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Call for the use of the ILAE terminology for seizures and epilepsies by health care professionals and regulatory agencies to benefit patients and caregivers.
Auvin, Stéphane; Arzimanoglou, Alexis; Brambilla, Isabella; French, Jacqueline; Knupp, Kelly G; Lagae, Lieven; Perucca, Emilio; Trinka, Eugen; Dlugos, Dennis.
Afiliação
  • Auvin S; Institut national de la santé et de la recherche médicale (INSERM) NeuroDiderot, Université Paris Cité, Paris, France.
  • Arzimanoglou A; Pediatric Neurology Department, APHP, CRMR Epilepsies Rares, member of European Reference Network EpiCARE, Robert Debré University Hospital, Paris, France.
  • Brambilla I; Institut Universitaire de France, Paris, France.
  • French J; Coordinating Member of the European Reference Network EpiCARE, Children's University Hospital San Juan de Dios, Barcelona, Spain.
  • Knupp KG; Coordinator, EPAG Patient Group, European Reference Network EpiCARE, Dravet Italia Onlus, Verona, Italy.
  • Lagae L; Department of Neurology, NYU Grossman School of Medicine, New York, New York, USA.
  • Perucca E; Department of Pediatrics, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.
  • Trinka E; Department of Neurology, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.
  • Dlugos D; Member of the European Reference Network EPICARE, Paediatric Neurology Section, Department of Development and Regeneration, University Hospitals KU Leuven, Leuven, Belgium.
Epilepsia ; 65(2): 283-286, 2024 Feb.
Article em En | MEDLINE | ID: mdl-38105624
ABSTRACT
The International League Against Epilepsy (ILAE) introduced a classification for seizure types in 2017 and updated the classification for epilepsy syndromes in 2022. These classifications aim to improve communication among healthcare professionals and help patients better describe their condition. So far, regulatory agencies have used different terminology. This paper stresses the crucial need for consistently adopting ILAE terminology in both regulatory processes and clinical practice. It highlights how language plays a significant role in healthcare communication and how standardized terminology can enhance patient comprehension. The ongoing review of guidelines by regulatory bodies offers a timely opportunity. Aligning regulatory terminologies holds the potential to facilitate discussions on future drug development and harmonize practices across diverse regions, ultimately fostering improved care and research outcomes in epilepsy treatment.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Epilepsia / Síndromes Epilépticas Limite: Humans Idioma: En Revista: Epilepsia Ano de publicação: 2024 Tipo de documento: Article País de afiliação: França

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Epilepsia / Síndromes Epilépticas Limite: Humans Idioma: En Revista: Epilepsia Ano de publicação: 2024 Tipo de documento: Article País de afiliação: França
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