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2.
Health Qual Life Outcomes ; 18(1): 309, 2020 Sep 21.
Artículo en Inglés | MEDLINE | ID: mdl-32958050

RESUMEN

BACKGROUND: To generate high-quality evidence, contextually relevant outcome measurement instruments are required. Quality of life evaluation among polio survivors typically involves the use of generic instruments, which are developed and validated among a different groups of people. There is no clear evidence whether these instruments are appropriate for the measurement of quality of life among polio survivors in northwest Nigeria. The purpose of this review is to identify and select a pre-existing instrument that is best suited for the measurement of quality of life among polio survivors in northwest Nigeria. METHODS: Using the findings of a previous scoping review of the literature and qualitative descriptive study, we screened 11 quality of life instruments that are used in polio literature. We identified and selected the most appropriate instrument, which reflected the perspectives of polio survivors in northwest Nigeria and at the same time exhibited good measurement properties. RESULTS: The Quality of Life Index, World Health Organization Quality of Life Brief, and Comprehensive Quality of Life Scale are consistent with the perspectives of polio survivors in northwest Nigeria and have satisfactory measurement properties. Among these instruments, the Quality of Life Index satisfied most of the screening criteria we employed and is suitable for cross-cultural adaptation in northwest Nigeria. CONCLUSION: Most instruments that are employed to evaluate the quality of life of polio survivors were not primarily designed as a measure of quality of life. To select the appropriate instrument, there is a need to consider and reflect the perspectives of the individuals, to improve the validity of the measurement.


Asunto(s)
Poliomielitis/psicología , Psicometría/instrumentación , Calidad de Vida , Encuestas y Cuestionarios , Sobrevivientes/psicología , Comparación Transcultural , Humanos , Masculino , Nigeria , Reproducibilidad de los Resultados , Traducciones
3.
Death Stud ; 44(11): 727-735, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-32490737

RESUMEN

The aim of this article is to offer insight into the different meanings of death that pierce the lives of people with disabilities and to discuss how those meanings are formed through a close connection with their bodies. To do that, I take an anthropological approach to trace the life paths of two individuals from a southern Latin American metropolis, exploring their embodied experiences of disability. Based on their accounts, I look at how their bodies are affected by specific conditions of stigma, dispossession, and social death, but also how, as "inappropriate/d" bodies, they rise above the logic of difference and move from a state of "absence" to a state of "presence" in the social world.


Asunto(s)
Personas con Discapacidad/psicología , Personas con Discapacidad/rehabilitación , Distrofias Musculares/psicología , Distrofias Musculares/rehabilitación , Poliomielitis/psicología , Poliomielitis/rehabilitación , Arte , Danzaterapia/métodos , Femenino , Humanos , América Latina , Masculino , Persona de Mediana Edad , Poder Psicológico , Psicoterapia/métodos , Estigma Social , Yoga/psicología
4.
PLoS One ; 14(10): e0224685, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-31671130

RESUMEN

BACKGROUND: The aim of the study was to describe the experience of outdoor mobility among immigrants with late effects of polio living in Sweden. There is a need to understand more about this young group of persons since they often have problems with mobility and gait, but they may also face participation restrictions due to issues associated with integration into a new community and culture. METHOD: A total of 14 young immigrants with late effects of polio participated and were interviewed individually. The study used a qualitative method to explore personal experiences and the interviews were analyzed through an inductive approach, using qualitative content analysis. RESULTS: The analysis led to a major theme; self-image and acceptance, that comprised a changeable process and experiences of cultural, social, and gender-specific barriers, but also of environmental and personal factors that impacted their outdoor mobility. By using a car, the participants felt they could come across as normal which also increased their self-esteem. CONCLUSIONS: Independent mobility is a major enabler for ongoing employment and being able to use a car increases the chances for integration into society for young immigrants with late effects of polio. Public transport is not considered to be adequate or efficient enough due to the participants' mobility impairments, but driving can prevent involuntary isolation and facilitate participation. A car can increase quality of life but may also be a facilitator for work and reduce the demand for societal support.


Asunto(s)
Limitación de la Movilidad , Poliomielitis/psicología , Autoimagen , Actividades Cotidianas , Adulto , Automóviles , Emigrantes e Inmigrantes/psicología , Femenino , Humanos , Masculino , Poliomielitis/fisiopatología , Investigación Cualitativa , Calidad de Vida , Rango del Movimiento Articular , Suecia , Adulto Joven
5.
J Rehabil Med ; 51(11): 861-868, 2019 Dec 16.
Artículo en Inglés | MEDLINE | ID: mdl-31690950

