Understanding the experiences, needs, and strengths of people with incomplete spinal cord injury who can ambulate.

PURPOSE: To identify the experiences, needs, and strengths of people with incomplete spinal cord injury who can ambulate and to explore and discuss potential supports, services, and programs that would best assist them in the community. MATERIAL AND METHODS: In this qualitative descriptive study, interviews were the primary means of data collection. These were supplemented with descriptive standardized measures of function and life satisfaction. Qualitative data were analyzed thematically. RESULTS: Twenty-four participants were interviewed, their average age was 55 years and 46% were female. We identified three themes: 'I really couldn't go there', described the physical and social barriers experienced by participants, 'It'd be really nice to let the public know there are people out there like me' expressed the desire for greater social understanding of incomplete spinal cord injury, and 'I just don't quit', displayed the perseverance that participants demonstrated following their injury. CONCLUSION: Findings indicate service providers to improve the inclusion of ambulatory individuals with incomplete spinal cord injury in their programs. Suggestions include designing programs (community, healthcare, return to work, peer support), environments using the principles of universal design for people with incomplete spinal cord injury who ambulate, and increasing consideration of their perspectives.Implication for rehabilitation:People with incomplete spinal cord injury who can ambulate live with invisible impairments, which are often not acknowledged by family, friends, health professionals, and people with complete spinal cord injuryThey may feel excluded from activities (organized by spinal cord injury associations) that were originally designed for people with complete spinal cord injuryGreater awareness among health professionals, friends, family, and people with complete spinal cord injury of the needs of people with incomplete spinal cord injury who can ambulate is needed to increase their inclusion.

"It Looks Good on Paper, But It Was Never Meant to Be Real": Mixed-Gender Events in the Paralympic Movement.

Although the Paralympic Games have been around for over 60 years, women remain underrepresented in almost all aspects of the Paralympic Movement. It has been suggested that a way to increase women's involvement is through the implementation of mixed-gender events. On paper, this approach makes sense. However, when it comes to the implementation of mixed-gender opportunities for women, it is less clear how effective these events are in increasing participation by women in Para sport. Through document analysis and interviews with athletes and organizers of mixed-gender Paralympic sport, we explore the various strategies that four mixed-gender sports have used to address the issue of gender parity. Using critical feminist theories, we illustrate how larger social, political, and cultural ideas about gender influence women's experiences within these events and discuss the potential of using mixed-gender initiatives to address gender parity within the Paralympic Movement.

Street soccer and homelessness: Exploring social identities, health, and well-being.

Membership in social and physical activity groups has the potential to help people with a range of physical and mental health challenges. The purpose of this study was to examine the experiences of members of a unique physical activity group: people who were formerly or currently homeless participating in a street soccer program in Western Canada. Ten participants in the Vancouver Street Soccer League (VSSL) were interviewed about the extent to which this program fostered a sense of community, social connectivity, and quality of life among people with experience of homelessness. Interviews were augmented with a Social Identity Mapping activity and observations from the first author who took part in weekly practice with the VSSL for over a year. The data were analysed using thematic analysis, in which four themes were developed to reflect the findings. These included (1) Coming together through soccer, (2) Dynamics motivating continued involvement in the league, (3) Leaders and leadership: Social influence in the league, and (4) The league and health outcomes. The findings provide insight into how a street soccer program which fostered shared social identity, psychological safety, friendly competition, and social support contributed to the well-being of people impacted by homelessness, various traumas, and marginalisation.

Clarifying concepts: "Well-being" in sport.

The purpose of this commentary is to critique the application of well-being in the field of sport and exercise psychology and to provide recommendations for future research. Over the last decade well-being has been an increasingly popular concept under investigation. In the field of sport and exercise psychology, numerous scholars have examined and conducted research on well-being of athletes. While this research has resulted in an abundance of findings, there is concern in how the concept of well-being was applied, defined, and measured. The construct of well-being can be traced back to two distinct perspectives, hedonic well-being and eudaimonic well-being. These perspectives of well-being are based on different philosophical assumptions, and while they are compatible, they are theoretically distinct. In sport and exercise psychology, well-being has lacked consistent operationalization and measurement (i.e., theoretical alignment, single dimensions of hedonic or eudaimonic measured to make claims about the broader well-being constructs), is vague and loosely defined, and is often studied in isolation from a well-being perspective (i.e., no theoretical foundation). We conclude by offering three recommendations to move the field of well-being in sport research forward.

