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1.
Trauma Violence Abuse ; : 15248380241253044, 2024 May 28.
Artigo em Inglês | MEDLINE | ID: mdl-38805432

RESUMO

Violence against women (VAW) is a global challenge also in the childbearing period. Despite high gender equality, there is a high prevalence of VAW in the Nordic countries. This scoping review aims to explore predictors for and consequences of a history of violence on women's pregnancy and childbirth in the Nordic countries, including women's experience of the impact of violence and the interventions used to detect, address consequences, and prevent further violence. The framework by Arksey and O'Malley was followed, and English, Finnish, Icelandic, Norwegian, Danish, and Swedish literature was included. The population was women aged ≥18 residing in the Nordic countries during the perinatal period. Eight databases were searched: MEDLINE, CINAHL, PubMed, PsycINFO, Web of Science, ASSIA, Social Services-, and Sociological abstracts. There was no limitation of the search time frame. The initial screening resulted in 1,104 records, and after removing duplicates, 452 remained. Finally, 61 papers met the inclusion criteria. The results covering the past 32 years indicated that childbearing women with a history of violence are at greater risk of common complaints and hospitalization during pregnancy, fear of childbirth, Cesarean section, breastfeeding difficulties, and physical and mental health problems. While extensive research was found on the associations between a history of and current violence and outcomes related to pregnancy, there was a lack of intervention studies and studies from Finland. Efforts must be made to scientifically test the methods used to reduce and treat the adverse effects of a history of violence and prevent further violence.

2.
J Adv Nurs ; 79(4): 1426-1436, 2023 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-36625094

RESUMO

AIMS: To explore the meaning of male intimate terrorism, its evolvement and its impact on women from the perspective of female survivors. DESIGN: The Vancouver School of Doing Phenomenology. METHODS: Nine women were interviewed 1-3 times, in all 16 interviews. The interviews were from 68 to 172 min (average 87 min). Data analysis was done through interpretive thematic analysis. RESULTS: For the surviving women, the intimate terrorism was a horrendous experience and they felt in the 'jaws of death'. The violence got worse over time from the entrapment phase where the men were obsessed with the women and monitored them, to the silencing phase, where the men silenced the women and the death phase, where the women felt as shadows of themselves. The women also described the awakening and recovery phases. The men's intense psychological aggression, marital rape and attempts to strangle them, were the gravest aspects of intimate terrorism and what contributed to them eventually feeling psychologically 'more than dead'. CONCLUSION: What is most striking in the findings is how the fundamental human rights of the women were violated and how close to death the women came. Nurses need to be knowledgeable about the danger of intimate terrorism, how to screen for it and provide trauma-focused nursing care to women who have been subjected to such trauma. PATIENT OR PUBLIC CONTRIBUTION: The women who were interviewed in the study are not patients, but they are part of the public.


Assuntos
Violência por Parceiro Íntimo , Terrorismo , Humanos , Masculino , Feminino , Violência por Parceiro Íntimo/psicologia , Agressão/psicologia , Violência , Arcada Osseodentária
3.
J Forensic Nurs ; 19(1): 3-11, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-36383035

RESUMO

ABSTRACT: The aim of the study was to explore women's experience of Icelandic prisons and of the interconnectedness of trauma, substance use, and prison. Nine incarcerated women, 20-45 years old, participated in this phenomenological study. One or two in-depth interviews were conducted with each participant, in all 16 interviews. The interconnectedness of trauma, substance use, and prison was evident in the participants' accounts. The participants had experienced severe traumas, in childhood and/or in adult life, most of it caused by recurrent experience of violence, bullying, neglect, and beatings and later violent relationships. For the participants, substance use was an unhelpful coping strategy intended to numb severe emotional distress. Most of the participants used substances intravenously that had progressed incredibly fast from initial drug use. They had tried most of the addiction treatments available to them, none of which were trauma based. Participants struggled with complex physical and mental health problems related to substance use and previous traumas but often felt prejudged when they sought healthcare services. They experienced being in prison as depersonalizing and dehumanizing. Most of them were mothers and had lost custody of their children because of substance use causing some of them deep grief. Participants called for more active substance treatment programs in prisons and complained about idleness that they felt increased their addiction. As a conclusion, we call for a trauma-informed care approach in prisons for women to prevent revictimization as well as to assist with mental health issues and substance use.


