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1.
Health Commun ; : 1-12, 2024 Apr 01.
Artigo em Inglês | MEDLINE | ID: mdl-38557305

RESUMO

Congenital heart defects (CHDs) are present at birth and require ongoing management of personal, family, and medical aspects of care, including communication between family and medical staff. Effective communication is considered one of the main objectives of patient-centered care. Communication in pediatric medicine is especially challenging because it includes children and their parent(s), and children's cognitive and communication skills are still developing. Based on the model of behavior in pediatric communication , this study focused on pediatric cardiologists' views of the roles of children, parents, and physicians in the triadic encounter and their experiences in communicating information on pediatric CHDs in medical encounters. Semi-structured interviews were conducted with 17 experienced pediatric cardiologists and cardiac surgeons (five women and 12 men) at three medical centers in Israel. The grounded theory approach was used to identify three main categories: (1) the positioning (centrality) of the child in the setting (ideal vs. actual situation), (2) addressing parents' emotional needs, and (3) the physician's role as mediator between parent(s) and child. In each category, three elements are discussed: The physician's agenda, obstacles and challenges, and the physician's practical methods. Physicians strongly support children's involvement in triadic encounters yet face challenges in effectively integrating them into the information exchange process during cardiology consultations. Struggling to balance the principles of patient- and family-centered care, and without clear guidelines, they rely on their personal beliefs and experiences to formulate communication strategies that address parents' and children's needs.

2.
J Occup Rehabil ; 2024 Mar 28.
Artigo em Inglês | MEDLINE | ID: mdl-38538910

RESUMO

PURPOSE: Public safety personnel, including first responders, are regularly exposed to physical, social, and psychological risks and occupational requirements. These risks and requirements extend beyond the employee and may also impact the families (for example, work-family conflict, compassion fatigue). Despite recent attention directed at the population's wellness, considerably less attention is directed towards the family. This review investigates how the risks and requirements associated with these occupations affect families' lives and experiences, and correspondingly, how families respond and adapt to these risks. METHODS: In the current qualitative review, we sought to identify and describe the lifestyle experiences of public safety families as they navigate the occupational risks and requirements of public safety work. The inclusion criteria resulted in an analysis of 18 articles, representing only police (n = 11), paramedics (n = 7), and firefighting (n = 10) sectors. RESULTS: We identified and described the experiences of public safety families both by occupation and familial role. Shared familial themes across occupational groups included 'Worry', 'Communication', 'Where do I turn', 'Are they okay', 'Serving alongside', and '(Over)Protective'. However, distinct themes also emerged between different occupational groups and family configurations. Themes prevalent amongst primarily children of police included: 'Worry', 'Let's Laugh Instead', '(Over)Protective', and 'I'm not the Police, my Parent is!'. Experiences differed if the family contained on serving public safety personnel or multiple. CONCLUSION: We identified the shared and unique occupational experiences of public safety families. This review normalizes these experiences and emphasizes the need to develop initiatives to improve the well-being of families and safety employees.

4.
Digit Health ; 10: 20552076231225082, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38235418

RESUMO

Background: Providing informal care can be experienced as stressful and lead to caregiver burden. Internet-based interventions, a specific form of eHealth, have proven to be a good option to support informal caregivers. SOSteniamoci, an internet-based intervention already tested in Lithuania, was translated and adapted for Italian caregivers. Objective: As many novel eHealth solutions have been rejected by end-users due to usability problems, we aimed to evaluate the usability of the adapted platform, using a computer-based prototype. Methods: The following methods and metrics were applied: 1. task analysis, using audio and video recordings that included three usability metrics: task completion rate, frequency of errors, and frequency of help requests; 2. the system usability scale (SUS); and 3. a semi-structured interview to collect additional data about the system's design and overall satisfaction. Results: Ten informal caregivers (60% female; age M = 47.8, SD = 15.21) provided insights and suggestions for increasing the usability of the platform. The platform was considered satisfactory, with a mean score on the SUS of 75 (SD = 13.07) out of 100. The task analysis measurements highlighted difficulties in how to log in to the platform, understanding what the intervention is about, and texting the therapist. The same difficulties were also mentioned during the post-experience interview. Thus, improvements were subsequently made to enhance users' experience when navigating the platform. Finally, the platform overall was found to be intuitive and friendly, and the contents were appreciated. Conclusion: To maintain participants' engagement and prevent drop-out, it is crucial to test the usability of internet-based interventions. Even though the platform proved to be user-friendly, intuitive and easy to use, several enhancements were implemented based on participants' feedback. Thus, the usability of internet-based interventions should be tested, and end-users must be involved in the development process of such solutions.

