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Transition from child to adult services for young people with cerebral palsy in Ireland: Influencing factors at multiple ecological levels.
Fortune, Jennifer; Ryan, Jennifer M; Walsh, Aisling; Walsh, Michael; Kerr, Claire; Kroll, Thilo; Lavelle, Grace; Owens, Mary; Hensey, Owen; Norris, Meriel.
Afiliación
  • Fortune J; Department of Public Health and Epidemiology, RCSI University of Medicine and Health Sciences, Dublin, Ireland.
  • Ryan JM; Department of Public Health and Epidemiology, RCSI University of Medicine and Health Sciences, Dublin, Ireland.
  • Walsh A; Department of Public Health and Epidemiology, RCSI University of Medicine and Health Sciences, Dublin, Ireland.
  • Walsh M; Central Remedial Clinic, Dublin, Ireland.
  • Kerr C; School of Nursing and Midwifery, Queen's University Belfast, Belfast, UK.
  • Kroll T; UCD IRIS Centre, School of Nursing, Midwifery and Health Systems, University College Dublin, Dublin, Ireland.
  • Lavelle G; Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
  • Owens M; Central Remedial Clinic, Dublin, Ireland.
  • Hensey O; Central Remedial Clinic, Dublin, Ireland.
  • Norris M; College of Health, Medicine and Life Sciences, Brunel University London, London, UK.
Dev Med Child Neurol ; 66(5): 623-634, 2024 May.
Article en En | MEDLINE | ID: mdl-37849380
AIM: To explore the factors that influence the process of transitioning from child to adult services in Ireland among young people with cerebral palsy, their parents, and service providers. METHOD: This study followed a qualitative descriptive approach. Semi-structured interviews were conducted with 54 participants, including young people with cerebral palsy aged 16 to 22 years (n = 13), their parents (n = 14), and service providers (n = 27). Data were analysed using the Framework Method. Findings were categorized using an ecological model across four levels: individual, microsystem, mesosystem, and exosystem. RESULTS: Limited awareness, preparation, and access to information hindered successful transition. Microsystem factors such as family knowledge, readiness, resilience, and health professional expertise influenced transition experience. Mesosystem factors encompassed provider-family interaction, interprofessional partnerships, and interagency collaboration between child and adult services. Exosystem factors included inadequate availability and distribution of adult services, limited referral options, coordination challenges, absence of transition policies, staffing issues, and funding allocation challenges. INTERPRETATION: Transition is influenced by diverse factors at multiple ecological levels, including interactions within families, between health professionals, and larger systemic factors. Given the complexity of transition, a comprehensive multi-level response is required, taking into account the interactions among individuals, services, and systems.
Asunto(s)

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Contexto en salud: 1_ASSA2030 Problema de salud: 1_recursos_humanos_saude Asunto principal: Parálisis Cerebral / Transición a la Atención de Adultos Límite: Adolescent / Adult / Humans País/Región como asunto: Europa Idioma: En Revista: Dev Med Child Neurol Año: 2024 Tipo del documento: Article País de afiliación: Irlanda

Texto completo: 1 Colección: 01-internacional Base de datos: MEDLINE Contexto en salud: 1_ASSA2030 Problema de salud: 1_recursos_humanos_saude Asunto principal: Parálisis Cerebral / Transición a la Atención de Adultos Límite: Adolescent / Adult / Humans País/Región como asunto: Europa Idioma: En Revista: Dev Med Child Neurol Año: 2024 Tipo del documento: Article País de afiliación: Irlanda
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