Assuntos
Prisioneiros , Transtornos Relacionados ao Uso de Substâncias , Adulto , Criança , Humanos , Feminino , Adulto Jovem , Pessoa de Meia-Idade , Prisões , Prisioneiros/psicologia , Mães , Adaptação Psicológica
4.
Artigo em Inglês | MEDLINE | ID: mdl-35886504

RESUMO

Suffering intimate partner violence (IPV) is a devastating personal experience and post-traumatic growth (PTG) is a positive, psychological change in a person, following trauma such as IPV. There is a gap in the literature when it comes to theories on PTG after surviving IPV. The aim of this theory development was to synthesize an approach to understanding the PTG journey of female IPV survivors. According to our theory, their PTG journey includes eight main components: 1. The women's early experience of trauma, 2. The consequences of that trauma, 3. Their experiences of IPV, 4. The consequences of IPV, 5. The facilitating factors to PTG, 6. The hindering factors to PTG, 7. Their experience of PTG, and 8. The lingering effects of IPV. According to our findings, PTG is a real possibility for female IPV survivors, and it is likely to improve their mental health, well-being, and quality of life, as well as that of their children, loved ones, and communities, thereby decreasing the damaging effects of IPV. The theory can be useful for professionals when guiding female survivors of IPV to promote their recovery and healing. Due to the lack of research in this field, additional research is needed to further develop this theory.


Assuntos
Violência por Parceiro Íntimo , Crescimento Psicológico Pós-Traumático , Criança , Feminino , Humanos , Violência por Parceiro Íntimo/psicologia , Saúde Mental , Qualidade de Vida , Sobreviventes/psicologia
5.
Artigo em Inglês | MEDLINE | ID: mdl-35564770

RESUMO

In this study, we identified 14 obstacles experienced by female survivors of intimate partner violence who had, nonetheless, reached post-traumatic growth (PTG), which is a positive psychological change by a person following serious difficulties or traumatic events. Intimate partner violence (IPV) is such a trauma. The purpose of this study was to analyze the obstacles to PTG as experienced by women who have succeeded in reaching PTG following traumatic IPV. Participants were twenty-two women aged 23-56 who self-reported their PTG according to the working definition used. The participants reported feelings of diminished self-worth that had negatively influenced their lives and how these negative feelings delayed their PTG. The overriding theme of the study was "It was all so confusing", which expressed the essence of the participants' feelings when describing the obstacles they encountered on their journey to PTG. Most of those obstacles were intrapersonal, i.e., negative personal feelings and negative perspectives towards themselves. Other obstacles reported by participants were physical and psychological health problems, challenging personal circumstances, and the perpetrator, as well as laws, regulations, and institutional social systems. This study reveals the broad range of obstacles encountered by women on their journey to PTG following IPV, emphasizing the necessity of an interdisciplinary approach when holistically considering their situation and supporting them on their journey towards PTG.


Assuntos
Violência por Parceiro Íntimo , Crescimento Psicológico Pós-Traumático , Emoções , Feminino , Humanos , Violência por Parceiro Íntimo/psicologia , Saúde Mental , Sobreviventes/psicologia
6.
Artigo em Inglês | MEDLINE | ID: mdl-35528147

