Protocol for investigating data quality and reporting outcomes of pediatric gliomas in population-based cancer registry research.
STAR Protoc
; 5(1): 102905, 2024 Mar 15.
Article
en En
| MEDLINE
| ID: mdl-38386548
ABSTRACT
Cancer registry data on pediatric gliomas come with inherent limitations as inclusion criteria and registration practices of these tumors differ between registries due to specific guidelines that are lacking. These limitations can lead to biased estimates in incidence and survival outcomes. Here, we present a protocol to investigate data quality and comparability for retrospective population-based pediatric glioma studies. We describe steps for obtaining institutional permissions, dealing with data quality issues, regrouping tumors, and reporting tumors in a clinically relevant manner. For complete details on the use and execution of this protocol, please refer to Hoogendijk et al.1.
Palabras clave
Texto completo:
1
Colección:
01-internacional
Base de datos:
MEDLINE
Asunto principal:
Exactitud de los Datos
/
Glioma
Límite:
Child
/
Humans
Idioma:
En
Revista:
STAR Protoc
Año:
2024
Tipo del documento:
Article