Barriers and Strategies Related to Qualitative Research on Genetic Ancestry Testing in Indigenous Communities.
J Empir Res Hum Res Ethics
; 12(3): 169-179, 2017 07.
Article
en En
| MEDLINE
| ID: mdl-28434393
ABSTRACT
Conducting genetics-related research with populations that have historically experienced considerable harm and little benefit from genetics research poses unique challenges for understanding community-based perceptions of new genetic technologies. This article identifies challenges and strategies for collecting qualitative data on the perceptions of direct-to-consumer (DTC) Genetic Ancestry tests (GAT) among diverse Indigenous communities. Based on a 3-year project related to perceptions, attitudes, and values associated with genetic ancestry testing among diverse Indigenous communities in Oklahoma, the engagement process revealed specific opportunities to improve the process of qualitative data collection related to GAT, and more broadly, to conduct genetics-related research with Indigenous communities in culturally and methodologically appropriate ways. Priority areas include issues related to participant recruitment and tribal advisory boards, challenges of self-identification as a recruitment mechanism, and the necessity of including Indigenous researchers in all aspects of the research process.
Palabras clave
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Actitud Frente a la Salud
/
Indígenas Norteamericanos
/
Características de la Residencia
/
Pruebas Genéticas
/
Investigación Genética
/
Competencia Cultural
/
Investigación Participativa Basada en la Comunidad
Tipo de estudio:
Prognostic_studies
/
Qualitative_research
Aspecto:
Determinantes_sociais_saude
Límite:
Female
/
Humans
/
Male
País/Región como asunto:
America do norte
Idioma:
En
Revista:
J Empir Res Hum Res Ethics
Asunto de la revista:
ETICA
Año:
2017
Tipo del documento:
Article
País de afiliación:
Estados Unidos