16-27). Prior to obtaining written consent for study participation, information must be given to all of the study participants in verbal and written form. The results of the study will be presented at national and international conferences and published in peer-reviewed journals. After the concept is finalised, a practice-friendly manual will be developed in which implementation components are described for other RCCs. TRIAL REGISTRATION NUMBER: NCT03578861.


Asunto(s)
Cuidadores/psicología , Demencia/terapia , Cuidados Intermitentes/métodos , Cuidados Intermitentes/psicología , Costo de Enfermedad , Consejo , Alemania , Hospitalización/estadística & datos numéricos , Humanos , Evaluación de Procesos y Resultados en Atención de Salud , Evaluación de Programas y Proyectos de Salud , Proyectos de Investigación
12.
Int J Geriatr Psychiatry ; 34(10): 1534-1544, 2019 10.
Artículo en Inglés | MEDLINE | ID: mdl-31243801

RESUMEN

OBJECTIVES: Dementia is a major public health problem with important physical, psychosocial, emotional, and financial consequences for patients, their caregivers, and society. Since patients prefer to be managed at home, extensive research has been conducted into effectiveness of psychosocial interventions to support informal caregivers. The aim of this study was to assess the effectiveness of an in-home respite care program. METHODS: In a prospective quasi-experimental study, 99 dyads who received an in-home respite care program were compared at 6 months post-baseline, with 99 matched dyads receiving standard dementia care. Additionally, the short-term effect of the program was evaluated 14 to 15 days post-intervention. The primary outcome was caregiver burden. The secondary outcomes were: desire to institutionalize the patient, caregiver quality of life, and frequency and impact of behavioral problems. Mixed model analyses were performed to evaluate the impact of the intervention. RESULTS: After 6 months, no significant difference on caregiver burden was observed, but intervention group caregivers had a significant lower desire to institutionalize the patient compared with control group caregivers (adj.diff = -0.51; p = .02). Shortly after the program, intervention group caregivers also had a significant lower role strain (adj.diff = 0.75; p = .05), and a lower burden on social and family life (adj.diff = 0.55; p = .05) compared with baseline. CONCLUSIONS: This study was the first comparative study to investigate effectiveness of an in-home respite care program to support informal caregivers of persons with dementia. The results partly confirm earlier positive findings from explorative studies.


Asunto(s)
Cuidadores/psicología , Demencia , Servicios de Atención de Salud a Domicilio , Calidad de Vida , Cuidados Intermitentes/métodos , Adaptación Psicológica , Anciano , Demencia/terapia , Femenino , Humanos , Institucionalización , Masculino , Persona de Mediana Edad , Estudios Prospectivos
13.
J Appl Gerontol ; 38(3): 434-442, 2019 03.
Artículo en Inglés | MEDLINE | ID: mdl-28380708

RESUMEN

Although much of the research on service use by older adults with dementia relies on proxy reports by informal caregivers, little research assesses the accuracy of these reports, and that which does exist, does not focus on home care services. This brief report compares proxy reports by family caregivers to those with dementia with provincial Ministry of Health records collected for payment and monitoring. The four home care services examined include home nursing care, adult day care, home support, and respite care. Data come from a province-wide study of caregivers in British Columbia, Canada. Caregiver reports are largely consistent with Ministry records, ranging from 81.0% agreement for home support to 96.6% for respite care. Spouses living with the care recipient (the vast majority of the sample) are the most accurate. Others, whether living with the care recipient or not, have only a 50-50 chance of being correct.


