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Real-life assessment of chronic rhinosinusitis patients using mobile technology: The mySinusitisCoach project by EUFOREA.
Seys, Sven F; De Bont, Shana; Fokkens, Wytske J; Bachert, Claus; Alobid, Isam; Bernal-Sprekelsen, Manuel; Bjermer, Leif; Callebaut, Ina; Cardell, Lars-Olaf; Carrie, Sean; Castelnuovo, Paolo; Cathcart, Russell; Constantinidis, Jannis; Cools, Leen; Cornet, Marjolein; Clement, Gregory; Cox, Tony; Delsupehe, Lieve; Correia-de-Sousa, Jaime; Deneyer, Lauren; De Vos, Geert; Diamant, Zuzana; Doulaptsi, Maria; Gane, Simon; Gevaert, Philippe; Hopkins, Claire; Hox, Valérie; Hummel, Thomas; Hosemann, Werner; Jacobs, Raf; Jorissen, Mark; Kjeldsen, Anette; Landis, Basile N; Lemmens, Winde; Leunig, Andreas; Lund, Valerie; Mariën, Gert; Mullol, Joaquim; Onerci, Metin; Palkonen, Susanna; Proano, Isabel; Prokopakis, Emmanuel; Ryan, Dermot; Riechelmann, Herbert; Sahlstrand-Johnson, Pernilla; Salmi-Toppila, Sanna; Segboer, Christine; Speleman, Kato; Steinsvik, Andreas; Surda, Pavol.
Afiliación
  • Seys SF; European Forum for Research and Education in Allergy and Airway Diseases (EUFOREA), Brussels, Belgium.
  • De Bont S; Department of Microbiology, Immunology & Transplantation, Allergy and Clinical Immunology Research Group, KU Leuven, Belgium.
  • Fokkens WJ; Department of Otorhinolaryngology-Head and Neck Surgery, UZ Leuven, UZ Leuven, Belgium.
  • Bachert C; Department of Otorhinolaryngology, Amsterdam University Medical Centres, Amsterdam, The Netherlands.
  • Alobid I; Upper Airways Research Laboratory, Department of Otorhinolaryngology, Ghent University, Belgium.
  • Bernal-Sprekelsen M; Department of Otorhinolaryngology, Karolinska Institute, Stockholm, Sweden.
  • Bjermer L; Hospital Clínic, IDIBAPS, Universitat de Barcelona, CIBERES, Barcelona, Spain.
  • Callebaut I; University of Valencia, Valencia, Spain.
  • Cardell LO; Department of Respiratory Medicine and Allergology, Lund University, Lund, Sweden.
  • Carrie S; Department of Otorhinolaryngology-Head and Neck Surgery, UZ Leuven, UZ Leuven, Belgium.
  • Castelnuovo P; Division of ENT Diseases, Department of Clinical Science, Intervention and Technology, Karolinska Institutet, Stockholm, Sweden.
  • Cathcart R; ENT department, Freeman Hospital, Newcastle upon Tyne, UK.
  • Constantinidis J; ENT Department, University of Insubria, Ospedale Di Circolo E Fondazione Macchi, Varese, Italy.
  • Cools L; ENT department, Cumberland Infirmary, Carlisle, UK.
  • Cornet M; 1st Academic ENT Department, Aristotle University of Thessaloniki, AHEPA University Hospital, Thessaloniki, Greece.
  • Clement G; Department of Otorhinolaryngology-Head and Neck Surgery, UZ Leuven, UZ Leuven, Belgium.
  • Cox T; Department of Otorhinolaryngology, Amsterdam University Medical Centres, Amsterdam, The Netherlands.
  • Delsupehe L; ENT department, AZ Damiaan, Oostende, Belgium.
  • Correia-de-Sousa J; ENT department, Jessa hospital, Hasselt, Belgium.
  • Deneyer L; ENT department, AZ Delta, Roeselare, Belgium.
  • De Vos G; Life and Health Sciences Research Institute (ICVS)/3B's-PT Government Associate Laboratory, University of Minho, Braga, Portugal.
  • Diamant Z; European Forum for Research and Education in Allergy and Airway Diseases (EUFOREA), Brussels, Belgium.
  • Doulaptsi M; ENT department, Sint-Lucas, Gent, Belgium.
  • Gane S; Department of Respiratory Medicine and Allergology, Lund University, Lund, Sweden.
  • Gevaert P; Department of Clinical Pharmacy & Pharmacology, UMCG and QPS-NL, Groningen, The Netherlands.
  • Hopkins C; Department of Respiratory Medicine, First Faculty of Medicine, Charles University and Thomayer Hospital, Prague, Czech Republic.
  • Hox V; Department of Otorhinolaryngology-Head and Neck Surgery, University of Crete School of Medicine, Heraklion, Greece.
  • Hummel T; ENT Department, Royal National Throat Nose and Ear Hospital, London, UK.
  • Hosemann W; Upper Airways Research Laboratory, Department of Otorhinolaryngology, Ghent University, Belgium.
  • Jacobs R; ENT Department, Guy's and St Thomas' NHS Foundation Trust, London, UK.
  • Jorissen M; Département d'Otorhinolaryngologie, Cliniques Universitaires Saint-Luc, Brussels, Belgium.
  • Kjeldsen A; Smell and Taste Clinic, ENT department, Technische Universität Dresden, Dresden, Germany.
  • Landis BN; Department of Otorhinolaryngology, Head and Neck Surgery, University of Greifswald, Germany.
  • Lemmens W; Department of Otorhinolaryngology-Head and Neck Surgery, General Hospital Sint-Blasius, Dendermonde, Belgium.
  • Leunig A; Department of Otorhinolaryngology-Head and Neck Surgery, UZ Leuven, UZ Leuven, Belgium.
  • Lund V; Department of Otorhinolaryngology, Odense University Hospital, Odense, Denmark.
  • Mariën G; Unité de Rhinologie-Olfactologie, Service d'Oto-Rhino-Laryngologie et de Chirurgie cervico-faciale, Hôpitaux Universitaires de Genève, Genève, Suisse.
  • Mullol J; ENT department, ZOL Genk, Genk, Belgium.
  • Onerci M; ENT department, Ludwig Maximilians University Munich, Germany.
  • Palkonen S; ENT Department, Royal National Throat Nose and Ear Hospital, London, UK.
  • Proano I; European Forum for Research and Education in Allergy and Airway Diseases (EUFOREA), Brussels, Belgium.
  • Prokopakis E; Hospital Clínic, IDIBAPS, Universitat de Barcelona, CIBERES, Barcelona, Spain.
  • Ryan D; ENT Department, Faculty of Medicine, Hacettepe University, Ankara, Turkey.
  • Riechelmann H; European Federation of Allergy and Airways Diseases Patients' Associations (EFA), Brussels, Belgium.
  • Sahlstrand-Johnson P; European Federation of Allergy and Airways Diseases Patients' Associations (EFA), Brussels, Belgium.
  • Salmi-Toppila S; Department of Otorhinolaryngology-Head and Neck Surgery, University of Crete School of Medicine, Heraklion, Greece.
  • Segboer C; Usher Institute, University of Edinburgh, UK.
  • Speleman K; Universitätsklinik für Hals- Nasen- Ohrenheilkunde Innsbruck, Austria.
  • Steinsvik A; Department of Oto-Rhino-Laryngology, Head and Neck Surgery, Lund University, Skane University Hospital, Lund, Sweden.
  • Surda P; Skin and Allergy Hospital, Helsinki University Central Hospital, Helsinki, Finland.
Allergy ; 75(11): 2867-2878, 2020 11.
Article en En | MEDLINE | ID: mdl-32424899
ABSTRACT

