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1.
Laryngoscope ; 2024 Oct 01.
Artigo em Inglês | MEDLINE | ID: mdl-39352056

RESUMO

OBJECTIVE: To perform the first mixed-methods analysis of patient expectations and satisfaction after endoscopic sinus surgery (ESS). METHODS: Semi-structured interviews of subjects undergoing ESS were performed to understand pre-operative expectations and 6-month post-operative satisfaction. Descriptive statistics, logistic regression, and mediation analyses were performed. Quantitative questions were followed by qualitative probes for subjects to expand on quantitative answers. Study sample size was determined by thematic saturation based on qualitative responses. Data visualization was used to triangulate quantitative and qualitative data wherein themes emerged. RESULTS: A total of 52 participants were included in the mixed-method analysis, and 110 were included in the mediation analysis. 56% of participants were male, with an average age of 55.7 (SD ± 2.18). Mean change in SNOT-22 was 20.8 (SD ± 3.74), and 25% of participants did not achieve a minimal clinically important difference (MCID). Of the participants who did not achieve MCID, 79% would still choose to have sinus surgery again. Qualitative interviews revealed multiple preliminary categories describing the patient experience with ESS. Regression analysis showed that the most important predictor of satisfaction was whether pre-operative expectations were met (OR = 3.8, p < 0.001). In mediation analysis, the effect of the clinical outcome on patient satisfaction was completely mediated by pre-operative expectations (indirect effect p = 0.009, direct effect p = 0.17). CONCLUSION: Patient expectations and satisfaction are important yet understudied measures in CRS and ESS. In ESS, satisfaction with outcome is driven by the fulfillment of pre-operative expectations. Aligning such expectations is the most important intervention a sinus surgeon can perform to maximize success. LEVEL OF EVIDENCE: 4 Laryngoscope, 2024.

2.
J Gen Intern Med ; 2024 Oct 02.
Artigo em Inglês | MEDLINE | ID: mdl-39356449

RESUMO

BACKGROUND: While prior studies have explored staffing infrastructure for primary care practices in general, little is known about the range of academic primary care practice models and supports available for academic general internists. OBJECTIVE: To characterize the range of practice arrangements and expectations for attending academic physicians in general internal medicine (GIM) practices at the top 22 medical schools across the USA. DESIGN: Cross-sectional survey administered electronically between October 30, 2022, and December 28, 2022. PARTICIPANTS: Clinical leaders in GIM at the top 22 primary care medical schools, as identified by the 2023 US News and World Report Rankings. MAIN MEASURES: Clinical load, productivity expectations, cross-coverage, and team-based care models. KEY RESULTS: Twenty-two leaders responded, representing 68% (15/22) of medical schools surveyed. The practices were mostly in urban locations (18/22, 82%) and 86% (19/22) included residents. Practices ranged from 7 to 200 PCPs and from 3 to 112 clinical FTEs. A full-time (1.0 FTE) clinical role for academic attending GIM physicians entailed a median of 9 (IQR 8, 10) weekly half-day clinic sessions, with a median panel size expectation of 1600 (IQR 1450, 1850) patients and a median yearly RVU expectation of 5200 (IQR 4161, 5891) yearly RVUs generated. Staff support was most commonly present for prescription refills and patient portal message checks. It was less commonly available for time sensitive form completion. Occasional clinical coverage for other physicians was an expectation at all practices. CONCLUSIONS: In this study, we characterize the organization of and supports available in academic GIM practices affiliated with the top primary care medical schools. Our findings provide comparative information for leaders of academic GIM practices seeking to enhance primary care delivery for their faculty and trainees. They also highlight areas where standardization may be beneficial across academic GIM.

