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1.
Hu Li Za Zhi ; 71(5): 70-78, 2024 Oct.
Artigo em Chinês | MEDLINE | ID: mdl-39350711

RESUMO

BACKGROUND & PROBLEMS: Joint replacement wound stitches are typically not removed until two weeks after the operation. Therefore, patients with joint replacement must be able to execute proper wound care after discharge from the hospital to reduce the risk of wound infection. Prior data from Chang Gung Memorial Hospital's orthopedics ward indicate only 69% of joint-replacement patients are able to perform wound care properly at home. Potential causes for this noted by patients include age-related forgetfulness, being unable to discern redness or swelling in the wound, and language comprehension difficulties (i.e., Taiwanese vs. Mandarin). Poor rates of wound care may also be attributable to incomplete wound care education by nursing staff and wound care education being provided without adequate practice on the day of patient discharge. PURPOSE: This project was implemented to improve the accuracy of wound self-care performed by patients after joint replacement surgery and to enhance their related knowledge and wound-care technical correctness. RESOLUTION: A wound care education checklist, wound care cue cards, wound care video clips, wound condition red flag cue cards, and customized wound care pack were proposed and implemented. RESULTS: The rate of accuracy of wound self-care performance increased from 69% pretest to 98% posttest, showing the intervention to have effectively improved post-discharge wound care quality. CONCLUSIONS: To effectively improve the post-discharge accuracy of wound self-care in patients with joint replacement, the consistency of post-surgery wound care education given by nursing staff to patients should be improved, patients should be reminded of wound assessment and care steps, and patients should be aware that wound abnormalities require an immediate return to the hospital for follow-up treatment.


Assuntos
Artroplastia de Substituição , Autocuidado , Humanos
2.
Sci Rep ; 14(1): 23198, 2024 10 05.
Artigo em Inglês | MEDLINE | ID: mdl-39369010

RESUMO

Diabetes self-care activities are essential for achieving optimal glycemic control. However, little investigation has been conducted in Ethiopia to evaluate the relationship between the rate glycemic controland self-care activities among patients with type 2 diabetes mellitus (T2DM). Therefore, this study was conducted to assess self -care activities and their association with glycemic control among patients with T2DM in Northwest Ethiopia general hospitals. This multicenter cross-sectional study was conducted in Northwest Ethiopia general hospitals diabetic clinics. Diabetes self-care activities were measured using the Amharic version of the Summary of Diabetes Self-Care Activities (SDSCA-Amharic). Glycated hemoglobin (HbA1c) were used to assess the rate of glycemic control. A linear regression model was used to identify predictors of self-care activities and glycemic control. P-value of < 0.05 at 95% confidence interval (CI)  was considerd as statistically significant. Of 413 participants included in the final analysis, two-thirds (66.3%) had poor glycemic control, with a mean HbA1c of 7.94% (SD = 1.75). Blood glucose testing was the most important self-care activity domain for predicting better glycemic control [ß=-0.36, 95% CI (-0.48, -0.24); P = 0.0001] followed by diet [ß=-0.29, 95% CI (-0.39, -0.083); P = 0.0001], foot-care [ß=-0.28, 95% CI (-0.3, -0.061); P = 0.003], and physical activity [ß=-0.27, 95% CI (-0.29, -0.056); P = 0.004], respectively. Moreover, unable to read and write [ß = 0.72, 95% CI (0.57, 3.8); P = 0.037], overweight [ß = 0.32, 95% CI (0.011, 0.62); P = 0.042], obesity [ß = 0.67, 95% CI (0.39, 0.94); P = 0.0001], and low level of medication adherence [ß = 0.7, 95% CI (0.39, 1.1); P = 0.0001] were significant predictors of poor glycemic control.       Previous diabetes education [ß=-0.88, 95% CI (-1.2, -0.57); P=0.0001] was a significant predictor of good glycemic control. The prevalence of poor glycemic control and poor self-care activities were high among patients with T2DM. Self-care activities were independent predictors of glycemic control among patients with T2DM. Therefore, management interventions for patients with T2DM should focus on improving self-care activities and other predictor variables.