RESUMEN

OBJECTIVE: To explore the health situation and identify specific health challenges in non-Western immigrants with polio in Norway, by comparing their status with Western immigrants with polio and native Norwegians with polio. DESIGN: A questionnaire covering demographics, polio history, life satisfaction, medical, psychological and social conditions was answered by 1,408 persons with polio, among them 34 immigrants from non-Western countries and 32 immigrants from Western countries. RESULTS: The non-Western immigrant polio group had a mean age of 46 years, were highly educated, reported high frequency of mental health problems and only one-third was working. Mean age for contracting polio was 2.8 years. Only 30% was hospitalized in the acute phase and 80% reported severe leg weakness. Use of a powered wheelchair was reported by 72%. Post-polio symptoms had started at a mean age of 31 years. The non-Western immigrant group reported more fatigue, pain and loneliness, and a high proportion reported insufficient assistance from the public health system. CONCLUSION: The group of non-Western immigrants with polio in Norway reported more health and social problems than the group of Western immigrants with polio or the native Norwegian group with polio, even though they were younger and more highly educated. Their complex psychological and social situation requires active intervention from the health system, and health professionals need extra skills to deal most effectively with their situation.


Asunto(s)
Atención a la Salud/normas , Emigrantes e Inmigrantes/estadística & datos numéricos , Poliomielitis/epidemiología , Síndrome Pospoliomielitis/epidemiología , Anciano , Femenino , Humanos , Masculino , Persona de Mediana Edad , Noruega , Poliomielitis/psicología
6.
Qual Life Res ; 28(9): 2341-2357, 2019 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-31028511

RESUMEN

BACKGROUND: Quality of life evaluation is essential to explore the effect of paralytic polio on the daily life experience of the polio survivor. Researchers have employed a range of assessment instruments to evaluate quality of life among polio survivors. Hence, to select the appropriate scale, it is crucial to compare the contents and psychometric properties of these instruments. PURPOSE: This scoping review explores quality of life instruments that are used in polio literature and analyzes their contents and psychometric properties using the Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria. METHOD: Using the Arksey and O'Malley framework, we conducted a literature search in the following electronic databases Medline, CINAHL, Web of Science, Embase, and Google Scholar to identify relevant studies that focused on quality of life of polio survivors. Of the 88 articles that qualify for full-text screening, 34 studies met our inclusion criteria. Two independent reviewers extracted data from the selected studies via Covidence, a reference manager that allows for blinding of reviews. RESULTS: Most of the instruments included in this review are generic, self-reported, and multidimensional. Despite having mostly adequate psychometric properties, these properties were not evaluated in polio survivors. CONCLUSION: The information provided in this review could be used to guide instrument selection and identify the need to develop a new tool or to adapt a pre-existing scale for measuring quality of life among polio survivors.


Asunto(s)
Poliomielitis/psicología , Psicometría/métodos , Calidad de Vida/psicología , Sobrevivientes/psicología , Humanos , Poliomielitis/mortalidad
7.
Bull World Health Organ ; 97(1): 24-32, 2019 01 01.
Artículo en Inglés | MEDLINE | ID: mdl-30618462

RESUMEN

Objective: To evaluate a project that integrated essential primary health-care services into the oral polio vaccine programme in hard-to-reach, underserved communities in northern Nigeria. Methods: In 2013, Nigeria's polio emergency operation centre adopted a new approach to rapidly raise polio immunity and reduce newborn, child and maternal morbidity and mortality. We identified, trained and equipped eighty-four mobile health teams to provide free vaccination and primary-care services in 3176 hard-to-reach settlements. We conducted cross-sectional surveys of women of childbearing age in households with children younger than 5 years, in 317 randomly selected settlements, pre- and post-intervention (March 2014 and November 2015, respectively). Findings: From June 2014 to September 2015 mobile health teams delivered 2 979 408 doses of oral polio vaccine and dewormed 1 562 640 children younger than 5 years old; performed 676 678 antenatal consultations and treated 1 682 671 illnesses in women and children, including pneumonia, diarrhoea and malaria. The baseline survey found that 758 (19.6%) of 3872 children younger than 5 years had routine immunization cards and 690/3872 (17.8%) were fully immunized for their age. The endline survey found 1757/3575 children (49.1%) with routine immunization cards and 1750 (49.0%) fully immunized. Children vaccinated with 3 or more doses of oral polio vaccine increased from 2133 (55.1%) to 2666 (74.6%). Households' use of mobile health services in the previous 6 months increased from 509/1472 (34.6%) to 2060/2426(84.9%). Conclusion: Integrating routine primary-care services into polio eradication activities in Nigeria resulted in increased coverage for supplemental oral polio vaccine doses and essential maternal, newborn and child health interventions.