3.
S Afr J Commun Disord ; 71(1): e1-e8, 2024 Sep 27.
Artigo em Inglês | MEDLINE | ID: mdl-39354795

RESUMO

BACKGROUND:  Caregiver expectations have been shown to impact child outcomes. There is limited research regarding caregivers of non-verbal autistic children in rural South Africa. Autistic individuals form part of a larger environment, which they influence and which impacts them. Caregivers form part of this environment. OBJECTIVES:  This study aims to explore caregivers' expectations of communication, education, social implications and intervention for their non-verbal autistic child in rural KwaZulu-Natal (KZN). METHOD:  Bronfenbrenner's ecological and bioecological systems theory framed the study and allowed the child's interaction with their environment to be understood through the use of a qualitative study design via interviews. Eleven caregivers (pilot study: n = 1 and main study: n = 10) of non-verbal autistic children were selected and interviewed. Data were analysed thematically. RESULTS:  Caregivers had varied expectations. Grandparents were often the primary caregivers (microsystem). Relationships within the mesosystem (caregiver and therapist) and caregiver's understanding affected their feelings and expectations that changed over time (chronosystem). Education was the predominant expectation. The study highlighted limited resources (schools) within the exosystem. Caregivers reported both support and judgement from their communities. CONCLUSION:  There is a need for public awareness, caregiver counselling and autism support groups in rural KZN and more specialised education options in order to improve caregivers' expectations.Contribution: This study contributes to the limited literature in the field of autism in South Africa, more specifically the rural context and communication disorders.


Assuntos
Transtorno Autístico , Cuidadores , População Rural , Humanos , África do Sul , Cuidadores/psicologia , Masculino , Feminino , Criança , Transtorno Autístico/psicologia , Pesquisa Qualitativa , Pré-Escolar , Adulto , Comunicação não Verbal , Avós/psicologia , Adolescente , Apoio Social
4.
Artigo em Inglês | MEDLINE | ID: mdl-39395200

RESUMO

INTRODUCTION: Sexual and reproductive health (SRH) education in Yogyakarta, Indonesia, is contentious due to societal and religious taboos in the Javanese Muslim community and being misunderstood as a potential catalyst for the premarital sex of unmarried adolescents. The existing practice of SRH education cannot guarantee reliable information about adolescent sexuality. The research aims to understand the intergenerational perception of SRH education conducted at high schools, which has not been comprehensively researched. This qualitative study was conducted in 2016 to explore the perspectives of adults and adolescents regarding school-based SRH education. Focus group discussions and individual interviews were used for data collection, while data analysis was conducted using a feminist perspective. CONTENT: The study identified gaps in the delivery of SRH education among Javanese Muslim, Indonesia. SRH education had not adequately addressed how adults and adolescents perceived sexuality as taboo due to moral panic about premarital sex and societal expectations placed on girls to maintain their virginity. Peer counsellors, responsible for imparting SRH information and facilitating communication with adolescents, reproduced adult moral values toward their peers, leading to a reluctance among adolescents to share their issues. Consequently, SRH education failed to reach those experiencing unwanted pregnancy or a toxic intimate relationship. SUMMARY AND OUTLOOK: The results of the study indicate the need to challenge intergenerational perceptions regarding sexuality and gender expectations to promote a positive gender perspective within SRH education in Indonesia.

5.
Transgend Health ; 9(4): 326-338, 2024 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-39385959

RESUMO

Purpose: This study aimed to explore in what ways the preoperative expectations of transgender individuals regarding gender-affirming surgery (GAS) align with experienced postoperative outcomes and, subsequently, how these expectations can best be managed to support optimal outcomes. Methods: In the parent study, interviews were conducted to understand the health care experiences of a group of trans individuals that had or wanted to have gender-affirming surgical care. In this secondary analysis, we focused specifically on the individuals' expectations and experiences about the gender-affirming procedures they desired or underwent. Recruitment occurred from August 2018 to October 2018 at the Amsterdam University Medical Center (VUmc) in the Netherlands. Axial coding and theory-informed thematic analysis were used to assess preoperative expectations and postoperative. Results: The data regarding expectations related to GAS (ncodes=273) and postoperative experienced outcomes (ncodes=292) yielded a total of four themes-(1) Procedure, recovery, and functional results; (2) Esthetic outcomes of GAS; (3) Improved body image in relation to one's gender role; and (4) Increased psychosocial and sexual wellbeing at large in relation to one's gender role. Each of the four themes were divided into two subthemes: (1) expectations, and (2) experienced outcomes. Conclusion: Better understanding, education, and support in the decision-making process of trans individuals seeking gender-affirming surgical care is needed to manage expectations and overall outcomes of GAS procedures.

