RESUMEN
OBJECTIVES: To explore the long-term impact for patients living with an obturator prosthesis, following a maxillectomy for a head and neck neoplasm. METHODS: A qualitative approach was employed, using semi-structured interviews. A purposive sample of eight men and four women, living with an obturator prosthesis for at least five years, were recruited. Interviews were digitally recorded and transcribed. Using thematic analysis, two researchers analysed the data. RESULTS: The data were categorised into four themes: 1. Preparedness for living with an obturator, 2. Impact of living with an obturator - what changes to expect, 3. Stability and retention of the obturator, and 4. Coping strategies to aid adjustment. Long-term effects of living with an obturator spanned many aspects of life to include: chewing and eating, speaking, dealing with nasal leakage and altered body image, employment and intimacy issues, along with embarrassment during social encounters. Optimal retention and stability of the obturator, as perceived by the patient, lead to improved social confidence and engagement. The emotional impact varied greatly on peoples' lives. CONCLUSIONS: Patients experiencing the greatest long-term challenges had larger defects, were of employment age and had not returned to work. Gaining an improved understanding of the psychology of coping overtime is clearly important, as this can inform interventions to facilitate adjustment for those who are emotionally struggling. Furthermore, the findings of this study could inform the design of a communication tool to facilitate shared-decision making and aid preparedness for living with an obturator following a maxillectomy. CLINICAL SIGNIFICANCE: The multidisciplinary head and neck team should provide patients with detailed pre-operative information, including potential effects on social, work and personal relationships. The restorative dentistry team has a pivotal role in the long-term management of these patients, as obturators have a finite lifespan with ongoing maintenance necessary to promote optimal retention and stability.
Asunto(s)
Maxilar/cirugía , Neoplasias Maxilares/cirugía , Prótesis Maxilofacial/psicología , Obturadores Palatinos/psicología , Calidad de Vida/psicología , Femenino , Humanos , Entrevistas como Asunto , Masculino , Neoplasias Maxilares/psicología , Satisfacción del Paciente , Investigación CualitativaRESUMEN
As a consequence of surgical treatment of maxillary tumors, a connection between oral and nasal cavities is formed, which leads to serious functional disorders, manifested by inability to normally ingest food, proper speech articulation, and to respiratory route disorders and upper airway inflammation. These morphological and functional disorders are intensified by adjunctive radio- or chemotherapy. The aim of this paper is to present different possible methods of rehabilitation, including application of interim obturators and individually planned prosthetic restorations to improve respiratory efficiency in patients after extensive maxillary resections. In the course of prosthetic treatment, cooperation with the laryngologist to consider every aspect of chronic paranasal sinusitis, accompanied by concurrent inflammation of oral, nasal, or laryngeal mucous membranes, was of paramount importance. Based on the quality of life questionnaire, used in this study, evident improvement in the masticatory efficiency, speech articulation, and respiration was observed. Particularly good effects were obtained in edentulous patients, in whom implant-prosthetic treatment was possible to apply. Comprehensive and multidisciplinary care of postoperative patients greatly contributes to their better quality of life and facilitates their return to prior living conditions, as well as to occupational and family lives.
Asunto(s)
Neoplasias Maxilares/rehabilitación , Femenino , Humanos , Laringe , Masculino , Neoplasias Maxilares/psicología , Neoplasias Maxilares/cirugía , Prótesis e Implantes , Calidad de VidaAsunto(s)
Condrosarcoma/cirugía , Encefalocele/cirugía , Hueso Etmoides/cirugía , Neoplasias Maxilares/cirugía , Procedimientos de Cirugía Plástica/psicología , Neoplasias Craneales/cirugía , Adulto , Condrosarcoma/psicología , Congo , Cuba , Emigrantes e Inmigrantes/psicología , Encefalocele/psicología , Femenino , Humanos , Acontecimientos que Cambian la Vida , Masculino , Neoplasias Maxilares/psicología , Neoplasias Craneales/psicologíaRESUMEN
PURPOSE: Surgical resection of midface neoplasms and subsequent reconstruction have been shown to have significant negative effects on quality of life (QOL). The purpose of this pilot study was to assess individuals' health-related QOL after maxillectomy and reconstruction with a prosthetic obturator. MATERIALS AND METHODS: The QOL of 25 of 43 patients who underwent maxillectomy and prosthetic obturator reconstruction at the University of California-San Francisco was assessed using 3 questionnaires: University of Washington Quality of Life version 4 (UWQOL), Obturator Functioning Scale (OFS), and Mental Health Inventory (MHI). RESULTS: The response rate to the QOL questionnaires was 92% (23 of 25 patients). Time elapsed from maxillectomy and prosthetic obturator reconstruction to the QOL survey response ranged from 0.3 to 6.6 years (mean, 2.7 years; standard deviation [SD], 1.9 years). The post-treatment mean QOL scores were 77.3 (SD, 13.6) for UWQOL, 72.0 (SD, 12.6) for OFS, and 4.5 (SD, 0.9) for Mental Health Inventory. Individuals who received adjuvant radiation scored lower for speech and appearance (OFS, P = .05, P = .03, respectively) as well as for saliva and overall QOL (UWQOL, P = .02, P = .08, respectively). There was a strong correlation between QOL scores in OFS and UWQOL questionnaires (r = 0.78, P < .001). CONCLUSION: The results of this pilot study suggest that postoperative radiation therapy was the strongest variable affecting QOL in patients with maxillectomy and prosthetic obturator reconstruction. There is further need for a multicenter trial with a larger sample to identify how factors affecting QOL of patients after maxillectomy might influence the choice of reconstruction.