Asunto(s)
Accesibilidad a los Servicios de Salud/estadística & datos numéricos , Programas de Inmunización/métodos , Poliomielitis/prevención & control , Vacuna Antipolio Oral/administración & dosificación , Atención Primaria de Salud/métodos , Atención Primaria de Salud/estadística & datos numéricos , Adolescente , Adulto , Preescolar , Estudios Transversales , Femenino , Conocimientos, Actitudes y Práctica en Salud , Humanos , Inmunización/estadística & datos numéricos , Lactante , Recién Nacido , Entrevistas como Asunto , Persona de Mediana Edad , Unidades Móviles de Salud , Nigeria , Poliomielitis/psicología , Distribución Aleatoria , Investigación , Adulto Joven
8.
Semin Pediatr Neurol ; 26: 39-44, 2018 07.
Artículo en Inglés | MEDLINE | ID: mdl-29961515

RESUMEN

This is the story of my twin brother's struggle with polio. The story reflects the thoughts and feelings of Lyle and members of his family and describes how we all coped with the event.


Asunto(s)
Familia/psicología , Poliomielitis/psicología , Niño , Humanos , Poliomielitis/terapia
9.
Rev Esp Salud Publica ; 922018 Jun 25.
Artículo en Español | MEDLINE | ID: mdl-29938691

RESUMEN

OBJECTIVE: Polio affects the quality of life of those who have suffered from it and causes health problems including the post-polio syndrome. The main goals of this work were to know the patients perspective of how they have been affected by the disease and establish the knowledge of post-polio syndrome among patients and primary health care professionals. METHODS: Interpretive qualitative research based on the Grounded Theory carried out in two health-care centers in the city of Malaga, one of them with care-rural clinics. Four focal groups were established with the participation of thirteen patients and two focus groups with twenty-six professional participants. Intentional sampling is performed until saturation. The analysis follows an inductive strategy using the Atlas Ti5.2 software. RESULTS: The people affected by polio reports their personal histories of suffering counteracted by strong family support and an active coping attitude, marked by great effort exertion, willpower and endurance. These people made a positive assessment of their lives minimising the limitations. They presented compatible symptoms with post-polio syndrome, which remain unidentified due to the lack of knowledge of it among patients and health-care professionals. The health care provided was considered deficient due to several causes as for instance lack of involvement, communication problems. CONCLUSIONS: The day-to-day polio experience is focused on personal overcoming with major roles played by family support, difficult relationships with the healthcare system and lack of knowledge of the post-polio syndrome.


OBJETIVO: La polio afecta a la calidad de vida de las personas que la han padecido y ocasiona problemas de salud entre los que se encuentra el síndrome postpolio. Los objetivos de este estudio fueron conocer la perspectiva de pacientes sobre cómo les ha afectado la enfermedad y describir el conocimiento sobre el síndrome postpolio de pacientes y profesionales de atención primaria. METODOS: Investigación cualitativa interpretativa basada en la Teoría Fundamentada, realizada en dos centros de salud de la ciudad de Málaga, uno de ellos con consultorios rurales. Se realizaron cuatro grupos focales con participación de trece pacientes y dos grupos focales con veintiséis profesionales participantes. Muestreo intencional hasta saturación. El análisis siguió una estrategia inductiva con ayuda del programa Atlas Ti 5.2. RESULTADOS: Los pacientes relataron una historia personal de sufrimiento, contrarrestada por un fuerte apoyo familiar y afrontamiento activo (categoría central), marcado por el sobreesfuerzo, la superación y una alta resiliencia. Realizaron una valoración positiva de sus vi- das, minimizando las limitaciones. Presentaron síntomas compatibles con el síndrome postpolio, no identificado por el gran desconocimiento de pacientes y profesionales. La atención sanitaria fue considerada deficitaria (falta de implicación y problemas de comunicación). CONCLUSIONES: La vivencia de la polio está centrada en la superación personal, con gran relevancia del apoyo familiar, las difíciles relaciones con el sistema sanitario y el desconocimiento del síndrome postpolio.


Asunto(s)
Poliomielitis/diagnóstico , Poliomielitis/terapia , Síndrome Pospoliomielitis/diagnóstico , Síndrome Pospoliomielitis/terapia , Adaptación Psicológica , Anciano , Comunicación , Salud de la Familia , Femenino , Grupos Focales , Conocimientos, Actitudes y Práctica en Salud , Personal de Salud , Humanos , Masculino , Persona de Mediana Edad , Participación del Paciente , Poliomielitis/psicología , Síndrome Pospoliomielitis/psicología , Atención Primaria de Salud , Investigación Cualitativa , Calidad de Vida , Programas Informáticos , España
10.
PLoS One ; 12(8): e0183721, 2017.
Artículo en Inglés | MEDLINE | ID: mdl-28859101