6.
Int J Yoga Therap ; 34(2024)2024 Oct 01.
Artigo em Inglês | MEDLINE | ID: mdl-39385442

RESUMO

An association between expectations of treatment and treatment outcome has been reported for conventional medical and surgical treatments. However, this association has not been described for yoga therapy. The present study recruited patients (154 males and 145 females, n = 299; age 48.8 ± 14.7 years) who had been admitted to a residential wellness center, most commonly with diseases of the musculoskeletal system or connective tissue; endocrine, nutritional, or metabolic diseases; and digestive system disorders (all based on ICD-11). Assessments included: (1) expectations of yoga and associated therapies at baseline using two questionnaires (Treatment Expectation Questionnaire and Expectation for Treatment Scale); and (2) treatment outcome at baseline and after 7 days of yoga and associated therapies using the Physical Health Questionnaire and Global Perceived Effect scale. The intervention included yoga and additional therapies (e.g., hydrotherapy and ayurveda for approximately 40% of the time). Multivariable regression analyses (controlled for variation due to age, gender, education, and baseline Physical Health Questionnaire scores) demonstrated that expectations of (1) positive outcomes of all aspects of treatment significantly predicted better overall perceived effect of treatment; (2) symptom resolution (positive expectations) significantly predicted higher total Physical Health Questionnaire scores, with better digestion; and (3) low adverse outcomes significantly predicted better sleep. The findings support the premise that higher positive expectations and lower negative expectations of yoga therapy predict better treatment outcomes. These findings suggest that people should be well-informed about the reported benefits and the less-frequent negative outcomes of yoga therapy so that their expectations may be positive yet realistic, optimally influencing treatment outcomes.


Assuntos
Yoga , Humanos , Feminino , Masculino , Pessoa de Meia-Idade , Índia , Resultado do Tratamento , Inquéritos e Questionários , Adulto , Idoso
7.
Health Econ Policy Law ; : 1-19, 2024 Oct 10.
Artigo em Inglês | MEDLINE | ID: mdl-39384579

RESUMO

In many European countries, semi-autonomous agencies have been created in health policy to safeguard general public interests. In executing their tasks, these agencies need to deal with conflicting expectations. Particularly avoiding the risk of regulatory capture and aligning with parent ministries are frequently studied challenges, even more so when complex issues such as scarcity are at stake. In this paper, we use q-methodology to provide a thorough overview of the debate regarding the role of an important agency in the Dutch healthcare system; the National Health Care Institute (Zorginstituut Nederland). We conducted 41 q-interviews with agency employees, evaluators, regulatees, ministry employees, health policy experts, members of its advisory committees, and peer agencies. We identify three viewpoints on what the agency should focus on. These are on societally relevant issues, strict package management, and efficient organisation of care. In doing so, our study shows how agencies are pulled in different directions by conflicting expectations. We show that this can be problematic because it complicates a clear role of the agency that allows addressing such issues. We thereby contribute to theories on agencies' complex relations with their external environment such as regulatory capture, tripartism, reflexive regulation, legal boundaries, and stewardship theory.

