The ERN-LUNG Population Registry: Aims, Software-Implementation and First Results.

Schaaf, Jannik; Zieschank, Axel; Goebel, Jens; Wagner, Thomas Otto Friedrich; Pennekamp, Petra; Omran, Heymut; Storf, Holger

Schaaf, Jannik; Zieschank, Axel; Goebel, Jens; Wagner, Thomas Otto Friedrich; Pennekamp, Petra; Omran, Heymut; Storf, Holger.

Afiliação

Schaaf J; Institute of Medical Informatics, Goethe University Frankfurt, University Hospital Frankfurt, Frankfurt, Germany.
Zieschank A; Institute of Medical Informatics, Goethe University Frankfurt, University Hospital Frankfurt, Frankfurt, Germany.
Goebel J; Institute of Medical Informatics, Goethe University Frankfurt, University Hospital Frankfurt, Frankfurt, Germany.
Wagner TOF; Frankfurt Reference Center for Rare Diseases, University Hospital Frankfurt, Frankfurt, Germany.
Pennekamp P; Department of General Pediatrics, University of Münster, Münster, Germany.
Omran H; Department of General Pediatrics, University of Münster, Münster, Germany.
Storf H; Institute of Medical Informatics, Goethe University Frankfurt, University Hospital Frankfurt, Frankfurt, Germany.

Stud Health Technol Inform ; 295: 55-58, 2022 Jun 29.

Article em En | MEDLINE | ID: mdl-35773805

Assuntos

Pneumopatias; Doenças Raras; Humanos; Pulmão; Sistema de Registros; Software

Palavras-chave

Patient Registry; Rare Diseases; Registries

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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Doenças Raras / Pneumopatias Limite: Humans Idioma: En Revista: Stud Health Technol Inform Assunto da revista: INFORMATICA MEDICA / PESQUISA EM SERVICOS DE SAUDE Ano de publicação: 2022 Tipo de documento: Article País de afiliação: Alemanha

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