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The European health data space: Too big to succeed?
Marelli, Luca; Stevens, Marthe; Sharon, Tamar; Van Hoyweghen, Ine; Boeckhout, Martin; Colussi, Ilaria; Degelsegger-Márquez, Alexander; El-Sayed, Seliem; Hoeyer, Klaus; van Kessel, Robin; Zajac, Dorota Krekora; Matei, Mihaela; Roda, Sara; Prainsack, Barbara; Schlünder, Irene; Shabani, Mahsa; Southerington, Tom.
Afiliação
  • Marelli L; Department of Medical Biotechnology and Translational Medicine, University of Milan, Milan, 20129, Italy; Centre for Sociological Research, KU Leuven, Leuven, 3000, Belgium. Electronic address: luca.marelli@unimi.it.
  • Stevens M; Department of Ethics and Political Philosophy and Interdisciplinary Hub for Digitalization and Society, Radboud University, Nijmegen, 6525, HT, the Netherlands.
  • Sharon T; Department of Ethics and Political Philosophy and Interdisciplinary Hub for Digitalization and Society, Radboud University, Nijmegen, 6525, HT, the Netherlands.
  • Van Hoyweghen I; Centre for Sociological Research, KU Leuven, Leuven, 3000, Belgium.
  • Boeckhout M; Lygature, Utrecht, 3521, AL, the Netherlands.
  • Colussi I; Biobanking and BioMolecular resources Research Infrastructure. European Research Infrastructure Consortium (BBMRI-ERIC), Graz, 8010, Austria.
  • Degelsegger-Márquez A; Department of International Affairs, Policy, Evaluation and Digitalization, Gesundheit Österreich GmbH (Austrian National Public Health Institute), Vienna, 1010, Austria.
  • El-Sayed S; Department of Political Science and Research Platform Governance of Digital Practices, University of Vienna, Vienna, 1010, Austria.
  • Hoeyer K; Department of Public Health, University of Copenhagen, Copenhagen, 1014, Denmark.
  • van Kessel R; LSE Health, Department of Health Policy, London School of Economics and Political Science, London, WC2A 2AE, United Kingdom; Department of International Health, Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, 6211LK, Netherlands.
  • Zajac DK; Department of Comparative Civil Law, Faculty of Law and Administration University of Warsaw, Warsaw, 00-927, Poland.
  • Matei M; European Clinical Research Infrastructure Network (ECRIN), Paris, 75013, France.
  • Roda S; Standing Committee of European Doctors (CPME), Brussels, 1040, Belgium; LSTS - Law, Science, Technology & Society Research Group, and HALL - Health and Ageing Law Lab, Vrije University Brussels, Brussels, 1050, Belgium.
  • Prainsack B; Department of Political Science and Research Platform Governance of Digital Practices, University of Vienna, Vienna, 1010, Austria.
  • Schlünder I; TMF e.V., Berlin, 10117, Germany.
  • Shabani M; Faculty of Law, Ghent University, Ghent, 9000-B, Belgium; Faculty of Law, University of Amsterdam, 1018, WV, Amsterdam, the Netherlands.
  • Southerington T; Finnish Biobank Cooperation (FINBB), Turku, 20540, Finland; Faculty of Law, University of Turku, 20014 Turun yliopisto, Finland.
Health Policy ; 135: 104861, 2023 Sep.
Article em En | MEDLINE | ID: mdl-37399677
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Contexto em Saúde: 2_ODS3 Problema de saúde: 2_cobertura_universal Assunto principal: Formulação de Políticas / Política de Saúde Aspecto: Ethics Limite: Humans Idioma: En Revista: Health Policy Assunto da revista: PESQUISA EM SERVICOS DE SAUDE / SAUDE PUBLICA Ano de publicação: 2023 Tipo de documento: Article
Texto completo
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Contexto em Saúde: 2_ODS3 Problema de saúde: 2_cobertura_universal Assunto principal: Formulação de Políticas / Política de Saúde Aspecto: Ethics Limite: Humans Idioma: En Revista: Health Policy Assunto da revista: PESQUISA EM SERVICOS DE SAUDE / SAUDE PUBLICA Ano de publicação: 2023 Tipo de documento: Article