Adaptive outdoor physical activities for adults with mobility disability: a scoping review.

Introduction: Outdoor physical activity (PA) contributes to the physical and mental health and well-being of individuals with a mobility impairment. However, individuals are commonly excluded from outdoor PA because of accessibility challenges. No reviews summarizing evidence on factors that facilitate/hinder participation and inclusion of individuals with mobility disabilities in adaptive outdoor PA were identified.. This makes it challenging to establish the key components for implementing inclusive outdoor PA interventions. A scoping review was conducted to identify barriers and facilitators to participation in adaptive outdoor PA and identify suggestions for adaptive outdoor PA design. Methods: A scoping review of qualitative and quantitative studies was conducted based on the methodological framework of Arksey and O'Malley with modifications by Levac. Barriers and facilitators were categorized into four levels based on a Social Ecological Model (SEM). Suggestions for interventions designed to overcome accessibility issues of outdoor PA were classified based on Universal Design (UD). Results: Thirty-seven factors regarding barriers and facilitators of outdoor adaptive PA were extracted from 19 studies published between 2002 and 2023. Barriers and facilitators were identified primarily in four levels of the SEM, including intrapersonal, social-environmental, physical-environmental, and policy-related. Eleven design suggestions were identified and categorized according to the seven principles of UD. This study identified gaps in the presented barriers and facilitators and the design suggestions of the included studies, mainly at the social and environmental level, such as a lack of innovation in program delivery and logistics. Conclusion: This study identified gaps in knowledge about facilitators and barriers to outdoor adaptive PA and in the design of interventions addressing them. Future research should focus on the strategies addressing these gaps by involving individuals with mobility disability in designing interventions to gain a better insight into their needs.

From minding the gap to widening the gap: Paralympic athletes' experiences of wellbeing during the postponement of the Tokyo 2020 games.

In March 2020, it was announced that the Tokyo Games would be postponed for one year due to the COVID-19 pandemic. While athletes commonly face challenges in sport such as injuries, the pandemic and rescheduling of the Games was an unexpected event that had serious potential to challenge the psychological wellbeing of athletes. Furthermore, it was an event that was simultaneously experienced by all athletes preparing for the Games. It provided a novel opportunity to explore how athletes navigated this challenging environment and the subsequent potential impact on their psychological wellbeing. It also provided a unique opportunity to engage para-athletes and explore how they experienced the pandemic and postponement. This manuscript draws on a larger qualitative study of 21 Canadian athletes (14 Olympic and seven Paralympic) who were on target to compete at the 2020 Games when the postponement was announced. For this manuscript, we focus on the accounts of seven Paralympic hopefuls and their experiences of adjusting to the postponement, while attending to the unique social identities of athletes with disabilities. Adopting a constructionist lens, semi-structured interviews were conducted at two time points. Through reflexive thematic analysis, we developed three themes. "We are all in the same boat. . . or are we?" describes the Paralympic hopefuls experiences early in the pandemic and how they felt united by the Canadian response to withdraw from the Games. It then discusses how, over time, they started to understand athletes with disabilities were being inequitably impacted by the pandemic and related public health measures. "Maybe it means more to them than us" examines how their perceptions changed as they acknowledged that although all athletes were facing a disruption to their sport careers, the implications were not the same for all. "Vulnerability and the Paralympic athlete" addresses how Paralympic athletes engaged with societal narratives about risk, vulnerability and disability and what this meant for the Paralympic Movement's response to the pandemic. "Honestly, I've experienced it before" examines how the Paralympic hopefuls drew on past experiences of injury to navigate the pandemic and the protective impact on their psychological wellbeing. Findings shed light on how systemic ableism interacted with the pandemic to magnify feelings of inferiority and further marginalization but also how para-athletes drew on past experiences to navigate challenges to their psychological wellbeing.