5.
J Intellect Disabil ; 28(1): 275-284, 2024 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-37584359

RESUMO

A growing body of evidence has attested to the higher impact of COVID-19 on individuals with intellectual disabilities (IDs) than on members of the general population during the pandemic, mainly showing their higher vulnerability. However, we believe it is important to better understand how their situation interacts with the specific circumstances of the pandemic. In this article we discuss recent findings regarding individuals with IDs through the lens of two theories - the social disability model and the ecological model of trauma and recovery - and propose an integration, namely a social model of disability in crisis and trauma situations. Such a model allows for a wider perspective on understanding the way people living with disabilities (PLWDs) cope in these situations, integrating the individual aspects of coping with the social and environmental ones.


Assuntos
COVID-19 , Pessoas com Deficiência , Deficiência Intelectual , Adulto , Humanos , Deficiência Intelectual/epidemiologia , Pandemias , Capacidades de Enfrentamento
6.
Death Stud ; : 1-12, 2023 Oct 25.
Artigo em Inglês | MEDLINE | ID: mdl-37878660

RESUMO

Based on continuing bonds theory, this research examined the experience and manifestations of continuing bonds of bereaved Muslim mothers with their children who died in home accidents. This qualitative phenomenological study is based on interviews with 15 bereaved mothers (aged 28-46 years) whose children (aged 1-6 years) died 2-7 years before the interviews. Analysis revealed three themes: efforts to continue the physical bonds, challenges in the continuing bonds in cases of traumatic death, and belief in afterlife as the main element of the continuing bonds. The traumatic circumstances of the death challenged the ability to maintain the bond based on positive memories without it being overwhelmed by the traumatic memories of the last moments of the child's life. Religious beliefs played an important role in the characteristics of the bond. Maintaining the bond requires professionals to provide a therapeutic environment where bereaved mothers feel safe talking about it.

7.
Child Abuse Negl ; 146: 106491, 2023 12.
Artigo em Inglês | MEDLINE | ID: mdl-37804802

RESUMO

BACKGROUND: Research regarding sexual grooming in cases of sexual abuse by religious authorities (SARA) is limited, despite the assumption that many SARA cases go unreported. To the best of our knowledge there is no research regarding sexual grooming committed by rabbis who sexually abused Israeli Jewish religious men. OBJECTIVE: The present study examined how Israeli religious SARA victims and their family members experienced sexual grooming carried out by offending rabbis. METHODS: Based on a constructivist-phenomenological paradigm, semi-structured in-depth interviews were conducted with 16 formerly and/or currently still religious men who had been sexually abused by rabbis in their adolescence, and 14 of their family members. RESULTS: In comparison to the Sexual Grooming Model (SGM), findings showcased that unlike other kinds of sex offenders, offending rabbis incorporated religious elements throughout the grooming process. Additionally, offending rabbis used different grooming tactics than did Catholic priests (e.g., offering joint religious studies with victims' family members; using religion to justify sexual discourse and contact). CONCLUSIONS: The findings expand the SGM, enable a more complex understanding of the grooming processes in SARA, and emphasize the importance of further research focused on increasing the ability to use the SGM for detecting and preventing grooming behaviors.


Assuntos
Abuso Sexual na Infância , Masculino , Criança , Adolescente , Animais , Humanos , Abuso Sexual na Infância/prevenção & controle , Clero , Asseio Animal , Comportamento Sexual , Catolicismo
8.
Contemp Clin Trials ; 132: 107280, 2023 09.
Artigo em Inglês | MEDLINE | ID: mdl-37419309