8.
Popul Res Policy Rev ; 43(2)2024 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-39372905

RESUMO

Previous research has shown that employment is an important social context affecting fertility, yet relatively little is known about the extent to which work characteristics affect fertility expectations. Using over 25 years of data from the 1979 National Longitudinal Survey of Youth, we analyzed the associations between part-time work and characteristics associated with autonomy over working time, specifically self-employment and managerial/professional occupation, and childbearing expectations among women ages 18-45 (N=4,415). Logistic regression models for longitudinal data reveal that work characteristics are significantly associated with fertility expectations, but that the specific nature of the relationship varies by parity. Among women with one child, those working part-time had predicted probabilities of expecting to have additional children that were 2% higher than those working full-time. In contrast, among women without any children, those working part-time had predicted probabilities that were 2% lower than those working full-time. Similar contrasting relationships by parity were found when comparing self-employed women to employees and managers/professionals to those in other occupations. Findings were consistent across racial and ethnic groups. These results suggest that different mechanisms link work characteristics to fertility plans for mothers and non-mothers, specifically that role incompatibility and work-family conflict are more salient for mothers but that financial strain is so for non-mothers.

9.
J Hum Nutr Diet ; 2024 Oct 13.
Artigo em Inglês | MEDLINE | ID: mdl-39400964

RESUMO

BACKGROUND: Food allergies are increasingly common and so hospitals must promptly identify and manage these to maintain patient safety. The present study explored patient understanding and expectations of food allergy management in hospital food services. METHODS: This exploratory descriptive study used mixed methods, including semi-structured interviews and surveys with hospital inpatients declaring food allergies, aiming to explore understanding, expectations and preferences for food allergy management in the hospital setting. RESULTS: Twenty-four participants were interviewed, reporting between one and six food allergies across 25 different allergens. Three main themes were identified: "Shared responsibility for declaring and managing allergens in hospital", "Varied understanding and trust in hospital food service processes" and "Satisfactory hospital food service experience". In the latter, participants identified 13 key factors valued for hospital food, including appearance, food quality and flavour. Remarkably, being "free from" the food allergen was not amongst the most common factors. Generally, participants felt that declaring a food allergy had not negatively impacted their hospital admission, and overall satisfaction with food services did not differ between the food allergic study participants and the general hospital population. CONCLUSIONS: Overall, the declaration of a food allergy did not negatively impact on hospital experience. However, further investigations are required to identify the most valued factors for hospital meals, aiming to enable a more targeted approach to better meet patient expectations.

10.
Artigo em Inglês | MEDLINE | ID: mdl-39391109

RESUMO

In the context of active, advanced malignancies, the recommendation for invasive cardiac interventions is grounded primarily in evidence from trials focused on specific cardiovascular conditions. However, the inclusion of individuals with advanced malignancies in these trials has historically been limited, and the intricate interplay between cancer and cardiovascular disease poses unique challenges for treatment decisions. In this comprehensive review, we delve into the complex landscape of invasive cardiac interventions and their applicability in patients with active, advanced cancer. Our analysis encompasses a range of cardiovascular scenarios, including ST-segment elevation myocardial infarction, non-ST-segment elevation acute coronary syndromes, multivessel coronary disease, severe symptomatic aortic stenosis, and cardiomyopathy. We critically examine the available data and evidence, shedding light on the benefits and potential risks associated with invasive cardiac procedures in the presence of advanced malignancies. Acknowledging the competing risk of mortality posed by advanced cancers, we delve into the contemporary survival expectations for patients across various types of active, advanced malignancies. By synthesizing current literature and exploring cardiovascular interventions within these populations, we aim to establish a well-informed framework. Our ultimate goal is to provide clinicians with a rational guide for making nuanced clinical recommendations regarding the utilization of invasive cardiac interventions in the challenging context of active, advanced cancer.

