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Direct and indirect costs and cost-driving factors in adults with tuberous sclerosis complex: a multicenter cohort study and a review of the literature.
Zöllner, Johann Philipp; Grau, Janina; Rosenow, Felix; Sauter, Matthias; Knuf, Markus; Kurlemann, Gerhard; Mayer, Thomas; Hertzberg, Christoph; Bertsche, Astrid; Immisch, Ilka; Klein, Karl Martin; Knake, Susanne; Marquard, Klaus; Meyer, Sascha; Noda, Anna H; von Podewils, Felix; Schäfer, Hannah; Thiels, Charlotte; Willems, Laurent M; Zukunft, Bianca; Schubert-Bast, Susanne; Strzelczyk, Adam.
Afiliación
  • Zöllner JP; Epilepsy Center Frankfurt Rhine-Main, Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16, 60528, Frankfurt am Main, Germany.
  • Grau J; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Rosenow F; Epilepsy Center Frankfurt Rhine-Main, Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16, 60528, Frankfurt am Main, Germany.
  • Sauter M; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Knuf M; Epilepsy Center Frankfurt Rhine-Main, Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16, 60528, Frankfurt am Main, Germany.
  • Kurlemann G; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Mayer T; Klinikum Kempten, Klinikverbund Allgäu, Kempten/Allgäu, Germany.
  • Hertzberg C; Department of Pediatrics, Helios Dr. Horst Schmidt Clinic Wiesbaden, Wiesbaden, Germany.
  • Bertsche A; Department of Pediatrics, University Medicine Mainz, Mainz, Germany.
  • Immisch I; St. Bonifatius Hospital, Lingen, Germany.
  • Klein KM; Epilepsy Center Kleinwachau, Radeberg, Germany.
  • Knake S; Department of Neuropediatrics, Vivantes Klinikum Neukölln, Berlin, Germany.
  • Marquard K; Department of Neuropediatrics, University Hospital for Children and Adolescents, Rostock, Germany.
  • Meyer S; Epilepsy Center Hessen and Department of Neurology, Philipps-University Marburg, Marburg (Lahn), Germany.
  • Noda AH; Epilepsy Center Frankfurt Rhine-Main, Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16, 60528, Frankfurt am Main, Germany.
  • von Podewils F; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Schäfer H; Departments of Clinical Neurosciences, Medical Genetics, and Community Health Sciences, Hotchkiss Brain Institute and Alberta Children's Hospital Research Institute, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
  • Thiels C; Epilepsy Center Hessen and Department of Neurology, Philipps-University Marburg, Marburg (Lahn), Germany.
  • Willems LM; Department of Pediatric Neurology, Psychosomatics and Pain Management, Klinikum Stuttgart, Stuttgart, Germany.
  • Zukunft B; Department of Neuropediatrics, Children's Hospital at University Medical Center Homburg, Homburg, Germany.
  • Schubert-Bast S; Epilepsy Center Frankfurt Rhine-Main, Department of Neurology, Goethe-University Frankfurt, Schleusenweg 2-16, 60528, Frankfurt am Main, Germany.
  • Strzelczyk A; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
Orphanet J Rare Dis ; 16(1): 250, 2021 06 02.
Article en En | MEDLINE | ID: mdl-34078440
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Contexto en salud: 1_ASSA2030 Problema de salud: 1_financiamento_saude Asunto principal: Esclerosis Tuberosa Tipo de estudio: Etiology_studies / Health_economic_evaluation / Incidence_studies / Observational_studies / Qualitative_research / Risk_factors_studies Límite: Adult / Aged / Female / Humans / Middle aged País/Región como asunto: Europa Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2021 Tipo del documento: Article País de afiliación: Alemania
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Contexto en salud: 1_ASSA2030 Problema de salud: 1_financiamento_saude Asunto principal: Esclerosis Tuberosa Tipo de estudio: Etiology_studies / Health_economic_evaluation / Incidence_studies / Observational_studies / Qualitative_research / Risk_factors_studies Límite: Adult / Aged / Female / Humans / Middle aged País/Región como asunto: Europa Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2021 Tipo del documento: Article País de afiliación: Alemania