RESUMO

Aim: This phenomenological study was aimed at exploring principal physicians' (participants') experience of attending to COPD patients and motivating their self-management, in light of the GOLD clinical guidelines of COPD therapy. Methods: Interviews were conducted with nine physicians, who had referred patients to PR, five general practitioners (GPs) and four lung specialists (LSs). The interviews were recorded, transcribed, and analyzed through a process of deconstruction and reconstruction. Results: The participants experienced several ethical dilemmas in being principal physicians of COPD patients and motivating their self-management; primarily in the balancing act of adhering to the Hippocratic Oath of promoting health and saving lives, while respecting their patients' choice regarding non-adherence eg, by still smoking. It was also a challenge to deal with COPD as a nicotine addiction disease, deal with patients' denial regarding the harm of smoking and in motivating patient mastery of the disease. The participants used various strategies to motivate their patients' self-management such as active patient education, enhancing the patients' inner motivation, by means of an interdisciplinary approach, involving the patients' significant other when appropriate, and by proposing PR. Conclusion: The findings indicate that being a principal physician of COPD patients and motivating their self-management is a balancing act, involving several dilemmas. Patients' nicotine addiction and physicians' ethical obligations are likely to create ethical dilemmas as the physician is obligated to respect the patients' will, even though it contradicts what is best for the patient. The participants suggest strategies to motivate COPD patients' self-management.


Assuntos
Clínicos Gerais , Doença Pulmonar Obstrutiva Crônica , Autogestão , Tabagismo , Humanos , Relações Médico-Paciente , Doença Pulmonar Obstrutiva Crônica/diagnóstico , Doença Pulmonar Obstrutiva Crônica/terapia , Encaminhamento e Consulta
7.
Artigo em Inglês | MEDLINE | ID: mdl-35409978

RESUMO

Despite the high prevalence of adverse health and trauma-related outcomes associated with intimate partner violence (IPV), help-seeking and service utilization among survivors is low. This study is part of a larger mixed-methods and survivor-centered validation study on the Icelandic Barriers to Help-Seeking for Trauma (BHS-TR) scale, a new barriers measure focused on trauma recovery. A mixed-methods legitimation strategy of integration was employed to evaluate the BHS-TR structure in samples of IPV survivors. The merging of qualitative (n = 17) and quantitative (n = 137) data through a joint display analysis revealed mainly complementarity findings, strengthening the scale's overall trustworthiness and validity evidence. Divergent findings involved items about mistrust, perceived rejection, stigmatization, fearing vulnerability, and safeguarding efforts that were significant help-seeking barriers in the survivors' narratives, whereas factor analysis indicated their removal. These BHS-TR items were critically evaluated in an iterative spiraling process that supported the barriers' influence, illuminated core issues, and guided potential refinements. This work contributes to the growing field of mixed methods instrument validation placing equal status on qualitative and quantitative methods and emphasizing integration to provide more complete insights. Moreover, the study's findings highlight the added value of further exploring divergence between two sets of data and the importance of giving attention to the voices of the target population throughout the validation process.


Assuntos
Violência por Parceiro Íntimo , Medo , Humanos , Prevalência , Estereotipagem , Sobreviventes
8.
Artigo em Inglês | MEDLINE | ID: mdl-35162363

RESUMO

Post-traumatic growth (PTG) is a positive psychological change following trauma. Intimate partner violence (IPV) is one such trauma. The aim of this phenomenological study was to explore PTG from the perspective of women who have survived IPV as well as their perceptions of PTG. Twenty-two female IPV survivors aged 23-56 who reached PTG, according to the working definition used, were interviewed. The overriding theme of the study was "I'm a winner, not a victim", which describes the essence of the women's experience of PTG. They described their experience as a shift from being suffering victims of IPV to becoming winners who enjoyed PTG. They felt that their positive attitude and personal strengths had helped them to reach PTG as well as to face the fact that they had been in an abusive relationship, thus forgiving and believing in themselves and taking responsibility for their own health and well-being. They sought knowledge about violence, how to process it, and how to respond to triggers. They set boundaries for their perpetrators and were in as little contact with them as possible. They chose the company of positive, supportive, and constructive people and situations where they were not being controlled. It was concluded that, even though suffering IPV is a terrible experience that no one should endure, the participants' experiences had resulted in PTG that they treasured.