RESUMEN

BACKGROUND: Understanding stakeholders' (parents', communities' and health workers') perspectives of communication about childhood vaccination, including their preferences for its format, delivery and content, is an important step towards designing better communication strategies and ensuring more informed parents. Our objectives were to explore stakeholders' views, experiences and preferences for childhood vaccination communication in Cameroon. METHODS: In 2014, in the Central and North West Regions of Cameron, we gathered qualitative data for our case study using the following methods: semi structured interviews; observations and informal conversations during routine immunization clinics and three rounds of the National Polio Immunization Campaign; document analysis of reports and mass media communications about vaccination; and a survey of parents. We conducted a thematic analysis of the qualitative data to identify themes relating to views, experiences and perceptions of vaccination information and its delivery. Survey data were analysed using simple descriptive statistics. RESULTS: All of the parents interviewed felt that vaccinating their child was important, and trusted the information provided by health workers. However, many parents wanted more information. Parents did not always feel that they could ask questions during vaccination appointments. All participants felt that health workers and vaccination clinics were important sources of information. Social mobilisation activities such as door-to-door visits and announcements during religious services were important and accepted ways of communicating information, especially during vaccination campaigns. Information communicated through mass media and text messages was also seen as important. In general, stakeholders believed that more consistent messaging about routine vaccination through community channels would be helpful to remind parents of the importance of routine vaccination during ongoing rounds of vaccination campaigns against polio. CONCLUSIONS: This study confirms that parents regard information about childhood vaccination as important, but that health services need to be organized in ways that prioritize and facilitate communication, particularly about routine vaccination.


Asunto(s)
Poliomielitis/epidemiología , Vacunación/psicología , Camerún , Niño , Femenino , Comunicación en Salud , Personal de Salud/psicología , Humanos , Masculino , Padres/psicología , Percepción , Poliomielitis/prevención & control , Poliomielitis/psicología , Encuestas y Cuestionarios
11.
BMC Geriatr ; 17(1): 179, 2017 08 09.
Artículo en Inglés | MEDLINE | ID: mdl-28793865

RESUMEN

BACKGROUND: New or increased impairments may develop several decades after an acute poliomyelitis infection. These new symptoms, commonly referred to as late effects of polio (LEoP), are characterised by muscular weakness and fatigue, generalised fatigue, pain at rest or during activities and cold intolerance. Growing older with LEoP may lead to increased activity limitations and participation restrictions, but there is limited knowledge of how these persons perceive the practical and psychological consequences of ageing with LEoP and what strategies they use in daily life. The aim of this qualitative study was therefore to explore how ageing people with LEoP perceive the their situation and what strategies they use for managing daily life. METHODS: Seven women and seven men (mean age 70 years) were interviewed. They all had a confirmed history of acute poliomyelitis and new impairments after a stable period of at least 15 years. Data were transcribed verbatim and analysed using systematic text condensation. RESULTS: The latent analysis resulted in three categories 'Various consequences of ageing with LEoP', 'Limitations in everyday activities and participation restrictions', and 'Strategies for managing daily life when ageing with LEoP' and 12 subcategories. The new impairments led to decreased physical and mental health. The participants perceived difficulties in performing everyday activities such as managing work, doing chores, partaking in recreational activities and participating in social events, thereby experiencing emotional and psychological distress. They managed to find strategies that mitigated their worries and upheld their self-confidence, for example finding practical solutions, making social comparisons, minimising, and avoidance. CONCLUSION: Ageing with LEoP affected daily life to a great extent. The participants experienced considerable impact of the new and increased impairments on their life situation. Consequently, their ability to participate in various social activities also became restricted. Social comparisons and practical solutions are strategies that facilitate adaptation and acceptance of the new situation due to LEoP. This emphasises the need to design rehabilitation interventions that focus on coping, empowerment and self-management for people ageing with LEoP.


Asunto(s)
Actividades Cotidianas/psicología , Adaptación Psicológica , Envejecimiento , Fatiga , Debilidad Muscular , Dolor , Poliomielitis , Anciano , Envejecimiento/fisiología , Envejecimiento/psicología , Fatiga/etiología , Fatiga/psicología , Femenino , Humanos , Entrevista Psicológica/métodos , Masculino , Debilidad Muscular/etiología , Debilidad Muscular/psicología , Evaluación de Necesidades , Dolor/etiología , Dolor/psicología , Participación del Paciente/psicología , Poliomielitis/complicaciones , Poliomielitis/fisiopatología , Poliomielitis/psicología , Investigación Cualitativa , Autoimagen , Sobrevivientes , Suecia/epidemiología
12.
J Rehabil Med ; 49(8): 652-658, 2017 Aug 31.
Artículo en Inglés | MEDLINE | ID: mdl-28792586