Assuntos
Glicemia , Diabetes Mellitus Tipo 2 , Hemoglobinas Glicadas , Controle Glicêmico , Autocuidado , Humanos , Diabetes Mellitus Tipo 2/sangue , Diabetes Mellitus Tipo 2/terapia , Diabetes Mellitus Tipo 2/epidemiologia , Etiópia/epidemiologia , Masculino , Feminino , Estudos Transversais , Pessoa de Meia-Idade , Hemoglobinas Glicadas/análise , Hemoglobinas Glicadas/metabolismo , Glicemia/metabolismo , Glicemia/análise , Adulto , Hospitais Gerais , Idoso , Automonitorização da Glicemia
3.
Health Lit Res Pract ; 8(4): e194-e203, 2024 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-39378075

RESUMO

BACKGROUND: Therapy adherence is a key factor in the control of type 2 diabetes mellitus (T2DM). Optimal self-care requires skills in health literacy (HL). OBJECTIVE: This study aims to analyze the relationship between HL and adherence to therapy and to understand the possible influence of other sociodemographic and disease variables. METHODS: A multicenter, cross-sectional study was conducted in Portuguese in 13 different primary health care units in both rural and urban environments. A sociodemographic questionnaire and two validated instruments, "Medical Term Recognition Test" and "Summary of Diabetes Self-Care Activities," were applied. The last value of hemoglobin A1c (HbA1c) and the number of chronic medications were collected from clinical records. Descriptive statistics and bivariate correlations were performed as well as multivariable linear regression to assess the association between HL and adherence to therapy. KEY RESULTS: Participants (n = 354) were on average age 63.67 ± 10.39 years, 57.1% male and 42.9% female, 68.4% with inadequate HL and an average HbA1c of 7 ± 1.18%. Better HL was correlated with higher adherence to the total of self-care activities, nonpharmacological therapy, and foot care. In multivariable linear regression analyses, better HL (ß = 0.176, p = .003), less than minimum wage (ß = -0.197, p = .001) and insulin therapy (ß = 0.272, p = .001) were independently associated with increased adherence to overall self-care activities. CONCLUSION: In a representative sample of people with T2DM in Portugal, HL was a key factor for greater adherence to demanding self-care activities. [HLRP: Health Literacy Research and Practice. 2024;8(4):e194-e203.].


Plain Language Summary In this multicentric, cross-sectional study in Portuguese primary care, we found that better health literacy was correlated with higher adherence to the self-care activities related to type 2 diabetes, and specifically with nonpharmacological therapy and foot care. Health literacy was a key factor for greater adherence to demanding diabetes self-care activities.


Assuntos
Diabetes Mellitus Tipo 2 , Letramento em Saúde , Autocuidado , Humanos , Diabetes Mellitus Tipo 2/terapia , Diabetes Mellitus Tipo 2/tratamento farmacológico , Feminino , Estudos Transversais , Masculino , Portugal , Letramento em Saúde/estatística & dados numéricos , Letramento em Saúde/normas , Pessoa de Meia-Idade , Idoso , Inquéritos e Questionários , Autocuidado/métodos , Autocuidado/estatística & dados numéricos , Autocuidado/psicologia , Hemoglobinas Glicadas/análise , Adesão à Medicação/estatística & dados numéricos , Adesão à Medicação/psicologia
4.
JMIR Form Res ; 8: e57219, 2024 Oct 28.
Artigo em Inglês | MEDLINE | ID: mdl-39466305

RESUMO

BACKGROUND: Involving older adults in co-design processes is essential in developing digital technologies and health care solutions to enhance self-care management at home, especially for older adults with chronic illness and their companions. Remote co-design approaches could provide technologically sustainable solutions that address their personal needs. OBJECTIVE: This study aimed to cocreate and test the usability of a video feedback tool to facilitate self-care management at home. METHODS: This experience-based co-design approach involved collaboration between 4 pairs of older adults, 4 researchers, and 2 service designers in three steps: (1) six iterative workshops (5 remote and 1 in person) to cocreate self-care exercises within an existing video feedback tool by identifying factors influencing self-care management; (2) developing and refining the self-care exercises based on suggestions from the older adults; and (3) usability testing of the cocreated exercises with the 4 pairs of older adults in their homes. Among the older adults (68-78 years), 3 adults had heart failure and 1 adult had hypertension. Data were analyzed inductively through thematic analysis and deductively using the USABILITY (Use of Technology to Engage in Adaptation by Older Adults and/or Those With Low or Limited Literacy) framework. RESULTS: The identified influencing factors guiding the contents and format development of 2 new self-care exercises were that pairs of older adults support and learn from each other in performing self-care, which increases their motivation and engagement in practicing self-care at home. The usability test of the 2 new self-care exercises, "Breathing exercises" and "Picking up from the floor," revealed that the pairs found the exercises and the video feedback component valuable for learning and understanding, for example, by comparison of performances highlighting movement variability. However, they found it difficult to manage the video feedback tool on their own, and a support structure or tailored education or training was requested. CONCLUSIONS: This study emphasizes that the video feedback tool holds the potential to facilitate learning and understanding in self-care management, which may support motivation. The studied video feedback tool can be beneficial for pairs of older adults managing self-care at home as a complement to traditional health care services, but an accurate supporting structure is required. The effectiveness of the video feedback tool and its integration into existing health care services still need to be assessed and improved through careful design and structured support.