Asunto(s)
Cuidadores/psicología , Demencia/enfermería , Cuidados Intermitentes/normas , Esposos/psicología , Anciano , Colombia Británica , Exactitud de los Datos , Demencia/psicología , Femenino , Humanos , Masculino , Apoderado , Cuidados Intermitentes/métodos
14.
Aging Ment Health ; 23(1): 60-68, 2019 01.
Artículo en Inglés | MEDLINE | ID: mdl-29090948

RESUMEN

OBJECTIVES: To examine the relative importance of different home support attributes from the perspective of carers of people with later-stage dementia. METHOD: Preferences from 100 carers, recruited through carers' organisations, were assessed with a Discrete Choice Experiment (DCE) survey, administered online and by paper questionnaire. Attributes were informed by an evidence synthesis and lay consultations. A conditional logit model was used to estimate preference weights for the attributes within a home support 'package'. RESULTS: The most preferred attributes were 'respite care, available regularly to fit your needs' (coefficient 1.29, p = < 0.001) and 'home care provided regularly for as long as needed' (coefficient 0.93, p = < 0.001). Cost had a significant effect with lower cost packages preferred. Findings were similar regardless of the method of administration, with respite care considered to be the most important attribute for all carers. Carers reported that completing the DCE had been a positive experience; however, feedback was mixed overall. CONCLUSIONS: These carer preferences concur with emerging evidence on home support interventions for dementia. Respite care, home care and training on managing difficulties provided at home are important components. Carers' preferences revealed the daily challenges of caring for individuals with later stage dementia and the need for tailored and specialised home support.


Asunto(s)
Cuidadores/psicología , Demencia/psicología , Servicios de Atención de Salud a Domicilio , Cuidados Intermitentes/psicología , Anciano , Anciano de 80 o más Años , Costos y Análisis de Costo , Toma de Decisiones , Femenino , Servicios de Atención de Salud a Domicilio/economía , Humanos , Masculino , Persona de Mediana Edad , Prioridad del Paciente , Cuidados Intermitentes/economía , Cuidados Intermitentes/métodos , Índice de Severidad de la Enfermedad , Apoyo Social , Encuestas y Cuestionarios
15.
Arch Gerontol Geriatr ; 77: 24-30, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-29626801

RESUMEN

Given the social burden and significant cost of dementia care in Australia, finding evidence-based approaches that improve outcomes, maintain independence, and reduce the impact on patients and families is essential. Finding effective ways to train and assist the healthcare staff who support these individuals is also critical, as they are considered to be at risk of workplace stress, burnout, and other psychological disturbances which negatively affects standards of care. The current paper describes a protocol for evaluating the effects of a Montessori-based approach to dementia care, in non-residential respite centres. An 18 month prospective observational, cohort controlled design is suggested that will compare participants from a community respite service that has undergone a Montessori-based workplace culture change and those from a service that provides a person-centred 'care as usual' approach. To achieve this, the protocol includes the assessment of participants across multiple variables on a monthly basis including the cognitive, behavioural, and emotional functioning of clients with dementia, levels of caregiver burden experienced by informal carers, and burnout, compassion satisfaction and workplace engagement among respite staff. The protocol also employs a qualitative evaluation of program fidelity. This approach will provide further insight into the potential benefits of early intervention with Montessori approaches for persons living with dementia in the community, their caregivers, and the staff and volunteers who assist them.


Asunto(s)
Demencia/terapia , Cuidados Intermitentes/métodos , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Australia , Agotamiento Profesional/prevención & control , Cuidadores/psicología , Protocolos Clínicos , Demencia/diagnóstico , Demencia/psicología , Femenino , Humanos , Masculino , Persona de Mediana Edad , Estudios Prospectivos , Adulto Joven
16.
Home Health Care Serv Q ; 37(2): 77-96, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-29424679

RESUMEN

Respite services are vital in supporting informal caregivers in need of a break from their caregiving duties. A respite training program aimed at developing respite provider competence and improving caregiver well-being was evaluated. Trainees experienced significant growth in their perceived respite knowledge and confidence to deliver respite from pretraining to posttraining. An objective core competency assessment confirmed posttraining knowledge in 10 core areas of respite. Family caregivers provided more favorable ratings on various measures of their well-being while receiving respite from a trained provider compared to before respite began and if respite were to end. Findings suggest that formal training prepares providers to deliver quality respite resulting in improved caregiver outcomes.


