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From Raw Data to FAIR Data: The FAIRification Workflow for Brazilian Tuberculosis Research.
Bernardi, Filipe; Lima, Vinicius; Sartoretto, Gabriel; Baiochi, João; Cassão, Victor; Kritski, Afrânio; Rijo, Rui; Alves, Domingos.
Afiliación
  • Bernardi F; Ribeirão Preto Medical School, University of São Paulo, Brazil.
  • Lima V; Ribeirão Preto Medical School, University of São Paulo, Brazil.
  • Sartoretto G; Ribeirão Preto Medical School, University of São Paulo, Brazil.
  • Baiochi J; Ribeirão Preto Medical School, University of São Paulo, Brazil.
  • Cassão V; Ribeirão Preto Medical School, University of São Paulo, Brazil.
  • Kritski A; Faculty of Medicine, Federal University of Rio de Janeiro, Brazil.
  • Rijo R; School of Technology and Management, Polytechnic Institute of Leiria, Portugal.
  • Alves D; Ribeirão Preto Medical School, University of São Paulo, Brazil.
Stud Health Technol Inform ; 305: 331-334, 2023 Jun 29.
Article en En | MEDLINE | ID: mdl-37387031
ABSTRACT
Among the main factors that negatively influence the decision-making process, it is possible to highlight the low quality, availability, and integration of population health data. This study aims to highlight the difficulty of research based on tuberculosis data available in Brazil. The FAIR methodology is a solution for standardizing data and sharing information about the disease. All the main actors involved, including those who generate data and administrators of information systems, should be encouraged to know their strengths and weaknesses. Continuously fostering strategies to promote data quality is, therefore, a strong stimulus for strengthening national health information systems and can potentially benefit from recommendations on how to overcome the inherent limitations of these information systems. Data quality management in Brazilian tuberculosis information systems is still not carried out organized and systematically. According to the FAIR principles, the evaluation demonstrates only 37.75% of compliance.
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Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Contexto en salud: 1_ASSA2030 / 3_ND Problema de salud: 1_sistemas_informacao_saude / 3_neglected_diseases / 3_tuberculosis Asunto principal: Tuberculosis / Personal Administrativo Tipo de estudio: Diagnostic_studies / Prognostic_studies Límite: Humans País/Región como asunto: America do sul / Brasil Idioma: En Revista: Stud Health Technol Inform Asunto de la revista: INFORMATICA MEDICA / PESQUISA EM SERVICOS DE SAUDE Año: 2023 Tipo del documento: Article País de afiliación: Brasil

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Contexto en salud: 1_ASSA2030 / 3_ND Problema de salud: 1_sistemas_informacao_saude / 3_neglected_diseases / 3_tuberculosis Asunto principal: Tuberculosis / Personal Administrativo Tipo de estudio: Diagnostic_studies / Prognostic_studies Límite: Humans País/Región como asunto: America do sul / Brasil Idioma: En Revista: Stud Health Technol Inform Asunto de la revista: INFORMATICA MEDICA / PESQUISA EM SERVICOS DE SAUDE Año: 2023 Tipo del documento: Article País de afiliación: Brasil
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