RESUMO

Posttraumatic stress disorder (PTSD) sequelae often have ripple effects on victims' families and spouses. Yet there has been a lag in the development and study of couple therapy for PTSD. To fill this gap, we present here a protocol for a study examining the efficacy of Cognitive Behavioral Conjoint Therapy (CBCT), a 15- session couple therapy protocol meant to alleviate PTSD and improve relationship satisfaction, in the Israeli context. The study will be a randomized controlled trial examining outcomes and processes of change via self-report questionnaires, qualitative interviews, and physiological measures (e.g., both partners' heart rate variability and electrodermal activity). We will employ a modified remote treatment protocol via video conferencing. The study will examine whether there is a reduction in couples' levels of symptomatic, emotional, and behavioral difficulties following CBCT and whether relationship satisfaction and couples' physiological synchrony increases. The study will also examine physiological and psychological change mechanisms in CBCT. Sixty Israeli couples (n = 120) will be randomly assigned to either a CBCT group or a wait-list control group. Outcomes will be assessed at four timepoints: before treatment, during treatment, post-treatment, and four months after treatment. The proposed study has the potential to shed light on the unique psychological and physiological mechanisms underlying CBCT and will be the first RCT study to employ this unique methodology in CBCT research, particularly in a video conferencing setting. This study may increase our ability to offer effective, cost-efficient, and attainable treatments for patients with PTSD and their spouses.


Assuntos
Terapia de Casal , Transtornos de Estresse Pós-Traumáticos , Humanos , Transtornos de Estresse Pós-Traumáticos/terapia , Transtornos de Estresse Pós-Traumáticos/psicologia , Resultado do Tratamento , Terapia de Casal/métodos , Autorrelato , Inquéritos e Questionários , Ensaios Clínicos Controlados Aleatórios como Assunto
9.
BMJ Open ; 13(5): e070279, 2023 05 10.
Artigo em Inglês | MEDLINE | ID: mdl-37164463

RESUMO

INTRODUCTION: Providing informal care to one's romantic partner who is ill may become a highly distressing and demanding task. Based on the innovative dyadic coping model, several support interventions have been developed to alleviate informal caregivers' burden, including both caregivers' and care receivers' needs. Considering the unique challenges characterising the caregiving phenomenon, such as geographical barriers and time restrictions, digital solutions should be considered. However, there is a lack of research examining the effectiveness of dyadic digital solutions. Thus, this review aims to examine the existing literature on the efficacy of dyadic digital psychological interventions designed for caregivers and their care-receivers couples within the illness context. METHODS AND ANALYSIS: Randomised controlled trials targeting caregivers' burden among dyads of informal caregivers and care receivers will be identified via an electronic search of the following databases: PubMed, Embase, the Cochrane Library, Cinhal, Scopus, PsycINFO, MEDLINE and supplemented by hand searching of previous systematic reviews. The search will be undertaken following the PICO (population, intervention, comparison and outcome) elements. If possible, a meta-analysis will be conducted to examine: (1) the effectiveness of dyadic digital psychological interventions for reducing caregivers' burden (primary outcome) among caregivers who are in a romantic relationship with the care receivers; (2) the effectiveness of dyadic digital psychological interventions on secondary outcomes such as anxiety, depression, stress, quality of life, well-being and self-efficacy among caregivers and care receivers; and (3) moderating effects of clinical and methodological factors on caregivers' burden. Prior to inclusion in the review, retrieved papers will be critically appraised by two independent reviewers. The Cochrane Risk of Bias tool will assess the risk of bias for randomised controlled trials. ETHICS AND DISSEMINATION: Ethical approval is not required as no primary data will be collected. Findings will be disseminated through peer-reviewed publications, presentations at academic conferences and lay summaries for various stakeholders. PROSPERO REGISTRATION NUMBER: CRD42022299125.


Assuntos
Sobrecarga do Cuidador , Qualidade de Vida , Humanos , Intervenção Psicossocial , Adaptação Psicológica , Ansiedade , Cuidadores/psicologia , Revisões Sistemáticas como Assunto , Metanálise como Assunto
10.
J Community Psychol ; 51(5): 2261-2275, 2023 07.
Artigo em Inglês | MEDLINE | ID: mdl-36905649

RESUMO

The study applied relational dialectics theory to explore competing discourses in bereaved Arab mothers' talk about their bereavement experience in a collective space in rural areas of Israel, and to understand how the interaction between these discourses gives meaning to their experience. Fifteen bereaved mothers were interviewed. The mothers, aged 28-46 years, had children (aged 1-6 years) who died between 2 and 7 years previously. Analysis of the interviews revealed three main discursive struggles that characterize mothers' bereavement experience: (a) moving closer versus keeping one's distance; (b) social harmony versus personal needs; and (c) criticism of ongoing grief versus criticism of returning to routine functioning. The advantage of being part of a close-knit social network is that it provides emotional cushioning to the bereaved. This cushioning, however, does not preclude the struggle to attain normalcy after the tragedy within the parameters of the contradictory societal expectations and needs of the mourner.