11.
J Patient Exp ; 11: 23743735241272261, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39372660

RESUMO

Our objective was to understand how empathy and self-awareness content, alongside traditional deescalation training, might impact ambulatory clinic staff responses to patient and family escalation events. Verbal and physical workplace violence is escalating across healthcare organizations, including ambulatory clinics. Deescalation content is often developed with acute care, psychiatric, or emergency care in mind. There is a need for relevant and empathic deescalation training for ambulatory clinic staff to address their specific needs. We developed empathic and self-reflective deescalation training which was interactive and relevant to ambulatory clinic staff. Staff were trained using both in-person and virtual modalities. Participant self-reflection pre- and postintervention questionnaires indicated increases in understanding and application of deescalation methodologies. Multiple ambulatory clinics where staff participated saw a decrease in patient complaints and grievances. Participating ambulatory clinics also saw an improvement in the likelihood to recommend practice. However, participating ambulatory clinics did not see a reduction in reported patient-involved workplace violence events. Ensuring both empathy and self-awareness content in deescalation training, along with relevant ambulatory clinic scenarios, support ambulatory staff to respond effectively and appropriately to escalation events, helps reduce patient complaints, and improves patient satisfaction.

12.
Rural Remote Health ; 24(3): 8816, 2024 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-39252450

RESUMO

INTRODUCTION: Patient perception of quality of care is an essential component in evaluating healthcare delivery. This article reports data from primary health care (PHC) centers before Greece's most recent PHC reform. The study was undertaken to offer some baseline information about patient experience, support the decision-making processes taking place, and provide valuable input for future policy-making comparisons in Greece. METHODS: The research was conducted across the 16 PHC centers of Epirus, a region of north-western Greece, from June to September 2017, with 532 patients rating the importance of different aspects of three main healthcare domains (clinical behavior, support and services, and organization of care) of PHC provision. The Greek version of the European Task Force on Patient Evaluations of General Practice (EUROPEP) questionnaire was implemented for research purposes. Univariate comparisons were performed for patients with and without chronic disease, using Pearson's χ2 test for categorical data. RESULTS: Study findings support that the organization of care domain is of highest importance and priority, with clinical behavior and support and services following closely. Among recruited patients, on average, only 2.1% of patients with a chronic disease were satisfied (rated 4 or 5 on the Likert scale) with the organization of care aspects under consideration, compared to 18.4% of patients without a chronic disease. Furthermore, only 4% of patients with a chronic disease were satisfied with the aspects examined in the clinical behavior domain, compared to 27% of patients without a chronic disease. Finally, 18% of sampled patients with a chronic disease reported being satisfied with the quality of support and services provided, compared to 38% of patients without a chronic disease. CONCLUSION: It is necessary to back up available past information to afterwards estimate reform imprinting on expectations and perceptions. The items and aspects of EUROPEP, in line with the new tasks of the personal doctor within the PHC system that patients perceive as most essential, can be used to prioritize quality improvement activities to strengthen PHC delivery in Greece. Communication skills, practices, and behavioral change skills seem to need more attention for an efficient PHC model.


Assuntos
Reforma dos Serviços de Saúde , Satisfação do Paciente , Atenção Primária à Saúde , Humanos , Grécia , Atenção Primária à Saúde/organização & administração , Atenção Primária à Saúde/normas , Masculino , Feminino , Reforma dos Serviços de Saúde/organização & administração , Pessoa de Meia-Idade , Adulto , Serviços de Saúde Rural/organização & administração , Idoso , Inquéritos e Questionários , Qualidade da Assistência à Saúde/organização & administração , Percepção
13.
J Affect Disord ; 367: 647-657, 2024 Sep 05.
Artigo em Inglês | MEDLINE | ID: mdl-39243822

RESUMO

BACKGROUND: Reward sensitivity is a central maintaining factor of depression. Current treatments fail at sufficiently and reliably modifying reward processing. Therefore, we employed interventions targeting reward sensitivity and evaluated the long-term efficacy of different online interventions, additionally exploring predictors of changes in reward sensitivity. METHODS: This four-arm randomized controlled trial (RCT) tested the long-term stability of treatment effects during a four-month follow-up in 127 participants of a two-week online intervention (behavioral activation vs. mindfulness and gratitude vs. combination of both). In addition, we investigated predictors of treatment success defined as improvement in reward sensitivity. Predictors we investigated were depressive expectations, stress and the type of reward implemented in the exercises of the intervention (physical activities and social encounters). RESULTS: The improvement concerning reward sensitivity, as well as the reduction of anhedonia and depressive symptoms was stable over a four-month follow-up. We did not find evidence for differences between the active intervention groups. Positive changes in depressive expectations were a significant predictor of long-term improvements in reward sensitivity. LIMITATIONS: Only self-report measures were used and the interpretation of the long-term efficacy of the online interventions is limited since the waitlist control condition was not extended to the follow-up. CONCLUSIONS: Clinicians should focus on violating depressive expectations to facilitate updating the prediction and anticipation of future rewarding experiences. This could be a vital mechanism of change in reward sensitivity. However, future research still needs to unravel what kind of interventions are most effective in targeting reward insensitivity.

