Experiences of prognosis disclosure versus nondisclosure among family caregivers of persons with advanced cancer.
Death Stud
; 48(9): 905-915, 2024.
Article
en En
| MEDLINE
| ID: mdl-38117258
ABSTRACT
Caregiving in the South Asian context is often assumed by family automatically for the person with cancer (PWC). In this paper, we applied the disclosure decision-making model (DD-MM) to understand the motives behind cancer prognosis disclosure (or not) by caregivers to the PWC. Fifty caregivers participated in semi-structured interviews; and data were analyzed using Framework Approach. For the disclosing caregivers, some of the themes that emerged were consistent with the DD-MM framework while others were not. In particular, the theme "recipient assessment" was part of the DD-MM framework, while others such as unmet communication needs, caregiver self-reflection, and family support were outside of the framework. In contrast, for the non-disclosing caregivers, the reasons for nondisclosure fit very concisely into the DD-MM framework, particularly with information assessment, recipient assessment, and (non) disclosure efficacy. This study has significant implications for development of communication skills trainings around holding family meetings in India.
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Revelación de la Verdad
/
Cuidadores
/
Neoplasias
Límite:
Adult
/
Aged
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Female
/
Humans
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Male
/
Middle aged
País/Región como asunto:
Asia
Idioma:
En
Revista:
Death Stud
Asunto de la revista:
PSICOLOGIA
/
SERVICOS DE SAUDE
Año:
2024
Tipo del documento:
Article
País de afiliación:
India