Assuntos
Violência por Parceiro Íntimo , Crescimento Psicológico Pós-Traumático , Adulto , Ansiedade , Feminino , Humanos , Violência por Parceiro Íntimo/psicologia , Pessoa de Meia-Idade , Sobreviventes/psicologia , Violência , Adulto Jovem
9.
Scand J Caring Sci ; 36(3): 752-768, 2022 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-34709685

RESUMO

BACKGROUND: Many people experience psychological trauma during their lifetime, often negatively affecting their mental and physical health. Post-traumatic growth is a positive psychological change that may occur in an individual after having processed and coped with trauma. This journey, however, has not been studied enough. AIM: The purpose of this phenomenological study was to explore people's experience of suffering psychological trauma, the personal effects of the trauma and the transition from trauma to post-traumatic growth. METHODS: A purposeful sample of seven women and five men, aged 34-52, were selected whose backgrounds and history of trauma varied, but who had all experienced post-traumatic growth. One to two interviews were conducted with each one, in all 14 interviews. RESULTS: This study introduces a unique mapping of the challenging journey from trauma to post-traumatic growth through lived experiences of people who have experienced trauma as well as post-traumatic growth. Participants had different trauma experience, but their suffering shaped them all as persons and influenced their wellbeing, health and view of life. Participants described post-traumatic growth as a journey, rather than a destination. There was a prologue to their journey which some described as a hindering factor while others felt it was a good preparation for post-traumatic growth, i.e. to overcome difficulties at an early age. Participants described six main influencing factors on their post-traumatic growth, both facilitating and hindering ones. They also described the positive personal changes they had undergone when experiencing post-traumatic growth even though the epilogue also included heavy days. A new theoretical definition of post-traumatic growth was constructed from the findings. CONCLUSION: The results suggest that the journey to post-traumatic growth includes a recovery process and certain influencing factors that must be considered. This information has implications for professionals treating and supporting people who have suffered traumas.


Assuntos
Crescimento Psicológico Pós-Traumático , Adaptação Psicológica , Ansiedade , Feminino , Humanos , Masculino , Pesquisa Qualitativa
10.
Scand J Caring Sci ; 36(3): 673-685, 2022 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-34390257

RESUMO

BACKGROUND: Childhood sexual abuse (CSA) has widespread and long-lasting impact on women's lives and health. Increased knowledge and deeper understanding are needed of survivors' experiences of the childbearing process, health and motherhood. METHODS: In this phenomenological study, 16 in-depth interviews were conducted with nine female CSA survivors. The interviews were recorded, transcribed verbatim and thematically analysed. RESULTS: The overarching theme of the study is: 'more understanding is needed', which refers to the participants' experience that greater understanding is needed from health professionals of the long-term effects of CSA on childbearing women. Most of the women had suffered from poor health, especially chronic pain associated with fibromyalgia and gynaecological diseases. All of them had suffered mental health consequences particularly anxiety, depression and PTSD. The majority had experienced flashbacks to the violence and disassociation. Many had experienced miscarriages, had deviations from normal pregnancies and births, such as prolonged labour, caesarean sections, induction of labour, vacuum extraction, bleeding and exaggerated pregnancy problems, such as great nausea and pelvic pain. All but one had a negative experience in one of their births. All of them had experienced a lack of understanding in the healthcare system, perceived abuse of power and felt vulnerable in those situations. All of them had a strong need for a sense of control and participation in decision-making in the childbearing process. Most of them had experienced problems in bonding with their children and some have had difficulties touching them. All of them were in dire need of protecting their children from potential violence and many expressed a tendency to overprotect them. CONCLUSIONS: Healthcare professionals need to have more knowledge and greater understanding of how healthcare services can be improved so that CSA survivors can have a better experience of the childbearing process.


Assuntos
Abuso Sexual na Infância , Criança , Abuso Sexual na Infância/psicologia , Atenção à Saúde , Feminino , Humanos , Saúde Mental , Parto/psicologia , Gravidez , Sobreviventes/psicologia
11.
Artigo em Inglês | MEDLINE | ID: mdl-34639534