Asunto(s)
Cuidadores/educación , Conocimientos, Actitudes y Práctica en Salud , Cuidados Intermitentes/normas , Anciano , Análisis de Varianza , Cuidadores/psicología , Cuidadores/estadística & datos numéricos , Evaluación Educacional/métodos , Femenino , Humanos , Masculino , Persona de Mediana Edad , Cuidados Intermitentes/métodos , Cuidados Intermitentes/estadística & datos numéricos , Autoeficacia , Enseñanza/normas , Enseñanza/estadística & datos numéricos , Estados Unidos
17.
J Gerontol Soc Work ; 61(1): 31-44, 2018 01.
Artículo en Inglés | MEDLINE | ID: mdl-29058525

RESUMEN

Study aims were to explore differences in predictors of respite care use between older (aged 65+) and younger caregivers (aged 18-64 years), and associations between caregiving load and respite care use using multivariate logistic regression analysis and unpaid caregiver (n= 10,500) data from the 2009 California Health Interview Survey. Caregiving load comprised number of care recipients, weekly hours in caregiving, and caregiving duration. Variables with a significant association with respite care for older caregivers were female gender, income, and health insurance. For younger caregivers, respite care use associations were with ethnicity, caregiving relationship, education, and availability of substitute help.


Asunto(s)
Factores de Edad , Cuidadores/psicología , Costo de Enfermedad , Cuidados Intermitentes/estadística & datos numéricos , Adolescente , Adulto , Anciano , California , Femenino , Humanos , Masculino , Persona de Mediana Edad , Cuidados Intermitentes/métodos
18.
BMC Geriatr ; 17(1): 282, 2017 12 07.
Artículo en Inglés | MEDLINE | ID: mdl-29216836

RESUMEN

BACKGROUND: Respite services provide a break in the caregiving relationship for people with dementia and their carers, however they are often under-used and service acceptability can be low. This study aims to understand key stakeholders' experiences of respite services for people with dementia, with a view to informing respite service development. METHODS: A systematic search was conducted of the Pubmed/MedLine, Embase, Cinahl, PsychInfo, Scopus, Web of Science, and Cochrane databases (1980-2016, English) with fixed search terms relating to 'respite' and 'dementia', following PRISMA guidelines. Noblit and Hare's approach to meta-ethnography was employed. Key concepts were identified across the papers and reciprocal and refutational translation techniques were applied to primary studies; findings were synthesized into third order interpretations and finally, a 'line-of-argument' was developed. RESULTS: In total 23 papers were reviewed, which described 20 independent samples across 12 countries. The views of 889 participants were synthesized (13 people with dementia, 690 carers, 44 'service providers', 52 frontline staff, 70 managers, 12 volunteers, six academic/policy-makers, and two independent consultants). Five key concepts were identified and outlined i.e. 1) the transition to service use 2) expanding organizational capacity 3) dementia care quality 4) building a collaborative care partnership and 5) dyad restoration. There was broad agreement around the key areas for service development across the range of stakeholders (flexible and responsive person-centred care, meaningful activity for people with dementia, enhanced client-service communication and informational support). However, there was clear divergence in stakeholder perspectives around the barriers to implementation of such developments. Organizational tension was evident between frontline staff and management in respite services, hindering the cultural change necessary to facilitate service development in line with dyad's needs and preferences. CONCLUSION: Respite services must surmount internal organizational barriers to change, and cultivate a collaborative solution-focused care culture, which acknowledges the centrality of the dyad and their care preferences. Future research should explore the development of alternative/modified community respite service models, which have greater capacity to be responsive to the needs of each individual dyad. The perspectives of people with dementia must be included in research in this area going forward. TRIAL REGISTRATION: PROSPERO Registration Number: CRD42016050191 .