RESUMEN

OBJECTIVE: To explore how persons with late effects of polio experience falls and what strategies they use to manage the consequences of falls. DESIGN: A qualitative study with face-to-face interviews. Data were analysed by systematic text condensation. PARTICIPANTS: Fourteen ambulatory persons (7 women; mean age 70 years) with late effects of polio. RESULTS: Analysis resulted in one main theme, "Everyday life is a challenge to avoid the consequences of falls", and 3 categories with 7 subcategories. Participants perceived that falls were unpredictable and could occur anywhere. Even slightly uneven surfaces could cause a fall, and increased impairments following late effects of polio led to reduced movement control and an inability to adjust balance quickly. Physical injuries were described after the falls, as well as emotional and psychological reactions, such as embarrassment, frustration and fear of falling. Assistive devices, careful planning and strategic thinking were strategies to prevent falls, together with adaptation and social comparisons to mitigate the emotional reactions. CONCLUSION: Experiences of falls greatly affect persons with late effects of polio in daily life. To reduce falls and fall-related consequences both problem-focused and emotion-focused strategies are used. In order to increase daily functioning, these findings should be included in a multifaceted falls management programme.


Asunto(s)
Accidentes por Caídas/prevención & control , Actividades Cotidianas/psicología , Poliomielitis/complicaciones , Anciano , Femenino , Humanos , Masculino , Persona de Mediana Edad , Poliomielitis/psicología , Investigación Cualitativa
13.
Rev Bras Reumatol Engl Ed ; 57(1): 1-7, 2017.
Artículo en Inglés, Portugués | MEDLINE | ID: mdl-28137397

RESUMEN

OBJECTIVE: To determine the impact of postpolio-syndrome on quality of life in polio survivors. METHODS: Forty polio survivors were included in the study. Twenty-one patients fulfilling the Halstead's postpolio-syndrome criteria participated in postpolio-syndrome group. The remaining nineteen patients formed non-postpolio-syndrome group. Control group was composed of forty healthy subjects. Quality of life was evaluated by Nottingham Health Profile, depression by Beck Depression Scale and fatigue by Fatigue Symptom Inventory. Isometric muscle strength was measured by manual muscle testing. RESULTS: Total manual muscle testing score was 26.19±13.24 (median: 29) in postpolio-syndrome group and 30.08±8.9 (median: 32) in non-postpolio-syndrome group. Total manual muscle testing scores of non-postpolio-syndrome group were significantly higher than that of postpolio-syndrome group. Patients with postpolio-syndrome reported significantly higher levels of fatigue and reduced quality of life in terms of physical mobility, pain and energy when compared with patients without postpolio-syndrome and control group. It was not reported a statistically significant difference in social and emotional functioning and sleep quality between postpolio-syndrome, non-postpolio-syndrome and control groups. Also it was not found any statistically significant difference in Beck Depression Scale scores among the groups. CONCLUSIONS: Postpolio-syndrome has a negative impact on quality of life in terms of functional status, severity of pain and energy. The identification, early recognition and rehabilitation of postpolio-syndrome patients may result in an improvement in their quality of life.


Asunto(s)
Depresión/psicología , Fatiga/psicología , Dolor/psicología , Poliomielitis/fisiopatología , Síndrome Pospoliomielitis/psicología , Calidad de Vida , Conducta Social , Sobrevivientes/psicología , Actividades Cotidianas/psicología , Adulto , Depresión/epidemiología , Evaluación de la Discapacidad , Fatiga/epidemiología , Femenino , Estudios de Seguimiento , Encuestas Epidemiológicas , Humanos , Relaciones Interpersonales , Masculino , Persona de Mediana Edad , Dolor/epidemiología , Poliomielitis/epidemiología , Poliomielitis/psicología , Poliomielitis/rehabilitación , Síndrome Pospoliomielitis/epidemiología , Síndrome Pospoliomielitis/fisiopatología , Síndrome Pospoliomielitis/rehabilitación , Índice de Severidad de la Enfermedad , Turquía/epidemiología
14.
Rev. bras. reumatol ; 57(1): 1-7, Jan.-Feb. 2017. tab
Artículo en Inglés | LILACS | ID: biblio-844213

RESUMEN

ABSTRACT Objective: To determine the impact of postpolio-syndrome on quality of life in polio survivors. Methods: Forty polio survivors were included in the study. Twenty-one patients fulfilling the Halstead's postpolio-syndrome criteria participated in postpolio-syndrome group. The remaining nineteen patients formed non-postpolio-syndrome group. Control group was composed of forty healthy subjects. Quality of life was evaluated by Nottingham Health Profile, depression by Beck Depression Scale and fatigue by Fatigue Symptom Inventory. Isometric muscle strength was measured by manual muscle testing. Results: Total manual muscle testing score was 26.19 ± 13.24 (median: 29) in postpolio-syndrome group and 30.08 ± 8.9 (median: 32) in non-postpolio-syndrome group. Total manual muscle testing scores of non-postpolio-syndrome group were significantly higher than that of postpolio-syndrome group. Patients with postpolio-syndrome reported significantly higher levels of fatigue and reduced quality of life in terms of physical mobility, pain and energy when compared with patients without postpolio-syndrome and control group. It was not reported a statistically significant difference in social and emotional functioning and sleep quality between postpolio-syndrome, non-postpolio-syndrome and control groups. Also it was not found any statistically significant difference in Beck Depression Scale scores among the groups. Conclusions: Postpolio-syndrome has a negative impact on quality of life in terms of functional status, severity of pain and energy. The identification, early recognition and rehabilitation of postpolio-syndrome patients may result in an improvement in their quality of life.