RESUMO

Multidisciplinary pain-management programs have the potential to decrease pain intensity, improve health-related quality of life (HRQOL), and increase sleep quality. In this longitudinal prospective cohort study, the aim was to investigate the long-term effects of multidisciplinary pain rehabilitation interventions in Iceland. More precisely, we (a) explored and described how individuals with chronic pain evaluated their pain severity, sleep, and HRQOL at pre-treatment and at one-year follow-up and (b) examined what predicted the participants' one-year follow-up HRQOL. Seventy-nine patients aged 20-68 years, most of whom were women (85%), responded. The participants scored their pain lower at one-year follow-up (p < 0.001). According to their response, most of them had disrupted sleep, mainly because of pain. One year after the treatment, more participants slept through the night (p = 0.004), and their HRQOL increased. Higher pre-treatment mental component summary (MCS) scores and having pursued higher education predicted higher MCS scores at one-year follow-up, and higher pre-treatment physical component summary (PCS) scores predicted higher PCS scores at one-year follow-up. Sleep problems, being a woman, and having children younger than 18 years of age predicted lower MCS scores at one-year follow-up. These findings are suggestive that patients should be examined with respect to their mental status, and it could be beneficial if they received some professional support after completing the intervention.


Assuntos
Dor Crônica , Qualidade de Vida , Criança , Dor Crônica/terapia , Feminino , Humanos , Manejo da Dor , Estudos Prospectivos , Sono
12.
Artigo em Inglês | MEDLINE | ID: mdl-34639608

RESUMO

Multidisciplinary long-term pain rehabilitation programs with a team of healthcare professionals are an integrated approach to treat patients with chronic non-malignant pain. In this longitudinal prospective cohort study, we investigated the long-term effects of multidisciplinary pain rehabilitation on the self-reported causes of pain, pain self-management strategies, sleep, pain severity, and pain's interference with life, pre- and post-treatment. Eighty-one patients, aged 20-69 years, with chronic pain responded. The two most frequently reported perceived causes of pain were fibromyalgia and accidents. The difference in average self-reported pain severity decreased significantly at one-year follow-up (p < 0.001), as did pain's interference with general activities, mood, walking ability, sleep, and enjoyment of life. At one-year follow-up, participants (21%) rated their health as good/very good and were more likely to state that it was better than a year before (20%). No change was found in the use of pain self-management strategies such as physical training at one-year follow-up. The intervention was effective for the participants, as reflected in the decreased pain severity and pain interference with life.


Assuntos
Dor Crônica , Exercício Físico , Humanos , Medição da Dor , Estudos Prospectivos , Qualidade de Vida
13.
Artigo em Inglês | MEDLINE | ID: mdl-33672865

RESUMO

This paper uses the method of theory synthesis, primarily from our own previous studies and psychoneuroimmunology research, with the aim of exploring and better understanding the consequences of sexual violence for women and their search for inner healing. The impact of the #MeToo movement is also examined. The main finding is that sexual violence causes persistent suffering for women and girls. In childhood and adolescence, the main consequences include a feeling of unbearable secrecy, threat and humiliation; disconnection of body and soul; great fear and constant insecurity; damaged self-image, self-accusation and guilt; experiencing being compelled to take full responsibility for the crime; as well as various physical and mental health problems, e.g., suicidal thoughts. In adulthood, the consequences are also multifaceted and varied, including vaginal problems, recurrent urinary tract infections, widespread and chronic pain, sleeping problems, chronic back problems, and fibromyalgia, eating disorders, social anxiety, severe depression, and chronic fatigue. In conclusion, sexual violence has these extremely negative and long-term consequences because of the interconnectedness of body, mind, and soul. The seriousness of the consequences makes a trauma-informed approach to services essential to support the healing and improved health and well-being of survivors.


Assuntos
Vítimas de Crime , Delitos Sexuais , Adolescente , Adulto , Criança , Crime , Feminino , Humanos , Ideação Suicida , Sobreviventes
14.
J Patient Rep Outcomes ; 5(1): 22, 2021 Feb 27.
Artigo em Inglês | MEDLINE | ID: mdl-33638750