Asunto(s)
Demencia/psicología , Demencia/terapia , Calidad de la Atención de Salud/normas , Cuidados Intermitentes/psicología , Cuidados Intermitentes/normas , Participación de los Interesados/psicología , Cuidadores/psicología , Cuidadores/normas , Humanos , Cuidados Intermitentes/métodos
19.
BMC Palliat Care ; 16(1): 54, 2017 Nov 21.
Artículo en Inglés | MEDLINE | ID: mdl-29162145

RESUMEN

BACKGROUND: There are limited respite services for palliative care patients and their families in the Northern Territory (NT). The high prevalence of complex chronic diseases, limited access to primary care services, and the poor living situations of many Aboriginal and Torres Strait Islander Australians result in high hospitalisation rates and pressure on tertiary health services. Palliative Care NT identified a need for a flexible, community based, culturally appropriate respite service in Alice Springs. It was of particular interest to assess the impact of the respite service on the extent to which hospital resources were accessed by this population of patients. METHODS: Respite service use and hospital use data were collected over two time periods: the 12 months prior to the establishment of the service; and the first 10 months of the operation of the service. The financial implications of the facility were assessed in terms of the National Weighted Activity Unit (NWAU). Of primary interest in this study was the impact of the respite service on admissions to the Emergency Department (ED), to the Wards, and to the Intensive Care Unit (ICU). The amount of ventilator hours consumed was also of interest. RESULTS: Overall, there was a mean cost saving of $1882.50 per episode for hospital admissions with a reduction in: hospital admissions; mean length of stay; Intensive Care Unit (ICU) hours; and ventilator hours. CONCLUSIONS: The establishment of the respite service has met an important and unmet need in Alice Springs: provision of respite where none has existed before. The service did assist with savings to the health department which could contribute to the cost of the facility over time. Two features of the respite facility that may have contributed to the savings generated were the enhanced coordination of care for patients with complex chronic diseases, as well as improved medication compliance and symptom management.


Asunto(s)
Enfermedad Crónica/terapia , Servicios de Atención de Salud a Domicilio/tendencias , Hospitalización/estadística & datos numéricos , Cuidados Paliativos/métodos , Cuidados Intermitentes/métodos , Adulto , Anciano , Anciano de 80 o más Años , Análisis Costo-Beneficio , Femenino , Humanos , Masculino , Persona de Mediana Edad , Northern Territory , Cuidados Paliativos/estadística & datos numéricos , Atención Primaria de Salud/métodos
20.
J Gerontol Soc Work ; 60(1): 48-67, 2017 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-27845620

RESUMEN

This study describes a community-university partnership to support a gerontological social work student-delivered respite program, the Houseguest Program (Houseguest). Houseguest was designed using a community-engaged scholarship model of integrating research, teaching, and service. Houseguest was piloted with a small group of community-dwelling, coresiding dementia caregivers and care recipients. We examined caregivers' experiences with student-delivered respite using qualitative data analysis. Thematic analysis produced 8 themes: (a) respite from full time caregiving role, (b) information on caregiving strategies, (c) no-cost supportive services, (d) opportunity for care recipients to socialize, (e) tailored activities for care recipients, (f) rapport-building between students and family dyad, (g) reciprocity between students and family dyad, and (h) program continuation. We conclude with a proposed community-engaged scholarship model for dementia caregiving. Through a community-university partnership, Houseguest reduced the impact of caregiver burden and created an opportunity for students to serve families affected by dementia through respite and tailored activities.


Asunto(s)
Demencia/enfermería , Geriatría/métodos , Cuidados Intermitentes , Servicio Social/métodos , Estudiantes , Anciano , Cuidadores/psicología , Cuidadores/provisión & distribución , Servicios de Salud Comunitaria , Demencia/complicaciones , Femenino , Humanos , Masculino , Persona de Mediana Edad , Proyectos Piloto , Asociación entre el Sector Público-Privado/tendencias , Investigación Cualitativa , Cuidados Intermitentes/métodos , Recursos Humanos
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