Data Sharing and Cardiology: Platforms and Possibilities.
J Am Coll Cardiol
; 70(24): 3018-3025, 2017 Dec 19.
Article
en En
| MEDLINE
| ID: mdl-29241491
ABSTRACT
Sharing deidentified patient-level research data presents immense opportunities to all stakeholders involved in cardiology research and practice. Sharing data encourages the use of existing data for knowledge generation to improve practice, while also allowing for validation of disseminated research. In this review, we discuss key initiatives and platforms that have helped to accelerate progress toward greater sharing of data. These efforts are being prompted by government, universities, philanthropic sponsors of research, major industry players, and collaborations among some of these entities. As data sharing becomes a more common expectation, policy changes will be required to encourage and assist data generators with the process of sharing the data they create. Patients also will need access to their own data and to be empowered to share those data with researchers. Although medicine still lags behind other fields in achieving data sharing's full potential, cardiology research has the potential to lead the way.
Palabras clave
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Cardiología
/
Difusión de la Información
/
Investigación Biomédica
Límite:
Humans
Idioma:
En
Revista:
J Am Coll Cardiol
Año:
2017
Tipo del documento:
Article