A call for action to improve access to care and treatment for patients with rare diseases in the Asia-Pacific region.
Orphanet J Rare Dis
; 9: 137, 2014 Sep 16.
Article
en En
| MEDLINE
| ID: mdl-25223275
ABSTRACT
This article is a call for action to the relevant stakeholders to improve access to care and treatment for patients with rare diseases in the Asia-Pacific region by looking into three main areas (a) developing legislative definitions to confer enforceable protection, (b) creating or strengthening policies by objectively measuring the impact brought about by rare diseases and establishing platforms to reach out to the rare disease community, and (c) fostering collaboration across sectors and countries. It is hoped that these suggested actions can catalyze discussions and progress in the region.
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Contexto en salud:
11_ODS3_cobertura_universal
/
2_ODS3
Problema de salud:
11_delivery_arrangements
/
11_governance_arrangements
/
2_cobertura_universal
Asunto principal:
Enfermedades Raras
/
Política de Salud
/
Accesibilidad a los Servicios de Salud
Tipo de estudio:
Diagnostic_studies
Aspecto:
Determinantes_sociais_saude
Límite:
Humans
País/Región como asunto:
Asia
Idioma:
En
Revista:
Orphanet J Rare Dis
Asunto de la revista:
MEDICINA
Año:
2014
Tipo del documento:
Article