Assuntos
Autocuidado , Humanos , Idoso , Autocuidado/métodos , Feminino , Masculino , Retroalimentação , Gravação em Vídeo
5.
Br J Community Nurs ; 29(10): 474-479, 2024 Oct 02.
Artigo em Inglês | MEDLINE | ID: mdl-39446680

RESUMO

The UK has a growing ageing population with increased prevalence of long-term conditions. It has the potential to overwhelm the country's healthcare system. The COVID-19 pandemic and its risk of transmission provided an opportunity for people with long-term conditions to focus on self-care and for district nurses to promote self-management. Self-management strategies, such as digital technology, motivational interviewing, social prescribing and shared decision-making can assist them in planning a whole-population approach towards managing physical and mental wellbeing. For this to become a reality, investment is needed to educate the patients, their carers, district nurses, multidisciplinary teams and to ensure the sustainability of self-care methods for future practice.


Assuntos
COVID-19 , Enfermagem em Saúde Comunitária , Participação do Paciente , Autogestão , Humanos , Reino Unido , Doença Crônica , SARS-CoV-2 , Autocuidado , Pandemias
6.
PeerJ ; 12: e18303, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39430555

RESUMO

Introduction: Diabetes self-care among diabetic patients is crucial as it determines how patients care for their illness in their daily routine for better diabetes control. This study aims to calculate the average score for diabetes self-care among patients with type 2 diabetes mellitus and chronic kidney disease and to identify factors that are associated with this score. Materials and Methods: This cross-sectional study enrols patients over 18 years old with type 2 diabetes mellitus and chronic renal disease with an eGFR of less than 60 mL/min/1.73 m2 in a tertiary hospital in Malaysia. The Malay version of the Summary of Diabetic Self-Care Activities (SDSCA) was used to assess diabetes self-care, the Malay version of the diabetes-related distress questionnaire (DDS-17) was used to assess diabetes distress, and the Malay version of the Patient Health Questionnaire-9 (PHQ-9) was used to assess depression. Data analysis was performed using both simple and multiple linear regression models to determine the associations between variables. Result: One hundred and seventy-six eligible patients were recruited for this study. The mean score for diabetes self-care is 3.62. The eGFR (p = 0.002) and diabetes distress (p = 0.004) are the significant associated factors for diabetes self-care among type 2 diabetes mellitus patients with chronic kidney disease. Conclusion: The mean score for diabetes self-care indicated a moderate level of self-care. The eGFR level and diabetes distress were important factors influencing diabetes self-care practices.


Assuntos
Diabetes Mellitus Tipo 2 , Insuficiência Renal Crônica , Autocuidado , Humanos , Diabetes Mellitus Tipo 2/epidemiologia , Diabetes Mellitus Tipo 2/psicologia , Diabetes Mellitus Tipo 2/terapia , Malásia/epidemiologia , Masculino , Feminino , Estudos Transversais , Insuficiência Renal Crônica/psicologia , Insuficiência Renal Crônica/terapia , Insuficiência Renal Crônica/epidemiologia , Pessoa de Meia-Idade , Idoso , Inquéritos e Questionários , Taxa de Filtração Glomerular , Adulto , Depressão/epidemiologia
7.
BMC Cardiovasc Disord ; 24(1): 591, 2024 Oct 26.
Artigo em Inglês | MEDLINE | ID: mdl-39462344

RESUMO

BACKGROUND: The role of nurses in educating patients with heart failure is crucial. To ensure effective nursing education, it is vital to integrate new strategies, especially for chronic diseases. The teach-back method (TBM) provides a fresh approach to engaging with patients, effectively overcoming communication barriers, and enhancing long-term educational outcomes. OBJECTIVE: The objective of this study was to analyze how the implementation of the teach-back method influences the self-care and quality of life of patients living with heart failure. METHODS: The systematic review followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyzes (PRISMA) checklist. To ensure thoroughness, an extensive search was carried out across multiple online databases, including PubMed, Web of Science, EMBASE, Scopus, Cochrane Library, CINAHL, and ProQuest. The search spanned from 2000 to August 2023 and employed Medical Subject Headings (MESH) as the basis for keyword selection. No limitations were placed on the language of the studies included in this review. We ensured the inclusion of all relevant articles by searching the gray literature and checking reference lists. Studies which conducted on adults aged ≥ 18 years and diagnosed with heart failure who were not critically ill, receiving dialysis, and waiting for cardiac device implantation was included. We considered all interventional studies. Two reviewers had independently conducted the risk of bias assessment using Cochrane tools. Finally, a narrative synthesis was implemented. RESULTS: The preliminary search conducted in the databases mentioned above yielded a total of 1702 results. After meticulously going through the steps of study selection, a total of 9 studies involving 768 participants were ultimately chosen to be part of this study. Self-care was the subject of investigation in six studies, whereas quality of life was examined in three studies. The majority of studies indicate that the intervention under consideration had a significant impact on self-care. In relation to quality of life, one study failed to achieve statistically significant outcomes, potentially owing to its small sample size. CONCLUSION: Our systematic review demonstrated that the teach-back method, as an innovative educational technique, holds potential for heart failure patients` education and counseling. PRACTICAL VALUE: The teach-back approach confirms patient understanding. Patient understanding is confirmed through rephrasing the information in their own words. PROTOCOL REGISTRATION: The study protocol was registered in the International Prospective Register of Systematic Reviews (PROSPERO) at the National Institute for Health Research (No: CRD42023446142).