Asunto(s)
Maxilar/cirugía , Obturadores Palatinos/psicología , Calidad de Vida , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Estudios Transversales , Femenino , Humanos , Masculino , Neoplasias Maxilares/psicología , Neoplasias Maxilares/cirugía , Persona de Mediana Edad , Proyectos Piloto , Radioterapia Adyuvante/psicología , Procedimientos de Cirugía Plástica/psicología , Estudios Retrospectivos , Encuestas y Cuestionarios , Adulto JovenRESUMEN
The purpose of this study was to investigate how patients with maxillofacial defects evaluate their quality of life after maxillectomy and prosthodontic therapy with obturator prostheses. 43 patients were included in the study (25 female, 18 male). 31 (72%) patients completed a standardized questionnaire of 143 items and then answered additional questions in a standardized interview. Global quality of life after prosthodontic therapy with obturator prostheses was 64% (±22.9) on average. Functioning of the obturator prosthesis, impairment of ingestion, speech and appearance, the extent of therapy, and the existence of pain had significant impact on the quality of life (p<0.005). Orofacial rehabilitation of patients with maxillofacial defects using obturator prostheses is an appropriate treatment modality. To improve the situation of patients prior to and after maxillectomy sufficient information about the treatment, adequate psychological care and speech therapy should be provided.
Asunto(s)
Maxilar/cirugía , Osteotomía/psicología , Obturadores Palatinos/psicología , Calidad de Vida , Adulto , Factores de Edad , Anciano , Anciano de 80 o más Años , Estudios Transversales , Ingestión de Alimentos/fisiología , Escolaridad , Estética Dental , Femenino , Humanos , Entrevistas como Asunto , Masculino , Neoplasias Maxilares/psicología , Neoplasias Maxilares/cirugía , Persona de Mediana Edad , Terapia Neoadyuvante , Dolor/psicología , Satisfacción del Paciente , Trastornos de la Sensación/psicología , Factores Sexuales , Medio Social , Habla/fisiología , Encuestas y Cuestionarios , Xerostomía/psicologíaRESUMEN
BACKGROUND: This cross-sectional study sought to determine patient quality of life and function after prosthetic rehabilitation for maxillary and palate defects following cancer resection. METHODS: Sixty-nine patients were identified, 42 participated in the study (61%). The Obturator Functioning Scale (OFS) and 4 general quality of life measures (Mental Health Inventory [MHI], Impact of Events Scale [IES], Illness Intrusiveness Ratings Scale [IIRS], and Centre for Epidemiologic Studies Depression Scale [CES-D]) were correlated with clinical parameters. RESULTS: Leakage when swallowing foods was the most frequently reported problem with the obturator (29%). Positive correlation was noted between the OFS and both the IES subscales (p < .01) and CES-D (p < .001). Difficulty with speech and eating was associated with increased avoidance of social situations. The surgical approach had a significant effect on the OFS, IES, and MHI subscales (p < .01). CONCLUSION: These results support the findings that good obturator function is associated with a better quality of life.