RESUMO

BACKGROUND: Even though traumatization is linked to substantially reduced health-related quality of life, help-seeking and service utilization among trauma survivors are very low. To date, there has not been available in Iceland a culturally attuned, self-reported measure on help-seeking barriers after trauma. This study aimed to translate and cross-culturally adapt the English version of Barriers to Help-Seeking for Trauma (BHS-TR) scale into the Icelandic language and context. METHODS: The BHS-TR was culturally adapted following well-established and rigorous guidelines, including forward-backward translation, expert committee review, and pretesting through cognitive interviews. Two rounds of interviews with 17 female survivors of intimate partner violence were conducted using a think-aloud technique and verbal probing. Data were analyzed using qualitative content analysis, a combination of deductive and inductive approaches. RESULTS: Issues with the BHS-TR that were uncovered in the study were classified into four categories related to general design, translation, cultural aspects, and post-trauma context. The trauma-specific issues emerged as a new category identified in this study and included concepts specific to trauma experiences. Therefore, modifications were of great importance-resulting in the scale becoming more trauma-informed. Revisions made to address identified issues improved the scale, and the process led to an Icelandic version, which appears to be semantically and conceptually equivalent to the original version; additionally, the results provided evidence of content validity. CONCLUSIONS: As a cognitive interview study, it adds to the growing cognitive interviewing methodology literature. Furthermore, the results provide essential insights into the self-report response process of trauma survivors, highlighting the significance of making health-related research instruments trauma-informed.

15.
J Geriatr Phys Ther ; 44(1): 35-44, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-30883526

RESUMO

BACKGROUND AND PURPOSE: Interventions to increase physical activity among older populations may prevent or delay disability in activities of daily living and premature death. In our research, we focused on older women living independently in retirement communities, who commonly experience declining health. The purpose was to identify factors influencing physical activity in older women and to create a practical checklist to guide physical therapists in physical activity interventions within retirement communities. METHODS: The study was qualitative and guided by the Vancouver School of Doing Phenomenology. The data set comprised 12 in-depth interviews with 10 women, as 2 of the women were interviewed twice to deepen the understanding of their experience. They were aged 72 to 97 years (median = 84 years, interquartile range = 11 years) and lived in 7 different apartment buildings in the same urban area. The interviews were recorded, transcribed, and analyzed to identify factors influencing the physical activity behavior of the women. We then linked these factors to the Bronfenbrenner's ecological model and finally constructed a checklist for mapping the influencing factors. RESULTS: The physical activity experience of the older women reflected both facilitating and hindering factors from all layers of the ecological model. The largest part of the women's description was constructed around personal factors and the immediate physical and social environment. Yet, important influencing factors were expressed reflecting community, society, and the lifespan. Finally, the practical checklist created to guide physical activity interventions included 40 questions reflecting 24 influencing factors covering important layers of the ecological model. CONCLUSION: To deal with the epidemic of a sedentary lifestyle in older populations, physical therapists must join forces with health authorities and work with the complexities of physical activity promotion at appropriate levels. Our results and the checklist are a potential resource to aid in identifying physical activity influencing factors that are appropriate for physical therapy intervention, within retirement communities. Moreover, this checklist may be used to recognize factors that are more suitable for public health interventions at the community or national levels.


Assuntos
Exercício Físico/fisiologia , Vida Independente , Atividades Cotidianas , Idoso , Idoso de 80 Anos ou mais , Feminino , Comportamentos Relacionados com a Saúde , Nível de Saúde , Humanos , Entrevistas como Assunto , Atividade Motora , Pesquisa Qualitativa , Comportamento Sedentário , Meio Social
16.
Artigo em Inglês | MEDLINE | ID: mdl-35010367

RESUMO

Intimate partner violence (IPV) against women is a global human rights violation of vast proportions and a severe public health problem. Despite high rates of adverse outcomes related to IPV, help-seeking and service utilization among survivors is low. This exploratory sequential mixed-methods study using a combined etic-emic approach describes the validation of the Icelandic Barriers to Help-Seeking for Trauma (BHS-TR) scale. The qualitative phase involved developing new items based on the experiences of 17 Icelandic IPV survivors, identifying barriers including beliefs that help-seeking is a sign of weakness, and the desire to safeguard oneself from re-traumatization. The quantitative phase examined the psychometrics of the BHS-TR in a sample of 137 IPV survivors in Iceland. Results supported an eight-factor structure (Financial Concerns; Unavailable/Not Helpful; External Constraints; Inconvenience; Weakness/Vulnerability; Problem Management Beliefs; Frozen/Confused; and Shame), which when grouped comprised two indices of Structural and Internal Barriers. The scale's internal consistency was high (α = 0.87), and the results provided evidence of convergent, discriminant, and known-group validity. This study adds to the growing literature supporting the advantages of applying mixed methods for instrument development and validation, and its results highlight the significance of giving rise to the voices of survivors. The BHS-TR is the first trauma-specific and survivor-centered measure of help-seeking barriers available in Iceland. It can be used to provide valuable information that may guide the development of evidence-based interventions to break down barriers and help survivors find ways to trauma recovery.