RESUMO Objetivo: Determinar o impacto da síndrome pós-pólio na qualidade de vida nos sobreviventes da pólio. Métodos: Quarenta sobreviventes da pólio foram incluídos no estudo. Participaram do grupo de síndrome pós-pólio 21 pacientes que atenderam aos critérios de síndrome pós-pólio de Halstead. Os 19 restantes formaram o grupo não síndrome pós-pólio. O grupo controle foi composto por 40 indivíduos saudáveis. A qualidade de vida foi avaliada pelo Nottingham Health Profile, a depressão pela Escala de Depressão de Beck e a fadiga pelo Inventário de Sintomas de Fadiga. A força muscular isométrica foi medida por teste muscular manual. Resultados: O escore total do teste muscular manual foi 26,19 ± 13,24 (mediana: 29) no grupo de síndrome pós-pólio e 30,08 ± 8,9 (mediana: 32) no grupo não síndrome pós-pólio. Escores totais de teste muscular manual de grupo não síndrome pós-pólio foram significativamente maiores do que os do grupo de síndrome pós-pólio. Os pacientes com síndrome pós-pólio relataram níveis significativamente maiores de fadiga e qualidade de vida reduzida em termos de mobilidade física, dor e energia quando comparados com pacientes sem síndrome pós-pólio e grupo controle. Não se relatou uma diferença estatisticamente significativa no funcionamento social e emocional e na qualidade do sono entre grupos de síndrome pós-pólio, não síndrome pós-pólio e controle. Além disso, não se encontrou diferença estatisticamente significativa nos escores da Escala de Depressão de Beck entre os grupos. Conclusões: A síndrome pós-pólio tem um impacto negativo na qualidade de vida em termos de estado funcional, gravidade da dor e energia. A identificação, o reconhecimento precoce e a reabilitação dos pacientes com síndrome pós-pólio podem resultar em uma melhoria da qualidade de vida.


Asunto(s)
Humanos , Masculino , Femenino , Adulto , Dolor/psicología , Poliomielitis/fisiopatología , Calidad de Vida , Conducta Social , Síndrome Pospoliomielitis/psicología , Sobrevivientes/psicología , Depresión/psicología , Fatiga/psicología , Dolor/epidemiología , Poliomielitis/psicología , Poliomielitis/rehabilitación , Poliomielitis/epidemiología , Turquía/epidemiología , Índice de Severidad de la Enfermedad , Actividades Cotidianas/psicología , Estudios de Seguimiento , Encuestas Epidemiológicas , Síndrome Pospoliomielitis/fisiopatología , Síndrome Pospoliomielitis/rehabilitación , Síndrome Pospoliomielitis/epidemiología , Depresión/epidemiología , Evaluación de la Discapacidad , Fatiga/epidemiología , Relaciones Interpersonales , Persona de Mediana Edad
15.
J Public Health Policy ; 38(1): 16-36, 2017 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-28077864

RESUMEN

Pakistan and Afghanistan remain the only countries where polio is endemic, and Pakistan reports the most cases in the world. Although the rate is lower than in previous years, the situation remains alarming. We conducted a mixed methods study in high-risk areas of Pakistan to identify knowledge, attitudes, and practices of target populations about polio vaccine and its eradication, and to estimate coverage of routine immunization and oral polio vaccine. We surveyed 10,685 households in Karachi, 2522 in Pishin, and 2005 in Bajaur. Some knowledge of polio is universal, but important misconceptions persist. The findings of this study carry strategic importance for program direction and implementation.


Asunto(s)
Conocimientos, Actitudes y Práctica en Salud , Poliomielitis/psicología , Vacunas contra Poliovirus/uso terapéutico , Niño , Estudios Transversales , Erradicación de la Enfermedad , Grupos Focales , Humanos , Entrevistas como Asunto , Masculino , Pakistán/epidemiología , Poliomielitis/epidemiología , Poliomielitis/prevención & control , Vacuna Antipolio Oral/efectos adversos , Vacuna Antipolio Oral/uso terapéutico , Vacunas contra Poliovirus/efectos adversos , Investigación Cualitativa , Encuestas y Cuestionarios , Negativa del Paciente al Tratamiento/psicología
16.
J Relig Health ; 56(2): 635-648, 2017 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-27640195