Assuntos
Conhecimentos, Atitudes e Prática em Saúde , Insuficiência Cardíaca , Educação de Pacientes como Assunto , Qualidade de Vida , Autocuidado , Humanos , Insuficiência Cardíaca/terapia , Insuficiência Cardíaca/diagnóstico , Insuficiência Cardíaca/fisiopatologia , Insuficiência Cardíaca/psicologia , Feminino , Masculino , Idoso , Comunicação para Apreensão de Informação , Pessoa de Meia-Idade , Resultado do Tratamento
8.
Front Endocrinol (Lausanne) ; 15: 1481410, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39464188

RESUMO

Background: Mobile health technologies are increasingly acknowledged as a cost-effective and convenient means of delivering top-notch healthcare services to patients in low- and middle-income countries. This research explores the utilization of mobile health applications in managing, monitoring, and self-care for adult diabetes mellitus (DM) patients. The objective is to gain insight into how diabetic patients currently utilize Mobile health applications for self-management and their inclination to use them in the future. Methods: The authors conducted a systematic review and meta-analysis using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. They included articles that reported on the use of mobile/smartphone applications for diabetic mellitus disorders, focusing on ownership, application use, future interest in use, and use patterns. The search was conducted in the PubMed, Web of Science, Embase, and SCOPUS electronic databases, with various published articles from January 2016 up to February 2024. The methodological quality was evaluated using the Joanna Briggs Institute critical appraisal tool. Statistical techniques were applied, including the heterogeneity test, publication bias assessment, Egger's test, and funnel plots. The pooled prevalence was calculated using meta-analysis proportion with a random-effects model. Results: Thirteen studies were included, out of 4568 recognized articles. The pooled prevalence of mobile health application use for current diabetic management self-management, future interest in using the application for diabetic disorder self-management, and lack of belief in mobile health application users for self-management was 35%, 57%, and 39%, respectively. We observed significant heterogeneity (I2 = 97.7, p=<0.001), but no significant publication bias was detected on Egger's test. Conclusions: Our meta-analysis results show that over one-third of individuals use mobile health applications for diabetic self-management, and more than half of individuals would like to manage their diabetes mellitus in the future by using mobile health applications. These mobile health apps may be promising in future diabetes mellitus self-management. However, we still need to study the effectiveness of these apps. In addition, adopting mobile health apps based on the cultural context makes this self-management more achievable, practical, and impactful for individuals with diabetes. Systematic review registration: https://www.crd.york.ac.uk/prospero/, identifier 42024537917.


Assuntos
Diabetes Mellitus , Aplicativos Móveis , Telemedicina , Humanos , Diabetes Mellitus/terapia , Autocuidado/métodos
9.
PeerJ ; 12: e18319, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39465167

RESUMO

Background: Intermittent self-catheterization (ISC) is widely considered the gold standard for treating patients with neurogenic bladder (NB). Healthcare professionals and catheter users must optimize ISC care to improve patients' quality of life. To achieve this, the Intermittent Self-Catheterization Questionnaire (ISC-Q) is a valuable tool with clear and easy-to-understand items. However, this scale has yet to be adapted for use in China, and its reliability and validity need to be tested through cross-cultural adaptation. Objectives: The objective of this study was to culturally adapt the ISC-Q and develop the Chinese version of the ISC-Q (C-ISC-Q), and assess its reliability and validity among patients with NB. Methods: With the authorization of the ISC-Q author, the Beaton mode was used to adapt the scale cross-culturally. The study was conducted from June 2020 to June 2021 in three phases: committee-based translation from English to Chinese, Delphi expert consultations (n = 5) for cultural adaptation, and a cross-sectional study (n = 149) for validation. Results: The C-ISC-Q has 24 items and four dimensions. The critical ratio of each item is over 3.0, and the correlation coefficient between each item and the scale's total score is above 0.4. The Cronbach's α value for the scale is 0.930, and for each dimension, it is between 0.870-0.92. The retest reliability for the scale is 0.894, and for each dimension is between 0.751-0.889. The content validity at the item level ranges from 0.8~1.0, and at the scale level is 0.9. The criterion-related validity of the scale was -0.708, and the correlation for each dimension was 0.329-0.624. The principal component analysis identified four common factors, with a cumulative contribution rate of 67.846%. Conclusions: The C-ISC-Q is culturally sensitive, reliable, and valid to measure the quality of life for patients with NB. It can assist nurses and researchers in tailoring strategies to enhance the quality of life for patients with NB.