Assuntos
Violência por Parceiro Íntimo , Feminino , Humanos , Islândia , Vergonha , Sobreviventes
17.
Int J Chron Obstruct Pulmon Dis ; 15: 2953-2965, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-33235444

RESUMO

Aim: The aim of this phenomenological study was to explore principal family members' experience of motivating patients with chronic obstructive pulmonary disease (COPD) towards self-management. Methods: Interviews were conducted with 10 family members (spouses and adult children) of COPD patients. The interviews were audio recorded, transcribed and analyzed thematically. Results: Being a principal family member of a COPD patient is characterized by frustrated caring; wanting the best for him/her and yet carrying a heavier burden than the person feels equipped for, lacking both knowledge about the disease progress and information about available healthcare resources. The situation demands much energy, due to COPD patients' lack of stamina; family members' fear of the patient's possible breathlessness; willingness to help, though sometimes meeting with negative reactions from the patient; and feeling ignored by health professionals (HPs). Family members expressed a need for a formal connection between patient-family-HPs. The increasing burden experienced by patients' family members is characterized by a sequential process in three phases of the patient's declining self-management. In the early phase, family and patient are ignorant of COPD yet recognize the patient's smoking as a risky lifestyle. In the intermediary phase, signs of COPD become evident to the family. The first turning point is when the family first observes the patient's acute exacerbation. A second turning point is in the advanced phase, when family and patient recognize COPD as a progressive disease, possibly fatal. We also identified family members' views on COPD patients' needs, and their own roles, main frustrations and concerns. Conclusion: Family members' experience of motivating COPD patients towards self-management is a sequential process where the family experiences advancing caring burden and declining self-management by the patient. We propose the establishment of COPD patients' teams consisting of patient-family-HP, aimed at the patients' best possible self-management.


Assuntos
Doença Pulmonar Obstrutiva Crônica , Autogestão , Adulto , Feminino , Humanos , Masculino , Família , Frustração , Doença Pulmonar Obstrutiva Crônica/diagnóstico , Doença Pulmonar Obstrutiva Crônica/terapia , Pesquisa Qualitativa
18.
Nurs Open ; 7(5): 1412-1423, 2020 09.
Artigo em Inglês | MEDLINE | ID: mdl-32802361

RESUMO

Aim: To explore the lived experience of individuals' in chronic pain of participating in a pain rehabilitation programme in Iceland. Design: Phenomenological research. Method: The Vancouver School of Doing Phenomenology. Eleven participants were interviewed. Results: The overarching theme was as follows: "the journey of breaking the vicious circle of chronic pain." Before the programme, the participants felt they were in survival mode, trying to survive each day; they were stuck in a vicious circle of chronic pain, simultaneously trying to ease and conceal the pain. Reaching out for professional help was a turning point. While attending the programme, participants began deconstructing their old ways of dealing with chronic pain. After completing the programme, they were still reconstructing their daily lives. In conclusion, pain rehabilitation programmes can be the first step towards breaking the vicious circle of chronic pain.


