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Paid Family Caregiving for Children With Medical Complexity.
Brittan, Mark S; Chavez, Catia; Blakely, Christy; Holliman, Brooke Dorsey; Zuk, Jeannie.
Afiliación
  • Brittan MS; Section of Pediatric Hospital Medicine, Children's Hospital Colorado.
  • Chavez C; Adult and Child Consortium for Health Outcomes Research and Delivery Science (ACCORDS), University of Colorado Denver, Aurora, Colorado.
  • Blakely C; Adult and Child Consortium for Health Outcomes Research and Delivery Science (ACCORDS), University of Colorado Denver, Aurora, Colorado.
  • Holliman BD; Family Voices Colorado, Centennial, Colorado.
  • Zuk J; Adult and Child Consortium for Health Outcomes Research and Delivery Science (ACCORDS), University of Colorado Denver, Aurora, Colorado.
Pediatrics ; 151(6)2023 06 01.
Article en En | MEDLINE | ID: mdl-37248869
ABSTRACT

OBJECTIVES:

We evaluated Colorado's paid family caregiver certified nursing assistant (CNA) program by assessing stakeholders' perceptions of the model's strengths and potential areas for improvement.

METHODS:

A professional bilingual research assistant conducted key informant interviews of English- and Spanish-speaking certified nursing assistant (CNA) family caregivers (FCs), primary care providers, and pediatric home health administrators of children with medical complexity in the family caregiver CNA program. Interview questions focused on the program's benefits, drawbacks, and implications for the child and caregiver's quality of life. Transcripts were coded and analyzed, and themes summarizing program benefits and disadvantages were identified.

RESULTS:

Semistructured interviews were completed by phone with 25 FCs, 10 home health administrators, and 10 primary care providers between September 2020 and June 2021. Overall, the program was highly valued and uniformly recommended for prospective families. Perceived benefits included (1) fulfilling the desire to be a good parent, (2) providing stable and high-quality home health care, (3) benefitting the child's health and wellbeing, and (4) enhancing family financial stability. Perceived drawbacks included (1) FCs experiencing mental and physical health burdens, (2) difficult access for some community members, (3) extraneous training requirements, and (4) low program visibility.

CONCLUSIONS:

Given the perceived benefits of the family CNA program, the model may be considered for future dissemination to other communities. However, additional research and program improvements are needed to help make this a more equitable and sustainable home health care model for children with medical complexity.
Asunto(s)

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Servicios de Atención de Salud a Domicilio Tipo de estudio: Observational_studies / Qualitative_research Aspecto: Patient_preference Límite: Child / Humans Idioma: En Revista: Pediatrics Año: 2023 Tipo del documento: Article

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Asunto principal: Calidad de Vida / Servicios de Atención de Salud a Domicilio Tipo de estudio: Observational_studies / Qualitative_research Aspecto: Patient_preference Límite: Child / Humans Idioma: En Revista: Pediatrics Año: 2023 Tipo del documento: Article
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