Assuntos
Psicometria , Qualidade de Vida , Bexiga Urinaria Neurogênica , Humanos , Bexiga Urinaria Neurogênica/terapia , Qualidade de Vida/psicologia , Psicometria/métodos , Feminino , Masculino , China , Adulto , Reprodutibilidade dos Testes , Inquéritos e Questionários , Pessoa de Meia-Idade , Estudos Transversais , Comparação Transcultural , Cateterismo Uretral Intermitente , Traduções , Idoso , Autocuidado
10.
Curr Diab Rep ; 24(12): 257-272, 2024 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-39352613

RESUMO

PURPOSE OF REVIEW: Type 2 diabetes (T2D) management is complex and requires daily personal involvement and self-management skills to maintain optimal glycemic levels and improve health outcomes. Engagement in self-management behaviors in the early years of diagnosis can be challenging due to prevailing psychosocial factors present during this critical transition period, coupled with a lack of information, support, and skills. Technology-based diabetes self-management interventions can improve access to needed education and support, and their effectiveness in the general T2D population is well documented. This scoping review synthesized evidence on the use of technology for promoting diabetes self-management behaviors and related outcomes among individuals newly diagnosed with T2D (within the first 12 months since diagnosis). RECENT FINDINGS: Twenty-five studies were included. Technology-based diabetes self-management interventions tailored to those newly diagnosed with T2D have grown exponentially in the past five years. Existing evidence, though limited, showed that technologies such as websites, mobile apps, and continuous glucose monitoring combined with other communication features, can facilitate patient education, patient-provider communication, and health data monitoring. However, these technologies less commonly involved social support functions. These technologies have the potential to improve diabetes knowledge and positively impact clinical, behavioral, and psychological outcomes. However, small sample sizes, use of non-experimental designs, and the absence of formative research and theoretical foundations limit the strength of existing studies. Technology-based self-management interventions for those newly diagnosed with T2D show promise in improving T2D-related outcomes. Future studies should include larger sample sizes, adopt rigorous study designs, and integrate formative work to enhance relevance, adoption, and impact.


Assuntos
Diabetes Mellitus Tipo 2 , Autogestão , Humanos , Diabetes Mellitus Tipo 2/terapia , Diabetes Mellitus Tipo 2/psicologia , Autogestão/métodos , Educação de Pacientes como Assunto , Autocuidado , Comportamentos Relacionados com a Saúde , Aplicativos Móveis
11.
S Afr Fam Pract (2004) ; 66(1): e1-e8, 2024 Sep 25.
Artigo em Inglês | MEDLINE | ID: mdl-39354788

RESUMO

BACKGROUND:  Professional nurses typically promote and advocate self-care practices to their patients to achieve better health outcomes, but rarely engage in these practices themselves. METHODS:  A qualitative, descriptive phenomenological approach was used in this study. Ten professional nurses employed in different primary health care facilities were purposively sampled. Semi-structured interviews were conducted to collect data, which were analysed using Colaizzi's data analysis strategy, and data saturation was reached. RESULTS:  Two themes were identified. Theme 1: the participants expressed that internal and external factors compromised self-care practices, such as subconscious self-neglect, insufficient resources, and a depressed economy, which encouraged them to work extended hours. Theme 2: participants' holistic well-being was compromised, as they neglected their mental well-being. CONCLUSION:  Self-care practices among professional nurses seem unachievable. The extent of this population's self-care neglect was evident during the coronavirus disease 2019 (COVID-19) pandemic when professional nurses globally gave of themselves relentlessly.Contribution: This is the first study conducted on the topic in the City of Ekurhuleni, and the findings will provide relevant stakeholders with a directive on what strategies, policies, and guidelines to develop and implement to make self-care practices attainable for professional nurses.


Assuntos
COVID-19 , Atenção Primária à Saúde , Pesquisa Qualitativa , Autocuidado , Humanos , Adulto , Feminino , COVID-19/epidemiologia , Masculino , SARS-CoV-2 , Enfermeiras e Enfermeiros/psicologia , Pessoa de Meia-Idade , Entrevistas como Assunto
12.
Soins ; 69(889): 18-21, 2024 Oct.
Artigo em Francês | MEDLINE | ID: mdl-39368814

RESUMO

Understanding the lived experience of the disease enables caregivers to offer people living with diabetes personalized support tailored to their needs. The discipline of nursing also enables them to draw on reference authors to guide their thinking and professional practice. Through the concepts of transition, integration of self-care, diabetes distress and empowerment, we explore certain aspects of living with diabetes.