Assuntos
Luto , Mães , Feminino , Criança , Humanos , Mães/psicologia , Árabes , Pesar , Estudos Longitudinais
11.
J Child Fam Stud ; 32(4): 1148-1164, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-36465801

RESUMO

This study examines the moderating role of parenthood in associations between personal and community resources and psychological distress and somatization following collective exposure to security threats. The research questions were guided by Terror Management Theory that posits that parenthood involves heightened anxiety when children are in danger yet may also provide an existential resource that can reduce the individuals' distress. The study was conducted following the 2014 Israel-Gaza conflict and included 1014 Israelis. The participants completed a questionnaire assessing levels of trauma exposure (the predictors), sense of mastery (personal resource), engagement in community activities and trust in leaders (community resources), and psychological distress and somatization (the outcomes). Results indicated that parenthood moderated several associations between trauma exposure and personal and community resources as well as paths between these resources and psychological distress. In almost all these cases, these paths were statistically significant only among parents in two different directions. Parenthood was associated with more psychological distress through lower sense of mastery and greater engagement in community activities. On the other hand, parenthood was related to lower psychological distress through greater trust in local leaders. In addition, only among parents, lower levels of mastery mediated the association between trauma exposure and somatization. These results offer significant implications for practitioners. Although parents and non-parents can be similarly affected by trauma exposure with respect to trauma-related outcomes, the way to assist them to reduce these negative outcomes should be conducted through different paths involving their personal and community resources.

12.
J Interpers Violence ; 38(5-6): 4832-4851, 2023 03.
Artigo em Inglês | MEDLINE | ID: mdl-36062821

RESUMO

The current longitudinal study focused on predicting depression among spouses of former Israeli war veterans (combat veterans or ex-prisoners of war [ex-POWs]). The research examined the direct and moderating role of secondary trauma related to their husbands' war-related experiences, stress related to being exposed to intimate partner violence in their relationship, being a second-generation Holocaust (SGH) survivor, and the effects of additional stressful life events (SLEs) since the end of the war. Wives of ex-POWs and combat veterans (N = 129) participated in two time measurements. Spouses of ex-POWs were found to be at higher risk of depression and psychological violence. Psychological violence was a risk factor for depression. The three-way interaction among psychological violence, being a SGH survivor, and experiencing SLEs was significant. In addition, experiencing earlier stressful events had a protective effect. The findings suggest that the association between early exposure and additive exposure through life is a complex iteration of factors and does not necessarily follow the vulnerability perspective.


Assuntos
Exposição à Violência , Prisioneiros de Guerra , Transtornos de Estresse Pós-Traumáticos , Veteranos , Humanos , Animais , Cônjuges/psicologia , Transtornos de Estresse Pós-Traumáticos/psicologia , Estudos Longitudinais , Depressão , Prisioneiros de Guerra/psicologia , Veteranos/psicologia , Violência , Estágios do Ciclo de Vida , Israel
13.
Psychol Trauma ; 2022 Oct 20.
Artigo em Inglês | MEDLINE | ID: mdl-36265047

