RESUMEN
Coeliac disease (CD) is an autoimmune gluten-dependent condition with a prevalence of 1% in the population, if screened. However, approximately only a third of children with CD are diagnosed. When CD is suspected, serological screening with anti-tissue transglutaminase titres should be performed. Children with a positive result should be referred to a specialist in CD for confirmation of the diagnosis. The European Society for Paediatric Gastroenterology Hepatology and Nutrition revised their diagnostic guidance for CD in 2020 and this article discusses the current diagnostic pathways. Lifelong strict adherence to a gluten-free diet is necessary to prevent complications. Nurses and specialist paediatric dietitians have an important role in recognising and diagnosing CD early, as well as offering ongoing dietary and clinical support.
Asunto(s)
Enfermedad Celíaca , Dieta Sin Gluten , Diagnóstico de Enfermería , Enfermedad Celíaca/enfermería , Niño , Dieta Sin Gluten/enfermería , HumanosAsunto(s)
Enfermedad Celíaca/enfermería , Hospitalización , Personal de Enfermería en Hospital/psicología , Enfermedad Celíaca/epidemiología , Enfermedad Celíaca/genética , Dieta Sin Gluten/enfermería , Etiquetado de Alimentos/legislación & jurisprudencia , Regulación Gubernamental , Humanos , Estilo de Vida , Relaciones Enfermero-Paciente , Diagnóstico de Enfermería , Educación del Paciente como Asunto , Estados Unidos/epidemiología , United States Food and Drug AdministrationRESUMEN
In the United States, the prevalence of celiac disease has increased from 1 in 4,600 persons to 1 in 133 persons during the past 10 years. Although celiac disease can be managed by strict adherence to a gluten-free diet, dietary management can be challenging. A descriptive, correlational design was used to examine factors and perceived causes that interfere with adherence to a gluten-free diet, identify coping strategies, and examine the relationship between coping strategies and quality of life in 156 adults with a diagnosis of celiac disease. The Psychological General Well-Being Index and the Brief COPE were used to measure the major variables. Results indicated that problems outside the home interfere with dietary adherence. A moderate negative significant relationship (r [154] = -.46, p < .01) was found between quality of life and stress, with 54% of participants reporting a minimal amount of stress. Emotion-focused coping was found to have a significant negative effect on quality of life (H[18] = 56.67, p < .001). Implications for future research should include investigation of cognitive behavioral interventions to decrease the negative effects of stress on quality of life for adults with celiac disease adhering to a gluten-free diet.