Assuntos
Diabetes Mellitus , Autocuidado , Humanos , Autocuidado/psicologia , Diabetes Mellitus/psicologia , Diabetes Mellitus/terapia
13.
J Parkinsons Dis ; 14(7): 1387-1404, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39392604

RESUMO

Background: Digital self-management tools including mobile apps and wearables can enhance personalized care in Parkinson's disease, and incorporating patient and clinician feedback into their evaluation can empower users and nurture patient-clinician relationships, necessitating a review to assess the state of the art and refine their use. Objective: This review aimed to summarize the state of the art of self-management systems used in Parkinson's disease management, detailing the application of self-management techniques and the integration of clinicians. It also aimed to provide a concise synthesis on the acceptance and usability of these systems from the clinicians' standpoint, reflecting both patient engagement and clinician experience. Methods: The review was organized following the PRISMA extension for Scoping Reviews and PICOS frameworks. Studies were retrieved from PubMed, CINAHL, Scopus, ACM Digital Library, and IEEE Xplore. Data was collected using a predefined form and then analyzed descriptively. Results: Of the 15,231 studies retrieved, 33 were included. Five technology types were identified, with systems combining technologies being the most evaluated. Common self-management strategies included educational material and symptom journals. Only 11 studies gathered data from clinicians or reported evidence of clinician integration; out of those, six studies point out the importance of raw data availability, data visualization, and integrated data summaries. Conclusions: While self-management systems for Parkinson's disease are well-received by patients, the studies underscore the urgency for more research into their usability for clinicians and integration into daily medical workflows to enhance overall care quality.


Digital tools, such as smartphone applications and wearable devices, could help people with Parkinson's disease manage their symptoms by using data and technology to provide support that is personalized to them and by supporting communication between patients and healthcare providers. This review studies current literature on these digital self-management systems for people with Parkinson's disease. Of the 33 studies included in our review, we found that many of these systems combine different types of digital technologies (for example, a mobile app and a wearable sensor). The most common strategies to help support patients with self-management included in these digital tools were providing educational health content and symptom diaries. Only a few studies have considered healthcare providers' perspectives on these systems. Those that did highlighted a need for better access to patient data, improved data presentation, and summaries of key health insights. While patients find digital self-management tools favorable, further research is needed to ensure they meet healthcare providers' professional needs and can fit easily into daily clinical routines, ultimately improving care for individuals with Parkinson's disease.


Assuntos
Aplicativos Móveis , Doença de Parkinson , Autogestão , Humanos , Doença de Parkinson/terapia , Telemedicina , Dispositivos Eletrônicos Vestíveis , Autocuidado/métodos
14.
J Law Med Ethics ; 52(2): 271-283, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39435938

RESUMO

Teaching students to build resilience is necessary to keep imagining and fighting for a path towards social justice. To do so, clinicians can draw from the communities facing oppression and examine how they remain resilient despite oppression.


Assuntos
Racismo , Resiliência Psicológica , Humanos , Autocuidado , Esperança , Justiça Social , Imaginação
15.
Front Public Health ; 12: 1399702, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39371214

RESUMO

Artificial intelligence (AI) offers a wealth of opportunities for medicine, if we also bear in mind the risks associated with this technology. In recent years the potential future integration of AI with medicine has been the subject of much debate, although practical clinical experience of relevant cases is still largely absent. This case study examines a particular patient's experience with different forms of care. Initially, the patient communicated with the conversation (chat) based AI (CAI) for self-treatment. However, over time she found herself increasingly drawn to a low-threshold internal company support system that is grounded in an existing, more traditional human-based care structure. This pattern of treatment May represent a useful addition to existing care structures, particularly for patients receptive to technology.


Assuntos
Transtornos de Ansiedade , Inteligência Artificial , Humanos , Feminino , Comunicação , Adulto , Autocuidado
16.
Front Public Health ; 12: 1431778, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39391161

