Towards an Interoperability Landscape for a National Research Data Infrastructure for Personal Health Data.
Sci Data
; 11(1): 772, 2024 Jul 13.
Article
em En
| MEDLINE
| ID: mdl-39003329
ABSTRACT
The German initiative "National Research Data Infrastructure for Personal Health Data" (NFDI4Health) focuses on research data management in health research. It aims to foster and develop harmonized informatics standards for public health, epidemiological studies, and clinical trials, facilitating access to relevant data and metadata standards. This publication lists syntactic and semantic data standards of potential use for NFDI4Health and beyond, based on interdisciplinary meetings and workshops, mappings of study questionnaires and the NFDI4Health metadata schema, and literature search. Included are 7 syntactic, 32 semantic and 9 combined syntactic and semantic standards. In addition, 101 ISO Standards from ISO/TC 215 Health Informatics and ISO/TC 276 Biotechnology could be identified as being potentially relevant. The work emphasizes the utilization of standards for epidemiological and health research data ensuring interoperability as well as the compatibility to NFDI4Health, its use cases, and to (inter-)national efforts within these sectors. The goal is to foster collaborative and inter-sectoral work in health research and initiate a debate around the potential of using common standards.
Texto completo:
1
Coleções:
01-internacional
Base de dados:
MEDLINE
Assunto principal:
Interoperabilidade da Informação em Saúde
Limite:
Humans
País/Região como assunto:
Europa
Idioma:
En
Revista:
Sci Data
Ano de publicação:
2024
Tipo de documento:
Article
País de afiliação:
Alemanha