14.
Ann Fam Med ; 22(5): 421-425, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39313338

RESUMO

Patient expectations of receiving antibiotics for common symptoms can trigger unnecessary use. We conducted a survey (n = 564) between January 2020 to June 2021 in public and private primary care clinics in Texas to study the prevalence and predictors of patients' antibiotic expectations for common symptoms/illnesses. We surveyed Black patients (33%) and Hispanic/Latine patients (47%), and over 93% expected to receive an antibiotic for at least 1 of the 5 pre-defined symptoms/illnesses. Public clinic patients were nearly twice as likely to expect antibiotics for sore throat, diarrhea, and cold/flu than private clinic patients. Lack of knowledge of potential risks of antibiotic use was associated with increased antibiotic expectations for diarrhea (odds ratio [OR] = 1.6; 95% CI, 1.1-2.4) and cold/flu symptoms (OR = 2.9; 95% CI, 2.0-4.4). Lower education and inadequate health literacy were predictors of antibiotic expectations for diarrhea. Future antibiotic stewardship interventions should tailor patient education materials to include information on antibiotic risks and guidance on appropriate antibiotic indications.


Assuntos
Antibacterianos , Conhecimentos, Atitudes e Prática em Saúde , Atenção Primária à Saúde , Humanos , Feminino , Masculino , Antibacterianos/uso terapêutico , Antibacterianos/efeitos adversos , Adulto , Pessoa de Meia-Idade , Texas , Diarreia/tratamento farmacológico , Inquéritos e Questionários , Letramento em Saúde , Idoso , Adulto Jovem , Gestão de Antimicrobianos , Faringite/tratamento farmacológico , Resfriado Comum/tratamento farmacológico
15.
Front Psychol ; 15: 1330455, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39309151

RESUMO

Introduction: Supporting students during the transition to medical school is crucial for their academic adjustment. However, there has been limited research on the protective role of community and family support during this transition, despite evidence of the benefits of supportive relationships in higher education. Guided by self-determination theory, the current cross-sectional study explored how changes in family and community relationships impact Cuban medical students' sense of belonging in their field and their grade expectations. Methods: A total of 881 medical students (M Age = 21.51, SD= 2.23, range = 18-33; 54% female; 72.2% Cuban) participated in this study. Participants included students across 6 years of medical school (1st year = 14.8%, 2nd year = 10%, 3rd year = 24.1%, 4th year = 19.3%, 5th year = 11.8%, 6th year = 20%). Results: Controlling for key demographics (e.g., student aid experience, family legacy, nationality, year in medical school, prior academic performance, gender, and offspring), our findings revealed that improvements in community relationships-rather than family relationships-were associated with higher levels of field belonging. Additionally, more extensive experience as a student aid and a greater number of family members with a medical background were linked to higher levels of field belonging and higher grade expectations. Notably, higher prior academic performance was associated with increased field belonging but did not affect grade expectations. Conversely, identifying as female was related to both higher field belonging and higher grade expectations. Discussion: Our study highlights the importance of supportive community relationships for medical students' academic adjustment. We discuss the potential benefits of enhancing community relationships within medical school training programs.