RESUMO

OBJECTIVE: Much research has been conducted on the clinical course of posttraumatic stress disorder (PTSD), from the perspective of viewing it as a chronic disorder. In the present study, however, we propose viewing PTSD via the recovery paradigm, based on the sociointerpersonal model for understanding posttrauma, which offers a holistic and multidimensional definition of recovery and prognosis (Maercker & Horn, 2013). Specifically, the contribution to recovery of both self-disclosure as a personality trait and self-disclosure of traumatic experiences within the couple relationship were examined. Posttraumatic distress levels and perception of the response following self-disclosure in the couple relationship were examined as mediating variables. METHOD: The study population included 180 participants between the ages of 20-71 who had been exposed to at least one traumatic event in their lives. RESULTS: The study findings revealed that people with a high propensity for self-disclosure and more self-disclosure in the couple relationship had higher levels of personal recovery. The level of posttraumatic distress mediated the relation between self-disclosure in the couple relationship and the perception of recovery. Only the perception of a positive response following exposure of trauma in the couple relationship was a mediator in the association between self-disclosure of traumatic experiences in the couple relationship and recovery. CONCLUSIONS: The study indicates the importance of communication regarding the traumatic event in general, and with reference to the perception of the response to the exposure itself. In addition, the study contributes to broadening the recovery paradigm regarding PTSD. (PsycInfo Database Record (c) 2022 APA, all rights reserved).

14.
Eur J Psychotraumatol ; 13(2): 2116825, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-36186160

RESUMO

Background: Post-traumatic stress symptoms (PTSS) are often experienced by children and family members after pediatric traumatic medical events (PTMEs). Assessing families' psychosocial risk factors is a crucial part of trauma-informed practice as it helps identify risk for PTSS in the aftermath of PTME. Objectives: Using the Psychosocial Assessment Tool 2.0 (PAT2.0), this study describes the psychosocial risk of families following PTMEs in two ways: 1. Describing the psychosocial risk defined by the PAT2.0 based on three-tiered risk levels; 2. Using latent profile analysis (LPA); identifying psychosocial risk profiles and examining how child- and injury-related factors can affect profile membership. Methods: Caregivers of 374 children following PTMEs admitted to a pediatric rehabilitation department in Israel completed the PAT2.0. Total PAT2.0 score and the seven PAT2.0 subscales (family structure/resources, social support, child problems, sibling problems, family problems, caregiver stress reactions, and family beliefs) were included in the first analysis. Mean PAT2.0 scores of three risk categories (universal, targeted, clinical) were calculated; LPA, which allows for cross-sectional latent variable mixture models to identify heterogeneity within a population, and multinomial logistic regressions using six out of the seven PAT2.0 subscales, were used to determine distinct profile differences and predictors of profile membership. Results: The three-tiered risk levels revealed were relatively high, as compared to levels in families of children with other clinical diagnoses. LPA yielded a three-profile solution: low family risk (63.53%); high caregiver stress, above-average levels of family risk (22.5%); and sibling problems, above-average levels of family risk (13.94%). Ethnicity and type of injury predicted group membership. Conclusion: Families of children following PTMEs are at increased psychosocial risk. A clinically useful approach to identifying and preventing PTSS may be to evaluate specific domain patterns rather than just the total PAT2.0 risk level alone, based on the PAT2.0 subscales.


Antecedentes: Síntomas de estrés postraumático (SEPT) a menudo son experimentados por los niños y miembros de la familia después de eventos médicos pediátricos traumáticos (PTME, por sus siglas en inglés). La evaluación de los factores de riesgo psicosocial de las familias es una parte crucial de la práctica informada sobre el trauma, ya que ayuda a identificar el riesgo de SEPT después de PTME.Objetivos: Usando la Herramienta de Evaluación Psicosocial 2.0 (PAT2.0), este estudio describe el riesgo psicosocial de las familias luego de un PTME de dos maneras: 1. Describiendo el riesgo psicosocial definido por la PAT2.0 basado en niveles de riesgo en tres niveles; 2. Usando un análisis de perfiles latentes (LPA, por sus siglas en inglés); identificar perfiles de riesgo psicosocial y examinar cómo los factores relacionados con los niños y las lesiones pueden afectar la pertenencia al perfil.Métodos: Los cuidadores de 374 niños después de un PTME admitidos en un departamento de rehabilitación pediátrica en Israel completaron el PAT2.0. En el primer análisis se incluyeron la puntuación total de PAT2.0 y las siete subescalas de PAT2.0 (estructura/recursos familiares, apoyo social, problemas de los niños, problemas de hermanos, problemas familiares, reacciones de estrés del cuidador y creencias familiares). Se calcularon las puntuaciones medias de PAT2.0 de tres categorías de riesgo (universal, específico, clínico); se usaron LPA, que permite crear modelos transversales de una mezcla de las variables latentes para identificar la heterogeneidad dentro de una población, y regresiones logísticas multinomiales usando seis de las siete subescalas PAT2.0, para determinar distintas diferencias de perfil y predictores de membresía al perfil.Resultados: Los tres niveles de riesgo revelados fueron relativamente altos, en comparación con los niveles en familias de niños con otros diagnósticos clínicos. LPA arrojó una solución de tres perfiles: bajo riesgo familiar (63,53%); alto estrés del cuidador, niveles de riesgo familiar superiores a la media (22,5%); y problemas entre hermanos, niveles de riesgo familiar superiores a la media (13,94%). La pertenencia étnica y el tipo de lesión pronosticaron la pertenencia al grupo.Conclusión: Las familias de niños que presentan PTME tienen un mayor riesgo psicosocial. Un enfoque clínicamente útil para identificar y prevenir el TEPT puede ser evaluar patrones de dominio específicos en lugar de solo el nivel de riesgo total de PAT2.0, basado en las subescalas de PAT2.0.