BACKGROUND:

Chronic rhinosinusitis (CRS) is a chronic inflammatory disease associated with a substantial personal and socioeconomic burden. Monitoring of patient-reported outcomes by mobile technology offers the possibility to better understand real-life burden of CRS.

METHODS:

This study reports on the cross-sectional evaluation of data of 626 users of mySinusitisCoach (mSC), a mobile application for CRS patients. Patient characteristics of mSC users were analysed as well as the level of disease control based on VAS global rhinosinusitis symptom score and adapted EPOS criteria.

RESULTS:

The mSC cohort represents a heterogeneous group of CRS patients with a diverse pattern of major symptoms. Approximately half of patients reported nasal polyps. 47.3% of all CRS patients were uncontrolled based on evaluation of VAS global rhinosinusitis symptom score compared to 40.9% based on adapted EPOS criteria. The impact of CRS on sleep quality and daily life activities was significantly higher in uncontrolled versus well-controlled patients. Half of patients had a history of FESS (functional endoscopic sinus surgery) and reported lower symptom severity compared to patients without a history of FESS, except for patients with a history of more than 3 procedures. Patients with a history of FESS reported higher VAS levels for impaired smell.

CONCLUSION:

Real-life data confirm the high disease burden in uncontrolled CRS patients, clearly impacting quality of life. Sinus surgery improves patient-reported outcomes, but not in patients with a history of more than 3 procedures. Mobile technology opens a new era of real-life monitoring, supporting the evolution of care towards precision medicine.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Sinusitis / Rinitis / Pólipos Nasales Límite: Humans Idioma: En Revista: Allergy Año: 2020 Tipo del documento: Article País de afiliación: Bélgica
Texto completo
Añadir a Mi BVS
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Sinusitis / Rinitis / Pólipos Nasales Límite: Humans Idioma: En Revista: Allergy Año: 2020 Tipo del documento: Article País de afiliación: Bélgica