RESUMO

Introduction: The growing population of heart failure (HF) patients places a burden on the healthcare system. Patient-centered outcomes such as health-related quality of life (HRQoL) and self-care behaviors are key elements of modern HF management programs. Thus, optimized strategies to improve these outcomes are sought. Purpose: To assess the effects of a new model of medical telecare on HRQoL and self-care in patients with HF (the AMULET study). Methods: The study was prospective, randomized, open-label, and controlled with two parallel groups: telecare and standard care. In the telecare group, HF nurses performed patient clinical assessments with telemedical support by a cardiologist and provided education focused on the prevention of HF exacerbation. In the standard care group, patients were followed according to standard practices in the existing healthcare system. At the baseline and at 12 months, HRQoL was assessed using the Short Form 36 (SF-36) questionnaire and the Minnesota Living with Heart Failure Questionnaire (MLwHF). The level of self-care was assessed with the 12-item standardized European Heart Failure Self-care Behavior Scale (EHFScBS-12). Results: In the overall study group, 79% of the subjects were male, the mean age was 67 ± 14 years, and 59% of the subjects were older than 65 years of age. The majority of the subjects (70%) had a left ventricular ejection fraction below 40%. After 12 months, statistically significant increases in physical component of the SF-36 (43.3 vs. 47.4 for telecare vs. 43.4 vs. 46.6 for standard care) and mental component of SF-36 (58.4 vs. 62 for telecare vs. 60.4 vs. 64.2 for standard care) were noted, with no intergroup differences. However, patients receiving telecare showed improvement in specific domains, such as physical functioning, role-physical, bodily pain, vitality, social functioning, role-emotional, and mental health. There was a significant decrease in MLwHF (29 vs. 35.0; lower is better) at follow-up for both groups. Telecare patients had a statistically significant decrease in EHFScBS-12 (lower is better) at 12 months. Conclusion: AMULET outpatient telecare, which is based on nurse-led non-invasive assessments supported by specialist teleconsultations, improved the HRQoL and self-care of HF patients after an episode of acute HF.


Assuntos
Insuficiência Cardíaca , Qualidade de Vida , Autocuidado , Telemedicina , Humanos , Insuficiência Cardíaca/terapia , Masculino , Feminino , Estudos Prospectivos , Idoso , Inquéritos e Questionários , Pessoa de Meia-Idade
17.
PeerJ ; 12: e18226, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39391831

RESUMO

Background: The intermittent self-catheterization questionnaire (ISC-Q) is a valid and reliable tool to assess the quality of life (QOL) in patients with neurogenic lower urinary tract dysfunction (NLUTD) who engage in ISC. The aim of this research is to culturally adapt the ISC-Q and evaluate its psychometric properties within the Chinese patient population. Methods: The cross-sectional research was meticulously conducted in two pivotal stages: initially, the focus was on cross-cultural adaptation, followed by an extensive phase of psychometric testing. This comprehensive analysis involved 405 Chinese patients with NLUTD who use ISC. Various analyses, including evaluations of the floor and ceiling effects, item analysis, content validity, exploratory and confirmatory factor analysis (EFA and CFA), assessments of convergent, discriminant, and criterion validity. Additionally, Cronbach's alpha was utilized to determine internal consistency, and test-retest reliability was measured using the intraclass correlation coefficient (ICC). Results: No floor and ceiling effects were observed. The content validity index was 0.967. The EFA identified four factors, accounting for 64.953% of the total variance, and this four-factor structure was confirmed by the CFA. The fit indices in CFA were favorable, with χ2/df = 1.999, root mean square error of approximation = 0.070, comparative fit index = 0.916, Tucker-Lewis index = 0.900, goodness-of-fit index = 0.863, and incremental fit index = 0.917. The average variance extracted for the four factors ranged from 0.466 to 0.565, with composite reliability values ranging from 0.776 to 0.859. The ISC-Q showed a positive correlation with the intermittent self-catheterization acceptance questionnaire (r = 0.557, P < 0.001). The ICC overall Cronbach's alpha coefficient for the questionnaire was 0.821, and the for test-retest reliability was 0.951 (95% CI [0.900-0.976] P < 0.001). Conclusion: The validity and reliability of the Chinese version of the ISC-Q have been verified, making it suitable for measuring the QOL in NLUTD patients who practice ISC.


Assuntos
Psicometria , Qualidade de Vida , Humanos , Psicometria/métodos , Masculino , Feminino , Inquéritos e Questionários , Qualidade de Vida/psicologia , Reprodutibilidade dos Testes , Pessoa de Meia-Idade , Estudos Transversais , Adulto , China , Idoso , Autocuidado , Bexiga Urinaria Neurogênica/terapia , Bexiga Urinaria Neurogênica/psicologia , Comparação Transcultural , Cateterismo Uretral Intermitente , Análise Fatorial
18.
Health Informatics J ; 30(4): 14604582241291522, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-39393806

RESUMO

OBJECTIVES: Continued use of a digital health assistant that helps patients living with diabetes to self-manage and deal with complex problems in order to enhance their health status is a healthcare priority. The objective was to explore the barriers related to the use of a mobile personal health assistant for patients with type 2 diabetes. METHODS: Eighty-one participants were offered a personal health assistant through a smartphone application. They completed a questionnaire after initial training (T0) and after 1 month's experience (T1). RESULTS AND CONCLUSION: Most had a positive behavioral intention before using it, but the opposite was found after 1 month. There were positive correlations between behavioral intention and the eight related factors. The strongest correlations were with satisfaction and perceived usefulness at T0 and T1, respectively. The factors' mean values decreased after 1 month. The best predictors of behavioral intention were satisfaction and performance expectancy at T0 and T1, respectively, which predicted the status of 88.4% and 82.7% of the sample. Our findings will help health experts to build better tools that satisfy patients and meet their expectations.