Assuntos
Neoplasias , Pais , Criança , Estudos Transversais , Humanos , Neoplasias/psicologia , Pais/psicologia , Psicometria , Medição de Risco , Estresse Psicológico/diagnóstico
15.
Mil Med ; 2022 Sep 15.
Artigo em Inglês | MEDLINE | ID: mdl-36106492

RESUMO

OBJECTIVE: Adjusting to a military environment is a complex process, with unique demands and various stressors placed on conscripts. In this study, we examined the unique and combined contribution of the independent variables that constitute an individual soldier's personal resources-the meaningfulness of the military role and the match between expectations and the job itself; cognitive flexibility; social support; and seeking help from a mental health officer (MHO)-to the adaptation (dependent variable) of noncombat soldiers to military service. METHOD: The study group comprised 200 Israel Defense Forces noncombat soldiers aged 18-23 years (Meanage = 20.046 years, SD = 0.951). Of them, 107 (53.3%) had consulted a MHO. The remaining soldiers who had not consulted an MHO (n = 93, 46.5%) served as the comparison group. Research tools included the work and meaning questionnaire, the Cognitive Flexibility Scale, the Medical Outcomes Study (social support) questionnaire, and adaptation to the army questionnaire. RESULTS: Adaptation to service was found to relate positively to the meaningfulness of the military role, cognitive flexibility, and social support. Social support partially mediated the relation between cognitive flexibility and adaptation to service. Additionally, soldiers who had consulted an MHO had lower levels of cognitive flexibility and social support, and they adapted less well to service compared to the comparison group. CONCLUSIONS: The study indicates that soldiers who seek help have lower resources. Additional personal and environmental variables that contribute to the adjustment of soldiers in noncombat positions were also identified.

16.
Child Abuse Negl ; 134: 105901, 2022 12.
Artigo em Inglês | MEDLINE | ID: mdl-36162381

RESUMO

BACKGROUND: Clergy perpetrated sexual abuse (CPSA) is a widespread phenomenon, with many consequences for the victims. To the best of our knowledge, no research has focused on the religious consequences for Israeli Jewish religious men who were sexually abused by rabbis in their adolescence or emerging adulthood. OBJECTIVE: To describe the implications of CPSA for the religious faith, practice, and attitude towards rabbis among sexually abused Israeli religious men. METHODS: Based on a constructivist-phenomenological paradigm, semi-structured in-depth interviews were conducted with eight formerly and/or currently still religious men who had been abused by rabbis. RESULTS: Three main themes regarding religious consequences, emerged from the findings: the impact of CPSA on the religiosity of the victims; the effect of being sexually abused by a rabbi on victims' attitudes toward other rabbis; and the process of finding a new rabbi after the abuse. CONCLUSIONS: This preliminary study opens a window onto the complex nature of this type of sexual abuse and its religious consequences. The unique findings regarding the range of religious implications are not consistent with previous studies about Christian victims. These findings contribute to the understanding of this distinctive form of abuse, for establishing intervention techniques that will assist the victims and for additional research.


