"I think it impacts all areas of his life": Perspectives on hearing from mothers of individuals with Down syndrome.
J Appl Res Intellect Disabil
; 36(2): 333-342, 2023 Mar.
Article
em En
| MEDLINE
| ID: mdl-36527178
ABSTRACT
BACKGROUND:
Individuals with Down syndrome are known to have high rates of hearing loss, but it is unclear how this impacts their ability to communicate and function in real-world environments.METHODS:
Sixteen English-speaking and Spanish-speaking mothers of individuals with Down syndrome ages 6-40 years participated in individual, semi-structured interviews using a videoconferencing platform. Session transcripts were analysed using applied thematic analysis.RESULTS:
Mothers described listening environments, the impact of hearing on daily life, barriers to successful listening, and strategies to overcome communication barriers for their children with Down syndrome.CONCLUSIONS:
Hearing was largely discussed in terms of challenges and detriments, suggesting that hearing experiences are predominately considered to negatively impact the functional abilities of individuals with Down syndrome. Background noise and hearing loss were sources of communication difficulties. Parent-reported barriers and strategies can inform ecologically valid research priorities aimed at improving outcomes for individuals with Down syndrome.Palavras-chave
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Síndrome de Down
/
Perda Auditiva
/
Deficiência Intelectual
Tipo de estudo:
Qualitative_research
Limite:
Adolescent
/
Adult
/
Child
/
Female
/
Humans
Idioma:
En
Revista:
J Appl Res Intellect Disabil
Ano de publicação:
2023
Tipo de documento:
Article
País de afiliação:
Estados Unidos