Effect of the COVID-19 pandemic on individuals with spinal cord injury: Mental health and use of telehealth.

INTRODUCTION: Limited access to health care services and the self-isolation measures due to the coronavirus disease 2019 (COVID-19) pandemic may have had additional unintended negative effects, affecting the health of individuals with spinal cord injury (SCI). OBJECTIVES: To examine the perceived influence of the COVID-19 pandemic on individuals with SCI. First, this study looked to understand how the pandemic affected the use and perception of telehealth services for these individuals. Second, it investigated the effect of COVID-19 on mental health. DESIGN: Cross-sectional online survey. SETTING: Individuals with SCI living in the community in British Columbia, Canada. PATIENTS: This survey was offered to individuals with SCI and had 71 respondents, with 34% living in a rural setting and 66% in an urban setting. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Telehealth utility, Patient Health Questionnaire-9 (PHQ-9), Generalized Anxiety Disorder 7 (GAD-7), Fear of COVID-19 scale (FCV-19S), and Perceived Vulnerability to Disease (PVD). RESULTS: Telehealth use in the SCI population has increased from 9.9% to 25.4% over the pandemic, with rates of telehealth use in urban centers nearing those of rural participants. Thirty-one percent of respondents had probable depression and 7.0% had probable generalized anxiety disorder as measured by a score of ≥10 on the PHQ-9 and GAD-7, respectively. The mean scores on FCV-19S and PVD were 17.0 (6.6 SD) and 4.29 (1.02 SD), respectively. CONCLUSION: Telehealth use during COVID-19 has more than doubled. It is generally well regarded by respondents, although only a fourth of the SCI population has reported its use. With this in mind, it is important to understand the barriers to further adoption. In addition, higher rates of probable depression were seen than those estimated by pre-pandemic studies in other countries.

Perspectives from the spinal cord injury community with teleSCI services during the COVID-19 pandemic: a qualitative study.

PURPOSE: To explore individuals with spinal cord injury (SCI) experiences with and perceptions towards teleSCI services during the COVID-19 global pandemic in British Columbia, Canada. METHOD: Using maximum variation sampling, we invited selected individuals from a larger quantitative dataset (n = 71) to partake in an interview. In total, 12 individuals participated in the study. Interviews were recorded and transcribed verbatim. Interview transcripts were then coded and analysed by team members using qualitative descriptive analysis. RESULTS: Individuals with an SCI perceived teleSCI services to be convenient, accessible, affordable, and an effective way to access some healthcare services during the COVID-19 pandemic. However, in-person healthcare was still needed by many participants to effectively manage and treat their SCI-associated secondary conditions. CONCLUSION: Our findings suggest that, in a post-pandemic world, the SCI community would benefit from blended models of healthcare delivery that leverage telecommunication technologies to increase accessibility to healthcare while still providing in-person care for assessments and treatments.Implications for RehabilitationIndividuals with an SCI perceived teleSCI services to be convenient, accessible, affordable, and an effective way to access some healthcare services during the COVID-19 pandemic. However, in-person healthcare was still needed and desired by those with an SCI to effectively manage and treat their SCI-associated secondary conditions.In a post-pandemic world, individuals with an SCI would benefit from blended models of healthcare delivery that leverage telecommunication technologies to increase accessibility to healthcare, while still providing in-person care for those requiring ongoing treatment and management of secondary conditions associated with the patient's SCI.TeleSCI services offer the potential to allow healthcare professionals and SCI specialists to collaborate (digitally) with patients at the same time. This patient-centered approach could not only help healthcare professionals strategize effective remedies to better manage secondary conditions associated with SCI but could result in overall better-quality care received by those within the SCI community.

Exploring the Relationship Between Quality and Quantity of Physical Activity Participation in Community-Based Exercise Programs for Persons With Physical Disabilities.