Asunto(s)
Maxilar/cirugía , Neoplasias Maxilares/cirugía , Prótesis Maxilofacial/psicología , Calidad de Vida , Adaptación Fisiológica , Adaptación Psicológica , Adulto , Anciano , Estudios Transversales , Femenino , Estudios de Seguimiento , Humanos , Masculino , Neoplasias Maxilares/patología , Neoplasias Maxilares/psicología , Persona de Mediana Edad , Osteotomía/métodos , Satisfacción del Paciente , Probabilidad , Implantación de Prótesis , Medición de Riesgo , Encuestas y Cuestionarios , Factores de Tiempo , Resultado del Tratamiento , Adulto JovenAsunto(s)
Neoplasias Faciales/complicaciones , Neoplasias Laríngeas/complicaciones , Neoplasias Maxilares/complicaciones , Trastornos Mentales/etiología , Adulto , Anciano , Sistema Nervioso Autónomo/fisiopatología , Neoplasias Faciales/psicología , Neoplasias Faciales/cirugía , Femenino , Humanos , Neoplasias Laríngeas/psicología , Laringectomía/psicología , Masculino , Neoplasias Maxilares/psicología , Neoplasias Maxilares/cirugía , Trastornos Mentales/psicología , Persona de Mediana Edad , Trastornos del Humor/etiología , Trastornos del Humor/psicología , Escalas de Valoración PsiquiátricaAsunto(s)
Neoplasias Laríngeas/psicología , Neoplasias Maxilares/psicología , Trastornos Mentales/etiología , Adulto , Anciano , Humanos , Neoplasias Laríngeas/cirugía , Masculino , Neoplasias Maxilares/cirugía , Trastornos Mentales/diagnóstico , Trastornos Mentales/psicología , Persona de Mediana Edad , Periodo Posoperatorio , Índice de Severidad de la EnfermedadRESUMEN
BACKGROUND: The psychosocial adaptation of patients who had undergone a resection of the maxilla for cancer of the maxillary antrum and/or hard palate with the placement of an obturator prosthesis to restore speech and eating function was studied. METHODS: Forty-seven patients were interviewed who had a maxillectomy with an obturator prosthesis at Memorial Sloan-Kettering Cancer Center, an average of 5.2 years (SD = 2.4 years) ago, 94% of whom had some of their soft palate resected. Interviews were conducted by telephone by a trained research interviewer, using a series of questionnaires to assess their satisfaction with the functioning of their obturator, and the psychological, vocational, family, social, and sexual adjustment. Measures included the Obturator Functioning Scale (OFS). Psychosocial Adjustment to Illness Scale (PAIS), Mental Health Inventory (MHI), Impact of Event Scale, and Family Functioning Scale. RESULTS: Using multiple regression and discriminant function analyses, satisfactory functioning of the obturator prosthesis, as measured by the OFS, was found to be (1) the most highly significant predictor of adjustment, as measured by the PAIS (p < .0001) and the MHI Global Psychological Distress Subscale (MHI-GPD) (p < .001), and (2) significantly related to their perception of the negative socioeconomic impact of cancer upon their lives. The most significant predictor of better obturator functioning were the extent of resection of their soft palate (one third or less, p < .001), and hard palate (one fourth or less, p < .01). Specific aspects of obturator functioning that most significantly correlated with better adjustment (PAIS, MHI-GPD) were: less difficulty in pronouncing words (r = .40 and r = .51, respectively, p < .01), chewing and swallowing food (r = .27-.46, p < .05), and less change in their voice quality after surgery (r = .52 and r = .56, respectively, p < .001). CONCLUSIONS: These findings suggest that a well-functioning obturator significantly contributes to improving the quality of life of maxillectomy patients.
Asunto(s)
Maxilar/cirugía , Neoplasias Maxilares/cirugía , Obturadores Palatinos , Satisfacción del Paciente , Calidad de Vida , Adaptación Psicológica , Adulto , Anciano , Anciano de 80 o más Años , Distribución de Chi-Cuadrado , Ingestión de Alimentos , Femenino , Humanos , Masculino , Neoplasias Maxilares/psicología , Prótesis Maxilofacial/psicología , Persona de Mediana Edad , Obturadores Palatinos/psicología , Análisis de Regresión , Factores Socioeconómicos , Encuestas y Cuestionarios , Calidad de la VozRESUMEN
The importance of a holistic treatment approach in patients with oral and maxillofacial tumors is emphasized both under psychological and medical aspects. The objectives of psychological care, which has been integrated into the treatment concept of the University Hospital of Münster since the beginning of 1988, are particularly related to dealing with and mastering of the disease and the treatment of alcoholism, a frequently observed problem. This concept is described in detail by Kolbe and Hemprich (1989). The article covers the experience gained in the first year since psychological care has been integrated.