RESUMEN

Pakistan is one of the two countries where polio remains endemic. Among multiple reasons of polio prevalence, false religious beliefs are accounted as major barriers towards polio immunization in Pakistan. Within this context, religious scholars are now engaged in polio immunization campaigns to dismantle the myths and battle the resurgence of polio in Pakistan. The objective of this study was to assess knowledge, attitudes and perceived barriers of Muslim scholars towards polio immunization in Pakistan. A descriptive, cross-sectional survey of Muslim scholars was conducted in Quetta and Peshawar divisions of Pakistan. From October to December 2015, a convenience sample of 770 Muslim scholars was recruited from the local mosques and religious institutions to participate in this study. Knowledge, attitudes, and perceived barriers were assessed by using self-administered, anonymous and pretested questionnaire. Descriptive and regression analyses were used to express the results with p < 0.05 taken as significant. Three hundred and forty-eight (45.2 %) participants exhibited good knowledge about polio with a mean score of 7.16 ± 2.12 (based on 14 questions). Knowledge gaps were identified about the transmission (32.6 %) and consequences of poliovirus (39.9 %). Overall, 527 (68.4 %) participants showed positive attitudes towards polio immunization with a mean attitude score of 27.35 ± 2.68 (based on nine statements). The majority of participants agreed on the need of depoliticizing polio immunization issues (87.1 %), while reservations were noted about their willingness to participate in future polio immunization programs (44.6 %). Security (75.8 %) and vaccine management issues (64 %) were reported by the participants as the major barriers towards polio immunization in Pakistan. The findings showed poor knowledge of Muslim scholars towards polio; however, their attitudes were positive towards polio immunization. More studies are required to assess the knowledge and attitudes of Muslim scholars at the national level to validate the findings of this study.


Asunto(s)
Conocimientos, Actitudes y Práctica en Salud , Accesibilidad a los Servicios de Salud/estadística & datos numéricos , Inmunización/psicología , Islamismo/psicología , Poliomielitis/prevención & control , Religión y Medicina , Adolescente , Adulto , Estudios Transversales , Femenino , Humanos , Inmunización/métodos , Inmunización/estadística & datos numéricos , Masculino , Persona de Mediana Edad , Pakistán , Poliomielitis/psicología , Encuestas y Cuestionarios , Adulto Joven
17.
J Rehabil Med ; 48(8): 688-695, 2016 Oct 05.
Artículo en Inglés | MEDLINE | ID: mdl-27494714

RESUMEN

OBJECTIVE: To explore the physical and social situation of the Norwegian polio population in 2014, and to compare the status of this population in 2014 with the results of a similar survey carried out 20 years previously, in 1994. DESIGN: The study was based on a questionnaire covering demographics, polio history, and current medical, psychological and social conditions. SUBJECTS: The questionnaire was prepared in cooperation with the National Society of Polio Survivors and others with known polio (n = 1,968). A total of 1,408 persons responded (72%), mean age 70 years (range 28-98 years). RESULTS: The most frequent health problems reported were muscle and joint pain, cold intolerance and insomnia. New muscle weakness and loss of muscle volume were reported more frequently in 2014 than in the 1994 study. The use of orthopaedic aids, assistive devices, ventilators and other respiratory aids had increased significantly, but 83% reported that they still had no home care or nursing services support. The 2014 polio population reported only minor subjective worsening of health and well-being compared with the 1994 cohort. CONCLUSION: The present study indicates that the elderly polio population are experiencing new muscle weakness and increasing health problems, but that the deterioration occurs slowly and with fewer consequences for the subjective experience of general health and well-being, indicating that the patients are adapting to their life situation. However, subgroups of the elderly polio population are in need of special care.


Asunto(s)
Trastornos Mentales/epidemiología , Dolor Musculoesquelético/epidemiología , Poliomielitis/psicología , Vigilancia de Guardia , Condiciones Sociales , Sobrevivientes/psicología , Adulto , Factores de Edad , Anciano , Anciano de 80 o más Años , Femenino , Estudios de Seguimiento , Humanos , Masculino , Trastornos Mentales/etiología , Persona de Mediana Edad , Dolor Musculoesquelético/etiología , Noruega/epidemiología , Dispositivos de Autoayuda/estadística & datos numéricos , Trastornos del Inicio y del Mantenimiento del Sueño/epidemiología , Trastornos del Inicio y del Mantenimiento del Sueño/etiología , Encuestas y Cuestionarios
18.
NeuroRehabilitation ; 37(2): 291-8, 2015.
Artículo en Inglés | MEDLINE | ID: mdl-26484520

