The Burden and Benefits of Knowledge: Ethical Considerations Surrounding Population-Based Newborn Genome Screening for Hearing.

Mitchell, Calli O; Rivera-Cruz, Greysha; Chau, Matthew Hoi Kin; Dong, Zirui; Choy, Kwong Wai; Shen, Jun; Amr, Sami; Giersch, Anne B S; Morton, Cynthia C

Mitchell, Calli O; Rivera-Cruz, Greysha; Chau, Matthew Hoi Kin; Dong, Zirui; Choy, Kwong Wai; Shen, Jun; Amr, Sami; Giersch, Anne B S; Morton, Cynthia C.

Afiliación

Mitchell CO; Department of Obstetrics and Gynecology, Brigham and Women's Hospital, Boston, MA 02115, USA.
Rivera-Cruz G; Department of Pediatrics, Division of Genetics and Genomics, Boston Children's Hospital, Boston, MA 02115, USA.
Chau MHK; Department of Obstetrics & Gynaecology, The Chinese University of Hong Kong, Hong Kong, China.
Dong Z; Shenzhen Research Institute, The Chinese University of Hong Kong, Shenzhen 518172, China.
Choy KW; Hong Kong Hub of Paediatric Excellence, The Chinese University of Hong Kong, Hong Kong, China.
Shen J; Department of Obstetrics & Gynaecology, The Chinese University of Hong Kong, Hong Kong, China.
Amr S; Shenzhen Research Institute, The Chinese University of Hong Kong, Shenzhen 518172, China.
Giersch ABS; Hong Kong Hub of Paediatric Excellence, The Chinese University of Hong Kong, Hong Kong, China.
Morton CC; Department of Obstetrics & Gynaecology, The Chinese University of Hong Kong, Hong Kong, China.

Int J Neonatal Screen ; 8(2)2022 May 27.

Article en En | MEDLINE | ID: mdl-35735787

Palabras clave

carrier status; genome sequencing; incidental findings; newborn genome sequencing; newborn hearing screening; newborn screening; secondary findings

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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Tipo de estudio: Diagnostic_studies / Prognostic_studies / Screening_studies Aspecto: Ethics Idioma: En Revista: Int J Neonatal Screen Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos

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