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Value of the Rare Disease Registry of the Italian Region Friuli Venezia Giulia.
Valent, Francesca; Deroma, Laura; Moro, Alessandro; Ciana, Giovanni; Martina, Paolo; De Martin, Fabio; Michelesio, Elisa; Da Riol, Maria Rosalia; Macor, Daniela; Bembi, Bruno.
Afiliación
  • Valent F; Institute of Hygiene and Clinical Epidemiology, University Hospital of Udine, Udine, Italy. Electronic address: francesca.valent@asuiud.sanita.fvg.it.
  • Deroma L; Regional Coordinating Center for Rare Diseases, University Hospital of Udine, Udine, Italy.
  • Moro A; Regional Coordinating Center for Rare Diseases, University Hospital of Udine, Udine, Italy.
  • Ciana G; Regional Coordinating Center for Rare Diseases, University Hospital of Udine, Udine, Italy.
  • Martina P; Insiel SpA, Udine, Italy.
  • De Martin F; Insiel SpA, Udine, Italy.
  • Michelesio E; Insiel SpA, Udine, Italy.
  • Da Riol MR; Regional Coordinating Center for Rare Diseases, University Hospital of Udine, Udine, Italy.
  • Macor D; Regional Coordinating Center for Rare Diseases, University Hospital of Udine, Udine, Italy.
  • Bembi B; Regional Coordinating Center for Rare Diseases, University Hospital of Udine, Udine, Italy.
Value Health ; 22(9): 1003-1011, 2019 09.
Article en En | MEDLINE | ID: mdl-31511176
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Contexto en salud: 1_ASSA2030 Problema de salud: 1_financiamento_saude Asunto principal: Sistema de Registros / Enfermedades Raras Tipo de estudio: Guideline / Prognostic_studies / Risk_factors_studies Aspecto: Equity_inequality / Patient_preference Límite: Adult / Aged / Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Value Health Asunto de la revista: FARMACOLOGIA Año: 2019 Tipo del documento: Article
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Contexto en salud: 1_ASSA2030 Problema de salud: 1_financiamento_saude Asunto principal: Sistema de Registros / Enfermedades Raras Tipo de estudio: Guideline / Prognostic_studies / Risk_factors_studies Aspecto: Equity_inequality / Patient_preference Límite: Adult / Aged / Female / Humans / Male / Middle aged País/Región como asunto: Europa Idioma: En Revista: Value Health Asunto de la revista: FARMACOLOGIA Año: 2019 Tipo del documento: Article