RESUMEN

BACKGROUND: Many persons with late effects of polio experience new or increased impairments, which can lead to walking limitations in daily life. No study has comprehensively analyzed how various self-reported impairments are associated with different aspects of self-reported walking limitations. OBJECTIVE: To determine the associations between self-reported impairments and self-reported walking limitations in persons with late effects of polio. METHODS: Three hundred and twenty-five persons (175 women and 150 men) with verified late effects of polio responded to the Self-reported Impairments in Persons with late effects of Polio (SIPP; 13-items) and to the Walking Impact Scale (Walk-12; 12 items). RESULTS: The overall correlation (rho) between the total sum scores of the SIPP and the Walk-12 was 0.61 (p <  0.01). Of the 156 correlation coefficients (SIPP vs Walk-12), 151 (97% ) were significant at the 1% level. Self-reported muscle weakness, muscle fatigue, muscle and/or joint pain during physical activity and general fatigue had the strongest correlations (rho: 0.33 to 0.64) to the self-reported walking limitations, whereas memory difficulties, sleep disturbances and concentration difficulties had the weakest correlations (rho: 0.10 to 0.34). CONCLUSION: There are weak to moderate associations between self-reported impairments and walking limitations in persons with late effects of polio. By limiting the impact of those impairments that are strongest associated with walking, clinicians may improve walking ability. However, the strength of the associations implies that other rehabilitation interventions should be considered for improving overall performance in daily activities related to walking.


Asunto(s)
Poliomielitis/complicaciones , Caminata , Anciano , Femenino , Humanos , Masculino , Persona de Mediana Edad , Poliomielitis/fisiopatología , Poliomielitis/psicología , Autoinforme
19.
PLoS One ; 10(6): e0130448, 2015.
Artículo en Inglés | MEDLINE | ID: mdl-26120843

RESUMEN

The purpose of this study is to assess health-related quality of life in polio survivors (PS) compared with that in the general population in Korea. Polio survivors (n = 120) from outpatient clinics at two hospitals, healthy controls (HC, n = 121) and members of the general population with activity limitations (AL, n = 121) recruited through a proportional-allocation, systematic sampling strategy from the Fourth Korean National Health and Nutrition Examination Survey were surveyed with self-rated health-related quality of life (Euro QoL five-dimensions). The proportion of participants who reported problems in mobility, usual activity, and symptoms of anxiety/depression were higher in the PS group compared with the HC and AL groups. There was no significant difference in the self-care dimension across the groups. Polio-specific questionnaire, pain, depression, fatigue, Modified Barthel Index (K-MBI) and Short Physical Performance Battery (SPPB) were assessed in the PS group. Those with post-poliomyelitis syndrome had greater problems in mobility, usual activity, and depression/anxiety. Polio survivors, especially those with more pain and fatigue symptoms, and those who did not have access to medical services had poorer health-related quality of life. These findings afford useful information for potential intervention improving quality of life in polio survivors.


Asunto(s)
Poliomielitis/psicología , Poliomielitis/terapia , Síndrome Pospoliomielitis/psicología , Calidad de Vida , Sobrevivientes/psicología , Anciano , Ansiedad/complicaciones , Recolección de Datos , Depresión/complicaciones , Fatiga/complicaciones , Femenino , Estado de Salud , Encuestas Epidemiológicas , Humanos , Masculino , Persona de Mediana Edad , República de Corea , Encuestas y Cuestionarios
20.
Scand J Occup Ther ; 22(6): 450-61, 2015.
Artículo en Inglés | MEDLINE | ID: mdl-26107773

RESUMEN

OBJECTIVE: To explore and describe strategies in daily occupations among immigrants with late effects of polio. METHOD: The strategies were explored by interviews with 12 immigrants from Eastern Africa with late effects of polio. Sampling and data analysis was carried out according to grounded theory. RESULTS: The participants struggled for occupational participation and normality in an effort to participate in, and be part of, society. The study identified 14 strategies used by the immigrants in their daily occupations. The strategies can be presented in the following four categories: managing physical capacity; promoting occupational performance; strategies for gaining respect; and preparing the ground for one's existence. The participants struggled to find a balance between physical capacity and meaningful occupations, conception of their own and others' norms and values, and living conditions in Swedish society. The strategies were related to the participants' will to manage daily occupations, maintain social relationships, and be part of society. CONCLUSIONS: The strategies revealed that the participants strive to participate in occupations and society. This study reinforces the importance of occupation for immigrants with disability. The results highlight the need for adequate health care and rehabilitation but should also alert other social institutions.


Asunto(s)
Adaptación Psicológica , Emigrantes e Inmigrantes/psicología , Poliomielitis/rehabilitación , Adulto , África Oriental/etnología , Personas con Discapacidad/rehabilitación , Empleo/psicología , Femenino , Teoría Fundamentada , Humanos , Masculino , Terapia Ocupacional , Poliomielitis/psicología , Investigación Cualitativa , Suecia , Poblaciones Vulnerables
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