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Development of a patient-centered core domain set for prospective observational longitudinal outcome studies in rheumatoid arthritis: an OMERACT initiative.
Bruera, Sebastian; Carmona, Loreto; Lopez-Olivo, Maria A; Westrich-Robertson, Tiffany; March, Lyn; Negron, Jose B; Christensen, Robin; Strand, Vibeke; Ingegnoli, Francesca; Goel, Niti; Shea, Beverley; Tugwell, Peter; Leong, Amye; Bingham, Clifton O; Hill, Catherine L; Suarez-Almazor, Maria E.
Afiliación
  • Bruera S; Department of Immunology, Allergy, and Rheumatology, Baylor College of Medicine, Houston, TX, USA.
  • Carmona L; Instituto de Salud Musculoesquelética, Madrid, Spain.
  • Lopez-Olivo MA; Department of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
  • Westrich-Robertson T; International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis), St. Louis, MO.
  • March L; University of Sydney Florance and Cope Professorial Department of Rheumatology, Institute of Bone and Joint Research, Kolling Institute and Royal North Shore Hospital, St Leonards, NSW Australia.
  • Negron JB; University of Sydney Florance and Cope Professorial Department of Rheumatology, Institute of Bone and Joint Research, Kolling Institute and Royal North Shore Hospital, St Leonards, NSW Australia.
  • Christensen R; Section for Biostatistics and Evidence-Based Research, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Copenhagen & Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark.
  • Strand V; Division of Immunology and Rheumatology, Stanford University, Palo Alto, CA, USA.
  • Ingegnoli F; Division of Clinical Rheumatology, Pini Hospital, Dept. of Clinical Sciences & Community Health, Research Center for Adult and Pediatric Rheumatic Diseases, Università degli Studi di Milano, Milano, Italy.
  • Goel N; Division of Rheumatology and Immunology, Department of Medicine, Duke University School of Medicine, Durham, North Carolina, USA.
  • Shea B; Ottawa Hospital Research Institute, School of Epidemiology and Public Health, University of Ottawa, Ottawa, Ontario, Canada.
  • Tugwell P; Department of Medicine and School of Epidemiology and Public Health, University of Ottawa, Ottawa, Ontario, Canada.
  • Leong A; Department of Medicine and School of Epidemiology and Public Health, University of Ottawa, Ottawa, Ontario, Canada.
  • Bingham CO; Division of Rheumatology, Department of Medicine, Johns Hopkins University, Baltimore MD, USA.
  • Hill CL; Discipline of Medicine, University of Adelaide, and Rheumatology Unit, The Queen Elizabeth Hospital, Woodville, Australia.
  • Suarez-Almazor ME; Department of Health Services Research and Section of Rheumatology and Clinical Immunology, The University of Texas MD Anderson Cancer Center, Houston, TX, USA. Electronic address: msalmazor@mdanderson.org.
Semin Arthritis Rheum ; 51(5): 1113-1116, 2021 10.
Article en En | MEDLINE | ID: mdl-34446270
OBJECTIVES: To identify patient-centered core domains for prospective longitudinal observational studies (LOS) in rheumatoid arthritis. METHODS: Our working group held a virtual meeting in November 2020 to review data from a literature review and patient qualitative interviews, and to discuss strategies to move forward on domain identification and selection using the OMERACT 2.1 domain selection process. RESULTS: Important candidate domains and subdomains were identified including in the areas of life impact. Consensus was reached on moving forward with a Delphi process. CONCLUSIONS: The meeting provided future directions to identify and select a core set of domains for use in LOS.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Artritis Reumatoide / Evaluación de Resultado en la Atención de Salud Tipo de estudio: Guideline / Observational_studies / Qualitative_research Límite: Humans Idioma: En Revista: Semin Arthritis Rheum Año: 2021 Tipo del documento: Article País de afiliación: Estados Unidos
Texto completo
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Artritis Reumatoide / Evaluación de Resultado en la Atención de Salud Tipo de estudio: Guideline / Observational_studies / Qualitative_research Límite: Humans Idioma: En Revista: Semin Arthritis Rheum Año: 2021 Tipo del documento: Article País de afiliación: Estados Unidos