16.
Phys Ther ; 2024 Sep 06.
Artigo em Inglês | MEDLINE | ID: mdl-39239840

RESUMO

OBJECTIVE: This descriptive qualitative study aimed to gain insights into the expectations of individuals with chronic shoulder pain and to investigate how different levels of disability may influence their beliefs and expectations regarding improvement. METHODS: This qualitative study utilized the Common Sense Model (CSM) as its theoretical framework. Conducted within a public physical therapist clinic, individuals with chronic shoulder pain who were awaiting the initiation of the treatment were included. Participants, female and male [aged 30 to 69 years], were purposefully sampled. Thirty participants, categorized into 2 groups based on the Shoulder Pain and Disability Index (SPADI) scores, underwent semi-structured interviews. Group 1, lower SPADI scores (0 to 60), had 10 participants, and Group 2, higher SPADI scores (61 to 100), had 20 participants. Thematic analysis and inductive coding were employed to analyze the interviews. RESULTS: Common themes emerged in both groups: the use of medical terms for understanding the diagnosis and the multidimensional impact of pain. The last 2 themes differed between groups. Notable differences included Group 1's focus on resources for pain relief and positive expectations with physical therapy, while Group 2 emphasized rest, religion as a resource for pain relief, and God's role in improvement. CONCLUSION: These findings highlight the complexity of beliefs and expectations among patients with chronic shoulder pain. Individuals with greater disability often incorporated religious beliefs into their coping strategies, but they held lower recovery expectations and reported negative treatment experiences. These insights have implications for tailoring patient-centered care approaches. IMPACT: This study underscores the need for health care providers to consider the multidimensionality of recovery expectations, which can significantly influence patient outcomes. Clinicians can reflect on this knowledge to optimize treatment strategies and improve patient prognosis.

17.
Aging Ment Health ; : 1-8, 2024 Sep 06.
Artigo em Inglês | MEDLINE | ID: mdl-39241125

RESUMO

OBJECTIVES: This study investigated the relationship between older adults' expectations regarding aging and subjective cognition. Specifically, we examined whether the three domains of aging expectations (physical health, mental health, and cognitive function) were associated with two aspects of subjective cognition: current subjective cognition and subjective cognitive decline (SCD). METHOD: An online survey was conducted among U.S. adults aged 65-90 (N = 581; Mage=71.4, SD ± 4.81; 51% female). Measures included the 12-item Expectations Regarding Aging scale, the 8-item PROMIS Cognitive Abilities scale (current subjective cognition), and the 12-item Everyday Cognition scale (SCD). We used generalized linear models to examine associations between overall aging expectations and its three domains with current subjective cognition ratings and SCD. RESULTS: We found that more positive expectations regarding physical health, mental health, and cognitive function in aging were associated with higher ratings of current subjective cognition as well as lower SCD. The magnitude of effects across aging expectations domains were similar for both aspects of subjective cognition. CONCLUSION: Aging expectations are malleable and influence an individual's perceptions of their cognitive functioning. Modifying older adults' aging expectations could support healthier cognitive aging through increased awareness and accurate assumptions about the aging process.

18.
J Genet Couns ; 2024 Sep 13.
Artigo em Inglês | MEDLINE | ID: mdl-39268624

RESUMO

One of the roles of a genetic counselor, when returning genetic test results for Parkinson's disease (PD), is to provide emotional support to the patient. However, whether or not these needs are being met in the genetic counseling setting is unknown. In this cross-sectional qualitative study, semi-structured interviews with 15 PD research participants were conducted to evaluate their emotional needs and expectations throughout the genetic counseling process. Interview questions assessed participants' background understanding of genetic counseling, informational and emotional expectations prior to the genetic counseling session, and experience with emotional support throughout the genetic counseling process. Through reflexive thematic analysis, we defined four major themes: (1) knowledge of genetic counselors' role in education but not in emotional support, (2) limited expectations for emotional support, (3) emotional support is not sought from genetic counselors, and (4) emotional support from genetic counselors was viewed ambivalently. One of the most important findings from this study was that regardless of whether participants had previously heard of genetic counseling, none of the participants knew that the provision of emotional support was an aspect of the genetic counselor's role. Although the majority of participants did not expect emotional support from their genetic counselor, over 60% of participants recognized that receiving emotional support is or could be important to them. Collectively, these findings highlight the necessity for enhanced patient education pertaining to the informational and emotional support that genetic counselors are trained to provide. We suggest that clarifying the role of emotional support with patients may increase comfort in disclosing their emotional needs with genetic counselors, improving patient-centered care overall.