Assuntos
Abuso Sexual na Infância , Clero , Masculino , Adolescente , Humanos , Adulto , Criança , Israel , Judaísmo , Pesquisa Qualitativa , Cristianismo
17.
Qual Health Res ; 32(10): 1574-1589, 2022 08.
Artigo em Inglês | MEDLINE | ID: mdl-35737473

RESUMO

The provision of informal care presents a significant global challenge. To better understand how cultural factors underpin and shape motivations and willingness to provide informal care for adults, an in-depth qualitative synthesis was conducted. Six electronic databases and a wide range of additional sources were searched. Following meta-ethnographic guidelines, 37 qualitative studies were synthesised. Six main concepts were identified: cultural self-identity, which appeared as an overarching explanatory concept; cultural duty and obligations; cultural values; love and emotional attachments; repayment and reciprocity; and competing demands and roles. These concepts informed a model of cultural caregiving motivations, offering an inductive-based exploration of key cultural motivators and highlighting implications for theory development, future research, policy and practice. The model holds implications for the actual exchange of care. Caregiver motivations should not be taken for granted by healthcare or social care professionals involved in assessment and support planning, educational endeavours at a population level may support caregiving, and support should be sensitive to cultural caregiving motivations.


Assuntos
Antropologia Cultural , Cuidadores , Adulto , Cuidadores/psicologia , Humanos , Motivação , Pesquisa Qualitativa , Apoio Social
18.
J Marriage Fam ; 84(3): 900-919, 2022 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-35601877

RESUMO

Objective: This qualitative study's aim was to learn how the spouses and romantic partners of frontline doctors and nurses dealt with the acute stress of the outbreak; the kinds of support they provided when the frontliners had to navigate COVID-19 at their hospitals; and, according to their perceptions, how this crisis impacted their relationship. Background: This study focused on the partners of frontliners working in hospitals during the crisis of the coronavirus outbreak in New York City (NYC)-one of the earliest epicenters of the COVID-19 pandemic in the United States. This study expanded upon the Family Stress Model-which examines how economic problems can affect marital quality and stability. Method: Interviews were conducted with 29 partners of frontliners who had been treating COVID-19 patients in NYC hospitals during the pandemic outbreak from February 29 to June 1, 2020. Partners were recruited via snowball sampling, interviewed via Zoom or telephone, and results were analyzed using thematic content analysis. Results: The following themes were found in the narratives: The burden of running the home independently; providing various kinds of support (concrete, emotional, and refraining from sexual and physical closeness); and the effects of the pandemic on the relationship via writing a will and discussing the possibility of death, the lack of relationship-ending threats, and emerging from the crisis with a strengthened relationship. Conclusion: The pandemic crisis unified the partners and frontliners, even in the face of multiple stressors.

20.
Health Psychol ; 41(10): 674-682, 2022 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-35389689

RESUMO

OBJECTIVE: Cardiac-disease-induced posttraumatic stress symptoms (CDI-PTSS) have been detected among a substantial number of cardiac patients. Even though patients' caregiving partners are also susceptible to CDI-PTSS, the research on cardiac partners' CDI-PTSS is scarce. Based on the ecological model of trauma and recovery, we investigated levels of partners' CDI-PTSS over time, and factors that potentially contribute to it. METHOD: During patients' hospitalizations, partners (N = 143) provided data regarding demographic variables and peritraumatic emotional distress (depression and anxiety). Four months later, partners' CDI-PTSS, their emotional distress, fear of patients' illness progression, and perceived social support were assessed. Eight months posthospitalization, partners filled out questionnaires tapping CDI-PTSS. Hypotheses were tested using structural equation modeling (SEM). RESULTS: A mild level of CDI-PTSS was detected among partners, 4 and 8 months after patients' cardiac event. Partners' distress as measured during patients' hospitalization, and their fear of patients' illness progression, contributed to the manifestation of CDI-PTSS over time. CONCLUSIONS: The findings shed light on potential risk factors for partners' CDI-PTSS. Interventions to ameliorate partners' distress and fear of illness progression should be designed toward reducing the development of CDI-PTSS among partners. (PsycInfo Database Record (c) 2022 APA, all rights reserved).


Assuntos
Cardiopatias , Transtornos de Estresse Pós-Traumáticos , Ansiedade/psicologia , Humanos , Estudos Longitudinais , Apoio Social , Transtornos de Estresse Pós-Traumáticos/psicologia , Inquéritos e Questionários
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