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The Serbian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).
Susic, Gordana; Vojinovic, Jelena; Vijatov-Djuric, Gordana; Stevanovic, Dejan; Lazarevic, Dragana; Djurovic, Nada; Novakovic, Dusica; Consolaro, Alessandro; Bovis, Francesca; Ruperto, Nicolino.
Afiliación
  • Susic G; Division of Pediatric Rheumatology, Institute of Rheumatology, Belgrade, Serbia.
  • Vojinovic J; Faculty of Medicine, Department of Pediatric Rheumatology, University of Nis, Nis, Serbia.
  • Vijatov-Djuric G; Clinic of Pediatrics, Department of Pediatric Rheumathology, Clinical Center Nis, Nis, Serbia.
  • Stevanovic D; Faculty of Medicine, University of Novi Sad, Novi Sad, Serbia.
  • Lazarevic D; Department of Immunology, Allergology and Rheumatology, Institute for Child and Youth Health Care of Vojvodina, Novi Sad, Serbia.
  • Djurovic N; Clinic for Neurology and Psychiatry for Children and Youth, Belgrade, Serbia.
  • Novakovic D; Clinic of Pediatrics, Department of Pediatric Rheumathology, Clinical Center Nis, Nis, Serbia.
  • Consolaro A; Division of Pediatric Rheumatology, Institute of Rheumatology, Belgrade, Serbia.
  • Bovis F; Division of Pediatric Rheumatology, Institute of Rheumatology, Belgrade, Serbia.
  • Ruperto N; Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, Genoa, Italy.
Rheumatol Int ; 38(Suppl 1): 347-354, 2018 Apr.
Article en En | MEDLINE | ID: mdl-29637343
ABSTRACT
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Serbian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 248 JIA patients (5.2% systemic, 44.3% oligoarticular, 23.8% RF-negative polyarthritis, 26.7% other categories) and 100 healthy children were enrolled in three centres. The JAMAR components discriminated healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Serbian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Artritis Juvenil / Reumatología / Evaluación de la Discapacidad / Medición de Resultados Informados por el Paciente Tipo de estudio: Clinical_trials / Observational_studies / Prognostic_studies / Risk_factors_studies Aspecto: Patient_preference Límite: Adolescent / Child / Child, preschool / Female / Humans / Male País/Región como asunto: Europa Idioma: En Revista: Rheumatol Int Año: 2018 Tipo del documento: Article

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Artritis Juvenil / Reumatología / Evaluación de la Discapacidad / Medición de Resultados Informados por el Paciente Tipo de estudio: Clinical_trials / Observational_studies / Prognostic_studies / Risk_factors_studies Aspecto: Patient_preference Límite: Adolescent / Child / Child, preschool / Female / Humans / Male País/Región como asunto: Europa Idioma: En Revista: Rheumatol Int Año: 2018 Tipo del documento: Article
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