Disease-specific quality of life in children and adults with anorectal malformations.
Pediatr Surg Int
; 26(2): 151-5, 2010 Feb.
Article
en En
| MEDLINE
| ID: mdl-20128108
ABSTRACT
PURPOSE:
The aim of the present study was to analyze disease-specific quality of life, as assessed by the Hirsch-sprung Disease/Anorectal Malformation Quality of Life (HAQL) questionnaire, in children and adults with ano-rectal malformations (ARM).METHODS:
As much as 175 children and 62 adults who were members of the Italian Association for Anorectal Malformations were asked to complete the Italian version of the HAQL questionnaire developed for this study. For children under 16 years of age, mothers were asked to fill up the questionnaires. Patients were also asked to identify their type of malformation from a list of eight choices.RESULTS:
Most subscales of the Italian HAQL had acceptable reliability. Compared to children, adults reported significantly lower levels of QL on subscales measuring emotional functioning, body image, and physical symptoms.CONCLUSIONS:
Longitudinal studies are needed to clarify whether these results can be attributed to improvements in surgical techniques that have contributed to improved QL in younger cohorts, or if, instead, quality of life in patients with ARM decreases over time. Intervention efforts should focus on bowel management and psychological treatment for ARM-related emotional and body image distress.
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Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Canal Anal
/
Calidad de Vida
/
Recto
/
Anomalías del Sistema Digestivo
/
Emociones
Tipo de estudio:
Observational_studies
/
Prognostic_studies
/
Qualitative_research
/
Risk_factors_studies
Aspecto:
Patient_preference
Límite:
Adult
/
Child
/
Female
/
Humans
/
Male
País/Región como asunto:
Europa
Idioma:
En
Revista:
Pediatr Surg Int
Asunto de la revista:
PEDIATRIA
Año:
2010
Tipo del documento:
Article
País de afiliación:
Italia