Community-based exercise programs for persons with disabilities promote greater quantity of leisure-time physical activity (LTPA) participation among their members, perhaps because of the quality experiences fostered by the program. This study aimed to explore the relationship between quality and quantity of physical activity participation in the context of community-based exercise programming and the role that gender plays in this relationship. Adults with physical disabilities (N = 91; Mage = 55, 49 men) from three community-based exercise programs across Canada completed a survey asking about quality participation (Measure of Experiential Aspects of Participation [MeEAP]) and LTPA. Structural equation modeling was used to examine the relationship between MeEAP scores and LTPA. Quality participation was not related to LTPA, even with gender included as a moderator. Men reported higher levels of LTPA and quality participation than women, highlighting gender differences that should be considered when researching and designing exercise programs for individuals with disabilities.

Elite handcycling: a qualitative analysis of recumbent handbike configuration for optimal sports performance.

Our understanding of handbike configuration is limited, yet it can be a key determinant of performance in handcycling. This study explored how 14 handcycling experts (elite handcyclists, coaches, support staff, and manufacturers) perceived aspects of recumbent handbike configuration to impact upon endurance performance via semi-structured interviews. Optimising the handbike for comfort, stability, and power production was identified as key themes. Comfort and stability were identified to be the foundations of endurance performance and were primarily influenced by the seat, backrest, headrest, and their associated padding. Power production was determined by the relationship between the athletes' shoulder and abdomen and the trajectories of the handgrips, which were determined by the crank axis position, crank arm length, and handgrip width. Future studies should focus on quantifying the configuration of recumbent handbikes before determining the effects that crank arm length, handgrip width, and crank position have on endurance performance. Practitioner Summary: To gain a greater understanding of the impact of handbike configurations on endurance performance, the perceptions of expert handcyclists were explored qualitatively. Optimising the handbike for comfort and stability, primarily via backrest padding and power production, the position of the shoulders relative to handgrips and crank axis, were critical.

Expert Users' Perceptions of Racing Wheelchair Design and Setup: The Knowns, Unknowns, and Next Steps.

This paper demonstrates how a qualitative methodology can be used to gain novel insights into the demands of wheelchair racing and the impact of particular racing chair configurations on optimal sport performance via engagement with expert users (wheelchair racers, coaches, and manufacturers). We specifically explore how expert users understand how wheels, tires, and bearings impact sport performance and how they engage, implement, or reject evidence-based research pertaining to these components. We identify areas where participants perceive there to be an immediate need for more research especially pertaining to the ability to make individualized recommendations for athletes. The findings from this project speak to the value of a qualitative research design for capturing the embodied knowledge of expert users and also make suggestions for "next step" projects pertaining to wheels, tires, and bearings drawn directly from the comments of participants.

'The calendar is just about up': older adults with multiple chronic conditions reflect on death and dying.

Drawing on data from in-depth interviews with 35 men and women aged 73-91, this article examines the ways in which older adults with multiple chronic conditions talk about and prepare for death and dying. While the focus of the original study did not include questions concerning the end-of-life, the majority of our participants made unprompted remarks regarding their own and others' mortality. The participants discussed the prevalence of death in their lives as it related to the passing of significant others, as well as their own eventual demise. Additionally, the men and women expressed hopes and fears about their impending death, in particular with respect to prolonged pain and suffering, institutionalisation, and a loss of mental acuity and independence. Many of our participants also described their end-of-life plans, which included making funeral arrangements, obtaining living wills, and planning their suicides. They further reported a number of barriers to their planning for death, including a lack of willingness on the part of family members to discuss their wishes as well as a scarcity of institutional resources and support. We discuss our findings in relation to the extant research concerning older adults' experiences of death and dying, as well as Glaser and Strauss' (1971) theory of status passage and Marshall's (1986) conceptualisation of authorship and the legitimation of death.

From 'the thing to do' to 'defying the ravages of age': older women reflect on the use of lipstick.

Using data from in-depth interviews with 36 women, aged 71 to 93, this manuscript examines older women's use of lipstick. The most ubiquitously used cosmetic by the women we interviewed, lipstick was a taken-for-granted practice in the women's performance of gender. In the women's youth, the performance of gender through lipstick usage was related to rebellion and peer acceptance. In contrast, the use of lipstick in later life was related to the maintenance of an attractive and respectable appearance. We discuss our findings in light of interpretative feminist theorizing concerning beauty work, doing gender, and the presentation of self.