19.
Subst Use Addctn J ; : 29767342241271991, 2024 Sep 23.
Artigo em Inglês | MEDLINE | ID: mdl-39308161

RESUMO

BACKGROUND: Heroin-assisted treatment (HAT) is an evidence-based treatment option for opioid use disorder (OUD), available in a limited number of countries. Norway implemented a 5-year HAT project in 2022, aiming to assess its effectiveness and its potential integration into the country's OUD treatment system. This study describes and compares patients' baseline characteristics from the Oslo and Bergen HAT clinics, providing a comprehensive picture of the unique population and the real-world application of HAT. METHODS: This cross-sectional study examines the baseline characteristics of consenting HAT patients within the first 2 years of operation (n = 86). Self-reported questionnaires gathered sociodemographics, previous treatment experiences, self-reported crime, and substance use, as well as motivations and expectations for treatment. Comparisons between the clinics were carried out using t-tests, Mann-Whitney U tests, Chi-square, and Fisher's exact test. RESULTS: The majority of the patients were enrolled at the Oslo clinic (76%) and were male (80%). At admission, the average age was 45.9, with a significantly younger group in Bergen (42.5 vs 47.3, P < .05). While no patients reported being unhoused, 17% noted unstable housing within the preceding month. Unemployment was prevalent (91%) alongside previous treatment experiences (95%), with a median of 2 prior medication types. In the 3 months preceding HAT initiation, 78% of patients reported being victims of crime, and 44% committed at least one crime. Over their lifetime, 2 in 5 participants (41%) had experienced an unwanted overdose and 43% had shared syringes and equipment. CONCLUSION: This study reveals a cohort experiencing societal marginalization, including unstable housing, unsatisfactory prior OUD treatment, high-risk behaviors, and frequent interactions with criminal activities, predominantly as victims. While the Oslo and Bergen clinics serve a similar patient profile, notable differences emerged in the reasons for discontinuing past OUD treatment and crime-related factors.

20.
J Occup Rehabil ; 2024 Sep 03.
Artigo em Inglês | MEDLINE | ID: mdl-39223399

RESUMO

PURPOSE: Although there is increasing awareness that significant others' perceptions and behavior can affect health outcomes, the role of interpersonal processes between sick-listed workers and significant others in sick leave and return to work (RTW) has hardly been studied. This study aims to examine the associations between illness perceptions, RTW expectations, and behaviors of significant others (engagement, buffering and overprotection) with sick leave duration within dyads of sick-listed workers with chronic diseases and their significant others. METHODS: We used survey data linked with sick leave registry data of 90 dyads. Pearson correlations were used to study the interdependence within dyads. Multiple linear regression analyses were conducted to examine associations between survey data of both dyad members and sick leave duration. RESULTS: We found moderate to strong correlations between workers and significant others, indicating interdependence within dyads regarding illness perceptions, RTW expectations and perceived significant other behaviors. Dyad members' illness perceptions (R2 = .204, p = .001) and RTW expectations (R2 = .326, p = < .001) were associated with sick leave duration, explaining respectively 12.3% and 24.5% of the variance. We found no associations between sick leave duration and active engagement, protective buffering and overprotection. CONCLUSIONS: This study indicates that negative illness perceptions and RTW expectations of both workers and their significant others are associated with a longer sick leave duration. Considering the interdependence within dyads, involving significant others when intervening on maladaptive illness perceptions and RTW expectations may be more effective than solely focusing on the worker's perceptions and expectations.

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