Assuntos
Diabetes Mellitus Tipo 2 , Humanos , Feminino , Masculino , Pessoa de Meia-Idade , Diabetes Mellitus Tipo 2/psicologia , Diabetes Mellitus Tipo 2/terapia , Inquéritos e Questionários , Adulto , Idoso , Aplicativos Móveis/normas , Aplicativos Móveis/estatística & dados numéricos , Autocuidado/métodos , Autocuidado/psicologia , Satisfação do Paciente
19.
BMC Med Inform Decis Mak ; 24(1): 292, 2024 Oct 08.
Artigo em Inglês | MEDLINE | ID: mdl-39379898

RESUMO

BACKGROUND: Coronary artery disease is one of the leading causes of death and disability worldwide. Coronary angiography is a diagnostic procedure used to detect atherosclerosis. Patients typically experience anxiety and stress before and during the angiography procedure. Furthermore, self-care ability is crucial following angiography. AIM: This study aims to describe the design and evaluation of a mobile application focusing on stress, anxiety, and self-care abilities in patients undergoing coronary angiography. METHOD: The researchers developed a mobile application for patients undergoing angiography. The application provides information about angiography and tips for enhancing self-care following the procedure. An interventional study was conducted on 70 patients admitted to the angiography ward in hospitals in Kerman, Iran, between 2022 and 2023. The participants were randomly divided into two groups: control and intervention. The interventional group received the intervention application the night before angiography. Two groups completed the Anxiety and Stress Questionnaire (DAS) and Kearney-Flescher Self-Care Survey before the intervention. The researchers used questionnaires that had been prepared and previously utilized in other studies. The two groups completed the anxiety and stress questionnaire within three to six hours and the self-care questionnaire one month after angiography. SPSS 15 software was used for data analysis, with a significance level set at 0.05. RESULTS: The study found that the majority of participants were women. Before the study, there was no significant difference between the two groups in terms of anxiety, stress, and self-care scores. However, after the study, the intervention group showed a significant decrease in average anxiety and stress scores (p < 0.001). Additionally, compared to the control group, the intervention group demonstrated significant improvement in average self-care score (p < 0.001). CONCLUSION: According to this study, AP can be effective in influencing the anxiety, stress levels, and self-care ability of patients who undergo coronary angiography. It can help to reduce stress and anxiety while increasing self-care. Instructive software is user-friendly, cost-effective, and can be recommended by nurses and doctors.


Assuntos
Ansiedade , Angiografia Coronária , Aplicativos Móveis , Autocuidado , Estresse Psicológico , Humanos , Ansiedade/terapia , Feminino , Masculino , Pessoa de Meia-Idade , Estresse Psicológico/terapia , Idoso , Adulto , Irã (Geográfico)
20.
Sci Rep ; 14(1): 23683, 2024 10 10.
Artigo em Inglês | MEDLINE | ID: mdl-39390121

RESUMO

Cyberchondria is a hybrid term signifying a state in which individuals compulsively search for health-related information online because of health distress or anxiety, further aggravating their worries. This study develops a Cyberchondria Severity Scale (CSS) to assess the current situation of university students. Exploratory factor analysis (EFA) was conducted using 145 valid questionnaires. Subsequently, a nationwide survey was conducted at various universities in Taiwan, and 802 questionnaires were used for confirmatory factor analysis (CFA). The EFA led to the development of a CSS for college students with four constructs: increased anxiety (α = 0.91), obsessive-compulsive hypochondria (α = 0.87), perceived controllability (α = 0.88), and online physician-patient interaction (α = 0.86), with a Cronbach's alpha of 0.92 and variance of 66.81%. The CFA indicated that item reliability ranged from 0.50 to 0.86, factor loadings ranged from 0.71 to 0.93, and the composite reliability for latent variables ranged from 0.83 to 0.90 (p < .001). The extracted average variance ranged from 0.46 to 0.60. There were significant differences in various dimensions: perceived controllability had the highest score and obsessive-compulsive hypochondria had the lowest (F3,2403=256.26, p < .001). Therefore, CSS has emerged as a reliable and valid measure. Future studies should explore the factors that influence cyberchondria, promote online health information searches, and enhance reading comprehension skills.


Assuntos
Ansiedade , COVID-19 , Hipocondríase , Estudantes , Humanos , COVID-19/psicologia , COVID-19/epidemiologia , Estudantes/psicologia , Masculino , Feminino , Universidades , Inquéritos e Questionários , Adulto Jovem , Hipocondríase/psicologia , Autocuidado , Adulto , Taiwan/epidemiologia , SARS-CoV-2/isolamento & purificação , Análise Fatorial , Índice de Gravidade de Doença , Adolescente
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