Assuntos
Dor Crônica , Humanos , Islândia , Manejo da Dor
19.
Artigo em Inglês | MEDLINE | ID: mdl-31968675

RESUMO

BACKGROUND: Middle managers have not received enough attention within the healthcare field, and little is known how stressful factors in their work environment coupled with a lack of adequate sleep are related to musculoskeletal pain. The aim of this study was to examine the correlation between stressful factors in the work environment, lack of adequate sleep, and pain/discomfort in three body areas. METHODS: Questionnaire was sent electronically to all female nursing unit managers (NUM) in Iceland through the outcome-survey system. The response rate was 80.9%. RESULTS: NUM who had high pain/discomfort in the neck area also had very high pain/discomfort in the shoulder area and pain in the lower back. The results also revealed positive a medium-strong correlation between mental and physical exhaustion at the end of the workday and musculoskeletal pain. Stress in daily work, mental strain at work, and being under time-pressures had hardly any correlation with pain/discomfort in the three body parts. Adequate sleep had a significant negative correlation with all stressful factors in the work environment and all three body parts under review. CONCLUSION: The results will hopefully lead to a better consideration of stressful factors in the work environment, sleep, and musculoskeletal pain in middle managers.


Assuntos
Dor Lombar/epidemiologia , Cervicalgia/epidemiologia , Serviço Hospitalar de Enfermagem , Doenças Profissionais/epidemiologia , Dor de Ombro/epidemiologia , Privação do Sono/epidemiologia , Estresse Psicológico/epidemiologia , Adulto , Dorso , Feminino , Humanos , Islândia/epidemiologia , Pessoa de Meia-Idade , Pescoço , Fatores de Risco , Ombro , Inquéritos e Questionários , Local de Trabalho
20.
Int J Chron Obstruct Pulmon Dis ; 14: 1033-1043, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31190788

RESUMO

Background: COPD is a common cause of morbidity and mortality. The aim of this study was to explore patients' experiences, self-reported needs, and needs-driven strategies to cope with self-management of COPD. Patients and methods: In this phenomenological study, 10 participants with mild to severe COPD were interviewed 1-2 times, until data saturation was reached. In total, 15 in-depth interviews were conducted, recorded, transcribed, and analyzed. Results: COPD negatively affected participants' physical and psychosocial well-being, their family relationships, and social life. They described their experiences of COPD like fighting a war without weapons in an ever-shrinking world with a loss of freedom at most levels, always fearing possible breathlessness. Fourteen needs were identified and eight clusters of needs-driven strategies that participants used to cope with self-management of COPD. Coping with the reality of COPD, a life-threatening disease, meant coping with dyspnea, feelings of suffocation, indescribable smoking addiction, anxiety, and lack of knowledge about the disease. Reduced participation in family and social life meant loss of ability to perform usual and treasured activities. Having a positive mindset, accepting help and assuming healthy lifestyle was important, as well as receiving continuous professional health care services. The participants' needs-driven strategies comprised conducting financial arrangements, maintaining hope, and fighting their smoking addiction, seeking knowledge about COPD, thinking differently, facing the broken chain of health care, and struggling with accepting support. Procrastination and avoidance were also evident. Finally, the study also found that participants experienced a perpetuating cycle of dyspnea, anxiety, and fear of breathlessness due to COPD which could lead to more severe dyspnea and even panic attacks. Conclusion: COPD negatively affects patients' physical and psychosocial well-being, family relationships and, social life. Identifying patients' self-reported needs and needs-driven strategies can enable clinicians to empower patients by educating them to improve their self-management.


Assuntos
Adaptação Psicológica , Comportamentos Relacionados com a Saúde , Conhecimentos, Atitudes e Prática em Saúde , Necessidades e Demandas de Serviços de Saúde , Pulmão/fisiopatologia , Doença Pulmonar Obstrutiva Crônica/reabilitação , Autocuidado , Idoso , Efeitos Psicossociais da Doença , Relações Familiares , Feminino , Volume Expiratório Forçado , Nível de Saúde , Humanos , Entrevistas como Assunto , Masculino , Saúde Mental , Pessoa de Meia-Idade , Educação de Pacientes como Assunto , Participação do Paciente , Doença Pulmonar Obstrutiva Crônica/diagnóstico , Doença Pulmonar Obstrutiva Crônica/fisiopatologia , Doença Pulmonar Obstrutiva Crônica/psicologia , Comportamento de Redução do Risco , Fumar/efeitos adversos , Fumar/psicologia , Abandono do Hábito de Fumar , Comportamento Social
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