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1.
Pediatr Blood Cancer ; 43(3): 278-84, 2004 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-15266414

RESUMO

The objective of this study was to describe adolescents' with cancer experience in an adventure therapy program from a health related quality of life (HRQL) perspective. A qualitative descriptive research method was used. Eleven adolescents and five health professionals participated in a guided group adventure therapy expedition in a remote area of Canada. The expedition was videotaped and data were collected using an unstructured interview format with both adolescents and health professionals. Emerging themes were identified using a qualitative descriptive exploratory analysis. Four major themes and related sub-themes were generated. The major themes were: developing connections, togetherness, rebuilding self-esteem, and creating memories. Adventure therapy was viewed by the adolescents and health care professionals as a positive experience with multiple benefits. This preliminary research will contribute to an understanding of adolescents' experiences with cancer and provide a basis for future studies evaluating the impact of adventure therapy on HRQL.


Assuntos
Neoplasias/psicologia , Neoplasias/terapia , Qualidade de Vida , Recreação , Adolescente , Canadá , Feminino , Humanos , Masculino , Memória , Natureza
2.
Health Soc Care Community ; 12(2): 142-9, 2004 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-19777723

RESUMO

The goal of this study was to determine the perspectives of healthcare professionals (HPs) from community and hospital settings involved in a paediatric home chemotherapy programme. Using a prospective descriptive study design, HPs including paediatricians, community nurses, hospital clinic nurses, administrators and pharmacists were interviewed using a moderately structured open-ended approach. Through inductive content analysis, data were categorised under three themes reflecting HPs' perspectives on the programme: (1) perceived family benefits, (2) human resources and service delivery considerations and (3) impact on the role of the HP. All HPs reported that home chemotherapy helped reduce both disruption to family life and psychological stress. Community-based HPs reported increased job satisfaction, increased workload and increased frustration related to scheduling challenges. Hospital-based HPs reported decreased patient interaction and discrepancies in workload changes. Both groups emphasised the need for consistency in care and for specific chemotherapy training. Service delivery issues included the need for more clarity in the programme process, improved eligibility criteria, a focus on community laboratory coordination and development of centralised communications.


Assuntos
Atitude do Pessoal de Saúde , Serviços de Saúde Comunitária/organização & administração , Pessoal de Saúde/psicologia , Serviços Hospitalares de Assistência Domiciliar , Estresse Psicológico , Adolescente , Adulto , Antineoplásicos/uso terapêutico , Criança , Pré-Escolar , Coleta de Dados , Feminino , Serviços Hospitalares de Assistência Domiciliar/organização & administração , Humanos , Satisfação no Emprego , Masculino , Pessoa de Meia-Idade , Neoplasias/tratamento farmacológico , Neoplasias/enfermagem , Ontário , Estudos Prospectivos , Pesquisa Qualitativa , Ensaios Clínicos Controlados Aleatórios como Assunto , Inquéritos e Questionários , Recursos Humanos , Carga de Trabalho , Adulto Jovem
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